April 2015 Chemo Crew... Starting in April? Please join us!

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  • Alibeths
    Alibeths Member Posts: 656
    edited July 2015

    Ativan or compazine helps me with nausea. Hang in there.

  • slv58
    slv58 Member Posts: 1,216
    edited July 2015

    I was prescribed prochlorazine at the first hint of nausea that can be repeated every 4 hours. Always works for me. Lynne make sure you don't let the nausea build, take what you were given or call your MO.

    Well today I had a meltdown. I'm so tired of feeling crap. I did food shopping and by the time I put groceries away, I was sobbing, sweating and swearing. I want my energy back. I had to stay in bed for the rest of the day. Still feel exhausted. I needed a good cry. 3 more to go. 


  • gingeel
    gingeel Member Posts: 102
    edited July 2015

    Hi there ladies, miss talking with you. It's been a week since I posted last. Over that, actually. Ive read through most of what I missed, but had to take a break. Congrats to Littleblue and Ankle for being done, done, and Done! So happy for both. Love the pics.

    Stephmoen, hope you get well soon. Lynne and Kbee hope you feel better.

    Positive, glad u are trying to stay above it all. Im sure Im leaving some of you out....ill get back once ive read everything.

    Im doing ok. Threw a bday party for my 8yr old daughter Friday night. Was success, started to feel shaky from Wednesday's chemo, then spent all day Saturday sleeping on the couch. Sunday woke up still really exhausted and not feeling like myself. Picked a fight with hubby because he didn't pay an attention to me nor seemed concerned with my well-being. Took kids to another bday at the local pool out of spite. Then later made up with hubby because I may have overreacted. Hey, I'm allowed. I have cancer.

  • lovlilynne
    lovlilynne Member Posts: 405
    edited July 2015

    I do have Ativan, but not sure if I want to be sedated, despite what the Ramones say.

  • Rpayton
    Rpayton Member Posts: 235
    edited July 2015
    Lynne:my MO has a 3 step plan: zofran, wait an hour or so no relief then compazin, lastly if needed ativan. So far I catch it early and zofran works not needed anything beyond that. And I'm pretty much a puker so glad it works well. Then if course it is a balance for the constipation side of it. TMI aren't we having fun, gals?!

    Praying for everyone and their side effects. Big huge hugs!!!
  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited July 2015

    Ok, so everyone at work wants to know what tatoos I am getting over my scars. Mostly dudes asking. On one hand, I feel like its kind of invasive, but on the other...It seems like a good idea now. Not nipples, obviously. But flowers? Hmmm. Anyone else considering this?

  • ksusan
    ksusan Member Posts: 4,505
    edited July 2015

    Good visit to the dermatologist's today--MO wanted me to go even though a few years ago, the dermatologist had looked at everything the MO wanted checked. Fine. Everything is benign and since I'm at my stop loss, I got to have two little sebaceous hyperplasias zapped with liquid nitrogen. This symbolically balances out the radiation ("Some say the world will end in fire/Some say in ice"--Robert Frost), right?

  • ThePrincess
    ThePrincess Member Posts: 424
    edited July 2015

    Glad you got the all clear ksusan!!

  • ksusan
    ksusan Member Posts: 4,505
    edited July 2015

    #34: I've said it before, but I am grateful for my wonderful wife. She is busy re-booking a vacation we had to cancel for all of this. I'm a little nervous about flying, but by then I will have taken a "practice" flight of 2-3 hours and a non-direct cross-country flight, so I should have a good sense of how to use the LE sleeves and whether I swell on those first two trips.

  • KBeee
    KBeee Member Posts: 5,109
    edited July 2015

    ksusan, Hooray for the all clear!

    Littleblue, I had reconstruction, so my only tattoos are my areolas, but I might get a little something somewhere when this is all said and done.

    Gingeel, You certainly are allowed to react...probably was not over reacting...probably needed to be said.

    Lynne, I hope the nausea eases.

    slv, 3 more...how often do you go for treatment? I hope you start to have some better days soon.

    Taxol #9 done today. Yahoo!!!!! 3 mo to go...3 mo to go!!!! Woohooooo!!! MO scheduled my RO consult. I met with RO back in Feb/March, so I do know the general plan (6 weeks of radiation to whole breast, mammary nodes, axillary nodes, and clavicular nodes.). I do have a thousand more questions though and want to figure out the when, where, and what time so I can begin to plan my fall which is by far, my craziest time at work. I see RO next Monday. Taxol #10 will be next week. Excited to be getting closer!


  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited July 2015

    ksusan, I love that quote!

    Kbee, you must be feeling better?

