Starting Chemo May 2015

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  • lman
    lman Member Posts: 22
    edited June 2015

    Scarlett152, please let us know how your days go post #3. I go on Monday. Hoping side effects don't get worse as next week is busy with proms and graduations...

  • mysunshine48
    mysunshine48 Member Posts: 1,480
    edited June 2015

    Me too.....#3 next week, then I can say 1 more. Recover, then exchange surgery. Sooooo ready to feel normal with no power line and no expanders! My chest is screaming!

    Cats, I sure identify with mom. We looked at the same picture albums 100 times and they were always new to her. And, same thing, go out of the room and come back in and she would not remember we were just there! Then she would laugh......sort of like she knew something was weird. Oh, and she was in a memory care center and would look around and say, "who are all these crazy people! I sure miss her. One sweet lady! And, interesting, same for me. My biopsy was delayed 3 weeks because I went to Oregon to sit by her bedside after her stroke.



  • tjh
    tjh Member Posts: 469
    edited June 2015

    I do #3 Monday....I am scheduled for reconstruction August 12....VERY ready to feel normal again. My darling 2 yr old grandson had is first...hopefully only....ride in an ambulance today. He spiked a fever of 104 at daycare and was not responding after his nap. By the time they got him to hospital it was 105.2. They gave him ibuprofen and Tylenol and steroids, wrapped him in ice water wrap. Xrayed his chest, he has bronchitis. When I dropped off granddaughter he was jumping and climbing on sectional....I don't think my daughter is sleeping much tonight: broke my heart not to hug him

  • Tifree40
    Tifree40 Member Posts: 13
    edited June 2015

    TC#3 for me next Thursday. I'm dreading it!😩. I hope I don't feel any worse than last time. And I have been on my cycle for three weeks now. Blood levels were good today so the doctor is not worried. But I am very uncomfortable. Anyway I can see the finish line. I just need to keep running.

  • mysunshine48
    mysunshine48 Member Posts: 1,480
    edited June 2015


    Tifree40, I hear you loud and clear. #3 for me next Thursday too. I have a love/hate feeling for chemo. So thankful for these medicines than rid us of every last Cancer cell, but it's not easy! Dread the week after treatment, but after next week, we can say ONE MORE! Let's hang in here together!

  • little-k
    little-k Member Posts: 24
    edited June 2015

    I had FEC #2 yesterday. Because Neulasta didn't work for me with #1 (neutrophil count was 0, hence hospital stay) I will have Neupogen injection for 10 days, and then I will have blood work done again. There is a risk that if the Neupogen does work, and it works well, I may have severe bone pain, but that would be better than infections and hospital says.

    For those of you dealing with dementia with your mothers, or recent loss of your mothers, I feel for you. My mother died 13 years ago of leukaemia and I miss her still. I was able to be with her through most of it. Now I feel that I have been a little bit more prepared to go through what is happening now because of what she went through. But part of me wishes she were here to hold my hand through this. The other part is happy she doesn't need to see this.

  • tjh
    tjh Member Posts: 469
    edited June 2015


    My Mom didn't die with dementia, she was only 73. She had emphysema from years of smoking. I miss her like crazy at times even though she has been gone for 12 years. My youngest has limited memories of her through pictures since she was a baby when she died. Mom used to grow beautiful roses and flower gardens. Every time I buy and kill a rose bush I feel the need to talk to her among the other days of my life. Dad has been gone longer but as much as I miss him I miss Mom more

  • MarlanaB
    MarlanaB Member Posts: 292
    edited June 2015

    for all those that lost their mothers, I know this time in your lives is even tougher without them. My mom is still around (today is birthday #72 for her). I've been staying with my parents after surgery and the first few days after chemo. Even though my mother's bedside manner can be a little harsh, I wouldn't trade her for the world.

    Tifree--I feel for you on the period. I went through a phase when I developed a benign prolactinoma about 10 years ago that messed with my menstrual cycle something horrible. Fortunately, my last one, while a day late, lasted my usual 3 days. My MO was a little surprised that I had one after chemo but she said TC#2 yesterday should stop it

  • rosesrx
    rosesrx Member Posts: 458
    edited June 2015

    The day I had my biopsy my Mom was transferred from hospital to NH. You talk about jumbled priorities. Everyone said if I didn't take care of myself I would be no good to her, they did understand my waffling and hesitancy and indecision. She had her 79th birthday last week. She had sustained a fall on March 10th my mammogram was on the 20th and she must have fallen again on that weekend and was admitted to hospital on the 23rd. To those of you who have lost you Mom's {{{hugs}}} to you.Marlana Happy birthday to your Mom! Eat some cake for me.

    I hope all of you are doing well with #3's and know I will feel the same way with #5 in August.

