Starting Chemo May 2015

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  • RuthElizabeth
    RuthElizabeth Member Posts: 103
    edited June 2015

    hi, my name is Ruth. I just had a double mastectomy 2 weeks ago. I have IDC. They removed 19 lymph nodes and all were cancer free. I go to the oncologist July 2, to schedule and find out what chemo I will be getting. I only have to do 4 treatments. I'm new to the website. I am also triple negative....
  • MarlanaB
    MarlanaB Member Posts: 292
    edited June 2015

    hi, Ruth. Welcome.

    My sunshine, I'm getting tired walking from the couch to the kitchen! And my throat hurts so bad, I've barely eaten for two days. Except ice cream so I really can't complain too much!

    Magnolia--I had TC#2 and can't even contemplate working today. Maybe not even tomorrow. We just our bi-annual shift chang for my department and my assigned shift is a 12 hour day so there's no way I can keep it together for that long!

  • CatsRus
    CatsRus Member Posts: 310
    edited June 2015

    Welcome RuthElizabeth but sorry you have to join us. Good news on your lymph nodes though... Ask all the questions you like. You will find a very supportive group here.

  • tjh
    tjh Member Posts: 469
    edited June 2015

    Finished TC#3...I feel like I got hit by a truck. Neulasta shot tomorrow. Definitely have chemo brain. I love my couch. Only complaint is the oncology nurse I had today kept calling me Tammy.....even after I told her Tamara, twice. I haven't been Tammy since high school. Yuck😨

    Welcome RuthElizabeth...sorry you had to join us but we are a great group!

  • mysunshine48
    mysunshine48 Member Posts: 1,480
    edited June 2015


    Welcome Ruth, You are in the right place to ask any questions you have and to get support as you move into treatment. We are all in different stages of treatment, but we are all here to help you through this. Thank goodness your lymph nodes were clear! That is good news

  • tjh
    tjh Member Posts: 469
    edited June 2015

    Is anyone on TC have glucose levels going up?

  • mysunshine48
    mysunshine48 Member Posts: 1,480
    edited June 2015



    tjh, Not yet.....I will pay attention! And look

  • ksusan
    ksusan Member Posts: 4,505
    edited June 2015

    tjh, mine went up. My MO said it was probably due to the steroid.

  • tjh
    tjh Member Posts: 469
    edited June 2015

    ok then...I won't panic.

  • tjh
    tjh Member Posts: 469
    edited June 2015

    I did some checking and taxotere raises it as well.

  • ksusan
    ksusan Member Posts: 4,505
    edited June 2015

    Good to know. You can ask your MO (or if you have diabetes, your diabetician) at what fasting glucose level they might want to intervene. I have type 2 diabetes and at 154, they said, "Eh." That's the highest it's been for me, and tends to drop rapidly after the infusion/steroid doses.

  • rosesrx
    rosesrx Member Posts: 458
    edited June 2015

    My blood sugars are up and probably due to the steroids. My PCP has me doing fingersticks twice a day and I see her onthe 30th. She say it is also another way to watch for infection since our WBC's are all over the place. I have been avoiding concentrated sweets (read no desserts) Spa day the levels were over 200.

    I am calling days 11-21 my honeymoon cause I feel pretty good. I would actually consider walking if the temps outside weren't around 95.

  • tjh
    tjh Member Posts: 469
    edited June 2015

    I have 1 left with weekly blood draws...the oncologist said watch concentrated sugars and do a fasting when done to make sure it goes back down and stays down. Another part of it is lack of exercise. I tried walking and riding my bike...I can do 1-2 miles strolling, I usually walk 4 miles in less then an hour and on my bike I can ride 10-20 miles in 2 hours...now 2 slow miles.

  • ksusan
    ksusan Member Posts: 4,505
    edited June 2015

    Any biking and walking are still good because the long muscles of the legs can use blood sugar directly without a lot of insulin.

  • tjh
    tjh Member Posts: 469
    edited June 2015

    Next week...I have neulasta and pain meds the rest of the week....balance won't be good for biking....stoll in the park will have to do😊

  • karabesque
    karabesque Member Posts: 84
    edited June 2015

    I just wanted to tell you ladies that do chemo and work, that you are all BADASS! I can barely do the dishes and walk the dog and I read about you going to work and dealing with co-workers and bosses! Honestly, I admire you for having the strength and will power and you should reward yourselves everyday. YOU GO GIRLS!

  • Magnolia83
    Magnolia83 Member Posts: 99
    edited June 2015

    karabesque, trust me if i didn't have to work right now I probably wouldn't! I am not married and my health insurance is through my job, and my company is small enough that it doesn't have to offer FMLA or anything like that, so at the moment I'm kind of stuck working. I can always try going out on disability if it gets to that point but for now I'm roughing it out.

