Burned after only 2 treatments...

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This is the 1st time on this site and I hope you can help me. I just began Radiation Therapy this past Monday 06/29/15 and by Tuesday my left breast was already pretty "pink". By Thursday, 07/02 it was really pink and hurt (on the inside of my breast - not the actual skin). I'm very fair skinned and sunburn easily. My Radiology doctor pretty much blew me off "Radiation does hurt!" but the technician & nurses all say that this is way too soon to be happening. They've told me that this is what a person at the end of 2 weeks might look like. Have any of you experienced this and what did they/you do about it?

Comments

  • Cowgirl13
    Cowgirl13 Member Posts: 1,936
    edited July 2015

    Sharon, I don't have any advise but someone will post shortly.

    I'm wondering if you need a second opinion in order to find out about this? Where are you receiving treatment?

    So sorry you are going through this.

    Liz

  • ALittleBitBritish
    ALittleBitBritish Member Posts: 627
    edited July 2015

    see another radiation oncologist for a second opinion, and tell you radiation oncologist you want a second opinion. Did you get prescribed any burn cream to apply after each treatment? like biafine?

    Be your own advocate and don't settle for a doctor who won't listen to you. You deserve the best treatment

    Best wishes,

    Alison

  • Larkspur
    Larkspur Member Posts: 88
    edited July 2015

    Sharon, my rad. oncologist told me that fair-skinned people generally have fewer skin problems than others do during radiation. I also sunburn easily, but had no real trouble during rads: just the expected redness and some itchiness toward the end.

    I agree with Cowgirl (Liz): I think you might want a second opinion. You probably have a regular oncologist: what does s/he say? How about your primary care doc?

    Best of luck, and please keep us posted.

  • SharonGR
    SharonGR Member Posts: 7
    edited July 2015

    Thanks for your early reply Cowgirl 13. I wasn't quite sure how all of this works.

    Had the invasive 4cm tumor (close to my arm pit) removed in my left breast in May (they originally thought it was only 2cm) and experienced absolutely no pain or even discomfort after both surgeries. 1st surgery was in April and they didn't think they got it all...went back on May 19th and the path report came back clean.

    Fast forward to June 29th for my first RT and by the 30th, I had a nice "pick" breast that was sort of "tender". By Thursday, the 2nd, I was bordering on red and the whole right side of my breast hurt like the devil (inside) not outside on the skin. The senior Radiology nurse said that this was NOT normal - that it usually started to turn pink after Week 2 so she rushed me over to the Oncology Dept. and the doctor said that she didn't think I had an infection but that this needed to be "monitored closely". So what can I expect next?

    Thankfully, Friday (the 3rd) was a "holiday" and I'm getting a break until Monday, the 6th.

  • lyzzysmom
    lyzzysmom Member Posts: 654
    edited July 2015

    Sharon, skin tone does not cause you to burn. I am fair skinned and freckly and my RO said he would not let me burn. Did you receive proper instructions from the clinic before starting treatment. - like no deodorant pre treatment and only a limited number of cleansers allowed. They should have recommended or given you a cream to apply before you started treatment.

    I am sorry so you are going through this. Must say I do not like the sound of your RO, blowing you off. I do hope things get sorted out for you quickly.

    I was in the summer rads 2014 thread and there were a couple of ladies who had bad reactions and who found some products that really helped. I cant remember exactly what they were but it may be worth checking out that thread. If I can find the product I will post it here.

  • Cowgirl13
    Cowgirl13 Member Posts: 1,936
    edited July 2015

    Sharon, as I said, get a second opinion and tell the doctor you are getting one. You don't want to be the one whose doctor blew her off and end up really sick because of it. Sorry to sound so strong. You need a doctor who will take the time to talk to you or cut him loose.

  • lyzzysmom
    lyzzysmom Member Posts: 654
    edited July 2015

    I think it is called Miaplex but it was used on open wounds for healing. I agree. Get a second oppinion. You need a doctor who really cares.

  • BrooksideVT
    BrooksideVT Member Posts: 2,211
    edited July 2015

    I had a similar experience after the first day My breast felt hotter and hotter all afternoon, and was quite pink. The next day, I insisted on seeing the RO before treatment. She said it was an initial reaction that would calm down and gave me the day (Friday) off. After the three-day weekend, my reaction was normal and it was two weeks before I saw any increase in pinkness.

    I'm extremely fair skinned and my RO assured me that is not a factor in predicting who develops skin issues. She was correct--I had no more problems, just the expected Although I worried all through treatment, getting redder and itchier pretty much on schedule, I never developed any real problems.

