Summer 2015 Rads
Comments
-
Hopeful, I had to laugh about your shaving post. The first chance I could after surgery I shaved with an electric razor and nicked myself - lol! I was on the phone to the nurse within minutes in a total panic that I had just doomed myself to lymphedema. First and last time I shaved my pits with one of those! I remembered thinking, "who the hell can manage to cut themselves with an electric razor?!" Now I know I am not alone 😊. I started shaving with my regular razor (until I lost my hair) after that but I don't have any numbness and figured my track record was much better with the regular razor. I don't plan on shaving during rads even if my pit hair comes back
-
Congratulations ORgal! Definitely keep an eye on your skin because mine did continue to get worse after treatment. I am a week out now and I think I am at the turning point.
I didn't have to shave my arm getting radiated. I think the radiation stunted the growth, or burned it off LOL. The other arm is actually slow too.
-
Midgie, I am 100 miles from RT and have been driving since late May. 24/25 done and then have 5 boosts. I have not experienced any more fatigue than what you would expect for 200 miles of driving, but I don't work outside the house, so can't comment on the impact that has. I have had few side effects, just a rash under the treated breast (darn it!), and am still wearing my underwires. Hope this helps.
-
I made my way to Walmart today and picked up a bunch of the famous $1.68 camis that I heard about here. My store was starting to run out of various colors and sizes, so if you haven't started rads yet and want some cheap clothing that you won't feel too bad messing up with creams and ointments, visit Walmart soon.
Also on the fashion front, I bought a few UPF 50 shirts from Lands End. Although they are sold in the swimwear dept, many of them actually look good enough to wear around town. My local Sears was selling them on sale for $15 each which was a big markdown. I don't plan on wearing them till I finish rads and am on vacation. They would get ruined by Aquaphor.
I was at a party last weekend and didn't want Aquaphor seeping through my nice clothes so I tried Miaderm. I really liked how it wasn't greasy, but it didn't agree with my skin. Got redder and bumpy. I read that if you have a ragweed allergy you may be sensitive to it since calendula is in the same family. It seems like this is pretty rare reaction though. Just an FYI for ragweed allergic folks
9/28 done. Doc told me today that my white count is low. Through chemo it was ok so it's a little disappointing that it's going down now. We're just watching it for now. Anyone else have this? I'm wondering if they will give me Neulasta like during chemo.
-
Perhaps I shouldn't admit it, but I generally don't shave my underarms unless I'm wearing something sleeveless, which is rare. I don't like how hairlessness feels at all, so losing my underarm hair from chemo has been very annoying and I'm quite chafed.
-
Jen, thanks for the update. I've heard that the results for the right patients are very good with the Canadian protocol except for the fibrosis issue, and it sounds as though that can be dealt with if you know to ask. I wasn't a candidate for it but am glad you can go that route.
-
Amy - so glad to know I'm not the only one, too!
Does anyone have a source for these camis other than Walmart? what about any really soft, lightweight bras? I really need some support or my incision aches. I feel like I am between a rock and a hard place. -
Hey there. Still on vac for another few days then back to u.s. for july 4 celebrarion. having a blast and feeling great. 4 weeks pfc.
Sweethope where did you get your percentage risk numbers? I just didnt see much info in risk reduction after radiarion anywhere. That is great that you are so little at risk now.
Darumama. Glad you are doing better too. Do they take blood samples during radiation? Or how did you find out about your white blood count? I start rads on Monday. But no one said anything about more blood draws.
-
live deliciously, my percentage risk numbers came straight from my RO. He told me my high number on my first visit (which helped scare me into accepting the treatments). Then after thinking about it, I asked for the rate with rads, he checked my portfolio, and said 4%, and I was thrilled. I've smiled through every treatment since.
So be sure and ask for your numbers, I know you will be smiling, too!
-
LiveD, They draw blood and do a CBC once a week. On my first visit to the MO he reviewed my risk numbers after all the phases of treatment. I think after surgery ,chemo and rads it was at 10%. But I can't swear to this number because I was still freaking out at that point. ;
Savor the rest of your vacation! You deserve it!
-
Hopeful82014: The Fruit of the Loom Comfort Cotton Blend Front Close Sports Bra style #96014 is lightweight, cool, and inexpensive. It doesn't have any underwire. Amazon sells them and you can also find them at some Targets. I had a lot of bruising after my biopsies (2 separate sites in the same breast) and they really helped
-
ok. I'll ask the RO next week about a risk nu.. He never shared with me a number so maybe it's a high number? Just said I met all 4 conditions why they would need to do radiation. He did say no reason to not look at a cure after rads so maybe I should be positive. They also didn't say anything about drawing blood weekly just i would meet with the RO ea Monday to check my skin and answer questions . Guess I'm not asking enough of the right questions. So good to have you ladies to share info.
