April 2015 Chemo Crew... Starting in April? Please join us!
Comments
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kbee my heart was aching reading your post your so positive and one of the women I truly look up to going through this horrific disease..I pray and believe your dream is not correct and you will see your youngest graduate and have many more years after that.
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KBee, big hugs. I think I understand what your feeling. Ever since my recurrence DX, I've felt this was the beginning of the end. I am always a 'half full' type of person and felt so sure that I would beat this the first time around. Now, I'm not feeling at all confident. I try not to think about getting things in order, but honestly I do. I've read that a second diagnosis is much harder to take, so maybe this is what we are feeling and dealing with? I have to wonder if it is a way of coming to terms with mortality- not that an end is anytime soon, but having cancer makes us more aware that life doesn't go on forever. I hope after a good nights sleep, you will wake up knowing that you can do this and will be around for your youngest graduation!
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kbeee sending virtual hugs- here's to many more years to come and seeing your youngest graduate COLLEGE. Today my middle child had kindergarten graduation and I wondered the same thing- will I be here for other graduation ceremonies? Unfortunately we don't know the future- so for now I will enjoy what's in front of me and live for today and love what I have now. After all no one is promised tomorrow.
Hugs
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Kbeeee! Oh sweetie, it's going to be ok. It's so good you have a sixth sense about your body, and it's saved yotur life so many times, buT all senses are wrong sometimes! Like when you swear you feel your phone vibrate but dont, after being on high alert for it? Sending you a big hug and a good night sleep filled with dreams about your great grandkids...
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Kbeee: so good to read your very honest and open share. You are so brave to voice those thoughts here and that's what we are here for. So lean on us. I feel a lot of what you are saying. It is hard to deal with this but reality is no one has any control over life and how long we will be here. Others just haven't had the reality of a diagnosis to have that mindset. So we must stay focused in today only. So hard when all we want to do is dream and make plans like others, isn't it?! You are an angel here for us right now in this group. I hope you know and feel that. Sweet dreams.
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Renee, where are you in the MW? I am in Milwaukee.
Do you plan on staying out through radiation? My short term disability runs out before my rads would be through. Initially I was anxious to get back to work, but I no longer am. And I think the lack of stress from work is helping with my SEs. I believe I could go on Long-term DB til I'm done with rads, but feel like kind of a whoosy doing so....
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Thanks ladies! 99% of the time I feel do positive, but that other 1%... Eek! I think I just needed to air my bottled up emotions. I set out on a 2 mile walk and it turned into 5. For the first time in days I did not need any tissues. No tears. I felt so much better. Last Wednesday at our fire training, our Chiefs talked for over an hour about our increased risk of cancer, safety stuff, etc. they went on and on and on about studies, etc. Hoping that may have set off my dreams. I still will make some notes in case something happens, but hopefully I won't need it for 40 years when I die living it up like the Golden Girls. Hoping this is the one time my dreams are WRONG
Thanks for letting me vent. I feel better than I have in a few days.
You ladies are awesome.
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kbeee, as you have told us, that's what we are here for! Thank you for being so honest in sharing your fears. That fu+@£ing abyss is always yawning in the back of the mind. It seems like today was a crash day for a lot of us! I blew my shrink off last time because I wanted to go for a run instead.
Ok ladies, time to think about our Glacier NP for next summer! I don't need firm commitments, buT here is what I'm thinking.
One big day hike, maybe shangri la basin or the Dawson Pitamakin loop. I can reserve a group camp site over on the east side, and there are numerous other lodging options..a beautiful historic hotel, several less historic motels outside the park but very close. You can fly into Kalispell, and rent a car, take Amtrak to East Glacier, or drive. I'm figuring a week or so all told? Maybe 3 nights? If you don't want to hike, there is Going to the Sun road over Logan pass, visiting the histoic lodges, boat tours, fishing...we can grill dinner or eat out, Two Sisters or the Luna cafe are awesome! Of course, drinks at the lodge one night..virgin or otherwise! Any thoughts?
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I am definitely in. I can probably do about 3 nights... That's about the limit on hubby taking off to get the kids to their respective destinations (though hopefully next summer my son will have a license and no broken foot). I am definitely up for a hike. I am up for anything
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Awesome kbee! Of course, Husband's and children are more than welcome, if that sweetens the idea for anyone..Ohhh..another short hike is Firebrand pass off of Marias Pass...and it's close to Mexican food 😁 We will definitely need to take a day to aclimate tomthenelevation. And I could slaughter a Margarita right now...bet we all could!