    If I were you, I'd show up a little early on Monday and ask to see both the nurse and the RO before treatment, and maybe the head tech as well. If your center has different RO's seeing patients on different days, do not hesitate to see whoever is there. Different points of view are always helpful.

    Is your breast calming down after a couple of days off? Do you think it possible that you might have a bit of an infection?


  • SharonGR
    SharonGR Member Posts: 7
    edited July 2015

    Could it have been "Miaderm"? A dear friend with the same problem was given this by her doctor. I just ordered it and it'll be here on Monday, hopefully!

  • lyzzysmom
    lyzzysmom Member Posts: 654
    edited July 2015

    No it was Miaplex bandages but hopefully you wont need them as her skin broke open and they helped her heal.I hope the Miaderm gives you some relief!

  • Larkspur
    Larkspur Member Posts: 88
    edited July 2015

    I used Miaderm throughout treatment and found that it really helped. I hope you'll have the same results.


  • SharonGR
    SharonGR Member Posts: 7
    edited July 2015

    I guess I'm not as concerned about the "pinkness" but more concerned about why I hurt on the right side of my breast. I didn't even hurt after 2 surgeries! The "hurt" is coming from inside my breast on the opposite side of where the tumor was..I can deal with any sunburn effects (although it's been years since I've been sunburned.)

  • Moderators
    Moderators Member Posts: 25,912
    edited July 2015

    We're really sorry for what you are going through, SharonGR. The others have offered great advice. Here are some Skin Care tips in addition: Skin Care During Radiation

  • SharonGR
    SharonGR Member Posts: 7
    edited July 2015

    I totally agree! Thankfully he won't be there on Monday and the nurse is going to get me another RO that will be on duty. I'm not usually passive when it comes to my health but he just through me a loop when he said that! I was so dumbfounded that my brain just could process his arrogance! Trust me...it won't happen again!


  • kbram
    kbram Member Posts: 185
    edited July 2015

    I used coconut oil on my breast every night.....slathered it on and I had no problems whatsoever.  My doctor couldn't believe how good my skin looked at the end of treatment.

    Kathy

  • BrooksideVT
    BrooksideVT Member Posts: 2,211
    edited July 2015

    Sharon, an RO has to be on call 24/7. Why don't you call your center right now (or whenever is convenient). Actually, maybe a call to your breast surgeon would be more helpful. The BS is the person who OK'd you for rads after surgery, so would probably be grateful for the call, weekend or no weekend.

  • BrooksideVT
    BrooksideVT Member Posts: 2,211
    edited July 2015

    Just read your post from a couple of minutes ago. If you're physically comfortable, waiting until Monday and seeing a "human" RO before treatment is a great solution.

  • labelle
    labelle Member Posts: 721
    edited July 2015

    I was one of those with major problems/burning due to RADS and I just soldiered on. Eventually, my skin broke open, oozed, peeled (despite applying various recommended potions) became infected (cellulitis). I ended up in the hospital on IV antibiotics with an infected seroma (walled off due to RADS) and cellulitis. Broken skin allows bacteria and infection to set up shop. I'm not writing to scare you, but to impress upon you not to just soldier on like I did.

    You can insist upon radiation breaks-mine were done around the holidays last year and at one point I had no RADS for 5 days due to the holidays and no one thought this was a problem-and it helped in terms of my skin damage . I would have asked for more breaks (or just called in sick for a few days break) if I'd known then what I know now!

    Visit your surgeon ASAP (this in my opinion is easier than finding a new radiologist for a second opinion at this point) and show him what it is happening to you. The radiologist I used hardly examined my breast at all and so did not notice the seroma-and that is the area of my breast that burned the worst. Surgeons generally seem to examine breasts more carefully than radiologists and are protective of their work-if there is a reason to back off, delay or change your RADS treatment IMO the surgeon is more likely to tell it like it is-and their opinions seem to trump radiologists on the medical hierarchy thing. . My radiologist just seemed to want to get it done, regardless of the obvious damage being done to my tissues and skin-I think if I'd shown my surgeon what was happening as it was happening, rather than waiting until the damage was done things might have gone better for me.

  • molly1976
    molly1976 Member Posts: 403
    edited July 2015

    Sharon, I had noticeable achiness and sharp shooting pains after my first couple of radiation treatments. My RO said it was normal - in fact she mentioned it might happen even before I had a chance to tell her I was having that symptom. She said it's caused by swelling and inflammation, and mine went away after that for the most part and has not come back. I've had 11 of 20 treatments now and no more of that type of pain.