    Ok, I have to say this to all of us getting radiation- it puts the lotion on its skin or it gets the hose again!!! Hahahahahahaha

  • Peabrain
    Peabrain Member Posts: 268
    edited July 2015

    went to the chair for the first time today! In spite of all those anti-nauseau drugs, I am nauseous.

    My doctor is recommending an alternating schedule of Ativan and Zofran. First Ativan, then 3 hours later, Zofran, the three hour Ativan, etc. anyone have any experience with what the side effects to those drugs will be aside from loopiness?

    Cheers,

  • KBeee
    KBeee Member Posts: 5,109
    edited July 2015

    Littleblue, I am feeling a bit better. They asked if I wanted chemo and I said YES! I want no delays... Too close to the end.

    Peabrain, Zofran causes constipation, you need to stay ahead of it, hope you get relief.

  • Peabrain
    Peabrain Member Posts: 268
    edited July 2015

    thanks KBee! I just knew I didn't have the complete story just yet.

  • DizzParkMom
    DizzParkMom Member Posts: 316
    edited July 2015

    Peabrain, just wanted to say welcome. Noticed you are getting all 4 of the same cocktails I am. I finished 4 rounds of Adriamycin/Cytoxan and just started 4 rounds of taxotere/carboplatin last week. Wishing you the best and positive thoughts for minimal side effects.

    My naturopath was out today and a substitute called based on the horrible report I gave my care manager this morning. I figured it was probably going no where, since I have tried everything for my mucositis. To my surprise, there was yet another trick in the bag. Slippery Elm lozenges. They aren't lozenges so much as tablets that dissolve. They are having just the slightest bit of an effect on the inflammation....or maybe it's because I am on day 8 an it's about freaking time. Either way....right. So, if anyone out there needs another weapon for mucositis, you can get it online or send your poor DH to 2 different Whole Foods on the other side of town during rush hour to pick it up.

  • Stephmoen
    Stephmoen Member Posts: 563
    edited July 2015

    thank you so much everyone for the well wishes Imdoing better than I thought infusions are going smoothly and I feel good. I'm so behind on reading everyone's posts I'm happy to see many of us are reaching the end even though my chemo is postponed a month ugh lol! I have to give a shout out to littleblueflowers congrats on finishing chemo and kicking cancers ass! Your awesome and I love reading your posts they always make me laugh. Thank you too for the well wishes positive spirit your so sweet I hope you feel better soon cancer is so hard on all of us I am thinking of talking to a counselor to help get through. Much love to all of you!!

  • Peabrain
    Peabrain Member Posts: 268
    edited July 2015

    DizzPark, Thanks for the welcome and the feedback. Based on the way my mouth and nose feel this morning, I think I'll try the slippery elm and see if I can head it off at the pass.

    I am curious - did you have lymph nodes that were positive? On the face of it our diagnosis is very similar, but I will get 12 weekly TC treatments. It was going to be 8 and then the lymph nodes got into the mix and got me an extra four trips to the chair (at least no rads!)

    Let me know if you have any other tips. Our drug combo seems to be bit rare and it's great to hear that you're moving through it.

    Good tThoughts to all you other wild women!

    Peabrain

  • slv58
    slv58 Member Posts: 1,216
    edited July 2015

    Stephmoen, I'm happy that your feeling better!!

    KBee tomorrow is my date with the chair for 9 out of 12. I go on a 3 week cycle with week 3 being a rest week. I had another cry when DH came home. Feeling overwhelmed with no energy- who is this person? I know exercise is suppose to help but I can't even vacuum the house without sweating profusely and getting out of breath. Can't wait for this to be over, but then I have to face the "abandoned" new normal. I hope you are feeling better- your strength is an inspiration!

    Peabrain, let your MO know about nausea- they can always switch meds to help.

    Ksusan, I found my first flight was fine with my sleeve/gauntlet but wished I had purchased compression stockings as well (knee highs).  What a considerate supportive wife to be planning your missed vacation- now is the time to enjoy it!

    Gingerly, happy I'm not the only emotional one. Sometimes I think that our spouses just don't know how to help and leave us alone. I know as soon as I told my Dh (through sobs) that I can't do food shopping anymore- it took him half a second to say he would do it till I felt better.

    Littleblue, I love the idea of a tattoo- I googled a lot of ideas the first time, wanted to make a positive out of a negative, but never did anything. At this point I'm just waiting for my diep, hip yo hip I vision to fade- it's very noticeable still and although my breast incision has faded a bit- this one looks quite rebellious!

    All those going to the bar today, I hope side effects are minimal and easy. To all those who have finished.....LUCKY!!! Enjoy ;-)



  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited July 2015

    Good luck all you brave ladies going to the chair today!

