July 2015 Surgery Sisters
Comments
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Eager to overdo it? My sympathies. If I got stuck with a more involved cancer treatment plan, the oncology team would need to assign someone 24/7 to sit on my head and expound with me why that was not possible.
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I am on steroids for a severe rash with itching too, Jen. They're helping, but we still aren't sure what is triggering the rash.
I'm 9 days post my bmx surgery now. My SLNB side is still draining about 30 mL/day, and my other side is finally draining 20 mL/day. If this keeps up, I can at least get the left tube removed at my appointment on Monday.
I got my first outpatient TE fills today. I now have 300 mL in each side. That's a lot, but I'm in the fast track due to an aggressive rads schedule. The "locator" was very easy for the PS to use, and the injector needle was about an inch or so long. I only felt a pinch when the needle got about half way in on the (SNLB side) right. (My SNLB side is probably more sore due to more swelling/draining and the pulling on the extra incision. I barely felt anything in the other side!) Overall, it's very manageable.
I'm getting a little better every day. I'm down to a Percocet twice a day, and I took 3 today due to my first inflation. I'm still wearing my compression bra, because it gives great support and is convenient for the drains.
For those of you just entering surgery, the days feel like they take forever, but you really are making amazing progress! Hope this update helps. Hang in there, and best wishes for peace and healing! You can do it
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hello all....surgery all done, seemed to go very well. Will need to wait for final path report etc but bs says all looked very good to her.honestly, her confidence is quite contagious,
I am comfortable on a combo of ES Tylenol and ibuprofen
Back to rest mode. More later
Good thoughts to all and more hugs (from the left for me
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Octogirl
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Hi all,
Hope everyone is doing well.
Ssteacher, you've got this! Big kisses your way!
Need to vent a little. Supposed to have a BMX and DIEP on Monday. PS told me at my appt that if the CT Angiogram was ok, I wouldn't hear from them and they'd see on the 20th. Had the test last Wednesday, they got the results last Thursday. Since I didn't hear anything as of Monday, I started final home preparations for DIEP recovery. Phone call today--dr wants to review CT results and re-examine me. Can I come in tmrw? I asked if something was wrong. Oh no, just standard procedure. I made the appt, but the disconnect didn't connect until this evening when it was too late to call back.
I am a VERY unhappy and freaked-out bunny right now. I was counting on the DIEP or something like it, and really don't want implants (I have nothing against them in general, it's just with all my chronic problems and weird body reactions even before this, my gut is telling me it's not a good idea for me). If this is not a "standard" appt and there is no alternative to implants, I'm going to be really angry and upset that they waited till the last minute to talk to me about this. I'm ok with a TRAM, or the other types of flaps. DH and I discussed it and, if I have to, I will just have the BMX and wait till later to reconstruct when I can think more clearly.
I don't have a good feeling about this appointment; the last time a doctor asked me to come in and review test results, I found out I had breast cancer. -
mfana. . .I did not really understand everything about BMx before my surgery but my BS did explain the difference between nipple sparing and skin sparing etc. . .she did tell me that they can't get all of the breast tissue and on my 6-month follow-up she explained that any recurrence will show up as a pea-size hard lump right under my skin (i.e. over the implants that I'm getting in a week). So I have visits with her every 6 months for the next 5 years. I was not given the option of nipple sparing and did not ask, but I believe it was due to the location of my one ILC. In any case I find not having them is liberating (my PS was laughing about that with me at my pre-surgery visit this week. I may get tattooed.
I wish I had not been in so much shock before my BMx. I would have asked more questions about my path reports and such, but both my BS and my PS gave me detailed explanations which in retrospect I now understand. I encourage everyone to ask questions and call your surgeon or their office back if you think of something after the visit.
Jenpam welcome. If you are off the pain meds after only a week that is amazing. Please rest.
