Starting Chemo February 2015

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  • Darumama
    Darumama Member Posts: 135
    edited June 2015
    Wiped out, but done with chemo!
    ๐Ÿ’ƒ๐Ÿป๐ŸŽ‰๐ŸŽˆ๐Ÿ’ƒ๐Ÿป๐ŸŽ‰๐ŸŽˆ
  • live_deliciously
    live_deliciously Member Posts: 346
    edited June 2015

    congrats to all. I hear ya about chemical smell . I sweat the stuff. It's sticky when I sweat. I asked the doc about it and she said its the taxol coming out. I understand when she said you have the chemical built up in your system. Even at the end of my two weeks and before the next dose I was still sweating the sticky stuff.

    Really sore muscles and stiffness today

    I also have the non stop thinking about BC too. Its so hard to not feel guilty that I did something to cause this or am i doing enough to not have a reoccurrence. I told someone the other day that my ears are tuned to only hearing about reoccurrences even tho I know the chances are much less for reoccurrence. But it's like when you are looking for a car. that's the only one you notice on the road. Urgh!

  • Dromedary
    Dromedary Member Posts: 26
    edited June 2015

    Hurray Darumama! Soon we'll all have finished. Sorry about the soreness live-deliciously.

    Yeah, L-D, i hear you, this was already a second time around for me, so there has definitely been an element of "what did do wrong... again?" and I imagine other people are thinking the same thing (about me). Then I start realising that it's completely CRAZY to start trying to find reasons for this. There are just too many reasons why one of us, and not the other, gets cancer. Food, environment (which includes pollution, cleaning products, paint on the wall... everything!), just breathing or even just because we were born with a certain gene. So I'm trying not to go there, not to find reasons or blame, or I could go crazy.

    What I'm also finding is a certain lack of self-confidence. I'm not really ready to be social. Have turned down invitations for the last two evenings because I don't feel like going out and "partying", pretending that just because the treatment is over, everything is back to normal. It's not, I don't feel 100% right by any means, I look like shit, and I feel a little bruised and battered, damaged goods. I decided to respect those feelings and explained it to my friends - I think they understood - they were nice about it anyway. But I do feel I will need to work on it a little - I have my son's wedding in a month and want to enjoy that day. I'm sure it will be fine, I just need a little time.

  • Jerseygirl927
    Jerseygirl927 Member Posts: 438
    edited June 2015

    well it seems that one more done with chemo! Because of the SE's MO decided I had enough chemo also. We will be doing herceptin for the remainder of year every 3 weeks and he is starting 5 year pill. We are going for echo next week, then back to dr in August. In one sense I am relieved, but a little apprehensive that all the cancer cells are done and gone forever. So it's been a tiring day, gonna go to bed, catch you hugs in a few days. Feel better all .

  • Chloesmom
    Chloesmom Member Posts: 1,053
    edited June 2015

    Darmama. It's Happy Dance Time

  • MaryJC
    MaryJC Member Posts: 350
    edited June 2015

    ChloesMomโœ‹๐Ÿพhigh five! Good for u respecting your feelings. I've noticed a lull after treatment is done for a bunch of us. It's like the treatment is worst than the cancer. And we've been thru hell. So def need time to recuperate from it and enjoy each day of feeling little by (very) little more like ourselves. I hear it can take a year including all the SEs.

  • rossileo18
    rossileo18 Member Posts: 245
    edited June 2015

    Yay Darumama! One more across the finish line! It's certainly been a long haul -- four months of poison in our systems.

    Dromedary -- I know what you mean by feeling like damaged goods. I certainly don't feel like celebrating. I just feel like relaxing and giving my body a chance to recover. I want to go outside and enjoy the sunshine and look at the flowers and listen to the birds. I want to bike and feel the wind in my hair (even though there isn't much of it), I just want to be 'myself' again -- not the person who was too weak to do the things I enjoy. I don't even want to think about the possibility of recurrence -- though it's very real to me. This is my second time too. Surgery and probably radiation are still ahead for me so one step at a time.

    Take care of yourselves all!



  • Chloesmom
    Chloesmom Member Posts: 1,053
    edited June 2015

    Am taking care of self today. It's s glorious day! Went for a walk and walked an extra block before the leg stiffness and weakness said no more Went to therapist the other night and out of nowhere started sobbing about missing my clients from work. I used to be able to pick kids up from the floor and jump on a trampoline with them doing their therapy. At this point it's hard for me to get off the floor. Weird trying to get used to being in someone elses body thats now mine. Hoping to go back to work someday but it's going to be onw inch at a time

  • live_deliciously
    live_deliciously Member Posts: 346
    edited June 2015

    i read what you all say and can really empathize so much. Im so glad i have this forum to confide my thoughts and feelings. Thank you all for sharing

  • vr423
    vr423 Member Posts: 29
    edited June 2015

    I had chemo 5 of 6 this past Monday. The pain isn't as bad this time, but I guess the morphine pills are to thank for that. I've had a strange skin reaction to both taxotere treatments, I have raw, red skin under my arms, behind my knees, around my neck..., with blisters! Very sore. Makes me wonder if I can do this another time

  • Paddymom
    Paddymom Member Posts: 29
    edited June 2015

    I will have my 6th and final(yippee!) treatment on 6/23. This one has only been difficult due to extremely low blood counts making it difficult to get about. (Not approved for neulasta by insurance co,). Although not posting often have been keeping up on the progress of others through posts. I hope all will continue to share the journey as she experiences it. There is comfort in numbers.

