July 2015 Surgery Sisters

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  • Free123
    Free123 Member Posts: 84
    edited June 2015

    Ok jodib, I didn't see the actual questions when I looked the first time!

    As far as healing, I had NO issue with that the first time, granted they were just implants and no mastectomy and all that. But the breasts were perky enough that they did not "dangle" below the incisions and they healed fine. The incisions are not actually in the way of a bra, just a bit up from where a bra hits. My PS and oncologist said they were going to biopsy the nipple and surrounding skin etc during the surgery and of course not use it if there were cancer cells there. My take on this is that if I wake up and have no nipples, that is God taking care of me, and I will be ok with that. I have seen pics of nipple reconstruction and they look great! I am trying to see positives in whatever happens. The alternative is me falling apart and that is just no fun.

    I realize even when they do biopsy the nipples during surgery there are no guarantees. In the end, we have to be able to trust that they will do the best thing for us. I have lots of fears/concerns about this whole process/cancer etc, but NOT about my drs. I am sending prayers up for peace and strength and wisdom for you and all our drs!! Love and hugs~~

    ispy, NO WAY did you say that before you saw where I was from!! You must have ESPN, hehe.

  • _proudauntie
    _proudauntie Member Posts: 38
    edited June 2015

    Ispy I do live alone and am happy to support one another. I am also blessed with an amazing support system so am thankful that upon my return from hospital - I will have someone staying with me at least for a few days. I also plan to take advantage of the visiting nurses that my insurance will cover (still waiting for details on that from insurance company - not sure what is covered). I do worry and wonder what it will be like to manage the drains I come home with.

  • I_Spy
    I_Spy Member Posts: 507
    edited June 2015

    Okay excellent Jodi, and I certainly understand the difficulty in making the decision. Remember that quality of life is important too -- I feel like I can live without my nipples (although I will probably have a little cry). I plan to get 3D nipple tattoos, although the doctors can also re-create a nipple and then just tattoo the areola. However, I don't want nipples at attention all the time. It is all such a personal decision and I think it is different for everyone. I've gone back and forth on the nipples a bit, but I have a gut feeling that they need to go. And we have to go with our gut, right? :)

  • EmmyJ
    EmmyJ Member Posts: 16
    edited June 2015

    Damn! I missed an eventful day! It's so nice to see so many posts. Ispy, I have been getting everything together, and I STILL have a "Things to do because my husband has no clue how to do them" list. I feel like I am just kind of spinning in circles. I have all of my crocheting stuff, crosswords, laptop, and photos that I need to edit (I dabble in photography, so I did a mini newborn shoot for my cousin, so I would have something to keep me busy). I am bringing very little to the hospital, so I am mainly trying to to prep the house. It's been interesting to do with a 2 year old and 6 year old that are human tornadoes.

    JodiB, we share the same surgery day! Almost time! I am also doing nipple sparing BMX, and the PS said that he does the incision under the breast, as well. I guess my PS also uses some sort of dye that he injects into the breast and then takes an "X-ray" type picture of them to make sure there is sufficient blood flow to them. My BS was telling me about it, but the PS never mentioned it. If he had, that would have helped ease my mind LONG ago lol. I am just ready to get this show on the road!

    I hope all of you are doing well !!

  • I_Spy
    I_Spy Member Posts: 507
    edited June 2015

    Yay Emmy! Yes, I went through the spinning in circles, but I think in the end you'll find you've gotten a lot done, even if it was in a circuitous fashion!

    Oh and let me tell everyone something that has helped me through my past SIX surgeries and hospital stays (emmy made me think of it when she mentioned crochet): consider bringing a little blanket, afghan, or throw that is meaningful and soft and can be washed when you get it home. I bring the afghan my mother crocheted for me when I was 18. She has long since passed away from breast cancer, and I bring the blanket with me to the hospital to go over the other blanket/sheet in the hospital bed. The feeling of home and cozy is very helpful to me, and it helps me sleep in the hospital to have something warm and fuzzy by my face and touching my arms. The afghan is made of polyester yarn so I can wash it in the washing machine when I get home. :) Oh, and I also bring a stuffed animal that is a replica of my dog, a black lab. I mean, I assume you guys know to bring a stuffed animal.... right? Or I'm the only one who sleeps with a stuffed animal? Well I do live alone....

  • I_Spy
    I_Spy Member Posts: 507
    edited June 2015

    Also are there any July sisters that I didn't put on the list? If you don't see your name there let me know!

  • plumster1
    plumster1 Member Posts: 270
    edited June 2015
    Wow! It was a busy day on the July board. For the nipple conundrum, I have seen two girlfriends who have each choice ( one has tattoo, one has nipple reconstruct with areola tattoo). Both look great. I think personal preference comes into play but the one with reconstruction does says they always stick out like she's cold.

