Starting Chemo May 2015

Options
1293032343541

Comments

  • mysunshine48
    mysunshine48 Member Posts: 1,480
    edited July 2015

    Shanann, wonderful post! I am following your lead! Thank you

  • StefLove
    StefLove Member Posts: 322
    edited July 2015

    Shanann the quilt is beautiful!

    I'm definitely already making plans for when this is done. I might do a post-chemo and then a post-radiation adventure too. Why not celebrate each milestone, right? Post-chemo I'm not 100% sure. We'll see how I feel and what my surgery/radiation schedule are. Post-radiation aka post-cancer I think I'll be going to Aruba with my family in February since my step mother has a time share and I'm ready to put this all behind me. There's also a Michelin rated restaurant at one of the hotels by me so after this is all over my friends and I agreed to go all out and spend a pretty penny and enjoy a night out to celebrate. Wine pairing and all! I miss wine...and beer..and alcohol. :) I've tried a few times to have a few sips but my body just wasn't having it. Not worth it anyways right now.

  • tjh
    tjh Member Posts: 469
    edited July 2015

    I am planning my last school year teaching...after that we are renewing our wedding vows, 20 year anniversary. We are also planning family vacation to South Dakota (daughters pick) and then a second honeymoon to either Boston or New Orleans. I am very ready to be normal. Last Neulast shot this AM is done and a short walk before it heats up outside. My face does look like Rudolph's nose but after my last doses of steroids it will be normal.

  • Shanann
    Shanann Member Posts: 106
    edited July 2015

    Steflove- your plans to visit Aruba sound wonderful, and February is the best time to leave the states (in my area, anyway)!! I am very happy for you! I LOVE VINO! I haven't had a glass, until tonight, since I started Chemo. It just doesn't taste right. The first glass I tried after treatment one tasted like vinegar. The second glass I tried after treatment 3 tasted like green olive juice. Pairing? HAH! I miss it.

    TJH- I got to visit New Orleans about 2 years ago, and I loved it. I enjoyed just strolling down the streets, and of course, the Cafe du monde (I didn't have to wait in line). You will enjoy it.


    WE GOT THIS, LADIES! Most of us are finishing up, or halfway thru!! CHEERS!

  • CyndiZ
    CyndiZ Member Posts: 1
    edited July 2015

    Hi

    I'm a bit late joining. I was diagnosed with Triple Negative April 23 and started 12 weekly doses of Taxol on May 28. I've lost almost all my hair and find that the side effects of Taxol are endurable. I will be having my 8th treatment on Thurs. Most bothering of SE for me are the itching blisters I have on the backs of both of my hands. Any suggestions? Benadryl is only moderately helpful.

  • tjh
    tjh Member Posts: 469
    edited July 2015


    I had them on my face and now have them on hands and feet. One my face I used Bobbi Brown oil until they peeled. Now I moisturizer it with Clinique night cream 3 times a day. On my hands and feet, the skin is on its 4 peel...I have no dry skin or calluses on my feet...I use CeraVe cream 3 times a day and Aveeda hand cream on my hands when I wash my hands. My oncologist said not to go barefoot and to wear socks with my shoes. I only took Benedryl when I reacted to the makeup from the LGFB workshop I went to, apparently my skin does not like Estée Lauder and Mary Kay make up products. Welcome to our group, we are a great bunch

  • dunesleeper
    dunesleeper Member Posts: 2,060
    edited July 2015

    Congratulations to all who are finishing chemo and really to all of you enduring the side effects. It's weird how it changes your taste buds. I'm flabbergasted that I don't like coffee anymore. I do hope my taste for it comes back. I really enjoyed my espresso and latte.

    Gosh I wish I could remember all that I just read, but I can't.

    I think it is great to celebrate each milestone. The camping trip sounds nice. Aruba sounds even better. Keep talking about that stuff. It gives me ideas.

  • Queen_Celeste
    Queen_Celeste Member Posts: 68
    edited July 2015


    Greetings all!

    I am halfway through chemo (3 of 6 sessions).  The 3rd session has been the easiest so far, go figure!  Similar side effects as before but rather less in intensity.  So far they have all been manageable.  Not that I'm complaining, it just seems odd.  My doc said it would be about the same each time.  Sorry CindiZ about your itching blisters, that's one side effect I missed.  For poison ivy I have used nail polish remover applied with a cotton ball, or rubbing alcohol, but you might want to ask your doc.

  • CatsRus
    CatsRus Member Posts: 310
    edited July 2015

    Last chemo tomorrow! I'm in the chair at 8:45 am so hopefully wiill be all done by 1 pm'ish. Saw my MO this afternoon and she's happy with me so my next appt is next February. Though, honestly I sort of expected more tests and follow up. I Have my Rx for Femara to start in two weeks and am waiting for an appt for a baseline bone density test.

