Breast cancer survivor now lung cancer , not lung mets.

Marilyn,

So glad to see your response. I was worried about you because you didn't respond for some time. Glad your check up was good as well. I, too, get scared with every pain I feel, imagining mets from one of my cancers (that are, in theory, cured......). I try to convince myself that it is arthritis, as your doc is doing.

I'm sorry you have the additional stress of caring for your disaabled husband. I hope he remains stable.

Wishing you well.

Pessa

So good to hear from you and to hear you had a negative CT scan. Also great to hear you are back in your garden andenjoying spring.

I have my next CT at the end of the month. It's a little early because I am having some increased shortness of breath. Not bad, but noticable. This is more likely possibly from my heart but the doc said we should gt a CT now as well. Will let you know how things go.

Take care.

Pessa

Hi Pessa! Happy for you to clear the hurdle. Sorry to be late to visit here. I didn't forget.

Today was blood labs and exam...still all good...another CAT scheduled for September. August makes it 2 years. After 3 years we go to yearly CATs. One checkup at a time.

Best wishes to all as always,

Marilyn

Pessa, my husband and me were talking the other day about managing the aging of our bodies...even though our minds seem years younger! He said that life is paved with beautiful roses and when we walk on them, sometimes we feel the thorns. So in-between the trips to doctors, the lab and exam reports, the on-line research to understand what they all mean, the paying the bills, we also plan dinner parties with friends. Sitting around a table enjoying a meal and finding things to laugh about is our medicine too.

Best wishes to all as always,

Marilyn

My friend was diagnosed with BC and follow up scans revealed she also had a second primary, Kidney cancer. She considered it a 'twisted blessing' because if they hadn't found the BC then they probably wouldn't have found the kidney cancer until it was much more advanced and less treatable. She is now 8 years on with no recurrences.

Me, I seem to be walking on more thorns lately but hopefully all the rose petals are ahead. Chemo round 3 of 4 tomorrow morning. In my head, I'm already trying to plan my next trip to Negril, Jamaica. I so want to chill on a beach and be pampered. But part of me is hesitant as I worry some bad news will rear it's ugly head... but I'm determined not to let the fear of what may happen put me off having a good time while I can. At least that's the plan....

Hi everyone. Pessa, thank you for the heads up on this thread.

Wow, as much as I hate to know there are others out there with the same issues, I am glad to have others to talk to about it.

I was dx with BC 11/14 and with LC 2/15 while going thru chemo. They found it too because they were doing a CT scan because of my shortness of breath because of meds. They were looking for an embolism. The second half of my chemo cocktail was taxol which works on lung cancer so, with no prior ct scans to compare with, and no lymph node involvement with lung, seems they caught the LC early. Had a radical mastectomy due to lymph node involvement with breast on 4/28 and a lobectomy on 6/10. Just finished radiation Friday for breast. Having lots of issues with a bad cough currently. Went to dr today and got antibiotics for a bad chest cold. If not better in three or four days, they want to do an X-ray. Anyone else have a lot of croupy cough? I struggle with it

So sorry to hear that you now have to deal with pneumonia. I hope they are able to treat you at home!

I had a daily cough for over a year after my lobectomy (it's been a year and a half), which gradually resolved.

The surgeon said the cough is expected. You sure had to deal with a lot at the same time! Keep us updated

with your progress. I have my next CT scan in October. That would be my 2 year follow up. As the time approaches, I get more nervous. Wishing you well.

Marilyn,

Good to hear from you. Please let us know the outcome of the CT next week.

I, too, get short of breath with stairs, etc. My MO sent me to a pulmonolgist. Tests show normal lung function (though it is certainly not normal). He wants to do a sleep study to see if I have sleep apnea. I doubt it, but will follow up with his recommendation. In the meantime, I have to make a CT app't for next month.

Hoping for a good outcome for you, Marilyn.

Pessa

Pessa, they just called to say the CAT w/contrast is clear! Oh, what a relief! Wishes for all to hear those words.

Marilyn

Hello Ladies. I hope everyone is doing well.

I ended up in hospital for what they had thought was pneumonia and ended up being Radiation Pneumonitis. Was in hospital for nine days and put on 5 different antibiotics throughout a few weeks to realize they weren't working. Went on prednisone, 60mg/day. I have now tapered down to 10mg/day where it apparently will stay for a few months while my lungs try to fight this inflammation. On top of this, went to Pulmonary doctor Monday and found that I have apparently had in my pathology report what they termed "background Hypersensitivity Pneumonitis" since they removed my right lower lobe in June and nobody had ever either seen it or mentioned it. This meaning, I have some sort of serious allergy to something in my environment, either at work or at home. It is causing a lot of inflammation in my lungs and can end up scarring my lungs and being very bad if it continues. So, under doctors orders have to have my landlord have my house checked for mold. I went in for various blood tests yesterday to try to better pinpoint the "type" of allergen but, they seem to think mold at this point thru a series of questions.

So, on top of the two cancers, the two surgeries, and still trying to heal and be able to breathe again, I am potentially facing the very real possibility of having to move again and God forbid, change jobs (there is definite mold in some of the old building we work out of in certain rooms). We know there was a little mold on the ceiling in the bathroom when we moved into our little rental a little over a year ago. The little house is old but solid but, the mold can be hiding behind the walls, in the floor, ceiling, etc. I pray constantly. God must never get a chance to answer anyone else as I am always there on my knees.

Has anyone else had any experience or know anyone who has with HP (Hypersensitivity Pneumonitis)? I appreciate your time.

God bless you all and I sure hope everyone is doing well.

Marilyn, so glad your CAT was clear. Pessa, did you get your results yet?

Praying for you all.

Dawn

CT OK except for the very small nodule that was noted a year ago and has grown slightly (3 mm to 5mm), My MO says not to worry and to repeat CT in 6 months. I plan on seeing my chest surgeon to discuss further. It is apparently too small to biopsy. Wish I could feel reassured. I am tired of always being terrified...........

Marilyn,

thanks for your encouraging words.

Dawn, how are you doing

jdfly,

Glad to hear that you ae doing so well after your lung cancer treatment. That is encouraging to hear! I am exactly 2 years after my lung cancer surgery and doing OK. I am 5 1/2 years after my breast cancer diagnosis. Also had chemo after the bilateral mastectomies, and made it through the chemo alright. So far, so good.....

Good luck with the chemo. Let us know how you are doing

Sunshine, my mother is on prednisone she hates her puffy face and weight gain. I need to start losing weight now that I am off exemestane.