Winter rads 2014-2015

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  • WndrWoman
    WndrWoman Member Posts: 333
    edited June 2015

    Beachbum102 Thanks for the positive report. I have arthritis in my knees and have discovered that the recumbent bike at the gym is much easier on them than the treadmill. In this warmer weather half of the year, I go to the local pool and walk up and down, do exercises and "bicycle" in the water. There is a therapeutic pool kept nice and warm open during adult swim which I use for the last part. The only trouble is I should do more weight bearing exercise because of the risk of osteoporosis from the Anastrozole I am taking. I do chair yoga at the senior center and that helps with my arm which has some lymphodema risk. That leader does Livestrong at the Y and she has lots of good tips. I look forward to learning what strength training machines I can use and keeping motivated as the days get dark and cold. You don't list that you take an AI because one potential side effect is weight gain. I have used an app called Lose It to record my eating and exercise and help me stay within a calorie range. Has helped me.

    Mqt64 I was a great stress eater when working and then caring for an aging parent. BC has coincided with a time when I can focus on myself with much that was stressful gone. But I waited til after surgery and radiation were over to make most changes. It is a daily struggle to give up my sweets and find other ways to deal with life's curveballs. Let your body heal from your current situation and then you may feel ready to work on weight loss. You have a lot of inner strength to draw on.

  • WheelyGirl
    WheelyGirl Member Posts: 181
    edited June 2015

    mqt64 - prayer for you and sending healing vibes your way.

    wndrwoman - sure wish I could find a weight loss program that doesn't cost an arm and a leg around here.  I really need to lose 50 pounds too.  My daughter is going to go to the gym with me but I need a good weight loss program.  Gonna check with my heart doctor at my appointment tomorrow to see if he can suggest something.

  • Beachbum1023
    Beachbum1023 Member Posts: 1,417
    edited June 2015

    My local YMCA offers LiveStrong for 12 weeks free. It is excellent, and I am loving it. Look online at your local Y and see if they offer it. Our local cancer center also offers many programs for exercise and yoga free as well. Good Luck!

  • WndrWoman
    WndrWoman Member Posts: 333
    edited June 2015

    My Breast Health Center has a nutritionist. Medicare would not cover meeting with her one on one (stupid) so I paid to have a one time session. She only charged $60 and I got a daily meal plan, ideas for substitutes, and guidance on eating for women with breast cancer (9 fruits and vegetables daily, avoid red meat and processed stuff like bacon, sausage and most deli meats, very limited alcohol, more beans, calcium rich foods and drinks like almond milk). The 10 week program I am in costs $60.

    Yoga there is free but I do better with chair Yoga at the senior center for $2/session. Our town has a great pool and resident seniors only pay $80/year or $10/month. Planet Fitness is only $10/month.

    Since exercise and reaching a good weight are critical, I have decided to invest in myself and am trying to stay committed and motivated. I still need to lose another 90 pounds (ugh), but I know that those fat cells are estrogen drivers so better late than never.

    Your heart doctor might be able to get something covered. Hope so. An app like Lose It can help by logging what you eat and having a calorie target. If you enter that you want to lose 10 pounds in 3 months, it will tell you how many calories you can eat daily to achieve that.

    Will be watching for updates this week.

  • quiggy
    quiggy Member Posts: 315
    edited June 2015

    Hello my sister's!!! Pathology came back, it's NOT cancer!!!! Infection, needs treatment and more time but so relieved!!!

  • Beachbum1023
    Beachbum1023 Member Posts: 1,417
    edited June 2015

    Quiggy, I am so happy for you! Let the healing both mentally and physically begin. You deserve peace and comfort after all this. Take care and repair, Cheryl

  • zjrosenthal
    zjrosenthal Member Posts: 2,026
    edited June 2015

    Yay Quiggy! So glad for the good news. Let the healing begin. Love, Jean

  • CoyoteNV
    CoyoteNV Member Posts: 575
    edited June 2015


    That's wonderful news Quiggy. I could hear the joy and relief in your words.  Isn't in interesting that with that news all the rest of it seems tolerable?  Hugs of celebration, prayers of gratitude.

     

  • CoyoteNV
    CoyoteNV Member Posts: 575
    edited June 2015


    mqt64 ~ I'm hoping the healing is progressing and that the docs have a handle on the allergic reaction.  Lots of thoughts and prayers of healing and strength are sent for you and your family this am. 

  • WndrWoman
    WndrWoman Member Posts: 333
    edited June 2015

    Quiggy Absolutely delighted with your wonderful news. Now that your stress has been relieved your body will heal faster. And it seems the surgery has relieved the pain. Just smile all day.