  • Jerseygirl927
    Jerseygirl927 Member Posts: 438
    edited June 2015

    today I took a 4 hour nap as I was exhausted when I got home from church. Hubby said I was pale and looked beat. Have not had chemo since may 14 but still quite tired and lethargic. My platelet count last week was only 11 so still ways to go to bring it up. My side effects have been numerous so with increased neuropathy I am glad MO says to stop chemo, I think they know that some of these SE are permanent and tell you they shouldn't be.... I have a friend who has been off chemo for 5 years and still has neuropathy in feet. Nothing has come close to minimizing his pain either. I start pills as soon as I pick them up, and herceptin I hope is that piece of cake everyone talks about, I have had the rash, but it does go away eventually. Ok gals feel better and let's keep together.

  • Jerseygirl927
    Jerseygirl927 Member Posts: 438
    edited June 2015

    just got my 5 year pill, MO has put me on anastrapozole? Taken daily and herceptin every 3 weeks. S but SE are neuropathy , hot flashes, constipation, diarrhea , pretty much what I was taken for chemo, hope nothing is serious, we shall see it goes? Feel better gals. Oh had aspiration of my surgery sight for the 3rd time today, still plenty of blood and fluid in the pockets. It could still be an issue again, if the body doesn't want to cooperate... This is getting tiring hope it's the last tome...

  • Ldavidson17
    Ldavidson17 Member Posts: 12
    edited June 2015

    I have my final TC chemo tomorrow morning (weds)ย and then will continue Herceptin every 3 weeks to finish out a year.ย  Could not be more excited to be done with the TC portion of this.ย  Ready to ring that bell and then go out for a celebratory dinner with family and friends!ย  Hope everyone is doing well!

  • Darumama
    Darumama Member Posts: 135
    edited June 2015

    Thanks to everyone here who helped me cross the finish line with chemo! The past 5 days have been the usual post treatment ups and down for me in terms of side effects. Feeling pretty achy, sleeplessness, fatigue, etc. But it's been nice to know I'm done with neulasta and I took my last steroid last night. Claritin for another week. Maybe I can start putting away some of the drugs that have been sitting in a caddy on my kitchen counter since February? Time for miracle mouthwash to go live at the back of the medicine cabinet! The oncologist's office takes unused drugs back for patients in need and I have lot of Zofran I never needed once AC ended.

    I found myself getting a little annoyed at my mom yesterday, mainly because our conversation brought up some feelings I have about the end of this phase of treatment. When we talked about the end of chemo she was surprised that I wasn't feeling better already. I reminded her that it hasn't even been a week since my last treatment and I usually felt pretty crappy for at least a week after. Oh, but you'll be feeling back to normal in a few more days, she said. I'm not trying to bash mom here- a comment like that is totally to be expected from her (or anyone really). My reaction to her comment in my mind though was like - What the hell!? People think I'm going to bounce back to normal after all this? I'm going to be doing radiation next and then put into to menopause to take arimidex. The thing is, I probably will be feeling better with no chemo soon, but I wished she understood how fundamentally the concept of normal has changed for me both mentally and physically.

    Congratulations to you ladies who are finishing up with chemo soon! Jerseygirl- hope your surgical site clears up!


  • live_deliciously
    live_deliciously Member Posts: 346
    edited June 2015

    i can understand your moms comments to an extent. I was secretly hoping I would just be back to before cancer normal by now. Haha. NOT so quick!. It's been 8 days since last dose dense chemo. I feel better than I thought really not knowing how it would be without neulasta shot but the stiffness is always present after sitting or laying down. Like starting a cold engine I need to warm up. The neurothopy is still there. Still sweating out the taxol. Its sticky. My large toenail bruised up when I dropped something on it. Still having vision blurriness and taste buds aren't fully back. But I didn't have any "couch days this time".. I'm dying to have sushi and a spinach salad soon. I have started enjoying a beer at end of night tho. Wine, my preferred drink, is still a little strong for me. Had my rads Sim yesterday. So I really felt like chemo is over for the first time.

  • Jerseygirl927
    Jerseygirl927 Member Posts: 438
    edited June 2015

    don't rush the comeback cause it don't work like that, my last chemo was May 9 and my plateletsare only at an 11. Still away to go, so it doesn't return as quickly as they like you too. And if you over 55 I think it takes even longer. Go at your pace . I am just getting enough energy to do a big grocery shop in the next few days, but not ready to celebrate as taste buds are gonna take awhile, I am sure, and I might as well enjoy what I eat. Feel better all!

  • Chloesmom
    Chloesmom Member Posts: 1,053
    edited June 2015

    don't have the energy yet for the big grocery shopping and it's 2 months now.. Give it time and be kind to yourself!

