How Many Are We?

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  • ABeautifulSunset
    ABeautifulSunset Member Posts: 990
    edited July 2015

    Monika, don't look at statistics. They are outdated. Medicine is changing so fast that the stats can't even keep up. You have an excellent chance of living at least 5 years. do you know will happen to BC research and meds in 5 years time? It would probably make your head spin. I think this will be curable in the next five years. Hang in there.

    Stefanie

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  • mdillard04
    mdillard04 Member Posts: 100
    edited July 2015

    Thanks Ladies!!

    Stephanie...I had to seriously force myself to stop researching on the internet because of what I was reading and the negative space it was putting me in. I honestly thought omg I am going have issues with depression soon. You are so right, I need to disregard all of that! Wouldn't it be great if in 5 years a cure was found?? Praying I live to see the day!! Thanks for the positive encouragement!!

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  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited July 2015

    mdillard, the first thing my doctor told me after diagnosis was not to go on the internet and research a lot of stuff and get scared. I listened. I was very cautious about what I looked up, one of the sites I found was this one and it's been a life-saver. I'm not a fan of the "Super Peppy Positive!" stuff, but like to read and watch things regarding cancer/breast cancer that are inspirational and more factual (such as the three part series "Emperor of All Maladies" which is also a book, also "Anti-Cancer" which is a book, and "Radical Remission" to name a few).

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  • hopeful34
    hopeful34 Member Posts: 1,569
    edited July 2015

    I just found out today that I got approved for Ibrance. Yay! Thanks for the welcome ladies.

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  • mdillard04
    mdillard04 Member Posts: 100
    edited July 2015

    @DivineMrsM... Thanks for the recommendations on the books! Will definetly look in to those!!

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  • scrunchthecat
    scrunchthecat Member Posts: 269
    edited July 2015

    Recently diagnosed HER2+++ ER- PR- metastatic to lymph nodes and liver. Undergoing chemo - herceptin, perjeta, docetaxal. I have had 2 treatments, no major side effects (yet) except some fatigue. The lump in my breast was not palpable after treatment 1. Fingers crossed, hoping for a long remission.

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  • 50sgirl
    50sgirl Member Posts: 2,527
    edited July 2015

    I was diagnosed with BC on June 5 and was shocked to learn that it is stage IV. I have bones mets and have begun hormone treatment (Arimidex). I will begin taking Zometa later this month. I am 65 years old and a determined woman who has decided to fight this unwelcome guest that has invaded my body.

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  • Moderators
    Moderators Member Posts: 25,912
    edited July 2015

    Welcome mdillard04, scrunchthecat, and 50sgirl to the club nobody wants to join. We are sorry that you are here, but you'll not feel alone her at all. We are all here to fight together!


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  • dlb823
    dlb823 Member Posts: 9,430
    edited July 2015

    50sgirl and anyone else recently dx'd with bone mets... We have a wonderfully supportive group on a thread here called simply Bone Mets Thread. Here's a link to it: https://community.breastcancer.org/forum/8/topic/7... You're always welcome to join us there! Stop by and introduce yourself any time you feel like it. Deanna


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  • Texasrose53
    Texasrose53 Member Posts: 354
    edited July 2015

    Diagnosed with mets on May 1st. Chemo started on May 22nd. Had a CT scan today to see if chemo is doing its thing! Will get results on Friday. Praying!!!

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  • 50sgirl
    50sgirl Member Posts: 2,527
    edited July 2015

    Texasrose53 -I am praying that you get good news on Friday!

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  • Texasrose53
    Texasrose53 Member Posts: 354
    edited July 2015

    Thank you 50sgirl!

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  • Ellelou
    Ellelou Member Posts: 186
    edited July 2015

    50sgirl--Same here except I started Ibrance and Femara. Spine mets. Wonder why we are being treated differently...

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  • Hummingbird4
    Hummingbird4 Member Posts: 331
    edited July 2015

    Hi. I have been Stage IV since 8/2013. ILC - originally diagnosed Stage II in 7/2009. I have been a lurker here everyday for over a year, but I am not very comfortable posting. I am sorry that I haven't joined until now. I truly would not be doing anywhere near as well as I am, mentally, without you. I have gotten so much valuable information from all of you ladies. So, I will work on my profile and continue to post. But I just wanted to get a quick introduction out. There is a topic that I saw was just started that I can provide very valuable information and I want to do that right now. Again - thank you all so much.

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  • Moderators
    Moderators Member Posts: 25,912
    edited July 2015

    Hummingbird-

    We want to welcome you to our community here at BCO. We're glad you've decided to finally join us, and hope this forum continues to be a source of support and information for you. We look forward to reading more of what you share, members like you are who make this community so great!

    If you have any questions, please don't hesitate to reach out.