    I talked to my out of country medical Insurance carrier this morning and I have to wait 90 days from start of new meds/finishing chemo before I requalify for coverage so no quick trips for me unfortunately but soon as coverage back in place I'll be on a beach somewhere in the Caribbean (likely Jamaica) with a piña colada (complete with fruit, umbrella and a straw) in my hand, maybe one in each hand, as soon as humanly possible.

    Good luck and best wishes to all wherever you are up to in your treatments, but especially to those finishing this week. Mysunshine...I shall be thinking of you tomorrow as we finish this part of our journeys together, though miles apart. Take care and I hope your SE are much easier this round.

  • rosesrx
    rosesrx Member Posts: 458
    edited July 2015

    Visit with the MO today. Labs looking good. H infusion and the fog with the 12.5 mg of Benadryl. He said I will start on Armidex after last infusion on Sept. 2nd. The every 3 week H starts 2 weeks after that. TCH #4 of 6 is next week.I forgot to ask when the next echo. Congrats to all of you finishing up this week. May your s/e be minimal and energy return quickly.

    Still seeing the therapist weekly. He was asking about my decision not to recon. I feel I articulated it well to help him appreciate how personal and individual a decision.My main one is NO MORE SURGERIES. It started out about how I feel about dating since I am "so young" (53 ???) I am like let me just get through May and finished with infusions. Still dealing with Mom's dementia and NH placement. She had another decline and fall this week (no broken bones). She is dealing with MRSA wound infection and pneumonia. Contemplating hiring a sitter. Still a lot on my plate. Not nearly as overwhelmed as I was back at initial diagnosis for me.

  • mysunshine48
    mysunshine48 Member Posts: 1,480
    edited July 2015


    CatsRus, I have been thinking about you too! Last one tomorrow for both of us, but I will still be going for weekly blood work and will be seeing my MO every three weeks until I am OKed for my exchange surgery to be scheduled. Then, I start Arimidex, I guess and will see MO every three months. I think I will be having a baseline bone density scan before starting Arimidex. Not sure what else. I will be in the chair around 11:00 after bloodwork and meeting with MO. I am still feeling weak from last one so am hoping this one will be no worse. T/C ........bring it on, get it done. Let's pray this gets any last stray Cancer cells ZAPPED!

    Happy to follow your lead to a beach chair and a drink with a little umbrella!

  • karabesque
    karabesque Member Posts: 84
    edited July 2015

    Thank you all for your support and words of encouragement. I am feeling wayyy better and able to eat a bit more. Still small meals but at least I am eating. I start Taxol on Friday. Kind of nervous just because it's new and bummed because I'm finally starting to feel "normal". I'm feeling so good I went to the lake on Monday but I fell and tore my big toe nail off! I am putting some good RX anti-biotic ointment and praying it doesn't get infected. I just hope this isn't a preview of things to come. I've been using tea tree already. Fingers Crossed...


    They say what doesn't kill you makes you stronger. Well, we are super women!

  • Magnolia83
    Magnolia83 Member Posts: 99
    edited July 2015

    Congrats to those finishing up! Can't wait to get there.

    Taxol #2 tomorrow, but my best friend flew in from northern CA today so she will be my chemo buddy...looking forward to that. She said to me today, "let's start planning a trip somewhere fun for when your finished with all this...anywhere you want to go. But not Antarctica." Lol like that's where I'd choose.

  • Tifree40
    Tifree40 Member Posts: 13
    edited July 2015

    Congrats to all those have way through their Jurnee to beat up cancer! Congrats to those who are in the beginning of treatment knowing is half the battle. Stay positive and fight. Special congrats to those finishing up tomorrow and this week. I am so happy I will ring that bell tomorrow I don't know what to do😀. Thank you God for forms lime this to help me get through. Today I will ring the bell to celebrate my last Chemo! I can't sleep took the steroid too late I guess. I will go down and come back up for the last time I pray. I pray for us all for strengh,guidance, and healing

  • CatsRus
    CatsRus Member Posts: 310
    edited July 2015

    Congrats to you Tifree.... I was up until the wee hours, think I took the decamethozone too late yesterday too. But final chemo day is here and I'm just getting ready to head out to the hospital. I wish you well

    Take care al,.


  • Shanann
    Shanann Member Posts: 106
    edited July 2015

    Tifree40- you are so happy I can hear it in your writing! Congratulations to YOU!! Ring THAT BELL!! I got 4 more to go IF I handle the taxol; otherwise, I gotta go 12 weeks. But, I'm HALFWAY there.

  • CatsRus
    CatsRus Member Posts: 310
    edited July 2015

    DONE!!!! Just have to get through the next 1-2 weeks and then hopefully I'll be good to go. Mind you, I start Letrozole in 2 weeks so a whole new set of SEs to watch out for!