    Steph, soooooo glad you are feeling a bit better!

    Getting my port out in an hour. Trying to cease freaking out.

  • Peabrain
    Peabrain Member Posts: 268
    edited July 2015

    little blue - I have full confidence that the bunny ears will oversee a smooth port removal! Best wishes

  • Alibeths
    Alibeths Member Posts: 656
    edited July 2015

    good luck getting your port out!!!!!😍😍😍

  • ksusan
    ksusan Member Posts: 4,505
    edited July 2015

    it puts the lotion on its skin or it gets the hose again!!! :)

    I have already used this as a section heading in an update to family and friends.

  • ksusan
    ksusan Member Posts: 4,505
    edited July 2015

    Good deportation vibes to you, Littleblue.

  • gingeel
    gingeel Member Posts: 102
    edited July 2015

    Congrats Alibeths and Mysunshine on being done with chemo!

    Good luck Littlblue on port removal today! You painted a perfect picture of the skateboarding story......cracked me up.

    Dizzpark, so sorry you're having such a hard time with your mouth. Hope you get some relief soon.

    Kbee feeling better from the antibiotics? Glad it didnt keep u from hitting the chair.

    Lynne, i prefer the ativan over compazine and zofran, at least while being on Taxol. Zofran gives me headaches and compazine constipates. When I'm not feeling well, I'll take sedation.

    Georgia, I remember how hard it was to decide between LX or MX. I wanted a clear cut decision made for me, but they leave it in your hands. I ultimately went with lx, and so far i have no regrets.

    Ksusan, i too cancelled a trip that was planned last year....MX! Waiting to find out if they will refund our deposit, but I ill absolutely re book when all this is said and done.

    Hitting the chair today, been waiting an hour already. Im pissed cause i brought my kindle only to find that the battery is dead....arg!!! So Im doing all my typing and reading on my phone. My eyes are starting to hurt. I wanted to catch up on some netflix, which is funny, cause i won't be awake very long once they've given me benedryl. My SIL drove me, and I told her to come back when I'm done, cause what's the point? I'll be sleeping the entire time.

    Thoughts are with anyone who is joining me.

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited July 2015

    Thanks ladies! Port out. That part was easy . Now I get to stare at my shoulder for a few days to make sure it doesn't swell...

    Good luck in the chair gingeel!

  • ksusan
    ksusan Member Posts: 4,505
    edited July 2015

    Littleblue--congratulations!

  • Addie29
    Addie29 Member Posts: 307
    edited July 2015

    on the topic of tattoos I am actually going to have some done after my recon is done. I'm going to get ribbons over my mastectomy scars to make it look like they are sewn into my scars holding them together. Something like this. I am at the chemo bar today and I forgot to put my lidocaine cream on my port- ow! MY husband says "oh it only hurts for a second" my nurses response was "here let me stick you in the chest with this and see how you like it" this is chemo number 10 only 6 more. I can almost see the finish line. Congrats littleblueflowers on getting that port out- here's to easy healing :)

    gingeel I'm in the chair right now- thinking of you. Here's so minimal se- cheers

    image

  • Alibeths
    Alibeths Member Posts: 656
    edited July 2015

    congrats little blue! That was fast!!!!! Addie, you reading anything good? I'm in bed today. Still feeling so yucky.

  • KBeee
    KBeee Member Posts: 5,109
    edited July 2015

    Alibeths, Hope you feel better soon!

    Addie, The tattoo looks cute! Hope all goes well in the chair today. Sorry they forgot your cream. That was never even offered to me at my place. Thankfully, they are pretty quick.

    Littleblue. Congrats on being deported. I am sooooo looking forward to that!

    Gingeel, Hope all goes well in the chair. Have a nice nap!

    ksusan, How are rads goinh?

    slv, How are your blood counts. Sorry you are feeling so rotten. Good energy vibes coming your way.

    Peabrain, Will you have a rads consult? They are doing rads more and more these days on triple negative with positive nodes because of the reduction in local recurrence.

    Dizz Park, I hope the lozenges help with the mucositis.

    Stephmoen, Glad the infusions are going well...mostly I just really hope they keep all infection AWAY and that you have smooth sailing from here on out!



  • slv58
    slv58 Member Posts: 1,216
    edited July 2015

    KBee, my counts have been good enough to get chemo each week (yea....??) but my haemoglobin  apparently had a big drop from 120 to 104. It will be interesting to see what it is tomorrow. 

    Addie, live the tattoo idea. 

    Littleblue, congrats on getting that damn port out! Yea,do they use setting strips? I had a reaction after getting them for port insertion. Fun.

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