Got a copy of my pathology report, not happy :(

Options
CAMommy
CAMommy Member Posts: 437
edited June 2015 in Just Diagnosed

Yesterday I got "the call" that I had DCIS. Today I picked up the pathology report and it says it is intermediate to high grade and solid to cribriform with associated necrosis. This doesn't sound good to me. It is also Estrogen 95% and Progesterone 70%.

Does this mean that I would be better off getting a mastectomy over a lumpectomy + radiation?

I have an appointment with the surgeon next Thursday. I'm definitely feeling "Get it out, Get it all out NOW" and take both these thankless, turn on me, body parts. I think I might be in the anger phase of this...

I still have not received a call from my Doctor about this. I had to chase up the Radiologist yesterday to get my results because my Dr was off delivering babies or something and today I had to get the surgeon info from the NP in the office. I'd really like to hear from my doctor! I think he is handing me off to the surgeon. Which brings me to another question. Who owns me now? Who is my primary doctor for this nightmare? Is it my GYN or the Surgeon or the someone else? Ugh, I'm angry and scared and worried.


· Share on FacebookShare on Twitter

Comments

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2015

    CAMommy, I don't have any answers to your questions....I know little about DCIS. But I just want to welcome you to the BCO community. You picked a great place for support.

    I'm sure someone will be along soon that is knowledgeable. The boards can be slow at times on the weekend. In the meantime I wanted to bump this up to the top of the active threads. Sending best wishes and gentle hugs to you!!

    · Share on FacebookShare on Twitter
  • edwards750
    edwards750 Member Posts: 3,761
    edited June 2015

    Not you OB-gym. It's your BS. After your DX its your BS and your ONC

    Diane

    · Share on FacebookShare on Twitter
  • edwards750
    edwards750 Member Posts: 3,761
    edited June 2015

    sorry Ob-Gyn

    · Share on FacebookShare on Twitter
  • dchavy
    dchavy Member Posts: 18
    edited June 2015

    Hi CAMommy, I'm so sorry about your diagnosis.  I am in the same boat, sort of.  I was diagnosed 12 days ago with IDC.  What I have learned so far is that my breast surgeon is in charge at this point and her office is handling much of the coordination.  You may have to go through some additional testing to determine what your surgical options are.  I know that I had to do genetic testing and get an MRI to determine that mastectomy is really my only option.  It seems like in the beginning there are more questions than answers, please try to hang in there.  My surgeon works in conjunction with the medical oncologist and radiologist and they meet on a panel to discuss treatment options for their patients, so maybe yours is the same.   

    I can totally relate with the feeling of immediately wanting those traitorous body parts removed. It really does feel like a betrayal. 

    · Share on FacebookShare on Twitter
  • LAstar
    LAstar Member Posts: 1,574
    edited June 2015

    Yes, you will need to see your BS now. Intermediate- to high-grade DCIS is generally not the watch-and-wait variety, but it doesn't mean automatic MX. You may have a very localized area of DCIS that can be easily removed with a lumpectomy and treated with radiation. Take a deep breath, do some reading, and get your questions ready for Thursday. Hopefully, your path will be straightforward and effective so that you can get this in the rear-view mirror very soon!

    · Share on FacebookShare on Twitter
  • CAMommy
    CAMommy Member Posts: 437
    edited June 2015

    thank you all. I am BRCA 1/2 negative and the radiologist told me I have perfect breasts for mammograms that I likely won't need MRIs. He said nothing can hide in my breasts because they are so fatty. Um, gee thanks. Lol.

    I am meeting with the surgeon Thursday. I'm so pleased that I chose the same one that my GYN's own wife used for her breast cancer. That helps me feel like I'm in good hands.


    · Share on FacebookShare on Twitter
  • I_Spy
    I_Spy Member Posts: 507
    edited June 2015

    CAMommy I had DCIS and I had a lumpectomy that removed all of it -- it was very small, only 2mm. Your breast surgeon is your new best friend and coordinator of all things breast cancer.

    · Share on FacebookShare on Twitter

Categories