DIEP 2015

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  • Scarlett152
    Scarlett152 Member Posts: 175
    edited July 2015

    and to get on their schedule. Good PS book up months in advance.

  • GraceB1
    GraceB1 Member Posts: 213
    edited July 2015

    Consult with the PS before the mastectomy. It may change how much skin they save and wether a tissue expander is put in at the time of surgery.

  • lovecat3
    lovecat3 Member Posts: 53
    edited July 2015

    Hello! I had to wait 4yr for reconstruction I did a lot of research re the DIEP procedure I live in San Diego area lots of great medical here but I chose to go to PRMA in San Antonio Sept 2014

    I wish I could explain how the DIEP changed my life I honestly woke up a different person She my new breast is warm soft and so beautiful I'm returning to San Antonio in November for the revision surg

    Please feel comfortable to ask any questions I'm an open book and wish every woman going thru this nightmare at the very least will find comfort if they choose with reconstruction

    All the best to you

  • Bunnybumps
    Bunnybumps Member Posts: 75
    edited July 2015

    Is it just me, or are any of you out there with BMX and DIEP having a hard time walking? Not walking upright, which I expected, but just walking? It's been four days and I can't get much further than about 20 feet my own (to the bathroom and back, with a walker) or without a break. The pain is waking me up every 3 hours. I'm walking about 4-5 times a day and the doctor is ordering PT. Just curious how much of what is happening is the surgery vs a Fibromyalgia flare-up. I also posted question in July 2015 Surgery Sisters

  • Lawrence1955
    Lawrence1955 Member Posts: 1
    edited July 2015

    hi Lovecat


    I am finishing radiation in two weeks and am very interested in getting the DIEP in about 9 months. My friend had it done and discovered that her abdominal muscles had been compromised and she finds it difficult to do every day things like getting out of bed etc. Did they take any muscle tissue during your procedure?


    Thanks so much


    Marina
  • slv58
    slv58 Member Posts: 1,216
    edited July 2015

    Bunnybumps, I'm sorry your experiencing difficulty walking, is it that you get short of breath or the pain? I had a collapsed lung after surgery so I got winded very quickly but seemed to get better daily with returning strength. If it's the pain, are you taking your meds to keep on top of it? It's much easier to control pain before it gets bad and you have been through major surgery.

    Lawrence1955, apparently I had a small amount of muscle taken ( my surgeon said that it would depend when she got in there and if needed she would only use a very small amount) and other than the recovery time, I've found no issues at all. I wouldn't have known if not told. The first month of recovery was hardest and as soon as I could start sleeping on my side, I seemed to heal much quicker. I found it very much like the 2 C sections I had. You use your arms to push yourself up to get out of bed. Hold a pillow over abdomen and apply pressure for coughing or sneezing. It takes some time to heal but is so worth it! 

  • WalleGator
    WalleGator Member Posts: 102
    edited July 2015

    CatsRus - thank you for the shoulder info. I'm sure my docs can get me someone here. Both my shoulders just ache! I waved to someone at lunch today, not even thinking, and that movement really hurt. I see the doc next week so I'm happy. Good about the acupuncture, too. I'm open to anything!

    Helplessly Hoping - get an appt ASAP. Some of these doctors are swamped! I knew I wanted the DIEP, it took a month to get in to see them, then six months to get into surgery! Good doctors are busy, and unfortunately, cancer is prevalent. Good luck!

  • mary625
    mary625 Member Posts: 1,056
    edited July 2015

    Bunnybumps--I think what you're experiencing with the fatigue in walking is probably from the length of surgery and the blood loss. It does take a little while to recoup, but it will happen. I of course do not know if fibromyalgia might be kicking in or even triggered by the immune response to surgery. Just take it easy on yourself. Yes, there are women here who post about walking miles around NOLA within days, but I think they are the minority. Also, what are you taking for pain? Usually those meds will also make you sleepy. I will say that I always find that as soon as I can switch to Advil or equivalent, that is the best for me...even better than the opoids...but of course you must talk to your doctor about that first.

