May 2010 Chemo

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  • KimLovesDachshunds
    KimLovesDachshunds Member Posts: 177
    edited March 2013

    I like the image of a tattoo for the lips -- I've always had sensitive ones -- never able to really wear lipstick -- now this could have been a good choice all those years.  Hey, I went to see my onco today -- the last mammo still showed some concerns so I have to have another one in 6 months.  He still thinks it is some of the scar tissue issues -- says he normally would have started only having me get the mammogram once a year now that I've hit 3 years BUT due to the concerns of the doctor over at the mammogram area -- he is agreeing to order up one first part of July.  He says that IF this one should show some concerns, it might be time to consider removal of the breast.  He says that you reach a point where you don't keep going in to take small biopsies and/or surgery -- cosmetically -- which is true.  He thinks it will show nothing the next time -- but wanted me to be aware.  When I inquired about scar tissue just sorta "expanding" and perhaps this is the case, he said -- no, scar tissue will actually reduce and lessen over time.  But then I just had a small surgery to "check" things this past July -- not quite a year -- so we'll see where this July's scan shows us.  SOMETIMES I wonder if I should have had more COURAGE and just had the breast removed initially.  Oh well, we can't look back and I was SO FEARFUL of that.  Hoping you all are doing well!  Mr. Winter wants to keep kicking us all about -- we get some teasing in Georgia with some warm days and then bam a cold cold one.  :)  HUGS to you all!  Much love!

  • MLMGL4J
    MLMGL4J Member Posts: 2
    edited March 2013

    Hi ladies and Happy New Year, it has been a long time since i have posted. Yesterday was three years since my diagnoisis like you all , it is hard to believe. I am feeling well, have had my knee replaced and also should change my name, I now have three grandsons.

    It does we well to read that you are doing well, you all had a great deal to do withmy healing. I go for another mammogram and ulatra sound in April and for dr. visit.



    I have had several people i work with develop bc, i feel i am at least able to help them down the path.



    Stay well!

  • Ca1Ripken
    Ca1Ripken Member Posts: 1,254
    edited March 2013

    Hi ladies.  Sorry to tell you that my bone scan yesterday showed mets to my sternum, spine and hips... so my chest was hurting for a reason, and I do not have a herniated disc, I have tumors.  :(   We have a CT scheduled for Wednesday to look at my organs... and then I guess we come up with a treatment plan.  So sad, I just don't even know how to function yet.  Please, please let my other scans be clear!!  

  • Shrek4
    Shrek4 Member Posts: 1,822
    edited March 2013

    Oh my goodness Leanna, I am so sorry! I am praying for your scans to be clear! are you on any treatment now, as in AIs, Herceptin, anything?

  • bhd1
    bhd1 Member Posts: 3,874
    edited March 2013

    i am so sorry you are  here.  will you be treated at choa

  • Ca1Ripken
    Ca1Ripken Member Posts: 1,254
    edited March 2013

    Thanks, but I'm not sure what choa means.  

    Day, I have been on Tamoxifen... I meet with Onc on Monday, and have a CT scan on Wednesday.  I assume some rads will be in order to get the spine and hip tumors under control and relieve some pain so that it doesn't hurt everytime I walk.  

  • Shrek4
    Shrek4 Member Posts: 1,822
    edited March 2013

    You have never been on Herceptin? I see you're triple positive so you will have more than one alternative of treatment. I hope they get it under control for you. *big hugs*

  • Ca1Ripken
    Ca1Ripken Member Posts: 1,254
    edited March 2013

    I was on Herceptin for a year... + 6 months in a double-blind clinical trial of oral herceptin (believe I was in the placebo arm).  I assume they will need to figure out the particulars of the mets... they have been known to change ER/PR/HER2 status.  

  • Shrek4
    Shrek4 Member Posts: 1,822
    edited March 2013

    I am praying that this will be taken care of soon, and you get on a good treatment that makes the mets disappear.

  • Ca1Ripken
    Ca1Ripken Member Posts: 1,254
    edited March 2013

    Hi guys.  CT scans were clear, but did show the tumor on my pelvis has a soft-tissue component that is compressing my spinal nerve (hence the sciatica)... so, we'll see what they do about that.  Other than that, all is well!  I get another port tomorrow, and start infusions on Thursday (not sure what those will be other than the herceptin).  Met with psychologist... not really helpful.  We wanted to know if, when, how to tell the kids... and her answers were all generic. 

