Starting Arimidex today (July 15, 2015)
I'd appreciate any helpful tips, like what time of day do you take it, with/without food, is it okay to take before bed?
I'd really like to hear from people who had no problems with it, as I've been freaked out by the discussions of side effects. Apparently some women have no bad side effects?
My oncologist minimized the possibility, as well as the number of side effects...but the reality of what I've read here scares me.
Thanks in advance.
Comments
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Jane, just start taking it. Most women don't have any serious problems with it. Check this thread: Hormonals - no side effects
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Hi Jane, I have been talking Arimidex since Christmas and have only had some mild hot flashes and insomnia. I take mine in the morning after breakfast. I am very active and also take magnesium, calcium and Vitamin D3. You will probably be fine. I was really afraid of it but thought if it reduces my chance of recurrence then I would rather put up with SE's than deal with what our stage IV sisters so bravely live with.
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Jane Hi....I'm with you as I just started yesterday - so far nothing much has happened - I'm wondering how long it might take to see some SE issues....anyway, stay in touch and we'll give each other the support we need - best wishes for an easy ride with this stuff! I'm taking Anastrozole 1mg per day...
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Thank you so much, ladies, for the replies.
38 minutes ago OxfordLady1 wrote:
Jane Hi....I'm with you as I just started yesterday - so far nothing much has happened - I'm wondering how long it might take to see some SE issues....anyway, stay in touch and we'll give each other the support we need - best wishes for an easy ride with this stuff! I'm taking Anastrozole 1mg per day...
(My bold)
OxfordLady1, are you taking the generic?
Does your name mean you actually live in Oxford, England?? If so, can I come and visit you? I love Inspector Lewis and Endeavour on PBS and have often gone to Oxford on Google Maps and just "walked" up and down the street. Seems like a beautiful city. I used to have a secretary (back in the day when people had secretaries) who had worked at Blackwell's.
And if AussieElaine is from where her name indicates, we've got the globe covered.
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I have only been on Arimidex for 2 1/2 weeks, but so far so good. I have had some hot flashes, really more like warm flickers. They seem to be lessening the past couple of day. I take mine with breakfast
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Yes Jane I actually live in Oxford! Came over from the States eight years ago after losing my husband to Lou Gehrig disease....I'm half-English (mother) so I have dual-citizenship and I just love living in England - Of course you can come and visit me...maybe we should plan a six month anniversary if we make it that long on these tablets.
This is the first time I've had to navigate the NHS and so far I've been very pleased with my care - being in Oxford means the hospitals are teaching hospitals so I'm with a breast cancer center.
I read the article mentioned and it would seem that about one week after starting to take the pills the blood level is constant in terms of dosage - so we'll just have to see how we do after a week or so - fingers crossed that we're both lucky with the SE - I am on the generic called Anastrozole. XOXO
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Good info, 50sgirl. Thanks. Hope it keeps up that way.
I never had hot flashes when I went through menopause 16 years ago. Take that back-- I had two within a minute of each other and that was all.
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hi Jane, yep, I live in sunny but cold (atm) Australia. Oxford lady, you will not believe this but I was in Oxford a month ago having LVA surgery for my lymphoedema. Believe me I would gladly swap anyone's Arimidex SE'S for this hateful SE of BC, I am hoping and praying that this surgery will work. How are you traveling on Arimidex?
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Only three days in so far - but all okay! I can't believe you were just here...how amazing - were you at the Churchill or John Radcliff?
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Hi Everyone, seems like we're going to have a pretty international group - I live in Rio de Janeiro but am currently in the UK as my son got married here last week (I'm also half British). I'll be starting Arimidex in about 10 days or so. My ONC first said to wait till after the wedding, then when i said I had a trip to Berlin planned for after the wedding he said to wait till after Berlin!! Scared the life out of me, so I'm sort of dreading it now.
Anyway, I will check back with you all after I start. It's great to be getting in at the start of a group like this and I look forward to more interaction soon. Meanwhile, best of luck everyone - I hope our journey will not be too difficult.