  • StefLove
    StefLove Member Posts: 322
    edited July 2015

    Ring that bell ladies!!! I can't wait until September to say the same! Last week at Taxol #1 my treatment room was right by the bell and a woman got to ring it. I started crying my eyes out for her, for all of us, and for when I get a chance to join the bell ringing club.

  • Scarlett152
    Scarlett152 Member Posts: 175
    edited July 2015
  • karabesque
    karabesque Member Posts: 84
    edited July 2015

    Congrats to all that are done this week! Just 12 more weeks to go for me!!!

  • mysunshine48
    mysunshine48 Member Posts: 1,480
    edited July 2015

    I had my last chemo today too! Neulasta shot tomorrow.....then get through the next few weeks. Congratulation to all for finishing this week! I don't know how I could have done this without the help and support of all of you!

  • rosesrx
    rosesrx Member Posts: 458
    edited July 2015

    Happy for you mysunshine!

  • tjh
    tjh Member Posts: 469
    edited July 2015

    I have gone from mammogram on March 3 to my last chemo on July 13, August 12 is reconstruction....September 1 first day of school. 6 months of hell but with all of you, we have survived.

  • JenJenJen
    JenJenJen Member Posts: 39
    edited July 2015

    YAY!!! Congrats to all who have finished their chemo! I still have 3 more "hard chemos" to go, then onto 8 months of Herceptin. Can't wait to ring that bell with you ladies too!

    You all have been so wonderful, helpful and supportive! Thank you to you all!

    Stay strong ladies!

  • labhusky
    labhusky Member Posts: 177
    edited July 2015

    So far, I've had 4 treatments and it just seems like the last 2 have hit me the hardest. It's taking longer for me to regain my energy and while I hate to use the word depressed, I have felt down making it harder for me to get my positiveness back. Plus I have a Seroma adding to the dilemma. I'm going to have to get it operated on. My surgeon talked to my oncologist & the oncologist doesn't want to pull me from the chemo yet which I agree with. I have 2 more treatments with the actual chemo drug of taxotere and I think that's why. After that, I will have 6 remaining sessions with the herceptin and perjetta only. I'm hoping after the taxotere, the SE's won't be so bad. Right now, I'm taking an antibiotic for an infection from the Seroma and I have to cover it because it oozes. Sometimes a lot & I have to change my top. I'm miserable

  • CatsRus
    CatsRus Member Posts: 310
    edited July 2015

    Hugs, labhusky, this too will pass. Take it one day at a time. Although my family doctor put me on a low dose antidepressant early on, which helped enormously especially when I was waiting on results and having panic attacks, I still find my mood gets quite low in the week following chemo. I have to remind myself that it will improve, but I know it's hard and you have a lot going on. If you feel you really are depressed, please talk to someone and get some help. Take care and keep venting here if you need too.

  • rainnyc
    rainnyc Member Posts: 1,289
    edited July 2015

    Sorry you're so miserable, labhusky. Regarding the Seroma, did anyone have you see a wound care specialist? I also had that (nearly healed after several sessions with chemo). The MO had me see a wound care specialist and a dermatologist; they offered to send in a visiting nurse, which I refused. It took some changes in the kind of dressings we used, but eventually we found a way to have it ooze less, which made me less miserable. I also used Flagyl spray 2x daily, which helped clear up the infection.

    Good luck; I hope things get easier soon.

  • dunesleeper
    dunesleeper Member Posts: 2,060
    edited July 2015

    I can understand your feeling depressed labhusky, but it is really important to do something about that. I am already on Celexa, but I noticed I was being pulled down by the chemo and illness and pain. It was really bad last week, and I determined I couldn't let it be that way. So, I actually started talking to myself in the mirror, telling myself that the treatment will work and I will not be sick and I will accomplish certain things that day or week. It actually helped. The thing is we MUST keep as positive as possible and therefore we MUST counter any negative thoughts as soon as we are aware of them. I hope you feel better soon.

  • tjh
    tjh Member Posts: 469
    edited July 2015

    It must be the week.... I feel like crap. My joints have never hurt this much from the neulasta. I finally took a Vicodin. Hopefully tomorrow is better for us all. Sending cyber hugs to all

  • lizannee
    lizannee Member Posts: 16
    edited July 2015

    I do get very depressed this week after chemo. Especially if I am home alone. It is so hot here in Memphis right now (97-100 degrees) that getting in a hot car and driving is not an option. So I have worked from home two days this week and I really feel down. I have taken atavan as needed and that helps with the sadness and nausea. It seems that since I was diagnosed at the end of April my life has not been any fun and I love fun!!!I I hope to get back to a more normal life by 2016!

Categories