    I forgot who said it when reading through all posts but I could identify with the surreal factor. It's been all research and doctor's appointments and when I stop and think it's hard to believe the whole situation. Thank God for family and friends! We can all do this!!!

    :) Michelle
  • queenmomcat
    queenmomcat Member Posts: 3,039
    edited June 2015

    Ispy: Yes, and an extremely supportive one...which is better than any UPS guy.

    Following the discussion of nipple-sparing surgery with interest; I'll admit that I'm glad surgeons are at least taking cosmetic issues into account these days. (I'm still not sure how much my surgeon wants to take for Surgery #2, though he did reassure me that my bras would still fit OK; my mind kinda shut down when I heard what he wanted to do....I'll probably ask sometime this week.)

  • I_Spy
    I_Spy Member Posts: 507
    edited June 2015

    Queenmomcat: Who knows, maybe the UPS guy will end up my supportive husband; a girl can dream! :)


  • queenmomcat
    queenmomcat Member Posts: 3,039
    edited June 2015

    We can all dream!

  • sripp45
    sripp45 Member Posts: 3
    edited June 2015


    Hello all!  My name is Sarah.  I'm 28, I have a 7  year old daughter and a 5 year old son!  I was diagnosed with Stage II Grade 1 IDC on June 5, 2015.  I am scheduled for a Mx of my right breast on July 9 and am struggling with the decision of whether or not to have the PBMx on the left side. I have 2 large tumors in my right breast... They will do the Mx and place a tissue expander.  All of the genetic testing is negative, but I'm still debating the PBMx... what are you doing?  And why did you decide what you did?

  • I_Spy
    I_Spy Member Posts: 507
    edited June 2015

    HI Sarah and welcome! There are as many choices as there are people on these boards, it seems. So hard to make that decision. I've only had issues with my right breast, but I am choosing to remove my left breast as well. I think it has to do with symmetry (yes, let's be vain) and also if I'm going through with the trauma, why leave a chance of bc? However, I have a lot of breast changes including Atypical Ductal Hyperplasia, which increases the chance of bc in both breasts. There are just as many women doing UMX, including some in this month. Definitely check out the other threads on the different forums that discuss UMX vs. BMX (in fact, you could search that phrase or ones like it in the forum search engine). Good luck and keep asking questions! :)

  • Free123
    Free123 Member Posts: 84
    edited June 2015

    Hi sripp! I was diagnosed in early June also in my right breast. I didn't hesitate to schedule a BMX (July 7) for two reasons.

    First, I certainly never thought I would have cancer in this ONE breast so what makes me think that I wouldn't get cancer in the OTHER breast down the road, maybe 3, 7, or 11 years later? I just want them both off and have to worry way LESS about recurrence of cancer.

    My second reason involves both vanity and avoidance of pain! I want my new breasts (I am reconstructing with TE then implants) to be symmetrical and look the same- at least as close as possible. And I figure if I'm going through all this pain, I may as well do them both at the same time. I never once considered not doing them both. I have had a friend do both breasts and another friend do just the cancerous breast, and she has said she wished she had done both.

    I hope this helps. I'm so sorry you are experiencing this!! I'm sending much love and many prayers to you and your family.

  • tshire
    tshire Member Posts: 239
    edited June 2015

    LX July 13, pending genetic tests.

  • I_Spy
    I_Spy Member Posts: 507
    edited June 2015

    ok tshire I added you! and tomorrow is my pre-op appointment. ugh.

  • Bunnybumps
    Bunnybumps Member Posts: 75
    edited June 2015

    Hi ispy, your suggestion of bringing something of comfort from home is a great one! I always bring my pillow that I've had since I was five. It's flat as a pancake now, but easily foldable for extra comfort. That, and maybe a stuffed animal that my husband gave me. I may leave it in the bag, but I know it's there if I want it

  • Paddymom
    Paddymom Member Posts: 29
    edited June 2015

    Just found out my surgery date. July 22. Will be having bmx. Currently 10 days pfc TCHP. Can I join your group?

  • I_Spy
    I_Spy Member Posts: 507
    edited June 2015

    Of course you can paddymom!

    July is upon us!

    Jodi and Emmy, here we go! Thinking of you as you get ready for tomorrow! We will be sending warm hugs and healing thoughts. Check in when you can. All of your planning is done, there is nothing else for you to do. As my chiropractor says, it is time to "Surrender to the process." :)

  • ssteacher
    ssteacher Member Posts: 22
    edited July 2015

    Hi,

    I'm joining the club! Just found out today that my surgery is scheduled for 7/17. I am having a BMX with immediate reconstruction.The surgery will be about 12 hours. I am having the DIEP reconstruction and am a nervous wreck.



