I WANT MY MOJO BACK!

This is the first time I've heard of it, but would definitely be interested to hear back from you if you try it. I've been using a combo of Luvena a few times a week along with Organic virgin Coconut Oil and a Vitamin E/Calendula Gel. That's been working pretty well, but I'm worried if I have my ovaries removed and go on the AI drugs the problems will worsen.

Alexa, what a beautiful testimony to the power of your love for your DH. Our genitals may not function as perfectly as they once did before our disease, but our bodies are so much more.

Littleblueflowers, try experimenting with 'toys' or a dildo similar in size to your husband, going very slow and using lots of lube. If that feels comfortable, it might help you to feel less nervous and confident about having actual penetrative sex with your DH. I've been using that method very successfully. I started with dildos a little smaller than my husband and worked my way up to one that approximates his size. Just be gentle with yourself if you're still doing chemo!

Littleblueflowers, the first time during chemo that we had penetrative sex I did cry the next morning when I was still hurting and discovered the entrance to my hoohaw was blistered. In fact I cried more than once. Lube helped a little, coconut oil helped a little, but there was the pain on entry and pain like a constriction in the middle too. Thought after chemo it would all be okay, nope. MO gave an Rx for estrace cream and FINALLLY!!!, 95% of the pain is gone, just some mild discomfort on entry. And I can actually produce my own moisture. I was so afraid sex would be a pain the rest of my life and I really, really like it. Don't know if you can use estrace during treatment though, but there is hope down the road. Like amylsp said, be gentle with yourself right now.

I used the replens for two months, just about every night, it helped a lot but not as much as I needed, so the estrace was prescribed. I supplement that with a pea size frozen coconut oil homemade suppository at bedtime about once a week too. Once you can get rid of the pain and start enjoying it the more the want comes back, thank God!

Oh that's good to know. Do you prefer one over another?

There's also Luvena. It's more expensive, but doesn't have any parabens or glycerin in it.

Osphena is not recommended breast cancer survivors and increases your risk of blood clots and uterine cancer. linky

Yeast infection. Stay away from sugar. Also when I get them (usually from antibiotics) I just get some acidophilus capsules and use them as a vaginal suppository for several days. I find the OTC meds irritate me and this works just fine. Not as messy either. If the capsule isn't dissolving cut off the top before you insert.

It is been 8 years for us and no sex. So, pain, dryness and loss of drive are here to stay for some years.

AlaskaAngel keep asking. I asked gyn, pcp, mo. I finally got referred to a female urologist. Ask pcp if there are any female gyn who specialize in post cancer or menopause. Or if there is a pelvic health center near you. If there is a pelvic pt call and ask who refers patients to her. We should not have to suffer in silence. Did you see the thread about mona lisa touch? I am researching into doing it. Not covered by insurance but worth it to get back intimate functioning. You would probably have to travel. The monalisa touch site has a physician finder.

Alaska Angel, you bring g up an interesting point. I too am beginning to feel out of touch with my old biological gender. Missing two major and one minor aspects of femaleness...fertility, breasts, and hair..has totally disconnected me. I don't feel sexual interest in men or women right now. It's difficult to figure out how to present my gender identity. It's going to take work to figure this one out! Gender neutral seems so lonley...

I don't feel genderless, but not even two months on Arimidex with ovarian suppression and the last two times we've attempted sex I am in so much pain I can't get him completely inside and have wound up sobbing. My husband says I need to relax but that is not the problem. MO said she was surprised to hear that people were giving out estrogen creams to women on hormone suppressive therapy and told me to try HyaloGYN, which helps with day to day irritation but made no difference in doing the deed. She said she wouldn't rule it out but it should be my last resort. Its true, as a mother of a 4 year old, dying trumps being a eunuch but unfortunately i feel like having your breast cut off is the easiest part of this disease.

Thought this latest Breastcancer.org blog post would be of interest!

Stay Hopeful: Flibanserin May Finally Be Approved for Help With Libido!