  • GolferGirl
    GolferGirl Member Posts: 121
    edited March 2013

    Hi Leanna,

    So glad to hear the scans were clear!  Hoping and praying the infusions help.  I know every person's course is their own, but my 80 year old aunt was diagnosed with bone mets about 3 years ago and she is doing great.  She gets around better than most people half her age!  I am hoping and praying you have the same great results from treatment.  Also, sounds like you need to find a better therapist!  Its a lot to deal with, especially for kids, you'd think she'd have some good suggestions.  If not, time to find another!  I keep thinking about your granite countertops and how you decided to go for them back in 2010 and in my mind I just keep hearing "you go, girl!"  Sending lots of healing and positive thoughts!  xoxo

  • Ca1Ripken
    Ca1Ripken Member Posts: 1,254
    edited March 2013

    Thanks!  I hope treatment works also!!  :)  Plan is for another scan in 12 weeks.  My only option if this is not working will be a new treatment with chemo.  Yuk.  They gave me a shot to shut off my ovaries on Thursday... not pleasant... it's a big ass needle that injects a pellet (yes, a pellet) into your tissue.  And, the biphosphonate infusions are every 4 weeks.  Really, every 3 weeks and every 4 weeks... so, they only match up every 12 weeks.  Oh well, at least I know when they match up, I need a scan!  Have an appt with onc Rad on the 4th to try and relieve some pressure from the soft tissue tumor (3 cm) that's protruding from my pelvis into my spine... nasty stuff.  And they took me off Tamoxifen (fail) and put me on Arimedex (sp?)... I will start my first pill tomorrow.  So glad the pharmacist told my husband to ensure I stopped taking the Tamoxifen!  Whew.  I will keep you updated! 

  • KimLovesDachshunds
    KimLovesDachshunds Member Posts: 177
    edited March 2013

    Leanna9:  I've not been on in a while -- reading and caught up with your situation.  Hugs!  Yes, push like you've never pushed before to get what you need.  Find a better counselor like has been suggested because helping you to help your children will relieve some of your stress.  It is like we've all said -- the doctors know things but they don't know ALL things -- so it is up to us and our loved ones to help us push to get the answers and do what works best for us.  I will say continued prayers on your treatment getting this resolved and your body completely healthy!  I am sorry you are having to deal with this -- know we all love you and are here to listen! 

  • sacphotomom
    sacphotomom Member Posts: 366
    edited April 2013

    Hi Leanna I so sorry to hear your going through all this .. Its already a month later .. I haven't been on, crazy busy with work.  but I see you on facebook and looks like you have been having a good time with the kids.  Hope all is well when you have the other scan, prayers are out there for you!   Arimidex comes with its own set of issues,I have found if I take them every day at athe same time I dont get the bone aches.  And the more I more the better I feel.

    I do see most of you on Facebook so I havent been on here.  But just thought  would check in.

     I am startiing  to feel really normal again. Just everyonce in a while I go back ... Yes Kim hindsight is alway 50 -50   i wish I would have done my breast right away, but this summer is the first time I have even thought about getting them put in ... only because I wanted to wear a dress with out straps in Hawaii.  And I am thinking I dont want to go through the pain.  I have lots of trouble with Lymphdema  in my left arm. especially when I lift my own photo equipment around.

    But I'm bad at the same time because the sleeves Im supposed to wear only rmind me of the big C so I dont wear them like I should.

  • KimLovesDachshunds
    KimLovesDachshunds Member Posts: 177
    edited May 2013

    Popping in to send HUGS to my friends.  Praying continued good news / positive news for each one of you.  My cousin just learned she has breast cancer-- fed by estrogen -- by her adrenalin gland.  GOOD GRIEF!  I encouraged her to go on this site and get additional answers and support.  Leanna, you're in my prayers and hoping others are stepping up to help with your precious children on coping with the stress and pains you are having to endure.  Praying for a complete healing of your body -- because we know your spirit is a strong feisty one!  Much love -- BIG HUGS!   I get another mammo on July 1st -- hoping it is a boring "same look" as the one in December.  My scar tissue is a problem -- I hope is all that is the problem.  I think all of us have the "shadow of it being there again" in our subconscious.  LOVE TO YOU ALL!  God bless each of you abundantly! 