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I've been taking anastrozole for 17 months with no really bad side effects. I had slight nausea in the beginning right after taking the pill *I take it at 8 p.m. and set my cell phone alarm to remind me, I had frequent and moderately bothersome hot flashes and night sweats for about 6 months but they have steadily decreased and are rare and mild now. Only weird thing was a depression -- no pleasure in anything -- that got steadily worse from about the third month over six weeks -- and then spontaneously and completely disappeared overnight. Really!! So, in short, even if you do develop some problems (and many women have none) , stick with it. Your body will likely adjust. The drug may cut in half the chance of a relapse, and that is worth putting up with some blips along the way!
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Hi Oxfordlady, I was at the Manor Hospital which is part of the Nuffield group. It's a private hospital as even though I am British by birth, the NHS only covers this surgery in some areas and even then it's very difficult to get the funding approved. So my DH paid for me to have it done and I am very pleased with the results so far. I go over to the UK every year to visit family and the Dr's who performed the surgery would like me to come back and see them, so who knows I may be able to see you in the flesh as it were.
Hoping all of you lovely ladies are not having too many issues with Arimidex, I have been fine so far.
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Welcome aboard, everyone!
Glad to hear that your side effects were minimal and manageable, suzygirl. That depression thing was weird-- must have been a very bad timefor you.
I'm only three days in, so nothing yet.
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Hi everyone. Just saw my MO. She wants me start the Arimosin ASAP. When I told her I was terrified of the side effects she looked at me like I was crazy. She said the majority of women have no SE. I would love to hear from those women! Maybe even start a new thread. Thanks for sharing. Diane
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I finished my 5 years a couple of months ago. Nothing major but I did have some achiness. I am very active and just completed a 200+ mile cycling event last weekend. This is now 9 for 9. I would certainly do the course of anastrazole again. I was overjoyed when it went to generic, which was 5 years ago as meant I paid ~$10 per month vs $130.
I will have a bone density check in a few months to make sure all is well. Was just fine half way through.
I lead a rich, full life which includes seeing a much younger guy and the best work of my career.
I will say that post treatment, exercise is critical. I do weights and crunches every week day. I cycle, walk, swim in lakes, run, and ski. Oxfordshire, and Gloucestershire have amazing walks...I have done many of them. Wonderful for the spirit, on top of the health benefits. I also know you can cycle the 29 miles to Banbury along the tow path. Or walk in the Botanical Garden.
I think I will do a hike tomorrow near Mount Rainier to see the view plus I have never seen the mountain lupines in full bloom. I may swim in the mountain lakes too, something else I have never done. Last year, it was later when in the summer I did the hike with my guy so missed the lupines. I will say that the Cowlitz River was "bracing", but I did the swim!
Saying all this to let you know that it's also important to focus on living. Just so important as we go forward. And not let a few minor symptoms get you down....why ibuprofen exists. Can't wait to see those lupines!!! - Claire
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I started on Teva brand Anastrozole the night of 7-14. It took several days to locate a pharmacy that carried the Teva brand. I learned here that brand has fewer SE's, so I wanted to start with it. MO said it is usually trial and error until you find the right drug, but so far, knock on wood, I have had no problems. (I went through menopause years ago, so the hot flashes are behind me.)
Claire in Seattle, I have only visited your beautiful part of the country once. It is the exact opposite of southern Louisiana. You are an inspiration
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Aussie Elaine you must contact me if you come into Oxford to visit your Drs.....what is an LVA? I'm hoping I won't have lymphedema from the radiation treatments coming up in a few weeks time - meanwhile, five days into Anastrozole and absolutely no side effects whatsoever....could I be that lucky? If this continues I won't care if I stay on this stuff for the rest of my life....maybe my estrogen levels weren't that high to start off? Anyway, fingers crossed it continues to be easy to take.
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Claire in Seattle, your post was truly inspiring! I'm not even close to being that active... I was the kid who was always trying to get out of P.E.! It's great to hear that you had minor side effects.