-
live deliciously, I did not have any blood work during RT. And yes, you should be very optimistic about your future
-
Chicago - Thank you SO much! I've all but lived in my front zip bras since my first biopsy way back in early September but they are fairly heavy. They take forever to line dry and are too warm in our summer heat, so your recommendation is hugely helpful.
Live Deliciously - No blood work for me, either.
-
No blood work here, either.
Want me to post a photo showing my sim markings? Would that be helpful to anyone?
-
I had my simulation on Monday. Cried the whole time, even though it was quick and relatively painless (just a little pain from the tattoo pricks). Just emotionally draining, I guess.
I start next Wednesday. 5 times a week for 6 weeks. The last 5 will be "booster" sessions.
-
I'm sorry it was so tough for you, wpmoon. I know many women have had the same reaction. I certainly had a tough time walking through that door as a patient the first time I met my RO and again going back for the sim. I so badly did not want any of that to be happening, to be real.
I hope the next time is easier - and it probably will be. Hang in there.
(To continue the summer camp theme, just remember that lots of kids cry when they go away to camp for the first time. Once you get into the routine it's not bad, at least until you start having skin damage.)
-
Thank you for your responses on the cornstarch.
I noticed during the simulation that the shoulder on my non-surgical side hurt. I didn't mention it (I probably should have). I have done a little research and think it is a rotator cuff issue. It could have been aggravated by my sleeping on that side after my surgery. Has anyone had issues with that during radiation? -
Darumama , my RO said 4-6 weeks is a good time after chemotherapy, but no sooner. Coz it allows our body to heal from chemo before we subject her to radiation therapy. Best wishes to you.
-
NATSGSG: I had thought the same thing. My medical oncologist told me I could take 6 weeks before starting, but when I saw the radiation oncologist he told me he usually started patients 3-4 weeks after chemo. He didn't want me to wait too long. He told me that I since I had my surgery in January (a long time ago, according to him) and I am stage 3, he wanted to do it sooner rather than later. When they told me that my start date was just shy of two weeks from my last chemo I was still surprised. When I questioned it, they said it would be ok if I felt recovered enough. There is also a study of BC patients who did chemo and radiation at the same time (😱!) and the outcomes were good-- the patients were probably miserable though
-
I met a lady in the waiting room today who is doing chemo and radiation at the same time for lung cancer. I can't even imagine.
-
Hi all...
Joining this group from the April chemo group...although I have already posted a couple of notes here.
My fourth and final chemo (TC) is tomorrow. My sim is July 15 and I start rads (28 sessions) on July 28. There is light at the end of the tunnel!
Andrea
-
Welcome to Radiation Summer Camp, Andrea, and good luck with your final chemo tomorrow!
-
Three positioning stickers in my armpit? Really? In 96+ degrees? That will be both comfy and hold for 9 days, not.
-
Hopeful, you might look at these bras too. I wore them pre-surgery. http://www.target.com/p/playtex-women-s-simply-siz...
-
Thank you, Valentine - those look like they'd be real contenders. I'm heading to Target this weekend so your timing's perfect!
Ksusan - Good luck with that! You ought to start a pool on just how long those stickers will last! Did they give you any extras just in case?
-
SweetHope - If my calculations are correct, by now you should be DONE!!!! It's been a long haul for you, I know. Congratulations on bearing up through it all.
Thank you for starting this thread and for your friendship and encouragement as well as sharing your tips and experiences.
I hope your skin continues to do just as beautifully as it has so far. Good luck with whichever A/I you move on to. Enjoy your holiday weekend, big time!!
-
Hopeful, Yes I rang the bell! Thank you for the sweet sentiments. Becky
-
They gave me extra stickers, but the ones that have peeled off have the marks on them, not under them, so I can't really place the new stickers correctly if I don't see them peeling off. It seems like amateurish medical technique! My PT said, "Not your problem. If the stickers come off and can't be replaced correctly, they can run the measurements again." However, I don't think like that so I spent the night crying and worrying.
-
Hi,
I agree with Valentine'. The playtexbra she linked to from Target is out of sight awesome!! I am an underwire girl, and I love this bra, very soft and supportive!
My stickers have been on since Monday and so far so good. I was expecting a call today to tell me when I was starting and I got nothing... Grrr. I was expecting a Minday start.
I am assuming it's now Tuesday. I am so annoyed about this because I have 6 weeks and now there's another weekend added in. Major pouting!!!!
Thanks for letting me vent!
~Midgie
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team