    The Mods

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  • VLT
    VLT Member Posts: 2
    edited August 2015

    Yes, I'll be counted, I'm still here. I've been gone from here for a long time. I recently found

    An article written in the NY Times about a 17 year stage 4 survivor that has brought me back.

    Glad to be here.

    Dx 1998 IDC 2.5 mm tumor, Er+Pr+Her2- grade2b no nodes

    Dx 2012 Advanced Stage 4 with bone mets on 75% of bones including scull and face.

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  • hopeful34
    hopeful34 Member Posts: 1,569
    edited August 2015

    VLT- Welcome back. I am so glad you posted. I have been trying to find some Stage IV success stories. I need some hope. Thank you so much.

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  • MemaSue56
    MemaSue56 Member Posts: 2,129
    edited August 2015

    Hopeful and the rest of you wonderful, positive ladies. I have been stage 4 with mets to the spine right out of the gate in april of 2011. Still here n getting stronger. There is hope...just try to stay positive and live each day to the fullest. After all, something else could get us b4 the BC does. Sending positive healing energy out to all.

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  • hopeful34
    hopeful34 Member Posts: 1,569
    edited August 2015

    Thanks Sue. I hope to have many more years too.

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  • CharmedHope
    CharmedHope Member Posts: 1
    edited August 2015

    I'm new here & feeling very alone, so I'm glad I found this forum!! Count me in!!

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  • 50sgirl
    50sgirl Member Posts: 2,527
    edited August 2015

    Charmed Hope, Welcome. I am sorry for the circumstances that brought you here, but you are no longer alone. There are many wonderful people on this site who will provide you with knowledge and support. I am fairly new here, too and find this site helpful.

    Lynn

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  • Wendy3
    Wendy3 Member Posts: 1,012
    edited August 2015

    Hallo mdillard04

    I am a little older but the exact same thing happened with me. I went two years ago to my doctor with a lump and he has been telling me along with other medical professionals that I have a cyst and need to stop drinking coffee....really. Now June 1st I was diagnosed with stage four breast cancer with a couple of mets on my bones. The doctors ....so sorry. So I moved my whole family and animals to the city hoping for better care. Now I'm on tamoxifen and riding it out.

    The shock is the worst but there is always good with everything , my outlook on life and how I interact with the other folks on this planet has changed greatly and that makes me very happy.

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  • Wendy3
    Wendy3 Member Posts: 1,012
    edited August 2015

    Oh yeah and I will be visiting this forum on a regular basis..wonderful ladies this helps SOO much.

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  • Texasrose53
    Texasrose53 Member Posts: 354
    edited August 2015

    Hey Charmedhope.....there is also a forum for Triple Negative Stage IV under this same topic. Some good discussions for TN.

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  • Wendy3
    Wendy3 Member Posts: 1,012
    edited August 2015

    thanks memasue56 nice to know I'm not alone. Never had panic attacks before but I do now....

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  • Wendy3
    Wendy3 Member Posts: 1,012
    edited August 2015

    Good point Ellalou....I have been wondering that as well. Granted there are so many variable that it boggles the mind. But still I'm hearing of drugs here that I've never even heard of. I'm in Canada so maybe that's why?

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  • Ellelou
    Ellelou Member Posts: 186
    edited August 2015

    Wendy3---So I was started on the Ibrance and Femara combo in June because I had never (of course!) had any treatment for cancer and I was post menopausal, ER/PR+ and HER2- . I think I read that my profile was exactly who Pfizer wanted to take this combo. Femara's generic name is Letrozole and it's not new but Ibrance is, and maybe it isn't approved in Canada yet? I think Ibrance was approved by the FDA here only in April 2015. I also have mets in my spine. What treatment are you on?

    Ellen

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  • LindaE54
    LindaE54 Member Posts: 2,054
    edited August 2015

    Ibrance is not approved in Canada and not likely to be for some time. And approved drugs by Health Canada may vary province to province. Quebec is usually the last one to approve. So far, Ibrance is only in the USA.

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  • Wendy3
    Wendy3 Member Posts: 1,012
    edited August 2015

    Ellalou - I have been only on Tamoxifen for two months now, loosing confidence in my doctors I went to see a nature path he put me on metformin which is a diabetic drug was supposed to support the tamoxifen made me lose 15 pounds. So now only Tamoxifen which my oncologist says is working and I believe so to. Hope is so important don't you think?

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  • Wendy3
    Wendy3 Member Posts: 1,012
    edited August 2015

    Morning Ellalou,

    Weird I posted a reply yesterday didn't show up.... Okay the only thing I'm on is Tamoxifin and some of my own natural remedies. I've been on Tamoxifin for two months now. Because my tumour is 100 percent hormone receptive is the reason they are giving me. However even if it's shrinking I have it on my bones so they see no point in operating. They are using my breast tumour as a guide to weather the medication is working and it seems to be working so far. I will never be cured that they have made very clear. Sometimes it's just all to much.

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