  • sharapril1021
    sharapril1021 Member Posts: 42
    edited June 2015

    TGIF All! I've been off the board this week because I had my 2nd A/C treatment on Monday and still feel lousy with the exception of Tuesday after my Neulasta shot. The weather again has been crappy in NJ which I don't know if anyone else feels this way, but it affects my mood. I have had way less energy than with the 1st round of A/C and no desire to do anything but have been forcing myself to get up, get dressed, try to do some chores around the house but then need to sit down. As I type this the sun is attempting to come out after a brief shower so fingers crossed it will cheer me up! Food hasn't been as exciting to me so I've been sticking to liquid protein drinks, gatorade, etc. I will attempt to eat a baked potato or some soup later. I hope that the weekend will pick up my spirits and energy level before my 3rd A/C on 6/29. Now that I know what to expect, I am not looking forward to it but at the same time once it's done there is only 1 more left before Taxol (4 treatments) begin which has anyone felt much better during that process? I always had a lot of energy but now I feel like I can't even move and just wonder will it get better?

  • StefLove
    StefLove Member Posts: 322
    edited June 2015

    sharapril, I'm one treatment ahead of you and it looks like we're on the same regimen. 4 AC and then 4 Taxols. I know my signature below says carboplatin too but my MO says she only wants to do Taxol until we get my genetic results in. I go for my final AC next Thursday so I'll let you know how the Taxol goes when the time comes! I have heard that dose dense taxol is better than AC for most people. Which I am SOOOOOOOOOOO excited for. AC is kicking my butt as the treatments go on. I'm dreading Thursday but it makes me happy that i'll be done with this damn red devil stuff.

  • JenJenJen
    JenJenJen Member Posts: 39
    edited June 2015

    Yay, I'm with you ladies Sharapril and StefLove. Got one more AC to go next Wednesday then on to 4 Taxols. Can't wait till this feeling of fullness goes away. We can do it ladies! Keep up the good work and good spirit!

  • karabesque
    karabesque Member Posts: 84
    edited June 2015

    My last AC is Thursday, as well. I could not be happier about it. But then I have 12 taxol treatments. I am concerned about neuropathy and fatigue. My biggest SEs with AC have been fatigue and nausea and I am about over it. Having treatments every week is a bit scary, too. Will I have no relief? The unknown is such a challenge. Any suggestions?

  • sharapril1021
    sharapril1021 Member Posts: 42
    edited June 2015

    Has anyone stayed on the anti nausea meds for an extended time? My MO only told me to take the Decadron twice a day for the 2 days after chemo along with 1 Zofran in the AM and then 12 hours thereafter, then Compazine every 8 as needed. By Thursday I stop taking them all together but I wonder if the the "fullness" feeling is more nausea than not? I am dragging my butt trying to get motivated but again, it's another rainy day in NJ and the rest of the weekend is not looking good either, so I am not my usual upbeat self at the moment. My hair is starting to fall out but by next weekend I think I will have my girlfriend/hair dresser buzz it all off so I can think it will start to grow back? Does it with the Taxol? Monday is my LGFB session and I only hope that I feel well enough to attend. Trying to stay positive as I make my way toward the finish line!! I keep telling myself: I am not alone! - I am a fighter! - I have support! - I will survive! Feel free to join in with me because we ARE all in this together but WILL get through it!!

    Have a great weekend everyone!! Stay happy :) and strong!!




  • surprisedat65
    surprisedat65 Member Posts: 73
    edited June 2015

    karabesque: I am right behind you—will have my 4th AC a week from Tuesday and will also be getting 12 weeks of Taxol. (and then 7 weeks of radiation—oy!) My biggest complaint presently is my mouth—the only things I can taste properly are sugary. Now, I could use the loss of several (read: "a lot of") lbs., but I wasn't expecting to have it this bad. Vanilla ice cream and juice are the only things that are going down well. I am also fatigued, but since I'm not working I just sleep when I need to do so.

    I have begun combing chemo groups which started earlier than May and looking for women who are on the same regimen as I to see what kind of side effects they are reporting from Taxol. My MO said my hair would begin to grow back during Taxol, but women are complaining about losing their eyebrows! Think I'll go back to searching to see if there's any good news. I try to remind myself that everyone's reaction to the drugs is different so I shouldn't be depressed thinking that things are apt to get worse instead of better.

  • surprisedat65
    surprisedat65 Member Posts: 73
    edited June 2015

    For those going on to Taxol there's a weekly Taxol group:

    https://community.breastcancer.org/forum/69/topic/788735?page=1

    (145 pages starting in 2012 to the present)

  • MarlanaB
    MarlanaB Member Posts: 292
    edited June 2015

    surprised--SE's for both Zofran and compazine are drowsiness or tired feeling. I know the compazine usually knocks me out for a nap

  • rosesrx
    rosesrx Member Posts: 458
    edited June 2015

    My biggest s/e with zofran is constipation. That being said I usually take a stool softner to ward off problems. Perhaps for the fullness you could try Mylicon or Phazyme generic name is simethicone. I also use tums or a chewable calcium carbonate but that can be constipating as well for some.


  • ksusan
    ksusan Member Posts: 4,505
    edited June 2015

    Eyebrows and eyelashes grow more slowly so they take longer to fall out. Eyebrow loss often (though not always) happens after a 4-6 treatment course of AC or TC, for example. This could mean they'd fall out while someone's on Taxol, but be a result of earlier AC.