  • CoyoteNV
    CoyoteNV Member Posts: 575
    edited June 2015

    Now that the important things are addressed, here's a quick non-health related update from Nevada.  Way last summer, when I was absolutely in no condition doing it, I accepted an invitation to speak at an event this summer.  The presentation time is upon me on Thursday and I find myself filled with anxiety.  Strangely enough, even though I am a bit of a reclusive person, I've never had much trouble talking in front of a group. There was a time, when I facilitated federal meetings for high level government officials without hesitation.  This is different.  I'm speaking on "Inspiration and my art". That is actually a very complex subject because it is very mental with physical overtones and also very personal.   I've had problems with missing words since the chemo. I have to search for them more frequently.  I find that I don't think as fast as I used to.  Is it chemo brain or am I getting old? I spent many hours searching my mind and writing down what needs to be said, but now look at the words on paper (yup still killing trees) and can't recall what the next paragraph says.  I believe every word hold truth, but like inspiration itself, the thoughts are slippery and elusive.  I feel that the potential for a disastrous moment is looming.

    I'm finding that I'm wishing my support group (that would be you) could be there with me. It is Thursday, 6:30 PDT. Las Vegas. Would you please send a thought my direction about that time?  I know that I would feel it.  Of course, if you are in the area, I'd welcome you with open arms - even though I haven't even told anyone here that I'm doing it.  Thanks so so so much.

     

  • WndrWoman
    WndrWoman Member Posts: 333
    edited June 2015

    Coyote First of all, I will definitely send positive and strengthening vibes your way on Thursday. I am sure it is a good omen that I will be spending that day in Boston at the Museum of Fine Arts seeing the Hokasai prints and Gordon Parks photographs. It will be easy to focus on art and inspiration of the artist.

    My 68 year old brain which did not have chemo often forgets a word and every now and then a train of thought. Note cards with key words or phrases can be very helpful. A colleague used a map which was like a visual outline with subtopics in circles and route lines connecting them. Mostly I think you should have faith in the subject being central to your daily life. Having some of your artwork with you to show will "inspire" you to easily relate each piece's story amd source of inspiration. Remember that the audience travels with you and will gladly help if asked to fill in a word or remind you of where you were. I know you will inspire them as you do us with each posting here. We will be right there in the audience smiling at you.

  • WndrWoman
    WndrWoman Member Posts: 333
    edited June 2015

    Coyote. My husband says listen to your heart.

  • quiggy
    quiggy Member Posts: 315
    edited June 2015

    Coyote, I will keep you in my thoughts and send you positive vibes on Thursday, 6:30 PDT.

    I relate to your anxiety and those increasing times when you can't find your words.

    However.... For many months now we've all enjoyed your words of inspiration, your eloquence and your wisdom. I have personally found strength, comfort and inspiration from you many times.

    Take some big breaths and be confident in your love of art and you will find your words and you will inspire others. You got this!!!! :)

  • zjrosenthal
    zjrosenthal Member Posts: 2,026
    edited June 2015

    Coyote I just put you on my calendar to pray 4 u on Thursday. I'm sure you will be fine. Love, Jean

  • Beachbum1023
    Beachbum1023 Member Posts: 1,417
    edited June 2015

    Coyote, speak from your heart and share your inspiration and your passion. You will rock the house! I'll be lurking in spirit, you know that we are never alone, we are always together no matter what. We won't let you down! Best of luck, Cheryl

  • mqt64
    mqt64 Member Posts: 103
    edited June 2015

    Quiggy, so glad for your news that it is benign!  We both know how pesky those infections cam be....right! 

    Coyote you will find your words because you always speak your truth. You have truly been an inspiration to all of us.  Sending good thoughts your way on Thursday.  We'll be there in  spirit.

    My news is frustrating.  Surgery postponed another week to let the redness/inflammation go down more. Arrrrg!  It continues to get better daily, though and even he thought it looked better today than yesterday.  On to another week of hyperbaric treatments.  I've had some bleeding which is a positive sign.  Only well perfused tissue can bleed and is more likely to heal.

    I'm really excited to see all the people doing LiveStrong!

  • ladyb1234
    ladyb1234 Member Posts: 1,426
    edited June 2015

    Coyote First off I will pray and send strengthening vibes your way on Thursday (and before)! Ditto Quiggy's comment "For many months now we've all enjoyed your words of inspiration, your eloquence and your wisdom. I have personally found strength, comfort and inspiration from you many times.". I know you will do find the words and they will flow seamlessly as your wisdom shines forth. We will be in the audience right there with you.

    Speak from the heart!

    Love Angie

  • CoyoteNV
    CoyoteNV Member Posts: 575
    edited June 2015

    You are all so wonderful that my eyes well with tears.  Finding friends like you through the adversity of bc is a strange and beautiful gift.  I will most definitely visualize all of you there with me. Thank you so much.

    mqt64 - It sounds like you are moving forward. Frustrating - yes. Better - that's a yes also!  Add enough grains of sand and you get the whole beach!  Did you ever wonder how they calibrate an hour glass? I know that is a strange question, but the ideas of time and waiting -  and that every little bit of good news adds up -  collided in my head into that question.  I had to share it.  There is a possibility that I am getting giddy with nervous energy. 

    Once again, I'll move forward myself with this project and try to calm down, knowing that you will be there.

    Jana 

     


     

  • quiggy
    quiggy Member Posts: 315
    edited June 2015

    Hi everyone,

    Saw my surgeon this morningthen decided to treat myself to the rest of the day off. Need it!

    Doctor put new steri-strips on the opening. It's still oozing but looks better then it has in months!