    Lawrence--it's taken awhile, but ab muscles are getting better at 10 months out from DIEP. I do not know if some muscle was taken in my situation or not. I found that the different plastic surgeons had different responses for that possibility during consults. However, I think they have to do things that aggravate the ab muscle and area in order to loosen the skin to pull it down and close the incision. It is taking time but it is getting much better.
  • Bunnybumps
    Bunnybumps Member Posts: 75
    edited July 2015
    slv58, my breathing is good and I'm on top of my pain meds. Even though the surgical procedures are healing as planned, the rest of my body is not cooperating. I've had a couple of run-ins with a doctor who didn't understand what Fibromyalgia and peripheral neuropathy do to the body, especially after a trauma to the body. Everyone here on the floor has been amazed with the progress I was making and how hard I was trying. Then it started to crash. I started questioning my own sanity. Then this doctor tried to intimate that I am being dramatic and not trying hard enough. That I have to push thru the pain. You can imagine my reaction. The rest of the floor didn't have to.

    I was finally evaluated by a physical therapist who, after two short, painful tests, pronounced me unfit to return home and in need of at least two weeks of short-term sub-acute rehabilitation with intensive physical therapy. I had a very satisfying "I-told-you-so" moment. So I am here in hospital for the weekend until we see if/when I can be moved. We need to get authorization from the insurance company and then find a bed in an approved facility. If it's not approved, then we will have to get the insurance to send aides and PTs to our house. DH would prefer that, but he doesn't see that if we do that, my recovery will be slower. In any case, I am more calm now about recovery.
  • Sue111
    Sue111 Member Posts: 3
    edited July 2015

    hi Meded,

    Dr Lee was my surgeon for a prophylactic double mastectomy on June 8. I'm about your size as well. I went in as a 34a, and post DIEP I'm back to my same size, which is what I expected given my petite frame. I had a skin and nipple sparing mastectomy. Dr Lee is amazing; both my breast surgeon and he were able to both remove my breast tissues and reconstruct with the belly tissue using incisions no larger than a 50 cent piece under each nipple. When I first met him, he told me he was a perfectionist. He was true to his word! My surgery was 14 hours due to having smaller blood vessels, but the end result is incredible. I feel and look like me again. My surgery was at Beth Israel. I can't praise that staff enough for guiding me through this entire process.

  • Moderators
    Moderators Member Posts: 25,912
    edited July 2015

    Hi Sue, welcome to Breastcancer.org. We're so sorry for the circumstances that bring you here, but we're so very glad you've found and joined our community. Thank you for posting and sharing your experiences here with everybody.

    The Mods

  • Outdoorswoman
    Outdoorswoman Member Posts: 28
    edited July 2015

    Hi all, I have a question for you. I'm having my delayed DIEP on August 12th, my BMX was in April and will spend 3 nights in the hospital. I have DH help for 3 additional days will I about able to function for 8 hours on my own at that point or do I need to arrange for help? Also wondering if any one changed pant sizes after surgery or will my current work clothes still fit, I will admit my weight is more than it should be but not obese.

  • slv58
    slv58 Member Posts: 1,216
    edited July 2015

    Outdoors, I think you should be alright on your own, just make sure you have drinks and food at an easy to reach level in fridge. If you accidentally drop something, you won't be able to bend over to pick up- that happened to me and it drove me nuts seeing a fork on the floor for hours! Lol. 

    I found my clothes just fit better, maybe they were all a bit tight to begin with. One thing I never thought of before hand was panties. All of mine sat right across the incision! Thankfully the hospital gave me 5 pairs of high waisted ones which tied me over until I could go out and buy some of my own. I still find the high waisted much more comfortable as they aren't sitting on scar. 

    Good luck with your surgery, give yourself time to heal, have lots of extra pillows ready for sleeping. Try and have things within easy reach of your bed- tissue, lip cream, water. You'll be fine! 