  • Darumama
    Darumama Member Posts: 135
    edited June 2015

    One day after I finished my steroids the headaches and body aches began. The last two days have been pretty awful. Chemo's parting shot at me, I suppose. Drinking my water like crazy to get this stuff out of my system. Today is one week pfc and I still feel like I'm in chemo mode with the SE.

    I have my radiation sim on Tuesday and I'm eager to get on with the next phase. MO wants me to do ovarian suppression and arimidex (10 years!) so when I go for my first port flush in July I'm going to get a shot of Lupron and then start the Arimidex. This will be the summer of hot flashes. Hoping I tolerate it well

    On a happy note, I've got some stubble coming in on my scalp.

  • Damselfly
    Damselfly Member Posts: 62
    edited June 2015

    Aw Darumama I'm sorry this round has been so tough. Just keep reminding yourself that chemo is Done Done Done! I hope everything else is mild for you.

  • SugarCakes
    SugarCakes Member Posts: 353
    edited June 2015

    19 days pfc and I'm feeling pretty good while vacationing in Fort Lauderdale. Hard to believe I'll be having a BMX just three weeks from now. I hope I eventually have something visually close to these awesome boobs!

    image

  • Damselfly
    Damselfly Member Posts: 62
    edited June 2015

    You look gorgeous SugarCakes! Glad you're feeling good. I am too - I had my MX in January and am going in for reconstruction in a little over a week. I only had one breast removed so symmetry will be an issue, but I am surprised that I don't look and feel stranger than I do sometimes. Enjoy your vacation!

  • SugarCakes
    SugarCakes Member Posts: 353
    edited June 2015

    thanks Damselfly. This all seems unreal a lot of times. I hope I'm not shocked into some very different reality right after surgery. I hope I continue to feel good and have such the positive outlook.

  • live_deliciously
    live_deliciously Member Posts: 346
    edited June 2015

    sugar cakes you look awesome. So glad you are having fun and made it thru chemo so well. I had a bmx in January and had tissue expanders installed. Just finished chemo June 2. I need rads next so they won't do the exchange for 6 months after radiation. What's your reconstruction plans?

  • SugarCakes
    SugarCakes Member Posts: 353
    edited June 2015

    I'll have BMX on July 6 and will get tissue expanders with quite a bit of fill as I have existing implants, and therefore a pocket already. I understand I will get more fills over the course of four weeks or so. TEs will be exchanged with implants prior to radiation. There are different thoughts on whether its best to radiate the TEs or the Implants. I met with two different PS with different views and I feelmuch more comfortable going the route I'm going. Time will tell.

  • Dromedary
    Dromedary Member Posts: 26
    edited June 2015

    I'm sorry you've had a tough final round Darumama. Seems I got off pretty lightly and can honestly say, 2.5 weeks pfc that I feel almost "normal". Having said that, this evening my ankles are swollen up to elephant size - maybe because I've been sitting at my desk all day working. Am now lying watching TV with feet up - not sure what's going on but hope a night's sleep will resolve it.

    Grateful to see live_deliciously mention vision blurriness - hadn't seen that talked about before and thought it was just me! As for people expecting you to just bounce back to normal after final chemo - this seems to be widespread. I've come to the conclusion that it's because that's what other people WANT to see happening. They don't mean to make less of our suffering, they just want it to be over. I agree, it's irritating and for the first week or so i had to explain to people that I wasn't yet well. For those of you who are going into rads now, it's going to take even longer, so you may need to prepare yourselves to do lots of explaining to people, even though it's annoying.

    Looking fab Sugar Cakes!

  • Chloesmom
    Chloesmom Member Posts: 1,053
    edited June 2015

    My vision is normal now but I couldn't enjoy the TV for a few weeks as I could see better without my glasses things were so blurry. It was its worst between 2nd and 3rd infusion

  • Jerseygirl927
    Jerseygirl927 Member Posts: 438
    edited June 2015

    I had a bit of blurry but figured it was computer and TV strain. My last chemo was May 7 and I still feel pretty shitty, am not back to full power yet, not sure that is coming anytime soon, don't really want to do anything. Had seroma. From January surgery drained last Thursday for the 3rd time, so that is making me uncomfortable still, and feet still numbly along with fingers. I am not going to rush this funky feeling. Just don't want todo much. Be well gals and keep fighting

  • live_deliciously
    live_deliciously Member Posts: 346
    edited June 2015

    Hang in their gals. Were all gonna make it thru this. I just read the thread for stage 3 survivors 5 years and more. It was so encouraging and helped with this mental funk I've been in letting BC mess with my mind. So glad this site exists .

  • SugarCakes
    SugarCakes Member Posts: 353
    edited June 2015

    Just finished my first Herceptin only infusion. If I didn't have a two hour reminder alarm set, I would have completely forgotten about it this morning! It was administered over 30 min, but additional fluids were given afterwards. I was at the center for two hours total.

    My ankles have swollen when I have been working and on my feet outside of the house. I expected them to swell while in Fort Lauderdale vacationing (lots of walking in flip flops) but they did not. Maybe the worst of that is behind me?

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