INSOMNIACS place to talk in the wee hours
Comments
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Frenchfrye From day to day keep on dancing
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sas. -I would love to pack up and head to FL but for now it's just a goal. Although I have enjoyed many pain free days (except 1st and last thing each day ) , still riding to town and back causes pain. I can take a pain pill afterwards and be fine but very leery of the long trip. Hoping to continually get better and stronger. My dh said even if I don't make it back to the ocean and beach that they would scatter m ashes there. Uh - no! That's gross I dont even want my ashes returned to my family. I need to check the law on that. So for now it's on my bucket list.
SAS - thyroid answers : 1sr DX with hypothyroidism around 2007 I believe. Had it checked in 2005 But they said very close to being within range and it couldn't be the problem. Started horrible daily migraines , complete exhaustion ,unable to adjust to temp changes - always freezing or hot in 2005. Also had mother and maternal aunt with hypothyroidism. In 2007 at 2nd tsh test they put me on synthroid 50 MCG. No problems til last year. 2014 during a hospital stay regular lab included tsh test. No increased me to 75 MCG. 8 weeks later showed me on the opposite end of range and I was decreased back to 50. I really didn't think it was connected to hosp stay issues. About 13 weeks ago mo checked tsh again due to original symptoms returning: migraines daily and exhaustion. Was 150. Increased synthroid to 75 MCG . 8weeks later tsh was 100. Increased to 100 MCG. Tsh tested last week I think was close range but close and it had not been8 weeks since last increase . never heard of Hashi's . what's that.
Sorry to bore the rest of you with my thyroid problems.
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Sas-shatzi: yes, please send me the threads? At this point, subsequent treatment is a bit up in the air until Wednesday--depends on whether Dr. Surgeon got clean margins with partial/lumpectomy #2. If he did: radiation, then tamoxifen. If he didn't: skip the rads (I think) and go straight to tamoxifen. No chemo, unless the pathology report this time produces something horrifying/startling. But all the tests so far have indicated only the Stage 0 the mammo/biopsy uncovered this year. Thank God! (My sympathies to all the women who woke up from anesthesia only to find their surgeon standing by their bedside to say "I'm sorry, you're sicker than we thought you were.")
Thank you for chiming in on the nip/no nip issue. Michigan's not nearly the greenhouse inferno that Florida is, even at it's hottest. I don't know if I'd ever be small enough to go braless, if I keep what remains of my natural left breast, but up here there's the cold response. Or in my case, the lack of it on one side. I'm thinking more and more to shoot for some kind of reshaping for my left breast, skip the nip, and go for one of those gorgeous tattoos. Possibly something incorporating the pattern of my scarring--morning glories? honeysuckle? But I haven't decided. Any thoughts, board participants? Emotional despond to lack of nips? Suggestions for tattoo pattern?
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Queen. - more nipple talk. SAS brought up some good points - pun intended. Esp about wearing a bra. I don't wear a bra about 90% of the time and I LOVE it. My insurance paid for me to get some removable life like nipples. They just stick to my skin and pull off easily when I am done, then can restick again when I am ready. They don't look real when naked but put them on with a form fitted T-shirt and BAM I got rock hard nipples.
Chevy. - where are you? Oh I forgot with dds at echo lake. Was wondering why you didn't have something to add about nipple talk.
Sas- no biscuit recipes from me but i bet you and dbf enjoyed the flour all over the place 😉 lol. Also are you trying to tell me to keep it short and quit talking as much ? You called me a chattypatty? It sometimes takes me awhile to understand sly suggestions. You can be blunt with me. I get it. - less talk.
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PattyPeppermint: huh. Good point! Making a list of things to ask Dr. Surgeon about on Wednesday.That'll be one of them! (now envisioning a sort of suction cup dart.....)
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OMD Patty, that was suppose to be funny. I'm not funny? I thought I was funny? Should we have a pole , erhh poll? The point (not the nip), is you are feeling better. YAY! Okay, if you change your mind and want to fly. I got you on this end.
ChattyPatty, Girl do you have any idea what you are doing to us all
Knowing that you have the strength to post. In your case this means you are feeling better. Write pages, my sweet, we will savor every word.Thyroid-----what I've learned in the last two years (May 2013 till now). The minimum being PCP to the maximum being my Bigwig Thyroid doc at Moffitt. Is what is known about the thyroid and it's function, is not good. You are classic for Hashimoto's, but let me go and review. BBL or tomorrow if time doesn't allow.
Male dominated field so dick analogy appropriate. Add to that the primary population of disease problems of the thyroid are among women. Historically, we know where men are the primary treaters of women, disease and causes of disease, and normal conditions such as childbirth have been diminished and devalued.
Keep that page in mind where I went on and on. Chit, pisses me off. The TSH is only one clue amongst many. The thousands and tens of thousands and millions over time, whose care has been mismanaged, because the docs hang their collective dicks on one clue.
Talk more, always more. Dance in the moonlight. Drink in the sun. Make the hug last one more moment

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My hands are slowly getting better. No blisters this week. My face is chapped..go figure. I got the Uncle Fester with the chapped lips look going on.
I have those pictures in my head as I dance Sas!
