Summer 2015 Rads

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  • molly1976
    molly1976 Member Posts: 403
    edited July 2015

    Some of my stickers have been on for over two weeks! I work out and usually take two showers every day. They're tough!

  • ChicagoReader
    ChicagoReader Member Posts: 110
    edited July 2015

    Valentine and Midgie:  I'm going to check out the Playtex bra, too.  Even though the Fruit of the Loom is really comfortable, it could be more supportive.  The Playtex bra looks like it might fit that need.

    Midgie, I'm sorry to hear you didn't get the call you were expecting.  That's so frustrating when a doctor/nurse/doctor's office/someone else needed for your medical treatment doesn't call when expected. 

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited July 2015

    Most of my stickers have been on for 2 weeks now, too. (One had to be replaced last week.) And my marks are underneath, as well as on top.

    Midgie, thanks for your input, too, on the bras. Very helpful. I understand your frustration with the uncertainty and the delay. Have a good holiday anyway!

    SweetHope - So happy for you. Talk about celebrating freedom! ;)

  • ksusan
    ksusan Member Posts: 4,505
    edited July 2015

    Three stickers off in one day.

  • Valentine99
    Valentine99 Member Posts: 75
    edited July 2015

    I will warn you ladies that if your skin reacts like mine did, under the breast where the bra band would go will be very touchy. Fortunately, I don't have to wear a bra anymore so it hasn't been a problem for me. That bra I linked is VERY comfortable. Even my oncologist commented on it when I was in chemo.

  • april25
    april25 Member Posts: 772
    edited July 2015

    I've felt some of my stickers lift at the edges... but so far they have totally stayed on for weeks. Right now I only have ONE sticker. The techs seem to need fewer as time goes on!

    No shaving needed here, since I had chemo and have no hair. Some is growing in, but elsewhere... and slowly.

    No bloodwork. I do get bloodwork when I go for my infusion of Herceptin every 3 weeks, but nothing to do with rads -- and white counts seem OK with me so far, anyway. Once a week they take a picture (x-ray, I think), and the RO sees me for a few minutes to check to see if I'm getting any irritations or limited motion or skin tightening (nothing bad so far--not even fatigue, although I've napped a bit on a few evenings).

    Just did my 16th of 35 txs today. Tomorrow things are closed for the holidays! I hope everyone has an enjoyable weekend, holiday or not.

  • JenH2015
    JenH2015 Member Posts: 31
    edited July 2015
    I talked to the RO office yesterday - and it looks like I will be starting radiation next Wed (the 8th). I am done with Chemo but will have to get two Heraceptin infusions while I am over in Seattle for the radiation.
  • dragonista17
    dragonista17 Member Posts: 50
    edited July 2015

    Congratulations on that bell-ringing! Way to go. I echo others' sentiment in thanking you for starting this thread. It's been super helpful to me as I sit here with anxiety. My start date is Monday, and everyone here has helped me to see this more positively.

  • movingsoccermom
    movingsoccermom Member Posts: 225
    edited July 2015

    I would echo Valentine on the underneath sensitivity, which is really disappointing; it's the only major breakdown in the treatment area. It has made finding a bra a nightmare, since the good side definitely needs support, and unfortunately the Playtex doesn't sit right. Sigh. Just 4 boosts left, and of course the boost hits right along the side panel of bras too. Ugh.

  • wpmoon
    wpmoon Member Posts: 270
    edited July 2015

    I start radiation summer camp on Wednesday, July 8. Thank you all for your tips!

  • pboi
    pboi Member Posts: 663
    edited July 2015

    I think there are a number of us starting radiation summer camp tomorrow. Good luck to all of you.

    I'm starting tomorrow and am starting to get anxious/nervous. I've been told my first session will be longer 45 mins. Hoping after I get one done I'll feel better about what to expect, though the thread about burning after 2 treatments is freaking me out a bit!

    PB

  • Hopeful82014
    Hopeful82014 Member Posts: 3,480
    edited July 2015
    Pboi, don't let that scare you any more than you can help. Some women DO have that reaction but it is not the usual. Your 1st session will involve lots of precise adjustments to your positioning, x-rays, etc as well as one treatment but it shouldn't be too hard. Ask them to out on music if you like; I find that helps.

