Neuropathy post final chemo

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tangandchris
tangandchris Member Posts: 1,855

Is it possible to have an increase on neuropathy a year after final chemo? I've been having some numb spots on the bottom of my feet and it's beginning to concern me. Is it possible this is a latent se?

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  • GrammyR
    GrammyR Member Posts: 702
    edited July 2015

    tanganchris- Yes it is possible. I am living proof . My neurooathy in my feet progressively worsened post chemo. 18 months later I suddenly could not move my ankles and was hospitalized w/suspected Guillien Barre Syndrome or MS. After several months and several new neurologist I was wearing leg braces and had trouble walking . A new group of neurolgist then said it was related to effects of chemo- specifically Taxol. I had to quit my nursing job and retire early at age 60.

    I wore leg braces for 5 years. Finally about a year ago my leg felt stronger deslite foot drop and continuing neuropathy. I can now walk w/out a cane even, rather slower than I would like but happy that I can do some gardening and get around more. Still have not been able to ride a bike like I used to for years.

    I am blessed to have two beautiful grandchildren who visit a lot and keep me active. I occasionally use a pain pill when my feet get bad at night but have learned to live w/it. There are various meds that are supposed to help neuropathy but none worked for me.Going in tbe swimming pool was best therapy, taking the weight off the legs. I am also taking Amitryptyline at bedtime for restless leg syndrome. It helps some. So please go see a neurologist and explore treatments.My prayers that it will clear up for you very soon.

    Hugs

    Rene

  • tangandchris
    tangandchris Member Posts: 1,855
    edited July 2015

    Thanks Grammy

    I am gonna bring this up when I see MO on the 20th. I had some issues during chemo, but everything seemed to clear up within a few months of finishing chemo. This has just come out of no where almost, just these numb spots on the bottoms of my feet close to my toes. At first I thought I'd stepped on something on the floor, but nope nothing there. It doesn't really hurt, it just feels "off".

    ((hugs)) grammy, I'm hoping things turn around for you.

  • jacee
    jacee Member Posts: 1,384
    edited July 2015

    post chemo, I just had slight numbness in toes. This continued throughout 5 years on Letrozole. Now, after finishing Letrozole last September, I am now having pain and numbness on soles of both feet. My MO feels it is very odd for this to happen 5 years after chemo. Nevertheless, it has happened. Doing some massage to feet. Magnesium, B6. No improvement yet. I can step on a small grain of rice on my floor and it feels like there are many of them. Or sometimes feel as if a small pebble is there, and there is nothing. So frustrating.

  • 208sandy
    208sandy Member Posts: 2,610
    edited July 2015

    Oh yes, neuropathy can amp up many years after treatment and it seems to get worse with certain AIs though it's tough to get onc to admit to it - my PCP however believes! However, gabapentin doesn't work for me and I've tried it twice now - I've added a magnesium supplement to my regime but you have to be careful with it as it can cause horrendous diarrhea if too high a dose - the low dose has stopped my leg cramping so I can sleep at night but now that I am on Faslodex I am having really bad foot drop in both feet and burning pain on the bottoms that is making me crazy - walking long distances has become almost impossible but I soldier on because I have a dog and she has to be walked three times a day - it was Taxotere that caused this I am told.

  • tangandchris
    tangandchris Member Posts: 1,855
    edited July 2015

    So as of yesterday my foot is really bothering me, it now is painful and numb....still hard to describe as it is a weird sensation. I'm not sure who to discuss this with, MO? I really didn't want to bring up any problems this time when I go in, I know I shouldn't feel this way but I'm tired of talking to her about SE's and issues. I don't really think she even knows what to do with me. Maybe primary care doc? Also, I swear it was my right foot that first had the numbness, but now it's my left. wth? ugggggggg

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