  • StefLove
    StefLove Member Posts: 322
    edited June 2015

    I'm almost in the same boat as magnolia, my company does offer fmla however you have to be here for a year for it to kick in. My year hits on July 7th. So I'm toughing it out right now as long as I can knowing that I can fall back to fmla soon if I have to

  • MarlanaB
    MarlanaB Member Posts: 292
    edited June 2015

    karabesque--I'm working because I love my co-workers and whatever time, including vacation, that doesn't get covered voluntarily gets mandated. Summer usually hits the communications center pretty hard because vacations also limit the mandate pool. Most summers, I work 60-70 hours per week. Right now, I'm taking 6 days off for each round of chemo then working only 50 hours weeks 2 and 3. The upside is that I can bank my overtime into my leave bank so I don't deplete all my time

  • rosesrx
    rosesrx Member Posts: 458
    edited June 2015

    I used the 200 hrs of sick time I had accumulated for surgery and am using the remaining vacation time to take off days 5 and 6 with each cycle. I can then apply for FMLA intermittant non paid if needed. I did have short term disability (STD) while off but it does not work for intermittant. It is just me so I will forge on, my job is 85% sitting and I am liking this getting ready with the wig thing 20 min and done if that.

    Did I read somewhere that cancer is auto approval for disability? Is that SSI or LTD based on company? Not ready for that but still worried about chemo brain… drove right by road to nuring home today and wandering from room to room at home forgetting what I wa picking up or looking for. Any body else having episodes?

    H is tomorrow with TCH spa day #3 on the 1st. Eyebrows and lashes still intact. Wondering if the claritin is causing the blurry vision and bloody nose, may cut it out the next week to see if it helps.

  • MarlanaB
    MarlanaB Member Posts: 292
    edited June 2015

    Roses--no chemo brain and thankfully,my job is all sitting. The bronchitis made had me a littleloopy after a good coughing spell but not confused. I've had bloody sinuses from round 2 but saline rinse helps a lot.

  • karabesque
    karabesque Member Posts: 84
    edited June 2015

    My boss pretty much kicked me out after I started missing work. I should have sued her but I didn't have the energy. I have been blessed enough that two fundraisers have been thrown for me and my two kids. Disability starts in August finally and with my parents help with rent, I can pay for a therapist!

  • tjh
    tjh Member Posts: 469
    edited June 2015

    Luckily I was sitting on 67 sick days...so that took care of the surgery and first chemo treatment, the other 3 treatments and reconstruction are over summer so hopefully I will start the school year. I only have 10 sick days left and monthly appointments coming.

    Karabesque...you should at least talk to an attorney...that is just not right!

  • Magnolia83
    Magnolia83 Member Posts: 99
    edited June 2015

    I'm hitting a wall, May girls! Day 7 after my final AC and normally I'm feeling better by now, but this time I am feeling like a human slug...queasy, headaches, that horrendous chemo fullness (oh but don't worry I'm still hungry 24/7! Ugh), and the awful awful mouth taste. I had cereal twice today because nothing else tasted right. I hate being a complainer but it's one of those days!

    Hope you all are doing ok today!

  • tjh
    tjh Member Posts: 469
    edited June 2015

    Complain away....we are here to listen

  • MarlanaB
    MarlanaB Member Posts: 292
    edited June 2015

    Magnolia--we've all had those days. That's what this board is about.

    I had to take an extra sick day today--I've had acid reflux so bad it's effected my vocal chords and my voice is shot!


  • mysunshine48
    mysunshine48 Member Posts: 1,480
    edited June 2015

    Ready for T/C number 3 tomorrow. Ugg, not looking forward to this next week, but trying to remember why I am doing this.......getting rid of every one of those Cancer cells that may be lurking. None of us like this, but need to be thankful there are such good medicines available......Just do it!

    Keep telling myself this!

  • MarlanaB
    MarlanaB Member Posts: 292
    edited June 2015

    Good reminder, mysunshine, and good luck tomorrow.

  • Tifree40
    Tifree40 Member Posts: 13
    edited June 2015

    Me too my sunshine4 I go tomorrow too for #3. I have had anxiety about it all day. I have felt so good this past week. I am dreading tomorrow. But we need to do this so we can do this.

  • CatsRus
    CatsRus Member Posts: 310
    edited June 2015

    #3 tomorrow morning for me too and here I am at 1:34 am with no sign of sleep coming any time soon. My fault.... I am supposed to take my 2nd dose of dexamethozone much earlier than I did.... I forgot. Feel free to complain here Ladies, we can vent much easier to each other than people who don't get it. At my lowest point after the last 2 rounds, I get really morbid and convince myself it's going to come back and it's going to be bad. I'm trying to keep telling myself to be ready for the low point this time and to remember as I recover, I can be more positive. It's hard though sometimes. But... this time tomorrow, I, along with a few more of you who are on the same regime, will be able to say "just one more". Though I hope at this time tomorrow I am in dreamland instead but before I am sure I'll have said "just one more" many times throughout the day.

    Good luck tomorrow all, hope all goes well and the SEs are minimal.

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