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Patty, overall this tells the trouble in finding an Endocrinologist. Scrol down to where it talks of Hashimoto's and Hypothyroidism. Endocrin's pass them off to PCP's that aren't trained. Falling through the cracks.
http://thyroid.about.com/od/findingdoctors/a/thyroid-patients-endocrinologists-thyroidologists.htm
BBL
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Back from the psychologist; we arranged for future meetings. She seems inclined to concentrate, for the moment, on stress/anxiety relief techniques, which is entirely appropriate! We'll see if I need chemical intervention as well.
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Patty, I added a dick analogy to my post last page. Soory, it's incorporated not just an add on at the bottom.
Patty edit this is a link to a doc that has hashimoto's. It's only a beginning link. I don't suggest buying any books --yet---maybe later.
Queen: good deal, a beginning
Frenchfrye,, ohhhh do they hurt? You said itch before. Try cold water immersion for about 10 minutes at a time. I'd love to say a cider vinegar soak, but since it is a result of chemo. No clue what that combo might do.
Make ice water, scoop out the ice, and insert hands
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for queenie (new name) (Chevy, you missed it!). Anyway, my 2 cents worth on nipples. Don't have any now. Why? Because 13 years ago I had a breast lift and they move the nipples up. So with the bmx they weren't going to be able to save them. It was fine with me because they have never been very sensitive anyway. Didn't want to bother with reconstructing them either, figured it was just something to go wrong. I did want to have the 3d looking tattoos done by Vinnie. But don't care about that now since I had to have new girls 7 months ago. Maybe someday I'll get a fancy tattoo done.
Patty, OMD, didn't know they made stick on nipples. What a hoot. I'll look those up on google! Hahahahahah
Going with or without a bra- didn't wear a bra with the TEs or implants with the first go-around. Then when I lost 40# the PS swears that's why the girls started hurting and dropping. Now I have to wear a bra or they hurt too much. Didn't change size that much, 550 to 585.
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oh Frenchie, sorry about the hands. Looks very painful. Has your doc seen them? They make a cream with lidocaine that might help if they hurt. Don't know if that's ok with your treatment
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Smaarty: thank you. Nice to hear another "don't worry about it" vote. Just curious: how about the unilateral nippleless look? anyone gone through that?
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Thanks ladies. Yup using lotions,ice,creams,cold water soaks. No blisters this round so that is a plus. I am thinking about asking for some pain med just in case for my next session. I will admit sometimes I just cry when the should pain starts along with my hands. I can handle one pain but these daag hands make everything over sensitive.
Hey I may wake up tomorrow and it all be resolved so there is that to loook forward to.
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Wow you ladies are busy today! Nipples that can be put on and removed? That is brilliant Patty!
The memorial service today was lovely, but also incredibly sad. The service was well attended and there was a nice gathering afterwards. Many young people got up and shared memories. She sounded like an awesome young woman. So much shock and sadness around this though. I knew it would be a tough afternoon. My friend is of course, quite heartbroken.
I got a call from the insurance company today again about more info on the hit and run. Why am I being made to feel like I am making this up? I only had one other hit and run in my life and the treatment was the same. Do they think I enjoy any of this? All the work has been done on this and it sounds like she has the police report so reclassify it under uninsured motorist, so I can get my car in to be fixed please? I will be up for the fight if need be. Twenty or more years with one or more cars insured and no claims, and don't like the way I am being treated.
Hugs to Rose this afternoon. Well heck, hugs to everyone.
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On the road, so I will b quick.
I love it when you are chatty, Patty. We know that means that you have more energy and not in much pain. Would like to hear more from Chattypatty (excellent choice of name Ms. Sas) even if you think your story is boring. Not at all boring. Love to hear about your boys and well, anything. Bless your heart for adopting your boys. Also, I really appreciate your transparency.
Ms. Smaarty, Queenie is a good name for her. I was going to call her the same, but was waiting for Ms. Chevy haha.
Hey Queenie, I am a Uni here with one head light. I'm not going to bother with nip recon because if I decide to go braless, I need only one pasty to cover my nip. I figured why go through the process when you could take the easier route of 3d tatoo
Oh FrenchFrey, your hands look painful. I remember Ms. Spookie mentioned aloe vera sunburn gel with lidocaine also. It might help.
Hello everyone I missed
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Queenie, I'm flat and happy. No recon, nips, or tats in my future, ever. No bras, foobs, poofs, nothing.
If somebody thinks I look weird flat, their problem, not mine. My only problem has been swim wear, and I'm working on that.
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Rosie, soory about Flower, hugs
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Nope,didn't get out of the car at publix
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http://www.pink-perfect.com (Fake nipples)
www.straytats.com (tattoos)
queenie, if you want to try out a tattoo without getting inked then you can order a temporary tattoo just like what the kids where. I was thinking of trying this out if I ever get a real one for the boobs.
Ok, found the prosthesic nipples. $280 for a pair. Lots cheaper than $800 for Vinnie's 3-D tattoos. Might be interested after I get back from Ireland. Maybe have Santa give me a pair!
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I slept AAAALL day! But now I feel like I've got a little energy as opposed to the last round where I had zero get-up-n-go!