Bunnybumps vent away, I totally understand. I have to have a chest xray at pre-op today. I jokingly asked PS if they want to make sure I don't have pneumonia. She responded that she orders them for all of her BC patients before exchange because they have to make sure there is nothing in my lungs before surgery. I hated my MRIs, my bone scan everything. It's so hard going through all of these tests and then waiting. HUGS
Hugs to all recovery and undergoing surgery. I have pre-op at hospital today after a 15-hour work day yesterday (only happens 3 days a year) so I'm beat.
Scottie
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i will join, had my surgery 2 days ago. Lumpectomy left breast with breast reduction/reconstruction both breasts. I feel like crap. Have drains from both breasts, this kind of freaks me out. Been a really bad year, my wonderful husband died on April 2nd. He was diagnosed with rare cancer and gone from us in 7 weeks. I got my diagnosis on June18th. My poor kids, but I dont know how I would even begin to get through this with out them, especially my daughter.
any helpful hints would be appreciated. waiting for onco test result also.
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rash? I had that when my gall bladder was removed. I was taking Percoset.
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Brx10466,
I am sorry for your loss of your husband.
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Hi ladies,
I thought I would join you. I am 1.5 weeks away from my Lx and snlb. I am getting anxious to get it over with and also a bit worried about my right breast. I have left a message for the BS asking for a MRI for my peace of mind . We will see what she says
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Molly50, before my Lx I had both ultrasound and MRI on both breasts and it really did help my peace of mind that the Lx was the right decision. definitely good to ask the bs, and I'd keep asking. (In my case, didn't have to ask, it was done as matter of course).
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Thank you for the reassurance that asking is the right thing to do, octogirl. I am going to a top notch cancer center so not sure why this isn't routine to check the other breast or do more imaging. After getting my full path report this week from my needle core biopsy I decided I really need to have everything checked. I do not want to worry or face another surgery in the future.
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Molly did you say where you are in CA? Which cancer center?
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BMX July 20th
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Brx10466, I am so sorry on the loss of your beloved husband. You are going through so much in such a short time, I send prayers and blessings to you and your children. Hope you have a good support system, family and friends that can help you through this difficult time of your recovery. Just went through my own masectomy on July 7 so am in healing mode as you.
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Hi ispy,
City of Hope. The South Pasadena Satellite office. I see you are a So Cal woman, too!
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Yes I'm at UCSD Moores Cancer Center. We have good places!
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I'm finally scheduled for a R mastectomy on the 22nd. I'll have an expander placed and decide later on the DIEP vs other type of implant. My surgeon said the team thinks I'll ned chemo because the tumor is over 3 cm, but she's not so sure. She is a great support. I have a16 year old sonwith cerebral palsy who is is total care, so I'm very nervous.
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brx10466,
I am so sorry for all you're going through. My husband had stage 4 throats Cancer in 2011, and he's still not back to normal, but much better. I had stage 1 colon cancer in 2013. I have no family history of breast or colon cancer, and I'm convinced miners stress related. I'm working on that. You have my sympathy yo for them the loss of your husband
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I should long on as Queen Cramp! I had a tough time in Chemo (and for years) with leg cramps. Solution? so simple it makes me feel stuipid. Pedialite (gatoraide) I have always been a water drinker and it seems that I pee out all my electrolites. (spelling?) Years of having bananas forced on me (magnesium-which I HATE) I find that if I drink some with a meal (or at signs of fatigue/dizziness) I can skip over leg cramps.. Surgery on July 22 and in my bag... Pedialite.
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REPLY to leg cramp question. I had a tough time in Chemo (and for years) with leg cramps. Solution? so simple it makes me feel stuipid. Pedialite (gatoraide) I have always been a water drinker and it seems that I pee out all my electrolites. (spelling?) Years of having bananas forced on me (magnesium-which I HATE) I find that if I drink some with a meal (or at signs of fatigue/dizziness) I can skip over leg cramps.. Surgery on July 22 and in my bag... Pedialite.
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Brx10466, what a year you're having. I can relate, as we had five family members pass away all before April of this year. Please accept my deepest sympathy. It feels like the hits keep coming. The best tip I can give you is to be kind to yourself, in every way. You deserve it.