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SueH58: I'm not far... just 2 hours south of Milwaukee. I may be off for awhile thru rads too. After 2 days I could get used to this no schedule but my own! LOL
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I'm probably in. Next summer's work schedule is a bit up in the air.
#16: I am grateful for homemade* sugar-free raspberry preserves (*not made by me, but by my lovely wife). -
An interesting article detailing what is being researched in estrogen + cancer. http://www.dana-farber.org/Newsroom/Publications/When-Estrogen-Goes-from-Friend-to-Foe.aspx
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Hi all...
Insomnia rears its ugly head. And I have to be up early in the a.m. because a wonderful friend is coming over to weed my gardens for me
I'm sorry to hear about your dreams Kbeee...I totally get the fear that's behind them. Think of it as incentive to live the best life you can and look after yourself and enjoy your family. Battling cancer is not easy...it's a life-threatening illness and for all of us it's the great unknown. What will happen? I've looked after many palliative patients in my career so until I got cancer myself I thought of all cancer patients as emancipated, bald, dying...I know better now. We are fighters and we will win this battle!!!
Ksusan, love the swimwear! I must invest in something like that for when I get my PICC out!
Feeling great here aside from some mouth sores. And I went shopping for 2 1/2 hours today then had to nap when I got home. Hmm...that could explain the insomnia.
Sometimes I feel kind of out of it here because I am not on AC, Taxol, herceptin, etc. Just four doses of TC and I'm done chemo (last dose July 2). I consider myself lucky - the TC is not easy but at least it's over in 3 months. You folks who still have weeks ahead of you are so brave!
Re looking good...people say that to me all the time, I guess it's because I am not all thin and cancer-looking. But I have never been thin in the first place. I suppose chubby equals healthy-looking?
I'm rambling. Time for bed (again).
Andrea
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KBee, you are our rock and voice of reason on here! Sending lots of love your way, and we are here for you to vent. Praying that you and all of us live to 100!
Littleblue....oooh, I'm actually really excited for a trip like that. I feel like I know all of you just from reading your posts, and it would be good for us to meet and enjoy nature at it's finest. I've never gone on a hiking trip, sounds amazing.....and to respond to your question a few pages back, doing dose dense taxol. 3 more to go! It seems everyone is doing weekly?
Re husbands being insensitive: I can relate, although my husband is pretty good 99% of the time, after this last treatment because I looked and acted "fine", he didn't even ask how I was doing or seemed concerned at all. (went with my SIL) Well, that pissed me off and hurt me. He did, however, make up for it over the weekend when he asked me if I would like him to throw me a bday party. Sure, as long as I don't have to do much!
Addie, congrats on your little one graduating K!
Andrea, I didn't sleep too great last night either. Never quite got into a deep sleep.
It is a perfect morning here in NY....going for a walk in the park with my 4 yr old.
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Bored at chemo yesterday, I wrote this......
On the twelfth week of Taxol, my chemo gave to me....
12 bloody noses
11 brow hairs left
10 numb fingers
9 facial rashes
8 weeks of constipation
7 nails a lifting
6 neutrophils left
5 sleepless nights
4 limbs without hair
3 sore bones
2 bloated legs
And
Peripheral neuropathy
To the tune of the 12 days of Christmas.......
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Karen... Just wanted to send you good thoughts today..... Don't have 1 more thought about that silly dream.... easier said rt?... Your first go round with this nasty business was just the warm up, this time you've nailed it!!
But I really believe that dreams are just our thoughts that we try to keep hidden.... you have been so strong through all of this, your dream is just fear coming out.
Big Cyber Hug for you!!!
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LMFAO kbeee! That's pure gold...how is your head today? Hoping you had a peaceful nights sleep and dreamed of great grand children.
ksusan, I edit my previous post to include wives, partners, and significant others. No excuse, except chemo brain makes me stupid.
Andrea! I heart your new signature line...and I have insomnia too. Ambient does nothing for me.