  • websister
    websister Member Posts: 1,092
    edited July 2015

    Outdoorswoman - agree that with a little planning you should be good on your own for 8 hours at that point in recovery; I was in hospital 5 days postop and then home - my husband went back to work that afternoon while I caught up on my sleep; then he returned to his regular work schedule.

    Re: pants - I had some abdominal swelling - still have some but much better - I found it difficult if not impossible to close the waist on my pants without discomfort - elastic waist pants worked well for this time.

    Morwenna - my surgery date for Stage 2 has been moved out to October 21st - you never know, we may end up finishing up at the same time


  • Outdoorswoman
    Outdoorswoman Member Posts: 28
    edited July 2015

    Thank you sly58 and webmaster for you help. Now all that's left is to wait for the big day😊

  • WalleGator
    WalleGator Member Posts: 102
    edited July 2015

    Saw my surgeon yesterday - no stage 2 for me! I'm going to do the 3D nipple tattooing instead, and only needed some minor fill in one foob. However, I do have a lump of fat necrosis in the corner of one foob .It's hard as a rock, and I thought it was scar tissue. Doc said she could take it out in an office procedure but it could reabsorb on its own. I'll book that for later in the year if needed - and so insurance covers it! However, no fill for me. She doesn't do that as an in-office procedure. So good news and bad news...

    Outdoors - I agree with websister and slv58. You should be ok on your own. I was in for four days, then went home. Kids were in school, and of all things, I couldn't access the ice! You have to pull hard to get the ice bin out, then you have to reach up and in! A friend stopped by with food (wonderful!) and I had her fill me up a baggy and place it down low. The simple things we take for granted!


  • Outdoorswoman
    Outdoorswoman Member Posts: 28
    edited July 2015

    We sure do. When I had my mastectomy in April some put my coffee away up high, it was a very long morning and I told them about it when they got home night 😁, needless to say I have already remind everyone to leave it down.

  • dismay15
    dismay15 Member Posts: 343
    edited July 2015

    Hello I am new and was wondering if anyone could tell me how much mobility I will lose while recovering from BMX and immediate DEIP. I am expected to be in the hospital for 4 days, I will have in home help for three days after, if things are within reach and easy to lift, will I be able to use my arms and get around on my own. No bending I'm sure - but do I need more in home help..

  • Morwenna
    Morwenna Member Posts: 1,063
    edited July 2015

    You should be ok by a week post op. You might not be able to pick something off the floor or raise your arms to reach high above your head.

    You will probably still have drains in, which can be a fiddle in the shower (if your surgeon allows you to shower while they are in) A shower stool is helpful, although I used mine to sit and wash myself by the sink before I could manage the shower, and then to sit and dry myself. I never actually used it in the shower.

    Some people seem to feel they need a walker to get about at first. Personally I didn't have one, but found my standing/walking was limited to a very few minutes to start with!

  • ssteacher
    ssteacher Member Posts: 22
    edited July 2015

    Dismay15--I had bmx with immediate diep reconstruction on 7/17. I was in the hospital 4 nights and came home on 7/21. My husband went back to work on 7/27. I had him help me get dressed and washed up in the morning and then was on my own for the rest of the day. I still can't lift my arms or carry anything heavy. I also can't bend down. My husband makes me a salad or something for lunch that I can just take out of the frig and eat when I'm hungry. My microwave is above the stove so I can't heat anything up on my own. I keep everything else on a table by my bed--phone, laptop, snacks, bottles of water, pills, etc.... It is fine. I am still very tired and sleep a lot during the day.

  • dismay15
    dismay15 Member Posts: 343
    edited July 2015

    Thank you so much Morwenna and ssteacher for your replies. It is a relief to have a better sense of what to expect.

  • Scwilly
    Scwilly Member Posts: 489
    edited July 2015

    I had my sister come to stay (form the UK) for the first week after I came home from hospital. She's a midwife/nurse so was really helpful with helping me recover and any medical things. Then my in-laws (also UK) came to stay for two weeks. I would say that after the first week - it was mainly help with keeping the house running and by the third week home I was feeling so much better and did more cooking but no heavy work. I feel I would have been ok at home on my own during the day after a week at home. I did remain tired though and need naps during the day and the company was great. Definitely a time to keep things simple and slow. I was allowed to shower with drains as long as I kept them away from the spray - but not to put my hands above my head for a while. So my hair had to wait but it was lovely to be able to get clean elsewhere!

