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bhd1
bhd1 Member Posts: 3,874
edited August 2015 in Palliative Therapy/Hospice Care

I just joined the palliative care.no more treatments for me. Quality of life.is important to me.I only hope I did not wait too long. My last chemo left me with a lot of problems. And I recently had radiation which

. Has caused sores all over my upper arms and the bad wound in my armpit. I hope it goes away but not sure it will . ready to live the rest of my life without treatments. Hello ladies. Hope you are ok. Looking forward to talking w you. I hope I am in the right place. If I am not can someone direct me.pleas

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  • LindaE54
    LindaE54 Member Posts: 2,054
    edited July 2015

    Hello Barb - I'm so sorry to hear that.  Hope the sores and the wound will go away - I would think they will.  I agree with you that QOL is so important.  That's a major decision, one that I hope will be able to make in due course.  It must have been a hard decision to make.  Other than the sores and wound, how are you feeling?  Do you have plans for this summer?

    Sending you big virtual hugs - Linda

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  • bhd1
    bhd1 Member Posts: 3,874
    edited July 2015

    don't be sorry . I am at peace w my decision. I only hope I didn't wait too long

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  • LindaE54
    LindaE54 Member Posts: 2,054
    edited July 2015

    I'm glad to hear that Barb.  Wishing a good QOL.  Keep in touch.

    Linda

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  • bhd1
    bhd1 Member Posts: 3,874
    edited July 2015

    thx linda

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  • LindaE54
    LindaE54 Member Posts: 2,054
    edited July 2015


    Barb - Just bumping because you're not getting responses.  Perhaps, posting in Stage 4?

    Linda

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  • MusicLover
    MusicLover Member Posts: 4,225
    edited July 2015

    Barb, I wish I had some advice for you but I wanted to let you know that my thoughts and prayers are with you and I do hope that the wounds heal.  I was wondering what your medical team has suggested for you?  Are they on board with your decision?  Have you thought about going to another center for their opinion?  I wish that I had more ideas.

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  • steelrose
    steelrose Member Posts: 3,798
    edited July 2015

    Hi Barb…

    Just here to offer my support. Quality of life is so important, and this is a very personal choice. I hope that someone can help you with those wounds. Comfort and peace this summer!

    Rose.

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  • Zillsnot4me
    Zillsnot4me Member Posts: 2,687
    edited July 2015

    I understand QOL. I'm glad you are at peace.

    Did your RO give you silva dyne? It's a mousse like cream that is for burns. You'll be amazed how quickly it heals. Ask for it if you haven't been given any. It's awesome stuff.

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  • leggo
    leggo Member Posts: 3,293
    edited July 2015

    Hi Barb. I know how hard it is to say "no" to treatment. Been there. It took a while for me to be at peace with the decision, but so glad I did. If it's any consolation, I started feeling better than when I was in active treatment. We all have our line in the sand. I wish you comfort and peace. Much love and a big hug to you.

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  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited July 2015

    Barb,
    I just saw this and wanted to wish you well. If you are at peace, then that's the right decision for you. Take care.
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  • 208sandy
    208sandy Member Posts: 2,610
    edited July 2015

    Barb - just wanted to say hi and hope you're feeling at peace. I second the Silvadene (sp?) suggestion - stuff works like a charm. Here's to you getting some QOL. Hugs, S.

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  • Maureen813
    Maureen813 Member Posts: 2,893
    edited July 2015

    Barb

    I just saw this thread. I understand that point where you are sick of being sick. Kudos for having the strength to make that decision. I hope you have your families support and all the resources at your fingertip. Please let me know how you're doing. Hugs, prayers and best wishes. You are such a wonderful special lady who support so many on the SIV threads.

    Love

    Maureen


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  • dlb823
    dlb823 Member Posts: 9,430
    edited July 2015

    Barb, I'm glad to know you're at peace with your decision to stop tx. Thank you for sharing your thoughts on something we all think about. I wish you many beautiful days. You will be in my thoughts & prayers. Deanna

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  • diana50
    diana50 Member Posts: 2,134
    edited July 2015

    barb

    Know I am thinking about you and family. pray you can start to feel better as you cease treatment. I wish you comfort and feel good days ahead.

    ️Hugs

    Diana

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  • LindaE54
    LindaE54 Member Posts: 2,054
    edited July 2015

    Barb - thinking of you and hoping you are feeling better and comfortable. - Linda

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  • Rosevalley
    Rosevalley Member Posts: 3,061
    edited July 2015

    Hugs Barb! May hospice bring you symptom relief and comfort. Are you close to your family? I hope they can be there for you. Wishing you sunny days with no pain and love. I am following right behind as things are not going well for me in cancerland lots of symptoms and miserable options. More and more I feel like stopping is the kinder gentle saner option.

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  • CalicoCat
    CalicoCat Member Posts: 370
    edited July 2015

    Hi, Barb, thank you for opening this thread. I'm not there yet, but think palliative/hospice is not far in my future. I'm preparing a room in my house where I, and hopefully, visitors, can be comfortable.

    xoxoxoooooo

    Calico

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  • Maureen813
    Maureen813 Member Posts: 2,893
    edited July 2015

    Prayers Barb. I hope you are enjoying every second off the toxic garbage.

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited July 2015

    Barb hope everything improves from all the treatments, that you can experiences some comfort. This link is to a wound care that I worked on(old nurse). They're is a description on how to use silvadine. Cleans up wounds nicely.

    https://community.breastcancer.org/forum/44/topic/754935?page=1


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  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited July 2015
    bhd1, posting to let you know I am thinking of you and will keep you in my prayers. I hope the issues from radiation clear up for you so you are not in so much discomfort. It's hard to know what to say in this situation, but you have my support. You say you are at peace with the matter, and that's what counts.
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  • NineTwelve
    NineTwelve Member Posts: 569
    edited July 2015

    Thoughts and prayers going out to you, Barb. Hoping the wounds are healing now and giving you less trouble.

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  • Rosevalley
    Rosevalley Member Posts: 3,061
    edited July 2015

    (((Hugs))) Barb, thinking of you this morning and wishing you a pain free day.

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  • Leah_S
    Leah_S Member Posts: 8,458
    edited July 2015

    Barb, I hope your wounds are healing and you're feeling better now. I know your decision was difficult but you have to do what's right for you.

    Sending love to you.

    Leah

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  • TriciaK
    TriciaK Member Posts: 362
    edited July 2015

    Barb, I just had my close friend make the same decision a few months ago so having had many frank talks with her regarding this I can well understand your decision and the fact you're at peace with it as was she. I really hope your wound heals quickly and you can get to enjoy some quality time with your family. My friend always said it took more courage to know when to stop than to battle on regardless and I send you my very best wishes.

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  • LindaE54
    LindaE54 Member Posts: 2,054
    edited August 2015

    Tricia - I hate to be the bearer of sad news, but Barb passed away on 15 July.

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