Neuropathy post final chemo
Is it possible to have an increase on neuropathy a year after final chemo? I've been having some numb spots on the bottom of my feet and it's beginning to concern me. Is it possible this is a latent se?
Comments
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tanganchris- Yes it is possible. I am living proof . My neurooathy in my feet progressively worsened post chemo. 18 months later I suddenly could not move my ankles and was hospitalized w/suspected Guillien Barre Syndrome or MS. After several months and several new neurologist I was wearing leg braces and had trouble walking . A new group of neurolgist then said it was related to effects of chemo- specifically Taxol. I had to quit my nursing job and retire early at age 60.
I wore leg braces for 5 years. Finally about a year ago my leg felt stronger deslite foot drop and continuing neuropathy. I can now walk w/out a cane even, rather slower than I would like but happy that I can do some gardening and get around more. Still have not been able to ride a bike like I used to for years.
I am blessed to have two beautiful grandchildren who visit a lot and keep me active. I occasionally use a pain pill when my feet get bad at night but have learned to live w/it. There are various meds that are supposed to help neuropathy but none worked for me.Going in tbe swimming pool was best therapy, taking the weight off the legs. I am also taking Amitryptyline at bedtime for restless leg syndrome. It helps some. So please go see a neurologist and explore treatments.My prayers that it will clear up for you very soon.
Hugs
Rene
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Thanks Grammy
I am gonna bring this up when I see MO on the 20th. I had some issues during chemo, but everything seemed to clear up within a few months of finishing chemo. This has just come out of no where almost, just these numb spots on the bottoms of my feet close to my toes. At first I thought I'd stepped on something on the floor, but nope nothing there. It doesn't really hurt, it just feels "off".
((hugs)) grammy, I'm hoping things turn around for you.
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post chemo, I just had slight numbness in toes. This continued throughout 5 years on Letrozole. Now, after finishing Letrozole last September, I am now having pain and numbness on soles of both feet. My MO feels it is very odd for this to happen 5 years after chemo. Nevertheless, it has happened. Doing some massage to feet. Magnesium, B6. No improvement yet. I can step on a small grain of rice on my floor and it feels like there are many of them. Or sometimes feel as if a small pebble is there, and there is nothing. So frustrating.
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Oh yes, neuropathy can amp up many years after treatment and it seems to get worse with certain AIs though it's tough to get onc to admit to it - my PCP however believes! However, gabapentin doesn't work for me and I've tried it twice now - I've added a magnesium supplement to my regime but you have to be careful with it as it can cause horrendous diarrhea if too high a dose - the low dose has stopped my leg cramping so I can sleep at night but now that I am on Faslodex I am having really bad foot drop in both feet and burning pain on the bottoms that is making me crazy - walking long distances has become almost impossible but I soldier on because I have a dog and she has to be walked three times a day - it was Taxotere that caused this I am told.
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So as of yesterday my foot is really bothering me, it now is painful and numb....still hard to describe as it is a weird sensation. I'm not sure who to discuss this with, MO? I really didn't want to bring up any problems this time when I go in, I know I shouldn't feel this way but I'm tired of talking to her about SE's and issues. I don't really think she even knows what to do with me. Maybe primary care doc? Also, I swear it was my right foot that first had the numbness, but now it's my left. wth? ugggggggg
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