    I wish everyone a speedy and comfortable recovery for upcoming operations. I am so pleased with my results 4 months down the line. One thing I found useful is to have lots of pillows and also something near the bed to cling on to to get up - my stomach muscles still feel strange and my new habit is still to grab the bedside table to get upright. Not sure how long this will last. I am now back at the gym and swimming and walking as much as I can (no running due to my dodgy knee)

    Sarah

  • Morwenna
    Morwenna Member Posts: 1,063
    edited July 2015

    As to the hair washing question: what they really want is for you not to raise your elbows above shoulder height. So really you should be able to wash your hair if you tip your head down, and keep your elbows tucked ...... Try it?

    The only time I had help to wash my hair was the day I got home, and I was desperate after 5 sweaty days in hospital. I stood bent over the kitchen sink and dh washed it for me! xxx


  • andiy
    andiy Member Posts: 1
    edited August 2015

    Hi, I'm seeing such mixed reviews on plastic surgeons in Tampa...

    I am wanting to have DIEP flap procedure.

    Dr. Pedro Solero is on my insurance. Most reviews rave about him, but there are a couple that were very displeased. Anyone had this procedure done by him recently?

    Thank you!

  • Moderators
    Moderators Member Posts: 25,912
    edited August 2015

    andiy, we hope you are able to get some advice on this. We are sorry that we cannot help you directly with this.


  • Morwenna
    Morwenna Member Posts: 1,063
    edited August 2015

    Welcome to bc.org and the DIEP 2015 thread.

    If you look at the timeline at the top, people sometimes say where they had their surgery and/or who did it. I see WalleGator was in Tampa. Once people are recovering from their surgery they might not come so often to look at this thread, so it might be worth sending her a private message to ask your questions.

    You might also similarly check DIEP threads from previous years, or start a new thread in the reconstruction forum.

    A couple of things to bear in mind though:

    1) Reviews always have some "outliers". Think of the most successful movie or award winning book you know. If you check the reviews there is bound to be someone who thought it terrible. If the majority of the reports are glowing I'd be inclined to believe them, but there is always a risk of things not working out - no guarantees in medicine, and that person may be a lot more vociferous than another for whom everything went well.

    2) I think I would advise a little caution about discussing individual named doctors on an open forum. One can be as "honest" as you like in a private message, that's all I'm saying.

    Another site I know does not even allow naming of individual facilities let alone surgeons (libel laws, you know!)

    Hope you find your way to a decision you are comfortable, if not happy, with!!

  • WalleGator
    WalleGator Member Posts: 102
    edited August 2015

    andiy - I had mine at Moffitt with drs Paul Smith and Deniz Dayciglou (sp?). They both knew what they were doing and I'm thrilled with my results. Dr. Day didn't have the best bedside manner, but she knew her stuff. I haven't heard of Solero...sorry

  • Tulip21
    Tulip21 Member Posts: 4
    edited August 2015

    I'm scheduled for a mastectomy, other breast was removed last year, and DIEP reconstruction for both on August 20. I had my pre op with the surgeon yesterday, and was told that I would be in the ICU for a day or two post surgery and would be wearing a warming blanket for several days. I'm told that the patients complain because they are very sweaty and uncomfortable. I really don't like heat in any situation. For those of you who have had DIEP reconstruction, what is your experience with the warming blanket.

  • GraceB1
    GraceB1 Member Posts: 213
    edited August 2015

    I didn't have a warming blanket but hated ICU and the hourly checks.

  • trying2staypositive7
    trying2staypositive7 Member Posts: 96
    edited August 2015

    Hey Tulip!

    I had the warming blanket. It's not that bad. You are going to be so tired from the surgery that you won't mind or recognize the warming blanket. Hope that this helps!

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