April 2015 Chemo Crew... Starting in April? Please join us!

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  • Peabrain
    Peabrain Member Posts: 268
    edited July 2015

    Ankledolphin,

    I absolutely relate to your desire to go through your public life without letting them see any of the emotions behind it. I also have a very public job, with a lot of collaborative contact with clients and consultants and contractors, and am the one that manages the team. I kept up a very positive, cheerful facade for the diagnosis phase, but I could not figure out how I was going to be able to put on that public face for six months. And I couldn't figure out how to track all the different projects through weekly chemo brain. So I opted for an extended medical leave.

    I don't feel like a mess in my personal moments, and generally am a pretty happy person, but I'd have to be in the worst denial to be so positive about everything all the time. I am happy to be on leave so I can just be.

    I respect your decision to do it a different way and acknowledge the toll that it takes on you.

    Peabrain

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited July 2015

    yeah my PT said no excercise above the belly button except my lymph edema and stretching..so frustrating!

  • SueH58
    SueH58 Member Posts: 632
    edited July 2015

    gkodad - how did you know something was seriously wrong--just a feeling or were there symptoms. Thank goodness you caught that sneaky bast***!!!!

  • Positive_spirit
    Positive_spirit Member Posts: 218
    edited July 2015

    a really healthy family break since chemo began to Mystic, CT. Sending this adorable beluga whale to cheer you all up. Right now, I feel incredibly grateful to live among some of the world's most wonderful creatures...wow! And my old as gold friend from college is driving down from Canada to be with me and the family.

    image

  • Positive_spirit
    Positive_spirit Member Posts: 218
    edited July 2015

    littleBlue...mystic pizza exists.

  • Addie29
    Addie29 Member Posts: 307
    edited July 2015

    I have 2, 3 and 5 pound weights. The dc said those are fine but nothing over that lol my arms are getting super flabby. I'm losing muscle mass fast also

  • ksusan
    ksusan Member Posts: 4,505
    edited July 2015

    Same range--up to 5#. I was allowed to start doing triceps extensions 2 weeks ago if I did them lying on the floor.

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited July 2015

    addie, I hear you. Flab city here :( I am worried about annoying this stupid port by making my pecs flex though. Although to be honest, my cat weighs 12 lbs and I have been picking her up since day one so I dunno.

    Ksusan, did you start triceps befor or after your port came out?

  • ksusan
    ksusan Member Posts: 4,505
    edited July 2015

    Littleblue, before. My surgeon said I could do any physical activity at my check-up a few weeks after my port went in, and my PT/LE said any stretches were fine, but she (PT/LE) didn't want me lifting or doing anything strenuous while she evaluated me fr LE over a couple of weeks. I'm still not to do heavy cardio or heavy weight [without building up, I think], but she's said other activities are now okay.

  • Alibeths
    Alibeths Member Posts: 656
    edited July 2015

    who is gene!!? Forgive me! I get confused!!😫chemo brain!!!

  • ksusan
    ksusan Member Posts: 4,505
    edited July 2015

    And my cats are 20#, and I did not pick them up for months!

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited July 2015

    Hey allibeths, are you going to be doing radiation?

    Positive spirit, lovely pics! Thanks so much for sharing, and I'm so glad you are feeling a bit better. This is a tough time! Lots of love, sister!

  • ThePrincess
    ThePrincess Member Posts: 424
    edited July 2015

    littleblue - I know how you feel! This weekly chemo is for the freaking birds?!! When am I supposed to feel good??!! It's crazy making!

    Everyone- and there are too many of you lovlies to mention each, thank you for the good thoughts!!

  • SueH58
    SueH58 Member Posts: 632
    edited July 2015

    I think Gene may be a hoax. He posted on several sites (each time twice) and on other irrelevant sites. Both his posts have been removed from this board. I'm such a sucker....

  • ksusan
    ksusan Member Posts: 4,505
    edited July 2015

    #25: I am grateful to be out in the hot sun again.

  • AndreaC
    AndreaC Member Posts: 220
    edited July 2015

    Hi all!

    gkodad: The tumour on my left side was actually mixed...features of both IDC and ILC. So you're not the only one...that's the side which has lymph node involvement.

    It was my last day of chemo today!!!! My PICC is out! I am so excited! Feeling well aside from the usual facial flushing and insomnia from the dex.

    image

    Me with my mom today :)

    Andrea

  • mysunshine48
    mysunshine48 Member Posts: 1,480
    edited July 2015

    Wow! How great! I have one more left.....gonna make a sign!

