Pain is an every day part of life. Please Help!

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  • mhmama
    mhmama Member Posts: 13
    edited June 2015

    Rose, I have felt the same way but I know that giving up is never the answer. I have had friends commit suicide, one was a doctor, one a dentist, and the others were just every day people but they all hurt their families and friends more than anyone could imagine. I have come to realize that I am not living solely for myself but for all those who know and love me. I have an obligation to keep going for them.

  • mhmama
    mhmama Member Posts: 13
    edited June 2015

    I have a pain management doctor and he seems okay. I am on Gabopentin and Hydrocodone/Acetaminophen for the pain and nerve damage. It doesn't get rid of the pain but it takes the edge off so I can function.

    My problem is that last year, they passed a law here in my state that you can't get pain meds unless you have a written prescription from your physician and you can only have 30 days worth at a time. To make it more complicated, the pharmacy holds your prescription for 2 days to make sure it is legit and if it is on a weekend, it takes longer. You can't put a prescription in until it is 2 days or less from when your prescription is due from your last one. My husband and I have a motorhome and like to travel in the summer. We live in FL but have traveled as far as Washington state but no more. The motorhome is the only way I can travel to visit our children who live in Utah and Colorado as I can't sit in a plane. In a motorhome, I can go in the back and lie down when it gets bad. Now, many states won't take a prescription from a physician in another state so I have to make sure I am in FL when it is time to refill. The whole thing is insane.

    Before, I used to call my doctor and no matter what state we were in, he would call the pharmacy or fax them and I would get my pills.

    So, now we have a 42 foot motorhome that was our life's dream when we were working and it just sits in the driveway. Now, we are retired and have to stay close to home. And the people that run illegal drug mills are popping up all over and seem immune to the laws that are affecting us so harshly.


  • april485
    april485 Member Posts: 3,257
    edited June 2015

    mhmamma, I have heard that some doctors will mail a script to you wherever you are so perhaps yours could do that? If you go to campgrounds, they usually allow you to receive mail there so perhaps that will work to get you back on the road. Not sure but it is worth asking about, no?

    BTW, I know how hard it is to be working with pain meds and how everyone thinks you are a drug addict! I have been on the same dose for several years, never once asking to increase my meds. It just helps me to work full time and be able to walk. I still have pain...just takes the all important edge off so I can function. My doctors are ok with it so why do pharmacies look at me like I am a pill seeker? Ugh! Bawling


     Best to you no matter what.

  • mhmama
    mhmama Member Posts: 13
    edited June 2015

    Thank you April. I can get a written prescription but many states,now,will not accept a prescription from an out of state physician.

    I too am tired of being looked at as an addict. I only take what is prescribed to me and often do not take the pain meds when I should to try and make them last due to the strenuous laws. Of course, when I do that the pain becomes harder to control.

    I recently had to have surgery and I heard the anesthesiologist tell a nurse outside my room that I was a pain med addict. I told my Oncologist and he was furious but it did not help the shame I felt lying in that hospital bed.

  • shorfi
    shorfi Member Posts: 791
    edited June 2015

    The pharmacy dept treated me like that when I was still getting refills for Dilaudid. They would look at me suspiciously. They would call the PS to see if the script was legit. I felt like a drug addict, but I needed them because I was still in pain 3-4 later after the BMX. Most people who know me, especially my husband, are aware that I do not like pain pills. He would see me crying and make me take the pills because I was suffering so much.

    I am still in pain, can barely walk 100 steps without stopping. Was diagnosed with spinal stenosis some time ago, and just had an transforminal injection for L4, L5, Sl almost 3 weeks ago. I had to jump hoops to get accepted into the Pain Management Center. The injection helped some...I am currently taking Neurontin twice daily. The best thing about that is that it helps me to sleep. My quality of life sucks big time. We were on a cruise this past December and were docked in Jamaica. My husband and I were so looking forward to just walking around a bit, and as soon as I got off the ship I had to go back. That numbness and leg pain was horrible. My pain management doctor said to take the Neurontin along with a Percocet if I knew I would be walking quite a bit. I rarely use the Percocet because I am afraid of the addiction. Out of the 60 pills that he wrote the script for I think I have used 5 and I have had the script for about 2 months now.

    mhmamma...If I would have heard that anesthesiologist say that outside of my room, I would have reported him to hospital administration. That was uncalled for. We are dealing enough with this cancer crap, and for someone to label us "addicts" is unacceptable. I wish you the best and hope  you will be able to find some relief.


     

  • Chrissy26
    Chrissy26 Member Posts: 32
    edited September 2015

    I am looking for guidance in weaning off of cymbalta. I am currently on 30 mg a day since June. I understand it can be difficult to come off of this drug. If anyone has done this, could you please advise how you managed this and what side effects you may have incurred. Thanks so much for your feedback. Chris

    Ps. I am not sure the drug is helping me and I am struggling with weight gain.

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