Fourth lumpectomy or unilateral or bilateral mastectomy?

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Angela2015
Angela2015 Member Posts: 15

I'm not able to make up my mind. I went from having the "best cancer ever" to facing a unilateral or bilateral mastectomy. I'm upset, confused and unable to make up my mind.

I was diagnosed with very small DCIS in both breasts, stage 0, so the recommendation was to have a lumpectomy on both breasts. I did that and I got clear margins of the left breast (except 1 slide) but not so in the right one. So I underwent a second lumpectomy of my right breast with the hope of getting clear margins. No luck, so I had a third lumpectomy as the Dr. said this time he would be generous and he was convinced this time he will get clear margins. No luck again, it seems that I have "multiple scattered foci".

So now I'm facing a very hard decision: Should I go for a forth lumpectomy or should I have a mastectomy of my right breast? Also, should I consider a bilateral mastectomy? especially taking into account that the left breast already has a dent and 1 slide showed DCIS?

I'm very nervous as I cannot make up my mind.

I would appreciate your thoughts and experience!

Comments

  • CAMommy
    CAMommy Member Posts: 437
    edited July 2015

    if it were me, I'd go with a double with reconstruction. But I have a strong family history. If I wind up in you situation that's what I'm planning on doing.

  • Angela2015
    Angela2015 Member Posts: 15
    edited July 2015

    Thank you for your thoughts!

  • AnewBeginning
    AnewBeginning Member Posts: 536
    edited July 2015

    Angela

    I was in the same boat as you..........doctor said if you were to have cancer this is the best to have. What a joke!

    Dx with DCIS stage 0, had lumpectomy and biopsy found a micro invasion. Clear margins. I thought I wold be fine because the BS said we would just watch and I went every 6 months for mammo and sono. Long story short Dec 2014 I was dx with stage 3a Breast cancer. I had a masectomy and am now undergoing chemo and targeted therapy. I wish I had a masectomy back then! I wish you the best, just really think about it before making your decision.

  • Moderators
    Moderators Member Posts: 25,912
    edited July 2015

    Dear Angela15, Welcome to the BCO community. We are glad that you checked in with our members as there can be so many tough decisions along the way. We hope that you will find some support, information and peace of mind from others here with shared experiences. Here is some information on our site about questions related to your decision Mastectomy versus Lumpectomy. Keep us posted. The Mods

  • Itzy
    Itzy Member Posts: 46
    edited July 2015


    Angela,

    I wish you all the best as you make your way through this.  I was diagnosed with DCIS in my right breast, and IDC in the left this spring.  Before surgery, I consulted with all of the specialists, including the radiation therapist.  He earned my deep respect on my first visit by his obvious thoroughness and amazing thoughtfulness.  I had had several conversations about the lumpectomy-mastectomy decision with my BS, and when asked what I wanted, I finally told the BS what I wanted she could not give me, which was no BC and no surgery.  My second choice was the least invasive surgery for the maximal medical benefit.  If that was lumpectomy, then that is what I wanted.  I told the radiation therapist the same thing.  On my next visit to the surgeon, I was told that the tumor board was making the recommendation of bilateral mastectomy, which I had a month ago.  Apparently the radiation therapist had a pretty strong conviction that that was my best course. I wanted their best medical opinion .... period.  In my case, that decision was no doubt colored by the fact that both my mother and maternal grandmother had had BC. 

    Separately, I chose not to have immediate reconstruction, as I wanted the chance to heal, to see how well or poorly I did with no reconstruction, and proceed with reconstruction later if I really feel I need to and want to.  There may be some compromise cosmetically should I choose reconstruction later, but it made more sense to me to wait. 

    Have you gotten a second opinion?  I also wonder whether an MRI could be useful for you.  Has that been done? 

  • Itzy
    Itzy Member Posts: 46
    edited July 2015


    I should have also included that my DCIS biopsy had comedo necrosis, and it was pointed out to me that this raised concern also.  There are so many things to factor into the decision.

  • Angela2015
    Angela2015 Member Posts: 15
    edited July 2015

    Thank you so much for your message AnewBeginning!

    May I ask how long it took your DCIS to transform into stage 3?


  • Angela2015
    Angela2015 Member Posts: 15
    edited July 2015

    I'm working on getting a second opinion.

    I had an MRI previous to surgery and now the Dr. says it wouldn't make sense as the tissue is scarred after 3 surgeries and it wouldn't be precise.

    Thank you for your post

  • Angela2015
    Angela2015 Member Posts: 15
    edited July 2015

    Thanks for the link. Very helpful

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