  • sacphotomom
    sacphotomom Member Posts: 366
    edited May 2013

    Hi all I was just being very happy with all my test again being clear. It is amazing what the mind will bring up when it time for the test again.  Hope all of you are doing great.  Kim love have you ever thought of writing inspritaionall book you are the best at sayintg the right thing and writing it down.  Have a great summer ladies,miss talking to you all sometimes but then I realize that its because we are all feeling really good and enjoying life!

  • KimLovesDachshunds
    KimLovesDachshunds Member Posts: 177
    edited June 2013

    Sacphotomom:  Ah you are sweet!  I think I tend to be a ball of nerves so I just "feel" things at times for folks.  We are pressing on 3 years out and feeling good and "safe" and praying we all will.  Did Leanna change her name to Cal1Ripken or I am having an old age issue!?!?  Sending extra hugs to Leanna (or Cal1Ripken)  -- don't go messing with us like that because we are all just 1 microsecond shy of being crazy anyway!  Prayers / love -- hugs -- positive thoughts -- positive outcomes being sent to all!  {P.S.  Had an attorney at my work who adopted a baby about a year ago -- found out she has colon cancer -- don't know staging yet -- what the H____ is that about?  Seriously, this CANCER monster is out of control!}  I think we need a Boozka instead of chemo to kill him!

  • KimLovesDachshunds
    KimLovesDachshunds Member Posts: 177
    edited September 2013

    Anyone know how CA1Ripken is?  She has been on my mind!  Hope all are fine and someone will respond! 

  • sacphotomom
    sacphotomom Member Posts: 366
    edited February 2014

    Yea that is Leanna.  Wow we must all be doing really good since were have not been on here!   I am hoping that everyone is so busy enjoying we life that just don't have time to be on here. .This is the anniversary of my Diagnosis in 2010,   If you are reading this and you have just gotten your diagnosis, Please go and start a page,  the help I received from these gals through the year of 2010 was the reason I am sane today!  Love you all and Happy New year! 

  • KimLovesDachshunds
    KimLovesDachshunds Member Posts: 177
    edited July 2014

    Sacphotomom:  Sounds good.  Leanna has not posted in over a year.  I am worried something happened as hers had moved to a Stage IV.  Praying I am wrong.  Sacphotomom -- glad you are doing well!  I generally am too!  :)

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited June 2015

    Anyone here have any idea why shrek4 disappeared?

  • leftduetostupidmods
    leftduetostupidmods Member Posts: 620
    edited November 2015

    Sas-schatzi, I wasn't able to recover my account. This is my new one. I was away from the forums due to all kinds of nasty life events - my father died, my ex came back from deployment a different person, things got ugly to the "protection order" level, had to sue my mother and sister because they had done some illegal things to remove certain assets from the probate. Now I got complications from the LD recon (look on the Breast reconstruction forum). I was actually wondering how everybody on the May 2010 chemo group was doing. I see Leanna's last post was in 2013, anyone knows anything about her?

    I am still NED. But I got rapidly advancing osteoarthritis as side effect from AIs, long-lasting peripheral neuropathy from chemo and fibromyalgia - the real deal, even if I think that it's something that they slap on you when they have no idea what is going on - anyway, my pain management dr. said that probably my nerves were severely affected by the chemo and now they send pain signals where there shouldn't be any pain - and that, combined with the costochondritis and post-mastectomy pain syndrome finally got me on the disabled list - I've been on disability since March of last year. But, celebrated 6 years NED this past October!

    Hope all are good. Big hugs.

    Day

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited November 2015

    Seachain, this is going to sound totally nuts, I'm really glad it's not a recurrence that has you coming back. The other physical stuff is horrible and I have left over AI stuff too, just real happy you are NED.

  • leftduetostupidmods
    leftduetostupidmods Member Posts: 620
    edited November 2015

    I know, right? At least that is a blessing. Good to "see" you! *hugs*

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