MO and RO disagree

Options
CAMommy
CAMommy Member Posts: 437
edited July 2015 in DCIS (Ductal Carcinoma In Situ)

the RO doesn't think I need tamoxifen, that there are too many side effects for the risk reduction. MO says yes.

Confused :/

I'm leaning towards trying it and if SEs are too great then stopping. Assuming everything stays DCIS after final pathology. All the Docs seem to think it will stay DCIS.

· Share on FacebookShare on Twitter

Comments

  • luckypenny
    luckypenny Member Posts: 150
    edited July 2015

    I would listen to my mo over my ro any day!


    · Share on FacebookShare on Twitter
  • Annette47
    Annette47 Member Posts: 957
    edited July 2015

    My RO is actually pretty knowledgeable about all aspects of treatment and I take his advice seriously. That said, his expertise is radiation, and the MO’s is medicine, so I would tend to take the MO’s advice in this situation. What you could do is ask each of them what they think your risks are with and without the Tamoxifen and if there is a huge difference of opinion try to find out why. If they both agree on the numbers but not whether it is “worth it”, then that would be up to you to decide. What level of risk is acceptable to you might be different than someone else’s opinion and you are the one who has to live with it.

    For what it’s worth, my BS and RO both said definitely Tamoxifen, my MO said here are the numbers (all 3 were pretty much in agreement) and it is up to you. I decided to try it knowing I could quit if I didn’t like it (I have no “extra” risk factors for the truly serious but rare complications). I have my complaints, but nothing bad enough to want to quit - it’s been over 2 years now.

    · Share on FacebookShare on Twitter
  • CAMommy
    CAMommy Member Posts: 437
    edited July 2015

    I think for me, a big factor will be if it stays DCIS after post op pathology or if it changes to micro invasion or stage I. I also have a family history but both my mom and my grandmother survived with no recurrences. Grandma passed at 90 of old age and mom is still alive and kicking at 75. And she had BC at 32 years old.

    · Share on FacebookShare on Twitter

Categories