April 2015 Chemo Crew... Starting in April? Please join us!

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  • ksusan
    ksusan Member Posts: 4,505
    edited July 2015

    #35: I am grateful to live in a community where I see osprey flying.

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  • GingerChi
    GingerChi Member Posts: 252
    edited July 2015

    Yikes! Thats what I'm afraid of ksusan!

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  • ankledolphin
    ankledolphin Member Posts: 99
    edited July 2015

    GingerChi For my first chemo treatment, I didn't take anything, because they didn't give me the prescriptions ahead of time, so I got the steroid in my iv.

    After that I was given dexamethasone 4 mg tablets- had to take a total of 4 pills the day before, day of and day after. I did not get any steroid in my IV from what I know. A normal chemo day would be 2 pills of zofran, 1 of atavian, iv of bendryl, Carboplatin, Taxotere, herceptin and perjeta


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  • ankledolphin
    ankledolphin Member Posts: 99
    edited July 2015

    Alibeths - love the hair.....i am in fear of mine not coming back due to the fact my younger brothers are balding, my mom's hair is thin, my dad is bald, and I suffer from hair pulling, so I have a few spots on my head where I think nothing will ever come back after this!

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  • KBeee
    KBeee Member Posts: 5,109
    edited July 2015

    I worked yesterday morning and again all last night! Wow! I missed a lot while I was away!!!

    Alibeths, Your time, effort and suffering were worth it. Your hair is amazing!

    Gingerchi, I have always had 20 mg IV. Nothing before or after. Back in 2013 on Taxotere, I had to take it a few days before and after.

    Lynne, So glad to hear you are feeling a bit better and some energy is returning.

    Peabrain, Yahoo on not having to do rads!!!!!!!!!!!!!!!!!!!!!

    Andrea, The pictures are gorgeous! DH and I went to Vancouver and Victoria BC on our honeymoon 20 years ago!

    Renee, My friend wants me to go with her to yoga, and I am afraid to try that in public. I think I'd look drunk also!!!!!

    Littleblue, It is nice once in a while to feel good enough to forget you're on chemo. I do that sometimes and then I walk by a mirror and remember right away!!!!!

    Tina, Glad you're able to run more than you thought. Hopefully your HGB is coming up a bit.

    My cold is marginally better. I feel good; just can't shake the darn cough. I'll take it though since I do feel good...much better than not feeling good and being stuck on the couch. My big toe got tangled in the handle of our boat during a training exercise at work yesterday. It is big and colorful and I really, really hope it is not broken. My family has had enough broken foot bones for the summer. I probably should get an x-ray today. I'll add it to my list of things to do. If it weren't right at the joint, I would just put a shoe on and ignore it, but I know that would be dumb.


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  • Alibeths
    Alibeths Member Posts: 656
    edited July 2015

    Thanks!!! I shaved and lost my hair in 2013. I wasn't doing it again!!!!!!!!!!!!!!!!!!!!!! The caps was SO bad, but done!! I would reccomencd it to anyone going through this shit. it makes you feel human and I'm hoping it will help heal me faster. But, the hair does grow back!!!!! : )

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  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited July 2015

    am I going to die of infection if I accidentally got my dressing over my port wound wet and had to change it last night? It was only on for 12 hrs. I'll ask the MO the same thing when they open but how worried should I be?

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  • KBeee
    KBeee Member Posts: 5,109
    edited July 2015

    If you put a clean,dry dressing on this morning, it should be okay. Just keep an eye on it.

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  • Stephmoen
    Stephmoen Member Posts: 563
    edited July 2015

    I think it's ok littleblueflowers i literally have an open wound they didn't close my area after they took my port out I get it wet but just put new dry bandage on I actually have to pack it andstick gauze up into the hole it's gross and I look like a wounded soldier so attractive at summer time

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  • ksusan
    ksusan Member Posts: 4,505
    edited July 2015

    Kbeee, ouch! Hope that toe is okay.

    Littleblue, the morning after the port went in, the nurse removed the bandage (and steristrips), tutting about how docs don't understand that dressings trap bacteria and should not be left on for a week. She didn't redress it. If I'd been going to work I'd have asked for a light dressing to protect against my shirt. After the port came out, I removed my dressing in under 24 hours because the hypoallergeic tape was breaking me out.

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  • StacyMc329
    StacyMc329 Member Posts: 48
    edited July 2015

    I got my port out yesterday. It's been 2 weeks since my last taxol and my feet and fingers have gotten increasingly worse as far as the numbness and tingling. I start rads on August 3 for 5 weeks. image


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  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited July 2015

    Stacy- do you have any pain from the deportation? For some reason I'm terrified of getting it out. But I don't want it in

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  • StacyMc329
    StacyMc329 Member Posts: 48
    edited July 2015

    Don't be to afraid of getting it out....getting it out was def a bit diff then getting it in. I was awake for the deportation but got some drugs to help with the pain and they numbed the area very good so I could only feel slight tugging and pulling. It was quit sore yest. But today it's not been too bad. Just a twinge of pain every now and again.

