Anyone from Alberta? Edmonton? Fort McMurray?

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  • 70charger
    70charger Member Posts: 963
    edited July 2015

    yes the cross has 2 infusion rooms. your 1 st infusion takes along time like 5-7 hrs. They do it slow in case u react. The rest of my infusions only took 3 hrs. Sometimes u are in a bed in a separate room within the chair room. My 1st infusion was in one area the rest were in the other. I only saw my mo for the 1st apt, after that I saw the nurse practitioner . Canadian system is much diff than the states. And when u girls go for your meet with the mo, it's weird cause we are so used to the Dr telling us what to do. But with cancer, they will only give you options with a lot of percentage numbers. It is up to You as to what treatment you want. Any other questions just ask, I'll gladly answer if I can. Huggers Fran

  • HopefulJenn
    HopefulJenn Member Posts: 34
    edited July 2015

    Hi Kari! Yep, my appt is Tuesday the 14. I have a new patient info session on Wednesday (a little backwards I know but that's the joy of coming from out of town!). I don't know yet what my upcoming treatment will be. I'm going to be pressing for an MRI before anything (ILC is tough to see on mammo or US, I am soooo thankful they saw it without the MRI) as I'm worried about that. But yes, we should absolutely keep in touch! I'll be sure to let you know how my appt goes next week!

    I hope you're doing as well as you can! I have found the anxiety and emotions by far the toughest part of this whole thing but as long as I can get a good sleep, I'm usually in pretty good shape throughout the day :-)

    Take care and gentle hugs all around!

  • HopefulJenn
    HopefulJenn Member Posts: 34
    edited July 2015

    Hi Fran!

    Thanks very much for the info! I'm actually meeting with a radiation oncologist so I'm guessing that that's what they'll be recommending but ya, I've been told all through this that it's all my decision. And yes, it's very different from what I'm used to with Dr's. I've been struggling the last couple of weeks with chemo + rads vs rads alone. I've been researching as much as I can but I'm pretty sure I'm not an oncologist! I'm hoping that I'll get along well with the onc and we'll speak the same language and they'll be able to answer all my questions.

    From my research and from the AB cancer guidelines, I'm in the grey zone for chemo (my age, 35, and grade 2). I'm hoping I'll be able to get them to run an Oncotype test but I can see this being the most difficult decision in my life! I'm looking forward to the appt and dreading it at the same time! Thank goodness my sister is coming with me, she's been with me at every appt and has been great. I also have purchased a voice recorder, just in case our note-taking abilities let us down!

    I'm curious, if you are going to get chemo, what kind of testing do they do before it starts? And any recommendations on a port or not?

    Sorry about the venting and thanks in advance! I'm off to try to get a good night's sleep :-)

  • clarrn
    clarrn Member Posts: 557
    edited July 2015

    Jenn-If you are going to have an anthracycline class chemo they will do an ECHO to check out your heart function prior to chemo.

    As for the port decision I had two PICC lines clot on me during chemo so they wouldn't give me a port. I had 16 rounds and the chemo nurses never missed BUT even 6 months after chemo was done the ER nurses took 14 unsuccessful attempts and lab always has to double stick me. I think I would choose based on how many rounds you need and which drugs as some are harder on veins than others.

  • 70charger
    70charger Member Posts: 963
    edited July 2015

    I agree with Clarrn. I had 4 rounds of TC, no picc, no port. Only had 1 blow out. It will depend on how many rounds u get & how easy/hard your veins are. I don't know if they do onco testing or not. It was never mentioned to me.

    My RO was Dr. Perez, he's on leave right now. First words were " Side effects.. we are not going to discuss them! We will deal with them if they come". I only saw him twice. At the first, just before rads and just before last rad. Dr Rose is filling in for him. He is a major sweetheart. I hope u get him. I'm seeing him for my RRD.

    For rads here, u use NOTHING til u are finished. In the states they use all kinds of cream. I cheated & used glaxol base & aloe on the weekends. Other than the fatigue you'll do fine.

  • 70charger
    70charger Member Posts: 963
    edited July 2015

    Here in Canada they also have what is called 2nd generation treatment. Due to your age u only get 1/2 of what a younger woman would get. I only had 16 rads vs the 33. Younger women have more to live for? WTF! But it is what it is.