    Wpmoon, good luck on Wednesday and throughout.
  • Midgiemoon
    Midgiemoon Member Posts: 174
    edited July 2015

    I was hoping to get camp started tomorrow, but I haven't been called with my schedule yet. I'll be ringing them up tomorrow. Time to get this show on the road!


    Best of luck to all new campers!

  • Valentine99
    Valentine99 Member Posts: 75
    edited July 2015

    Good luck to everyone starting tomorrow! Just remember everyone is different and everyone reacts differently so don't anticipate what will happen based on anyone else.

    Here to smooth sailing for everyone!


  • Darumama
    Darumama Member Posts: 135
    edited July 2015

    Trying to keep my sun exposure to a minimum is a little stressful this time of year. After dropping my son at camp we made a spontaneous stop at a street fair on the way home. I was really missing my big sun hat and a scarf. I've got to put spares in my car for these occasions. I had my crew neck shirt and sun block, but I kept thinking my shirt was too thin to really block the rays near my neck. I'm probably overthinking it.

    I'm now done with 12 of 28 treatments. My skin is pinker on the treatment side, but no major issues. They use a bolus every other day and I find that the skin is a little more irritated after those treatments. I do notice tightness in my chest where the TE is and my shoulder has also been a little sore in the mornings until I stretch it sufficiently. Overall, it could be much worse.It feels like the time is flying by.

    Best wishes to those starting tomorrow!

  • InStitches
    InStitches Member Posts: 80
    edited July 2015

    Hello sisters!


    I have an appointment with my RO on Tuesday and expect to start my radiation treatment the following Monday. All the tips have been very helpful and I have stocked up on Aloe Vera gel, Aquaphor and I have a delivery scheduled for Miaderm. Last week I went to two WalMarts and stocked up on the $1.68 camisoles. They are surprisingly nice and soft. I have them in a multitude of colors and they are washed and folded and ready to go. I wanted to have plenty on hand once treatment begins.

    It looks like I will be about a week behind those starting on July 8th.


    Al the tips have been so helpful. I hope we all get through with little to no skin issues. I will have 35 treatments so I am in it for the long haul.

  • Midgiemoon
    Midgiemoon Member Posts: 174
    edited July 2015

    I just spoke with my nurse navigator (she's an angel!) and they are waiting for the doctor to sign off on the treatment plan, and I'll be good to go. Hoping for tomorrow so I can get started...

  • Midgiemoon
    Midgiemoon Member Posts: 174
    edited July 2015

    Ok Ladies, I am off to radiation summer camp tomorrow! Bring on the s'mores!

  • 123JustMe
    123JustMe Member Posts: 385
    edited July 2015
    Midgiemoon good luck!
  • live_deliciously
    live_deliciously Member Posts: 346
    edited July 2015

    what a first day in rads. I had a dbl mastectomy and have t.e. Evidently my left te was in the radiation field when they came at my right breast from the left. So they taped my left boob down as far as it would go and it didn't work so they took out the heavy duty tape. They had to do two trial runs and finally worked. Got a call later from the office to delay my appt tomorrow because they are changing my treatment plan and needed approval from physics Dept for the new plan. I feel so much better about this as last thing I want is to be taped down ea day with a different rad tech doing it. It was actually very uncomfortable besides. I told them it didn't seem very scientific to use tape to prevent my keft breast from getting radiation too. I also asked about my risk for reoccurrence and I'm at 20% for potential reoccurrence. Don't like it that high especially after going thru all the surgeries, chemo, rads and then tamoxifen

  • Valentine99
    Valentine99 Member Posts: 75
    edited July 2015

    LD, are you fully expanded on both sides? When I was going to be expanded, they were only going to expand the side that was going to be radiated so that the other side wouldn't be in the way. Maybe look at them deflating the non-rads side some? Good luck!!

  • Gatomal
    Gatomal Member Posts: 483
    edited July 2015

    jeez Live deliciously, what a day. Yes, I agree tape doesn't seem so kosher. They asked if I wanted my jaw taped or just hold it up, but "don't put head your head down since we may get your jawbone when we do the supraclavicular rads". Uh, yes, please tape it up then! Glad you're getting a new plan.

    I'm halfway today. 13 /25. Skin holding up okay, but fatigue kicking in pretty hard. Stayed in bed most of the weekend, did walk to rads today, but only made it about halfway back before I rewared myself with a wood fired pizza.

  • pboi
    pboi Member Posts: 663
    edited July 2015

    LD...wow what a day you had. And glad you're getting a new plan.