    Dx--5/14/2015, DCIS stage 0

    Surgery-7/17/2015, BMX-DIEP

  • PoppyK
    PoppyK Member Posts: 1,805
    edited June 2015

    Emmy and Jodi, I'll be thinking about you and praying for you, your families and your teams!

    Welcome Paddymom and ssteacher! You both are having BIG surgeries! It takes a while for your body to clear the anesthesia, so make sure you give yourselves plenty of time to recover. You don't want to over do it and prolong your recovery.

    I just want to mention to anyone having a SNB or ANB: Find out if they are using a blue dye and/or radioactive tracer to locate your node(s). If you are having the blue dye, your breast, side and arm may be bluish as your body clears the dye. Also, your urine will be blue for about 24 hours.

  • I_Spy
    I_Spy Member Posts: 507
    edited July 2015

    Welcome ssteacher I added you to the list!

  • jkbrca2
    jkbrca2 Member Posts: 67
    edited July 2015

    Emmy and jodi, i am wishing you both peace of mind tonight and tomorrow morning, and a quick and successful surgery tomorrow, with good recovery thereafter. hugs!

  • Paddymom
    Paddymom Member Posts: 29
    edited July 2015

    Emmy and Jodi thinking about you as you prepare for tomorrow. May you both find peace and comfort as you prepare for the day. You can do this

  • plumster1
    plumster1 Member Posts: 270
    edited July 2015
    Emmy and Jodi- sending positive thoughts your way! Xo
  • jkbrca2
    jkbrca2 Member Posts: 67
    edited July 2015

    Sarah, I tested positive for the Bcra2 mutation so I am finally proceeding with a preventatives BMX. However, this decision did not come lightly. It's taken me 4 years to decide to act. If during any of the past surveillance testing I ever had any positive or malignant result it would be a no brainer! Cut them both off right away! But since they are currently both healthy, or so we think, it's not so easy. But, I know my mother fought breast cancer 2 times and not a recurrence (she's well 11 years out from last time) and my grandmother had it once, and her mother before her died from it. I want to save my son and my husband from having to see me sick. I want to avoid getting sick myself too. So I will do what it takes to give myself the best chances. I have chosen no reconstruction because I think I will be OK flat, I'm willing to wear prosthetics, and I want to be able to get back to living my life including picking up and hugging my 4 year old son close as soon as possible and move on without further surgeries. But making the choice for SMX or BMX and reconstruction are very personal choices, and only one you can make.

    Ssteacher, I go from being strangely calm about the surgery to freaking out myself! I think it's like grieving a death. You go through various stages denial, grief, anger, bargaining, and then acceptance. But sometimes you go backwards and it's not always in that order. If you were not freaking out, something would be wrong. Right? But there is a lot of support here. Thank goodness! This too shall pass. I do a lot of deep breathing, thinking about positive things, or looking forward to fun events I've planned later this summer or fall. when I think about recovery, I try to think happy thoughts like I will be on vacation from work, I will be able to spend more time with my son and husband even if I'm not feeling perfect. I also have a list written down of why I need to do this and now. I used to look at that frequently when I was in doubt about this decision. One glance, and the decision was clear for me again.

  • ssteacher
    ssteacher Member Posts: 22
    edited July 2015

    Jkbrca2, you are right. It is like grieving a death. I went through all of the stages and thought I was okay with everything but I guess it is normal to go backwards from time to time. Yes, you are right. There is a lot of support here. I am going to make a list of why I need to do this now too. I was diagnosed with DCIS stage o in one breast and a papilloma in the other breast. I also have several clusters on both breasts that will definitely turn into cancer and need to be removed now. I have made the decision to do the bmx because I was told by 2 doctors that eventually I'lll have to get both breasts removed. I think making a list of reasons why I'm doing this and looking at it when I get freaked out will help. Thanks for the suggestion!

  • aored77
    aored77 Member Posts: 2
    edited July 2015

    Hi,

    Emily here, 29 years old and was just diagnosed two weeks ago. Also going in for the bilateral masectomy on July 17th and will be getting expanders and then implants after chemo down the line this year. Sending good health to everyone here!

  • Scottiemom11
    Scottiemom11 Member Posts: 1,298
    edited July 2015

    Emmy and JodyB sending healing thoughts and prayers for tomorrow and the next few days.

    Scottie

  • I_Spy
    I_Spy Member Posts: 507
    edited July 2015

    Hi aored77 Emily! Welcome to the group -- I added your name to the list. :)

  • Js5
    Js5 Member Posts: 17
    edited July 2015

    Well wishes to all my July sisters, especially those with surgeries soon.... I will be thinking of you all.

    I was originally scheduled for July 1 but have set up a BMX with DIEP reconstruction and they had to move date out to August 25. Thank you for all of your advice and questions and answers. It has been very helpful and I appreciate it. Hugs to all, J

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