  • DayLily15
    DayLily15 Member Posts: 144
    edited July 2015

    Hello Alberta Ladies :)

    i stayed at the sorrentino compassion house last night... oh my goodness it is wonderful, all were welcoming, the house is like a show room, i felt a bit like a farmgirl :) and the volenteer bus picks up and drops off there, in time with your appointments. many thanks to all who run that place.

    northerncanuck - i live near you, and i still qualified to stay at the compassion house, keep this in mind if driving is difficult. i fall aslpeep from the antinausea pills for chemo , so driving home is not possible, and sometimes rides are hard to find :)

  • HopefulJenn
    HopefulJenn Member Posts: 34
    edited July 2015

    That's great to hear, DayLily! I've looked at their website and it does look beautiful! I'm hoping to stay there during my radiation treatment. I imagine I would feel like a bit of a country pumpkin, too

    Right now I'm waiting on a 2nd opinion on my treatment options. They told me yesterday that according to the AB guidelines I fall in the low risk category but my feeling is that they aren't taking my age seriously enough (I'm 35, right on the tipping point age wise). I just want at least a bit of piece of mind that I've done all I possibly can and ever journal article I've read about age says my age should drop me right in the intermediate to high risk category. The oncologists are digging in their heels on Ki67 or Oncotype testing, too. Which frustrates me as well because I took a look at the BC guidelines and yep, under 40 and they do Oncotype testing. It's giving me a fair amount of anxiety! I see an ativan in my future tonight, for sure!

    I hope everyone else is doing well and has ativan available if you need it, too!

  • 70charger
    70charger Member Posts: 963
    edited October 2015

    Happy Thanksgiving girls! How's everyone doing?

  • clarrn
    clarrn Member Posts: 557
    edited January 2016

    Hope everyone is well! Just wanted to let you all know that there is another cancer retreat planned for Canmore, Alberta in April 8-10th. It is in the most gorgeous lodge Mount Engadine and it's FREE!! I went last year and it was amazing, focuses on your health after treatment. http://www.knightscabin.com/event/knights-cabin-alberta/

  • clarrn
    clarrn Member Posts: 557
    edited January 2016

    Oh and it's for you and a support person (friend/spouse/so etc)

  • 70charger
    70charger Member Posts: 963
    edited January 2016

    Thanks Clarrn! How you doing?

  • clarrn
    clarrn Member Posts: 557
    edited January 2016

    Really good! Finally back to work and oncologist says we can try to have another child in September


  • 70charger
    70charger Member Posts: 963
    edited January 2016

    GREAT! So excited for you!!!!!!!!!!!!

  • Juleseyes
    Juleseyes Member Posts: 20
    edited December 2018

    hello ladies, just reaching out. My mom was diagnosed last week. We live in Edmonton. Wondering how you are all doing???


    I’m very scared. It is in her left breast for sure and one node for sure. They’ve done no other scans. Surgery mastectomy is tomorrow. She hasn’t had a mammo for 5 years. I’m just so scared that it spread or metastized. It’s all I can think about. I’m not doing well

  • 70charger
    70charger Member Posts: 963
    edited December 2018

    Jules, sorry u are here, deep breath! Not all cancer is fast spreading, don't worry till you know what to worry about. Waiting is the really hard part & it will be another 1-2 weeks for full pathology report. Until u get those results nothing is for sure, so hang in there. You have our support if & when you need it. Keep us updated, good luck to your mom.

  • clarrn
    clarrn Member Posts: 557
    edited December 2018

    Jules, it is hard to watch your mom go through this I am sure. 70scharger is right, keep breathing and try not to Google until you know what your mom is dealing with.

    I just wanted to give you some hope. I was 30 when I was diagnosed, it was in 96% of my ducts and lobules and invasive as well with 1 node having 1cm worth of cancer. Well that was 5 years ago this month and I was sure that I wouldn't see my kiddo go to kindergarten (she was 2.5 at my diagnosis). That spunky girl is now 7 and I am healthy and happy, with no sign of recurrence. In fact, with my oncologists blessing we moved forward with our family and I have the most beautiful little 9 month old boy sleeping in my lap right now.

    Be gentle with yourself, and with your mom. There is no 1 way to do breast cancer. Some of us deal best with exploring all the possible outcomes and some are pink warriors exuding a boatload of positivity. No matter the mindset, we do it, one moment at a time.

    Your mom is lucky to have you. Good luck to you and I hope you get answers soon. I waited over Christmas holidays too and things do tend to take a bit longer with so many people off, but there are many distractions.


    70scharger-glad to see you and hope you are well!

  • 70charger
    70charger Member Posts: 963
    edited December 2018

    Clarrn! Great to see you. Congrats on the new little one, You must be over the moon.

    Doing ok on this end. Finding it hard to find a job. I have permanent SE from chemo, brain damage. Causes me to lose the ability to speak, can only get out the first syllable of the word out repeatably, like a super bad stutter while my right hand flails around shaking uncontrollably. Can last up to 20 mins. Then I'm fine again. It is triggered by stress or if I'm tired. Hubby lost his job end of August. Did not see that coming. We went on holidays for a week , came back, 3 days later they canned him. So we have been renovating our house getting it ready to sell. Government says I'm not disabled. I'm too active on the acreage. Can't figure out what job I can do that doesn't involve fine motor skills or talking to customers. Could be worse, Pity Party over.

  • clarrn
    clarrn Member Posts: 557
    edited December 2018

    70charger- so sorry about your chemo induced brain damage and your husband's job loss. I will never understand what makes the government decide who qualifies and who doesn't :( Hoping 2019 is a better year for you guys!

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