  • JaneQPoppy
    JaneQPoppy Member Posts: 141
    edited July 2015

    I just finished three weeks of radiation (not as many as some of you, granted). Every day when I came home, I sat on my bed with a 1-quart measuring cup of ice water with about 2 tablespoons of vinegar in it. I soaked two washcloths and laid them over my breast, making sure to tuck a good portion under the breast where my incision is. Then I held a pillow over the whole business until I felt that the coolness had ebbed away. Dunk the washcloths again, rinse, and repeat. I did this for 30-45 minutes every day after radiation. Then I put on the lotion they gave me, alternating with aloe vera. I tell you... when that ice cold wash cloth hit my hot red skin, it was bliss. (Obviously, the wash cloth was not FREEZING, just very cold.) I could just feel the heat being sucked away. Spent that time listening to music and reading my kindle.

    It reminds me of when I was a kid and came in from being all day in the sun and only to realize that I'd spent WAAAY too much time in the sun. I'd sit with cool, damp washcloths (that I would cool by waving them in the air) on my shoulders and the drug of choice: Noxema! Ahhh... that strong menthol scent of that cooling cream still evokes days in the sun... Anyhoo, the point was to stave off a sunburn. Sometimes it worked.

    I do have a little bit of skin breakdown under my breast, but I'm also lining the lower edge of my bra with a gauze pad to absorb any moisture (it's already near 90 here).

    YMMV.

  • SharonGR
    SharonGR Member Posts: 7
    edited July 2015

    Molly1976: That's so encouraging! At least someone has experienced my like-type symptoms...so I'm not feeling so alone in this! I did talk to my surgeon this morning (as most of you suggested) and she definitely recommended that I change ROs (which I've now also taken care of) and she recommended that I take 2 tylenol about a 1/2 hr. before my treatments to stave off any further swelling & inflammation from the radiation, which she believes is causing the pain. She agrees that after only 2-4 treatments that I should NOT be having these problems. Hopefully my new RO will be more helpful and not so willing to ignore what I'm saying.

    Thankfully, I guess, the "Primus" equipment/room experienced major flooding over the holiday and the machine now needs repairs before any more treatments (for everyone) can resume. So at least I'm getting a much needed "break" and I'm already feeling better...no more "inside" pain, just pink (and I can handle that).

    I can't begin to thank all of you for your responses and concern...it's been an amazing help & comfort. I'll keep you posted...please do the same in your recovery as well. Thank you all!

  • sherry67
    sherry67 Member Posts: 556
    edited July 2015

    I used pure aloe after each treatment and acquphor at bed time .. No skin issues at all. Good luck

  • Cowgirl13
    Cowgirl13 Member Posts: 1,936
    edited July 2015

    Sharon, wonderful new!!! I'm so happy to hear this.

  • BrooksideVT
    BrooksideVT Member Posts: 2,211
    edited July 2015

    So happy to hear your news, Sharon, especially about the RO switch. Now that you mention it, my RO suggested the anti-inflammatory thing as well, and I did it for a couple of weeks. After two weeks, when my pinkness finally matched the norm, I began to taper off. Here's hoping you'll have smooth sailing from now on.

  • SharonGR
    SharonGR Member Posts: 7
    edited July 2015

    Here's just a quick update on Day 9 (12 to go): The Radiologist said and I quote: "Wow, Sharon, you're really lookin' good! That Miaderm (that I'm using regularly) has really made a BIG difference for you. Your skin looks really well hydrated and much, much better than those first few days!" I couldn't agree with him more!

    My next challenge comes with having to decide whether or not to take one of three AIs (Arimideax, Aromasin or Femara) or Tamoxifen...or nothing at all! After reading all the side effects of all of these drugs, I'm REALLY concerned about taking any of them. I'm allergic to 90% of the medications my doctors have prescribed over the years (from simple calcium to most antibiotics) and all of these particular AIs cause "Bone Thinning" - and I already have Osteoporosis. (Complete hysterectomy at age 28...and I'm now 70+) And my surgeon had a fit when she heard that Tamoxifen was being recommended by my Oncologist - because of a higher risk of stroke at my age! So, do I let my bones disintegrate and end up in a puddle of flabby flesh...or do I risk having a stroke and become a total burden on my family??? NOT good options!

  • Meadow
    Meadow Member Posts: 2,007
    edited July 2015

    Sharon, I too am fair skinned, freckled, a red headed lady first (now white, yay), and I was just like you, after just a few treatments I was burned. I did continue to do all my treatments without pause. I used only what my radiologist told me I could use...of course never before tx but immediately after. He ended up prescribing silvadene, like from the burn unit, as by 35 tx I was crispy. I did scar in two small places. The silvadene gave me the most relief. What lotion or cream does your Radiologist have you using? And shame on him for his flip attitude....I am sorry your going thru this!. You will make it. You can do this. You can do what you need to get healthy. Hang in there

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