  • Alibeths
    Alibeths Member Posts: 656
    edited July 2015

    yes, little blue I am doing radiation.

  • gkodad
    gkodad Member Posts: 188
    edited July 2015

    Sue58 - How did I know something was wrong?  When I rolled over on that side at night, this weird thickness in my breast tissue would push against the inside of my arm. I was hoping it was fat necrosis from a car accident that severely bruised my breast and ribs. Fortunately, the radiologist took me seriously despite his believe it was just dense breast tissue, and pushed the insurance company for an MRI despite nothing of significance on the mammo and U/S.    My uneducated medical theory is that the injury triggered something to start growing, but my MO says no....

    Andrea C - Yahoo on last chemo!  I can't wait to get to where you are! 

    Positive spirit - love the beluga baby!  I'd love to see one close up.

    I wondered about Gene...the maple syrup in the microwave seemed a little out there.  Let's assume there was no malicious intent. 

    Hope everyone enjoys the holiday.  Day 3 on my first Taxol and the aches and pains have set in.  But my head is seriously better than on A/C

  • Addie29
    Addie29 Member Posts: 307
    edited July 2015

    this is day 4 post taxol for me and I'm feeling pretty decent- besides the expander pain- tbats mostly on my left side because my ps put 50ccs more in that side. Taxol has been good to me. Usually just fatigued by the weekend. The first taxol I had caused me body aches by the weekend but I haven't had them since my first dose of taxol. My nails are actually starting to ache just a little and my lashes and brows are thinning even more. Today we're going to watch a parade (in the rain) and then watch fireworks over the lake. I hope everyone has a wonderful weekend.

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited July 2015

    CONGRATS ANDREA!

    Gko, day three bone pain here too 😩


  • gingeel
    gingeel Member Posts: 102
    edited July 2015

    I'm behind a page, but thank you Kbee for reassuring me. I'm still extremely fatigued...just making my bed was a chore, but mentally I'm better and my tummy is settled.

    As far as exercising, am I not supposed to use weights if i have a port?

    Good for you Andrea!!!! God bless.

    Happy 4th everyone!

  • gkodad
    gkodad Member Posts: 188
    edited July 2015

    I was told the port can develop a problem with weights and excessive arm exercise, and to limit any exercise that causes stress in that region.   Of course, given the MX and lymph node removal that was already limited.   Check with your doctor. 

  • gingeel
    gingeel Member Posts: 102
    edited July 2015

    Good to know. I don't recall any advice on exercise. But, I wouldn't be surprised if I just can't remember.

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited July 2015

    Congratulations on finishing Andrea! Ring that bell!

    🎉🎉🎉🎉🎉👏🏻👏🏻🏆🔔🔔🔔🔔🔔

  • AndreaC
    AndreaC Member Posts: 220
    edited July 2015

    Happy July 4th to all yay American friends! Have a fantastic weekend!

    Andrea


  • KBeee
    KBeee Member Posts: 5,109
    edited July 2015

    My BS had no lifting restrictions on me with my port. In fact, he positioned it to try to be out of the way of my air pack, so I could still take fire calls. I lift weights almost every day

  • slv58
    slv58 Member Posts: 1,216
    edited July 2015

    Ok, so I should be alright trying to play golf tomorrow? I never even thought to ask and it's the first time I'm playing in 2 years-I'm excited because it will be my son, stepson and hubby! We use to be a regular foursome when the boys were younger. I'm not going to push myself, but will put some effort into my swing. I'll be wearing my lymphedema sleeve

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited July 2015

    Happy 4th ya all!

    dagnabbit!! You guys mean I have been letting my upper body go for no reason? Fraaaaaaak!

    Kbeee, would you mind sharing your excercise routine with us, beyond running and walking? Clearly I have not been proactive enough in my questioning my MO about what I can do. Guess I am intimidated by my cyborg part. I have a PT appointment on tuesday, so I can grill her!

    Anyone know if low blood pressure causes ringing in the ears? And woozyness? Planning to clean the basement today, but not if I'm gonna go nose first down the stairs!

  • Jackbirdie
    Jackbirdie Member Posts: 4,693
    edited July 2015

    Here is my mom's (RIP) interpretive 4th quilt. She was self-taught, and designed and made this while she was living with me the last few years. She was an amazing, talented woman, and just loved rotating holiday displays for the various holidays. How I miss her.

    image

    image


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