Gingeel! Yes! It's gonna be fun! Google Earth Glacier NP if you want to get a taste, and enjoy your walk! It does seem like we are lonely few dose dense taxol ladies...is lynne doing DD as well? I feel like she might be. My next one is July 2. How have you been feeling? I got the bone and muscle pain and weakness and the congestion and throat funk and the acid stomache, but less than AC...
Heading to physical therapy here shortly...twice a week until rads start. Trying to force food into my unwilling tummy so I don't Ralph on the therapist from low blood sugar. Gething super bored with cancer....
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Oh yeah...hair. I found a FU×÷£ing CHIN HAIR today. What??? None on my head that's for sure and I'm positive my eyebrows and lashes are migrating to my ankles. It is still tight on my arms, and my lady business seems to be growing back...why do the socially unacceptable hairs grow back first or refuse to leave???
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Karen- I am also sending hugs your way to comfort you from your horrible dreams. Like Leigh says, not another thought anpbout it, K?
I koved your lyrics/poem! Too funny. Glad to see your sense of humor is intact. You are such a strong woman and an inspiration to all your girls here in the April group, and we feel the same way about you in March
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Little Blue- "lady business" ROFLMFAO
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So the very few hairs I had left on my head are growing LIKE CRAZY but no new hairs? WTF? Can it get any more attractive?
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pretty excited... made my radiation mapping app and my port removal app today.!. Going to try and get outta town to visit family the last week of July and hopefully can start 6 weeks of radiation the beginning of August. Pretty strange what gets me excited these days. I've been having some vivid dreams lately too...weird ones. Well since I have the energy b4 I get my neulasta today I'm gunna go to the gym. Have a grest day all
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whooohooo Stacy! Way to go making plans and looking forward. Yes it's the little things but those things are big. Today I'm grateful for the antinausea and heartburn acid meds.
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Yay Stacy!!!!! That's awesome, also jealous!! ;-)
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Kbee, great song! Hope you had a great night as well.
Littleblue, gonna check it out. Right now, I feel great! It's a full week post T#1, and my energy is full, which is good, cause the kids have a 1/2 day today, and go in for 1 hr tomorrow, and then they are finished with school! Taking them to the pool after lunch. The SE's from Taxol didn't hit me until day 4, I think. The abdominal cramps, the bone/ body pain, runny nose, headache, sore throat on one side, and unable to taste food. My pinky toes are tender, and I guess my lashes and brows are thinning, but you are right, those damn unwanted hairs! I still have a few pubes hanging on for dear life. Just fall out already.
Stacy, I gotta make port removal appt too! Congrats to you for actually knowing when it's coming out!
Went to the pool yesterday, took off my hat, in the shade of course, and a little girl was walking by, and stopped right in front of me and STARED at me for a good minute or so. LOL I wanted to say "SHOO!"....I guess I looked like a freak. haha
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Hi - just got caught up on the posts.
KB - I don't want to discount your dreams - we all have some level of intuition, and you've had some impressive success (?) with dreams (why can't you dream about winning the lottery? :-) But, with chemo in your system, I wonder if you can really trust your usual vivid dreams? And so, you can chalk it up to your anxiety coming through - it has to go somewhere, and you are a positive person, not letting it usually take control. It's out now, and you can go back to being positive. I will confess - early on with all of this, I was laying in bed with DD2, and I looked at her, and I had this overwhelming feeling/thought come into my head that I would end up dying from BC and not see her grow up. Like a crow walking on my grave. But, what am I to do about it? I can't start living life like I'm going to die. So, it's a thing that I just ignore for now.
I know that some of you have had scans and such for other cancer - when I had my consult with MO in Boston, I asked him about other cancer - I didn't know that I had BC, what if there is other cancer in me or this has spread? He basically said that they would react based on symptoms. In other words, until you have something to report/look into, they wouldn't go looking for cancer. What I read between the lines was, if you have other cancer or your cancer has spread, you're basically fucked, so why go looking for it and spend time worrying about it when there's not much they could do (remember - that's my interpretation of what he was saying). It know it sounds weird, but I actually like that approach. I have been much more mellow about it all.
Lynne
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Jen, not sure about GP next summer. I really want to go to Greece - have been wanting to go there, and now with BC diagnosis, I mean to make it happen. I also take 2 weeks in June/July to go to ME, so vaca time and $ is limited. That said, I would be the going to the sun/historic hotel person :-) Like Jim Gaffigan says, I'm what you call "indoorsy". Actually, I like outdoors, by the pool preferably, with a good book. Seriously, I could do a hike, I like to walk, but definitely not a happy camper.