    Had my first rads today. Don't know why, but I was so emotional. It actually went ok, just my nerves I guess. I had X-rays too today so it took about 45 min, but they told me only 15 min tomorrow. One down, 24 to go!

    Midgiemoon - good luck tomorrow!

    PB

  • PatRN10
    PatRN10 Member Posts: 332
    edited July 2015

    LD, very glad on the new plan. Good luck Midgie. I have my sim tomorrow and start tx on 7/20. Went looking for those Walmart cheap cammies and the woman looked at me like I was from outer space. They must be a regional thing in the stores. I found them on line but just 1 or 2 colors. I splurged and got $3.00 tank tops. ;0)

  • Darumama
    Darumama Member Posts: 135
    edited July 2015

    LiveD- Hopefully they have it all sorted out for you tomorrow! At least they realized the first plan wasn't going to work. The heavy duty tape every day would have had your left side looking as bad as the irradiated side by the end of tx. I hear you about the 20%. It's a real bitter pill. I'm going to ask my doc for my percentage again when I see him.Maybe we can keep asking till someone gives us a number we like.

    An old filling came out of my tooth today so tomorrow I have to ask the RO if my white count is high enough to have dental work. Hopefully I can get it fixed because I feel like I have a crater in there.

    I'll be halfway done tomorrow!

  • live_deliciously
    live_deliciously Member Posts: 346
    edited July 2015

    thanks everyone for the comments. I forgot to mention that the room was really cold yesterday. They gave me a blanket one of those fleece ones with the tied edges. Said the girl scouts made it for cancer patients. They will keep it there for me to use every day and then give it to me at the end of rads. Also I have a male tech. Kinda surprised me but his name is Ryan which is same as my sons name. I really like him so I won't say anything about changing to a female. At this point I'm still not fully reconstructed so my modesty left several months ago.

  • Metta
    Metta Member Posts: 84
    edited July 2015

    It's my last day! I'm so happy! I'll be happier in a week, when my skin starts to recover. All was well (at least physically) until #19, but since then my skin has become gradually more red and itchy; it hasn't cracked, thankfully. My RO, nurse, and techs say I "look good" and "did really well." Oh yeah, I look great. In fact, let me enter a beauty contest with my shaved head, no boobs, and giant tomato-red square across my torso. Miss USA.

    Live_deliciously, I have a male tech, too, and no reconstruction. I'm sure he's horrified inside, but he's polite. I just chat him up. You are right, modesty is one of the first things to go. It does still bother me a bit to undress ... in fact, sometimes I take a bath with a bra on because my scars are a foot long. Oh well, I was lucky to have nice boobs for as long as I did.

    My RO and a fellow told me about that study that says node-positive breast cancer has a 20 percent chance of recurrence. But now with our radiation, our chance is slashed in half.

    All of you have helped me so much. I was terrified for most of the six weeks of radiation. Looking back I can see that being scared didn't do anything but make me more upset. Once I started burning, I actually became more calm. Because yes, it's painful. But you know what? We can stand it. We can get through it because women are tough. I admire you guys. Thank you for being here.


  • dragonista17
    dragonista17 Member Posts: 50
    edited July 2015

    Live-del - Sorry your first day was complicated. As if the whole thing isn't traumatic enough. Hope everything is sorted quickly.

    Metta- Congrats on finishing! This whole thing is scary, but your words give me courage.

    I had my sim yesterday. I thought I'd get nuked as well, but they saved that for today, so I guess this is it. The whole thing is so intimidating, but a tad less scary now that I've seen the equipment, etc. The techs are super efficient and extremely nice, which helps. But omg, I can't believe I'll actually be going through this. Day after day after day. I spent the weekend carb-loading and having a couple of drinks (I'm not a drinker!), I guess whatever helps get through that anxiety, huh. I also see how much everyone here has gone through, so much more than I've had to deal with, so I really need to quit whining and find strength in everyone's words. It feels like I have the cancer channel on here, all cancer, all the time. Trying to watch entertaining movies and such. Anyone have a recommendation for that?


  • molly1976
    molly1976 Member Posts: 403
    edited July 2015

    dragonista, I mainlined the entire series of Gilmore Girls during chemo! It's light and entertaining, perfect for distracting myself.

  • dragonista17
    dragonista17 Member Posts: 50
    edited July 2015

    Thanks. I've never seen that one, so it's on my list:)

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