    My opening is above the nipple but some of the pain is at the nipple. A seroma is developing, can feel it inside and from the outside. Doc said it should resolve. I asked him if he thought "my" body would absorb it, he thinks so. Guess we'll see seems a little familiar.

    Pain is a little better but still an issue. I'll be happy when it's finally healed and I can find some normal again!!

    The Kaiser Permanente advocate who promised to call me last Friday, has yet to call. Shocker!!!

    Thank you all so much for your support. Can't imagine getting through this without you. Coyote, you are so astute! We've come together under such adversity and built great bonds. It truly is strange and wonderful.

  • WheelyGirl
    WheelyGirl Member Posts: 181
    edited June 2015

    Quiggy - So glad to hear your news now you can concentrate on healing, my thoughts and prayers have been with you during your horrible waiting period.

    mqt64 - glad you are seeing some improvement and praying and sending healing vibes your way.

    coyotenv - I will be thinking of you on Thursday as well and can envision the beautiful and eloquent presentation that you will give.  I agree with Wndrwoman, the subject is obviously close to your heart which is where your words will come from and any that don't make it to your mouth during the presentation will be filled in by those around you.

    Thinking of you all!

    Theresa

  • WndrWoman
    WndrWoman Member Posts: 333
    edited June 2015

    Mqt64 Sorry you are delayed again but the news seems encouraging and waiting will undoubtedly lead to a better outcome in the end. Once this is all resolved and you are interested in weight loss, I have a tip. The nutritionist said tonight that if you are stuck on a certain weight, you can Kickstart weight loss by having no carbs at night. So protein and veggies for dinner and nothing after dinner. But you need your strength now for healing which is aided by proteins.

  • WndrWoman
    WndrWoman Member Posts: 333
    edited June 2015

    Coyote. I have a book called Prayers of Our Hearts with two prayers I will say tomorrow for you. One is a prayer of thanksgiving for inspiration and the other is a prayer for artists. You are uniquely you. Your heart will speak louder than your words. That gift will be gratefully received and appreciated.

  • WndrWoman
    WndrWoman Member Posts: 333
    edited June 2015

    Got the results of my genetic test today. No BRCA 1 or 2. A good thing.

  • Beachbaby65
    Beachbaby65 Member Posts: 68
    edited June 2015

    coyote, though I don't post often I do find myself checking in , mostly to read your words of encouragement. Your posts more then anyone's have helped me deal with this major bump in my life. I am not religious, but I am spiritual and will send you my positive, loving vibes along the universe! You will be fantastic though!

  • WheelyGirl
    WheelyGirl Member Posts: 181
    edited June 2015

    Had my first post treatment mammo and got the no NED from the doctor, I am sooooo excited and sending my positive healing vibes to all of my sisters here. 

    Coyotenv- I will be thinking of you all day tomorrow with a smile on my face as I envision your presentation....please let us know how it goes.  You did not share the time with us...but we will know and you will feel all of our presence...

  • CoyoteNV
    CoyoteNV Member Posts: 575
    edited June 2015

    Thank you all for the gifts you give me. I promise I will carry your strength with me.  All of your encouragement has already helped me.  

    One of the things that has been difficult for me in this presentation is the question. What inspires me?  That is so intimate.  It took me days to wrestle that into words.  Those kind of esoteric issues float around in the ether without form and they want me to answer it?  It's kind of like asking, "What's the meaning of life?" and expecting an answer!  Actually grasping it and stuffing it into a cohesive sentence is not easy stuff.  Of course, you - who all know really me very well - understand that I cannot be satisfied with saying that the blue sky and red rocks make me want to make beautiful art.  For me, inspiration is pretty slippery. Now you have it, now you don't.  Talking about it is the same thing. One second you have a handle on it and then it willow-the-wisps itself into some dark crevice in my brain not to be seen until 2:00 am.  Wayne Dyer wrote a wonderful book titled Inspiration, Your Ultimate Calling.  He wrote about living in-spirit.  He's an amazing man. Maybe I could just say. "Read Chapter 2." 

    I want you to know that what you have said to me about the words I send to you, means everything to me.  The first and foremost of my life's wishes is to make a difference.  To tell me that I have done that for you fulfills my reason for being.

    Stay well and thanks again so very much.

    Jana

  • mqt64
    mqt64 Member Posts: 103
    edited June 2015

    Coyote, once again you make me smile! You are having your own issues but come up with a conundrum like that! I think hourglasses are not calibrated because just like our lives no two grains of sand are exactly alike. You will find your words tomorrow. Wish I could be there to listen.

    Wondrwoman.your genetic testing results are great! And I do need to cut down on the comfort carbs.

    WheelyGirl, are you our first NED after a mammogram? Congratulations! And Quiggy, yours counts too.

    What a wonderful, improbable group of sisters.

  • quiggy
    quiggy Member Posts: 315
    edited June 2015

    Hugs to you CoyoteNV.

    Go share your words and self tomorrow. You're going to be wonderful.

  • WheelyGirl
    WheelyGirl Member Posts: 181
    edited June 2015

    coyotenv - thinking of you...

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