I don't know all that much about breast cancer, being truly new to this gig (as many of us are) but I notice that yours was estrogen-positive and progesterone-negative. Is that unusual?
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I have just taken my third pill. I quit Tamox after 4 months but my primary care and new onc pursuaded me to give this a try. I am more scared of the side effects than BC and so far so good although I was not expecting anything yet. I have been depressed the last two days but I think that is due to having a great few days away with a group of strangers enjoying my hobby. I felt just like my old self from 20 years ago, happy and joking, just a little frailer. I got back home to my regular life and negative DH and the depression hit me. I think its situational rather than the AI so will see how it goes.
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Hi! I started Arimidex on June 7. I take it at night, just before bed, when I took it in the morning, I had insomnia. I have had no problems since. I read too much about bad side effects and wish I didn't. Good luck!!!
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Hi! I started Arimidex on June 7. I take it at night, just before bed, when I took it in the morning, I had insomnia. I have had no problems since. I read too much about bad side effects and wish I didn't. Good luck!!!
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Too late on most of the lupines, but there were other flowers...and huckleberries. Wow, was it hot!!! So took things slowly. Loving my new hiking poles. Major difference. Picture from today. The whole hike was inspiring!!! Except that I didn't get to swim, but will do that tomorrow. - Claire
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Has anyone experienced dizziness with Arimidex? I have for the last few days at night mostly before bed (like now), but it could easily be due to something else.
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Hi everyone!
I started anastrazole June 1. I kept a diary of all possible SE's. Every day there was something, but all pre-existing stuff so I couldn't really tie it to the drug. And I was driving myself crazy looking for something. So I stopped the diary.
So far, so good. I did switch to Teva brand the 2nd month, Stop N Shop was more than happy to accommodate me on that.
I feel good, slight heartburn once or twice, I was taking it at night but had insomnia, now I take it in the morning.
Also, I have lost 15 lbs since BMX May 6, following WW and going to meetings, so weight gain has not been an issue.
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2 hours ago AudreyB wrote:
...I did switch to Teva brand the 2nd month, Stop N Shop was more than happy to accommodate me on that.
Why did you switch after only a month, if you couldn't pinpoint any adverse side effects? Orwas it cost?
Also, I'm guessing Stop N Shop is your local grocery store with a pharmacy?
Can someone clear this up for me: anastrozole is the generic name of the drug, right? And Arimidex and Teva are BRAND NAMES? Is that correct?
BTW, dizziness IS listed as one of the side effects of Arimidex. I was really feeling it last night. Lying in bed with the room spinning. This morning it's less. I guess if I have to have it, at night is better than in the daytime. I hope it goes away. Today I'll take my 6th dose.
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Here is a thread from 2009 discussing Arimidex and dizziness/vertigo.
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Arimidex is the original drug name, the generic name is anastrazole, Teva is not a generic name but rather a manufacturer, among several.
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Hi Jane Q. I filled my RX for anastrozole and then found a thread talking about the Teva brand (Anastrazole manufactured by Teva Pharmaceuticals). As I had already picked up my RX, I started taking it, then refilled for the Teva brand for the next month. I just want to give this the best shot I can and followed all the advice about Teva brand having purer compounds. Also, I believe Teva was the first pharma co to produce generic Arimidex (anastrazole).
And yes, Stop N Shop is a supermarket chain here in New York.
Hope you feel better.
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AudreyB, interesting about the Teva brand. With all the reading I've done, this is the first I've heard of it.
I didn't experience the dizziness last night. Not sure how to interpret it. Maybe it's not the Arimidex. <shrug>
Note: I hope people will feel free to check in here and post even if it's something short and not earth-shaking. It's helpful just to know that others are out there on the same path.
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Tomorrow it will be two weeks that I've been on Arimidex. The dizziness was short-lived and hasn't returned. Maybe related to something else. I've felt a little pain in my right hand, but I DO spend lots of time on the computer.
I've been reading some other breast cancer boards, and apparently, the side effects--- even severe side effects--- can show up after a couple of years.
Is anyone still reading this thread?
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