Frey--those hands look painful! I've luckily avoided skin issues until I woke up a little while ago and noticed red spots and swelling at the corner of my mouth. It's almost like chemo says to us: "Well, you managed that curveball, let's see how you handle this one!".
Chevy--I get the travel genes from my parents. Dad was born in PA, mom in AR, so every other summer we would pack up the station wagon and head east. On the opposite summers, we would go to Hawaii. Dad is a retired engineer that worked for the Navy so he had to go to Barking Sands, Kauai for missle tests so he would take his hotel room per diem and rent a condo for us. So I've been to 49 states (Alaska is on the Bucket List). In between trips, we camped a lot. Camping is a LOT of work. It's much easier to stay in a hotel and have someone else cook and clean up after you.
Queenie--we have a lot in common. My dad is also 77 and has had 2 cancers: prostate @ 65 and chronic lymphocytic leukemia @ 72. I still end up talking to him more than my mom because she's a retired RN and kind of a hard ass. There was no helicopter parenting from her! Love them both, but my dad's always been the empathetic one. It can be awkward at first, but since this is my third go around with breast issues, he's used to it. The first was a benign prolactinoma on my pituitary gland (prolactin is the breast feeding hormone). The second, on Christmas morning 2010, involves a pot of boiling water for blanching, 2 pounds of Brussels sprouts and a klutzy woman. That equation will get you second degree burns that cover all of both breasts in the pattern of a Valentine's heart with the point being just above the navel (couldn't have drawn it better if I'd tried!), plus three weeks of debridement and a nip that likes to play more hide than seek.
So on the nipples subject, I have had a lumpectomy for my BC but I have had nipple reconstruction. Even after surgery to fix the inverted one, it's not right, won't ever be right and I'm okay with that. Most of my pigment is gone from both nipples from the burn and I've contemplated getting them tattooed but I've decided that I've got better things to do with my time.
Sas--oh, the dick analogies. When my dad had prostate cancer and opted for surgery, he made all kinds of Dick-ectomy jokes. Talk about awkward--when all of us children were in his hospital room after the surgery, the first thing my mom did was throw back his sheet and say "Yup, still there. Just checking!".
Loverly--thanks for the guided meditation. That's pretty much how I go to sleep every day.
<waving at anyone I missed!>
I think the other reason that I may have slept all day is that today is the 37th anniversary of the death of my older brother (auto-erotic asphyxiation at age 13). It gets easier, but it never completely goes away.
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Can't get to sleep. Yea. Glad I have so much energy now I just got to find a way to burn some of it off during the day. Everyone is asleep here. I think I am going for a swim. Dh hates for me to be out there in the dark alone. Told him if someone comes us I'll just flash them my boobies. That should put them in shock long enough for me to grab my gun. I usually keep my ruger within a couple steps anyway. BTW Dh didn't find that funny at all. Nothing like swimming naked in the dark alone. Such a peaceful time for reflections. The only problem is the MOSQUITOES !!!! Gotta keep moving and keep head (and bottom ) under water as much as possible. I also always put our dogs on the porch. The little one barks at everything ! Better false alarm then no alarm at all 😀
Glad to hear a few people don't mind my long posts. Its just you guys are like family to me. 😊 The good kinda family. Not the ones we hide from. Lol seriously think I would have gone crazy without wonderful friends from bco.
Well I am off to get naked and swim
Hootie hoo
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o marla. Sorry for the loss of your brother. What a hard day. Time def doesn't heal everything but it makes it a little easier to deal with everyday.
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Finished swimming. Now cold, wet and more alert.
Tomorrow I'll post a nip pic.
Here's a couple more pics. Hope others post more pics also
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ds2 and me getting our silly on

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Ds2, great niece and our dog Maggie

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Awww...such darlings!! I don't believe a word of what you said about your great niece. Look at that angelic face!!
A nip pic?!? Patty, I know you are transparent, but you are not going to give us a topless pic of yourself...are you ???
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Ay yay yay!!! Didn't realize how long of a "cut and paste" meditation guide. So sorry, so sorry!! No wonder Ms. Sas fell into slumber, Ms Chevy's imagination went haywire, and our dear Marlana slept the whole day. OK, I promise I won't do that again. Just a picture then

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lovey. - oh no not that transparent. (Blushing ). I will put the nips on the table and take pics. Lol. My insurance provides so many bras every 6 mo. I can get bras, swimming wear, camisoles and nighties for free. A couple times ago when I went in to get some bras the owner had these set aside for me. Said was something new they were carrying.
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Good morning friends- hoping those that were up last night were able to get to sleep in the end.
Patty, did you go swimming? I love night swimming. I lived in Puerto Rico for a time in earlier adult life for a few months working on a project, and we would work long hours, eat dinner and around 8 p.m. or so, go swimming in the pool that was part of the little apartment complex we lived in. I have lived in other places/apts that had pool but that was the only place I ever would go at night. I hope the swim helped you Patty!
Going to get my permanent crown on my tooth today. Then hopefully I will be done with my dental stuff for a bit. Eyes checked, teeth checked, boobs in progress.......
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