April 2015 Chemo Crew... Starting in April? Please join us!

Princess..yes. yes it can. our nose hairs could start growing like crazy!

Its 400 degrees in my office, which is nothing new since hot flashes started, and supposed to be 97 tomorrow. Yay, I get to hike! Actually super nervous about that. I HATE not being able to rely on my body!!!!!!!! Ok..off the ledge. Good body. Good cancer killing body. Good, strong, hairless,(except for nose hairs and stray pubes and fucking horse fetlock length ankle hair) body...

Gingeel, my wig is off to you! Remember, creepy little girls belong in horror movies, and super awesome bald ladies belong Everywhere!

Stacie, is it you who is already planning to get rads and deported??? You go girl! My MO wouldn't schedule me yet, he said its just an office visit and they will pop it out three weeks PFC. But Dammit! I want a date so I can count down the hours!

Well, go fitted for a lymphedema sleeve and glove today at PT, and learned some manual drainage techniques. That stuff seems like magic..I'm not used to any therapy working unless it hurts LOL. I don't have lymphedema and I want to keep it that way! On the plus side, my PT said that the cording and scar tissue has reduced even since Monday! Those freaky scar nodules that sent me to the MO are smoothing out, and I've started to regain range of motion in my shoulders.

Hope everyone is having a good day! Lynne, hiking is not mandatory and you crack me up every damn time!

Why is it that I can only taste pie and gelato in my chemo yuck mouth! Not helping on holding the line on the chemo weight gain. Made Korean BBQ ribs and jalapeño slaw last night and could not taste the heat at all. Meat tasted like cardboard. Luckily, fruit works too. 7 days post TC #3 and my mouth is by far the worst it's been despite salt/baking soda and Biotene. Any other suggestions??

Yep taste buds are gone. It is awful! Even worse as I want to eat and have gained some weight. What fun is that when I didn't get to enjoy the flavor?! Errrggghhh. Frozen fruit has been my go to munchie frozen grapes, etc. The cold tastes good. I also put fruit in all my water as plain water has that metallic taste. Hang in there.

Kbeee hope storms not bad by you in IA? We shall see what tonight brings. Lots of rain so far. Enough already. Quite the pattern that just doesn't want to break.

Finally! I got my path report today during an appointment with my oncologist PA. Clear margins, no node involvement!!! Yea me!!! My MO had not seen my report yet, since they had to request a copy from the lab! Such inefficiency! Anyway, he still needs to determine what my remaining tx will be. PA thinks I should go ahead and have my last two chemos and have rads and then complete my year of herceptin and perjeta, but MO has final word on it. I'm hoping I'll hear from him tomorrow. Could you please draw this out a bit more for me!?! NOT!!!

Kbeee, I got goose bumps when I read your dream! I know that must have been so stressful! I'm glad you've put it behind you and are feeling better about stuff.

Thanks to all of you for your care and support. Love you guys! 😘

Sheshe! Awsome! Big sigh of relief!

Aw, Andrea, what a great story, it made me smile!

Sheila - great news!!! Now you can celebrate.

Fran, thanks for the pep talk, we all need it.

Renee, after T#1, started on day 2, my mouth felt like I had burned the inside, but it was a couple days into healing (if that makes sense). Food was not as tasty, but not totally cardboard either. Then it went away. I've been eating and tasting everything. I've been especially into ice coffee. My coffee maker makes coffee so hot, I can't drink it at first (I drink it black). The ice coffee feels so good on my mouth and throat.

Scarlett, hope your tastebuds come back too.

My food aversions are for stuff I stocked up on for snacks while I'm doing chemo. I had bought some cheese crackers, nuts, and some other single serving snacks. I had also brought frozen grapes to first infusion. Now, just the thought of those things makes me nauseated. I also had this home-made soup after my 1st infusion. I still have a bunch of it in the freezer, but can't bring myself to eat it again. I hope that goes away.

Still packing, doing laundry, and organizing. As I was trying to get all DD2's clothes together, I ended up filling 4 garbage bags full of clothes that no longer fit her, and 1 bag of donation/rags. It feels good to get stuff done, even though it's just a dent into the chaos that is my home. I almost wish I wasn't going on vacation so I could keep going with the purge.

Lynne

Hi everyone,

I went to a neurologist yesterday because I started having tingling/vibration in both feet and legs after 4th dose AC. He was not helpful and said it would be unusual to get this after AC. I am suppose to start Taxol tomorrow and am so scared of allergic reaction and that I am already having a nerve problem in my feet and legs my MO doesn't know what is causing it. I am so tired from not sleeping well due to leg tingling. So worried about taxol. I feel so stressed. Also do your doctors recommend L Glutamine before Taxol? My MO does not but my friend who is a NP told me to take it. Sorry to complain so much. I don't know why my feet/legs are tingling/vibrating after AC? So scared to start Taxol

Bitterroots blooming today..sorry for the crappy cell phone pic. I am thankful that Taxol is allowing me to do a limited amount of field work...

Ha! I should. Weird thing is, I was staring at a boquet my husband got me when I found this site and wanted to join. It had little blue flowers in it. Such a scary time in my life..it would be good to leave that handle behind...:)

Had my last blood draw through the port this morning. Only 1 of 3 docs had their orders in, so I asked infusion to use the on-call doc to confirm it at one place and to honor a paper copy on the in-house form but without a signature, which it appears they did. I was polite and very clear that I'm not having extra blood draws.

Not sleeping well, worried about getting the port out and the sim next week. I'll feel better after I've done my weekend teaching. I'll feel much better when the port is out!

Edited to add: Oh, Stacy! Are they painful? You poor thing.

Anyone know how to stop a nosebleed?

littleblue: sit with head upright and apply squeeze pressure to nose for at least 10mins. Also gauze under top lip in front of teeth helps greatly. Ice pack to cheeks too. I hope it stops fast for you.

oh gosh! I know in some cases an ER or urgent care might be needed to cauterize the bleed for you. The awful part of our thinned out blood. Let me know how it goes. Hugs

Thanks rpayton! It mostly has stopped now...tried your gauze trick