Greendolphin and Mavski80, looks like we're a trio for Monday.
Saw the PS today. Turns out some blood vessels needed for the DIEP were cut during hysterectomy. On the right side, the rest are very, very small, so he will have to take part of the muscle to keep the odds of success at 99%. Left side is better, still small, but usable. The weirdest news is the main vessel they use is usually located below the navel, whereas on on me it's above, so that means my scar will be higher up. I have no problem with this, as I've never been a bikini kinda chick. Figures - somebody did not follow their IKEA instructions correctly when they built me. He checked again to see how much skin, fat and muscle was available - probably just enough to keep me at the same size. So fingers crossed, surgery is a go. It's just going to be longer than anticipated, I'm going to lose some stomach muscle, and recovery will be tougher.
Ssteacher, thinking about you and hoping you're recovering well today!
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Brx10466 sending prayers and hugs.
Molly50 MRIs was standard for my BS. If yours does not order one, you should insist even if only for peace of mind.
Scottie
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acr2015 left mastectomy, te 7/13
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Thank you all for your kind thoughts and words. Surgery was Wednesday, today is Saturday. I woke this morning feeling worse than I have since this began. I think because I felt so good after the surgery on Wednesday and Wednesday night, I just assumed it would get better and better.
Not the case so far, but I am now taking the pain meds as were prescribed by my BS. I am really hoping that when I see the BS on Tuesday, the drains will be removed.
thank you all, what wonderful group of women! Sending good thoughts to all.
Pat
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Brx: yeah, that's pretty much what happened to me after my surgeries--feeling OK for the first couple of days, but felt like I'd been hit by a brick wall by the fourth or fifth. I'm sure there's a physiological explanation, but I can only guess that a) the analgesic effects of anesthesia take a while to wear off and b) your body takes a day or two to realize it's gone through surgery.
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Molly50, I agree it is surprising they did not do any imaging during diagnosis and treatment planning stages. have you done genetic testing done? expect the best SoCali sis! I am a UCLA patient and I have been extremely satisfied, and still everyone says City of Hope is much better, hope you get your peace of mind.
Bunnybums, I'm glad the treatment is still headed your desired way, I admire your positivity and humor! Sending you positive thoughts on Monday, you are going to do great!
Brx1046, I think more and more surgeons are now using the long-acting local anesthesia that helps with pain management for a couple of days, and when it wears off you feel like being squeezed by iron claws. But just imagine how bad the pain would have been on the first days without it. Hope you feel better soon and get the drains out on Tuesday, believe me half of the pain will go away when they come out.
Mania
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Welcome, ACR2015!
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I went to Target today to buy pj's that button down in front. I'm experimenting with my pillows to see what's going to work the best. Unfortunately, I'm having my right breast removed and I also sleep on the right side of the bed. I'm wondering how much of a problem that will be. The list at the top of the page is great. Thanks. Wednesday is the big day.
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Carolyn62, I had a double BMX with reconstruction on 7/7 so I am about a week and a half out- I found button up silky/satiny pi's to be so important- it was amazing the difference the silky material made in being able to slide in and out of bed. I'm so glad I read that here on the boards!
I, too, am a side-sleeper and I've found that if I sort of twist my lower body to the right and turn my head to the right while propped up on my pillows, I can almost trick myself into thinking I'm on my side. Kinda!!
Prayers coming your way for Wednesday!!
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I didnt bother with silky button up front pjs but sort of wish I had... Sliding in and out of bed has been a bit of a challenge...hubby keeps saying we should have sprung for satin sheets but while I am glad we didn't go that far the new pjs would have been nice. So far I am just hanging out in very loose men's cotton shirts and underwear, it is warm where we live. Not glamorous but it works.
I hope no one thinks this is too much celebration... Because I thought I had posted this but dont see it. So blame my fuzzy post anesthesia brain if this a repeat, but my bs did call yesterday with good pathology report news: no node involvement and clean margins. Yay.
Welcome Carolyn62 and new posters.
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