  • Beachbum1023
    Beachbum1023 Member Posts: 1,417
    edited June 2015

    surprisedat65, dropping in with some Taxol good news! I finished 4 DD Taxol on 11/25. But I wanted to share: my hair started to grow back in after my second Taxol infusion, and it has been growing like crazy since then. I take 800 mg Biotin every day, and it works for me. And it's cheap! My nails turned pretty ugly on Taxol, but the Biotin has made them beautiful again. They are hard, growing, and pretty pink and white again. And the dark lines and ridges have grown out. Keep buffing and using cuticle oil. My nails shine, so a good SE??


    The fatigue was pretty rough, and so was the weight gain, but the weight is coming off again slowly. So keep moving, go to Yoga, and eat healthy. My eyebrows and eyelashes did fall out, but grew back pretty quick. Sign up for Look Good Feel Better by the American Cancer Society. They provide a nice make up kit, and instructions for applying eye brows and lashes.


    Not all of the side effects are bad with Taxol, it's just following the AC that I thought made it hard. The one good news I had was it killed my toenail fungus, and the nail came back in nice and normal. Weird, but I'll take that one! Try to be kind to yourself, you have come a long way, pamper products are a good thing. Dry skin seemed to be an issue also, so lots of body lotion should help. I hope your path to the end of Taxol is smooth, and quick! Take Care, Cheryl


  • tjh
    tjh Member Posts: 469
    edited June 2015

    I have very sparse eye lashes and brows before TC #3. I still have fuzz on the back top of my head...DH says it matches his bald spot. My nails so far are fine, I keep clear polish on them, which is what my onco nurse said would help. My biggest SE is fatigue and bad taste buds.

    Sharapril...I have only taken zolfran for 2 days after chemo, I seem to gave 2 days of nausea during week 2 and I have prochlobanizine (?sp I don't have the bottle in front of me). I also eat small meals/snacks 6-8 times a day.

  • MarlanaB
    MarlanaB Member Posts: 292
    edited June 2015

    my eyebrows started thinning today--2 days post TC#2. Didn't even think about it when I was washing my face only to look up and see several brow hairs sitting loose on my face

  • lman
    lman Member Posts: 22
    edited June 2015

    TC#3 tomorrow! Brows and lashes still good, hair loss has slowed; still fuzz all over. My parents are in town for my son's high school grad this week so glad to be able to spend father's day with him!

  • tjh
    tjh Member Posts: 469
    edited June 2015

    I have TC#3 tomorrow as well. It will be great to be able to say...only 1 more. But I am feeling good today and know the next week will be HELL. I just want to be normal again.

  • Scarlett152
    Scarlett152 Member Posts: 175
    edited June 2015

    tjh - had TC#3 3 days ago. Hang in there. Friday/Saturday were hard, but mostly just fatigued with a little more nausea and bone pain than before. Got up and showered and dressed today and went out for Father's Day Brunch. On the couch watching the US Open with hubbie and boys the rest of the day. Only new side effect is jaw and tooth pain. Aleve helped that. Good luck tomorrow! Let's count down together!!

  • mysunshine48
    mysunshine48 Member Posts: 1,480
    edited June 2015



    tjh, I am right there with you.....number 3 for me on Thursday. I try to think about the positive of this......getting every last one of any Cancer cells that could be lurking GONE FOREVER! I don't like the SE either......get bone pain and just hurt all over. We just have to do it......I see a faint light at the end of this tunnel, and yes, I just want to feel normal again! Question, do any of you get tired quickly after doing something. Like, I went to Barnes and Noble, then grocery shopping and could not get home fast enough. Had to sit in my recliner for awile before putting groceries away. And, seem to need a nap. Not like me before all this! Sure hope it goes away!

    Hope all have a good week with few SE

  • CatsRus
    CatsRus Member Posts: 310
    edited June 2015



    TC #3 for me too on Thursday. And yes, I get tired quickly too. No bone pain so far though. Not looking forward to next week when, if round 2 is anything to go by, I'll spend most of it sleeping and too tired to do anything but at least I'll be closer to being done.
  • Magnolia83
    Magnolia83 Member Posts: 99
    edited June 2015

    Hi everyone! Just checking in a few days after AC #4! I hear you mysunshine on the tiring quickly...sometimes even after a shower I need to lay down for a bit. Very frustrating! But it gets better as the days go on.

    Ok on to work...these first few days in the office are brutal...I just want to nap under my desk! Think they'll be on to me if I start putting a pillow and blanket under there? ;

  • tjh
    tjh Member Posts: 469
    edited June 2015

    I also get tired a lot faster. That and my dry skin are annoying SE. I am currently waiting on my T to come from the pharmacy. I had to see a different oncologist this AM, mine is currently in Thailand on vacation. My 13 yr old is with me today...getting ready for her Teen support group tomorrow.

  • StefLove
    StefLove Member Posts: 322
    edited June 2015

    magnolia, omg the first few days back to work are horrible! monday and tuesday I seriously want to crawl under my desk and nap. I debated going to my car for a few just to relax but I'm in Florida, I'll melt even with the AC on. Not too relaxing! :)

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