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  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited July 2015

    thanks Stacy

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  • ThePrincess
    ThePrincess Member Posts: 424
    edited July 2015

    Stacy - I'm sorry your fingers and toes are worse 2 weeks out - I hope they heal quickly! How are your nails?

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  • ksusan
    ksusan Member Posts: 4,505
    edited July 2015

    Katy, getting it out was nothing like getting it in! I only had a little pain and have had some itching. Compared to everything else we've done, that's like going to a party!

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  • StacyMc329
    StacyMc329 Member Posts: 48
    edited July 2015

    my nails look pretty yucky still. image

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  • Positive_spirit
    Positive_spirit Member Posts: 218
    edited July 2015

    hi everyone. Reading through all the posts and thinking of the many experiences on this discussion board. I met a woman with Triple N who is 1 year post treatment and she gave me hope.... I am turning 44 on Saturday and want to make this new year one of the best in my life!!!! Why not, right? Watching 'just for gags' with my 7 yo daughter. We love Quebec humor! I have a new career idea for you, Littleblue. :D

    Lynne: have not forgotten about our lunch...just saying, a date is a date


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  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited July 2015

    Positive- I know it's not quite your bday yet, but let's make it your birthday WEEK,

    Celebrating with you! 🎉🎉🎉🎉🎉🎉🎉👏🏻👏🏻👏🏻😂😅🎉🎉🎉🎂🎂🎂🎂🎈🎈🎈🎈🎈

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  • Positive_spirit
    Positive_spirit Member Posts: 218
    edited July 2015

    Jackiebirdie - that felt like a big hug! Thank you so much. 😍


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  • Addie29
    Addie29 Member Posts: 307
    edited July 2015

    Ginger I was on that amount but I had my doc lower to 4mg.

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  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited July 2015

    Positive- very insightful! Haha. It was a big hug with mojo sprinkled on top

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  • GingerChi
    GingerChi Member Posts: 252
    edited July 2015

    Happy early Birthday Positive Spirit!!! I hope you have a beautiful, wonderful day full of all your favorite things!! What plans do you have? That will be great for you and Lynne to get together too! Will both of you eat a big piece of cake for me since I cant have any these days!?!?! :)

    Thanks for all the replies about the steroids. I just talked to someone using my same MO and she was left on that dosage for all 12 treatments. Lovely!

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  • Addie29
    Addie29 Member Posts: 307
    edited July 2015

    Just ask to be lowered. My MO said there's no reason to be on that high of a dose when you're also getting them during your infusion. It made such a huge difference with how I felt and it still controlled the nausea.


    Had taxol number 6 yesterday and I think it's making my Bly feel weird. Haven't had this feeling since starting taxol but I am half way through taxol so I'm sure it's building up in my system.

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  • ksusan
    ksusan Member Posts: 4,505
    edited July 2015

    GingerChi, no love for osprey?

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  • GingerChi
    GingerChi Member Posts: 252
    edited July 2015

    Ksusan! Who wouldn't love osprey? An anaphylactic reaction is a different story tho! lol

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  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited July 2015

    Thanks for the info, Kbee and Ksusan! Turns out, we got a fire and I didn't get a chance to call my MO yet. Its been 24 hrs- they told me to take the dressing off any way. I will keep an eye on it!

    Also, it didn't hurt at all to get it out, Jackbirdie. Once the lido wore off, it was a little sore. Today, 24 hours later, it is a tiny bit itchy but that's it. Waaaaaaaaaaaaaaaaaay so much better than having the damn thing in! Although, I am so grateful for it!

    Positive Spirit! Happy Birthday dearie!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Wishing you many more. Nope. Not wishing. You are going to have so many more. We are all going to live long enough to embarrasse our great grand children! (guess I better get on that..) Big hugs girl! love ya!

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  • KBeee
    KBeee Member Posts: 5,109
    edited July 2015

    Addie, For some reason Taxol 6 and 7 hit me harder, but 8 and 9 have been easier so far.

    Positive Spirit, I hope you have an absolutely wonderful birthday!

    My dang big toe is broken. Next task is to jazz up this ugly boot

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  • ksusan
    ksusan Member Posts: 4,505
    edited July 2015

    I'm so sorry about your toe!

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  • Alibeths
    Alibeths Member Posts: 656
    edited July 2015

    oh no! Sorry about your toe! Feel better soon!

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