Lynne
PS, for my take on camping, watch this: Jim Gaffigan on Camping
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Great song!
Littleblue, no worries. I can be the husband and she can be the wife
Yes, spent some time last night plucking chin hairs, though the lady bits are still rather Brazilian.
Also slept poorly. Got sucked into looking up everything carcinogenic in the world. Note to self--don't do that. I slept in today, though, which was nice.
Today I'll anonymize a batch of proposals for chapters in a book I'm editing, and get them out go reviewers by the end of the week. Fortunately, that's about the extent of what I need to do until accepted proposals have been resubmitted as chapters in early fall. I'll also finish planning for my second summer class, check in on the first (which is online), and tomorrow and Friday I'll update the lessons for the third. I stopped being stupid and asked my wife (who's an adjunct instructor) to teach my class the day I'm having my port out. It suddenly dawned on me that I could take a pain reliever and sleep if I didn't plan to teach a 3-hour class after the procedure. Duh. The follow-up appointment after the procedure is probably the last I'll see of my surgeon. We found a local agency that offsets the cost of mammograms for indigent women and will make a donation there in his honor.
My naturopathic oncology appointment was useful. I do need to learn more about both plastic containers and parabens (which is what sucked me in last night), but I'm already doing much of what she recommends for general health and decreasing recurrence. I emphasized that I'm into practicing better health behaviors, but that quality of life is important, too. I'm not going to add a lot of putatively cancer-fighting foods if I don't like them. For example, I'm not big on shiitake mushrooms, but happy to add them to a soup or stir-fry if chopped finely. Not willing to eat them every day, though.
All right. Onward to the PowerPoints and materials list for classes 4-7. Have a lovely day, everyone.
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Thanks again ladies. I think I just needed to get my dreams off my chest. Once I posted about them, I felt like a thousand pound weight was lifted from my shoulders. I really have not thought much about them since and my walks have been tear-free. Usually I am awake most of the night of my Taxol infusions, but my previous sleepless nights made me tired enough that I actually slept well last night. That also is probably why I feel a hundred times better today. I hope when everyone else is having a bad day, you vent as well. We all need to do that now and then and it sure did help. Thanks for being such great friends. If I had tried to share that with any of my friends locally, they would have totally freaked out.
ksusan, It can be so stressful looking up carcinogens because everythign from the clothes we wear to the things are houses are built from to the containers we use to the makeup, deodorant, to about every food we eat is somehow linked by someone in some study somewhere to cancer. I have just decided that I eat a variety of healthy foods, I exercise, and I try to be aware of my body. And then I life life every day.
Lynne, Last time they also had said no scans without symptoms. I was ok with that until he blew off my new lump. That's when I changed to an MO who pays attention. This one also does not do scans without symptoms, but the difference is that he takes symptoms seriously and does not blow them off like my last MO did. I think the key is that if you do develop a new symptom, do not let them discount it.
Gingeel, You do not look like a freak. You are gorgeous. Kids are not used to seeing women without hair, so she was probably trying to process it. It would have been easier if she could have asked a question and not just stared though. If small children stare or ask, I just say that I am on a medicine that made my hair fall out, but that it will grow back soon, but for now I am enjoying the cool breeze on my head. If it's a girls, I usually add that my hair will grow back and be as pretty as yours again soon. It tends to break the ice and answer the questions that are swimming in their heads.
RPayton, I hope those crazy Illinois storms stayed away from you!
Little blue, I hoped the chin hairs would go away for good, but no luck. Not only do they seem to come back first, but they seem to grow the fastest. My fuzz is sticking around so far. I still look completely bald since the fuzz is white, but at least it hasn't snowed white fuzz on my clothes.
So far, Taxol #5 is treating me no worse than 1-4. I'll take that. My hemoglobin, which had been climbing took a dive back into the mid 9s again. Hoping it goes back up next week. WBCs are good though, so I was happy. Today has been a good day. Glad because I work tonight from 6 PM-6 AM. I love my job because I love what I do. I also love that my coworkers do not care if I have long hair, short hair, no hair, cancer, no cancer...they treat me exactly the same, and when I am there, I never give cancer a second thought.
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