Post partum breast cancer high risk

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Stephmoen
Stephmoen Member Posts: 563
edited November 2017 in Young With Breast Cancer

has anyone oncologist mentioned this to any if you

http://www.denverpost.com/fitness/ci_24308467/postpartum-breast-cancers-carry-higher-risks-young-women

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  • floaton
    floaton Member Posts: 181
    edited June 2015

    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3608871/. I'm guessing they were talking about this article?

    Honestly I find it very scary. But no, my onc hasn't mentioned numbers, just that it was a major factor in her not even sending my tumor for oncotype since I had enough concerning characteristics that she said she wouldn't believe it even if I had a low number. I know she's quoted me a <10% recurrence risk within 10 years, though, which doesn't seem to jive with the 31.1% 5 year recurrence risk listed in this article.

    I don't know if this will make you feel better or worse (for me it's not good news as I was diagnosed at almost exactly 6 months of breastfeeding) but this study found the increased risk was limited to those actively lactating at time of diagnosis. http://jco.ascopubs.org/content/27/1/45.full

    I wonder if they don't mention it because they don't know what to do about it. But would still be nice to hear it from them rather than stumble across it later, I think.


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  • Stephmoen
    Stephmoen Member Posts: 563
    edited June 2015

    thanks for responding I found my lump when my baby was 11 months old wasn't diagnosed until she was 13 months our diagnoses is similar except I'm her 2 pos so yes I have a aggressive cancer but thankfully still found it early according to a clean pet scan no lymph or organs involved..I am going to ask my oncologist about this article she didn't mention anything to me of an increase risk of recurrance or death but I would think one of the reasons he prognosis is poor is due to us being young so drs don't take it seriously and we aren't routinely screened so the cancer is often found in later stage

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  • inks
    inks Member Posts: 746
    edited June 2015

    My MO nor surgeon mentioned it to me but I found the studies on my own. Younger women do worse in generally with BC so the hormones bombarding the breast and that "wound healing process" must just add to it all. I found my lump after I had stopped breastfeeding.

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  • Stephmoen
    Stephmoen Member Posts: 563
    edited June 2015

    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC269378...!po=37.5648

    Seriously this is telling me I have a 30% chance of survival?

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  • floaton
    floaton Member Posts: 181
    edited June 2015

    http://www.ncbi.nlm.nih.gov/core/lw/2.0/html/tileshop_pmc/tileshop_pmc_inline.html?title=Click%20on%20image%20to%20zoom&p=PMC3&id=3608871_10549_2013_2437_Fig1_HTML.jpg

    In the graphs above, it looked like around a 55% chance of survival at 10 years, which is not great, but not 30%. Please let me know if I missed something that said it was 30%!!!

    The article says 65.8% survival at 5 years for pabc, but 98% for nulliparous women. That's a crazy difference. And seriously makes me wonder when my onc says I don't have to do AI/OS because I'm "not that high risk."

    The authors do note that their risk estimates are higher than in other papers. And it was a smallish (150 per subgroup) group of women. Regardless, their numbers are upsetting to say the least.

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  • Stephmoen
    Stephmoen Member Posts: 563
    edited June 2015

    I read somewhere if you gave birth less than 2 years before being diagnosed you had the worse prognosis.. I have tried to move past this since I have had a pet scan showing no lymph node or organ involvemnt and just believe I will be cured of this disease. it was smaller studies so I don't believe it can be 100% accurate and I think that it could have included women who began at stage 4 but weren't screened for it and didn't have symptoms until a couple years later to only find out they have been stage 4 from diagnoses. Also there has been many advancements such as perjeta a newer drug which I am taking to hopefully better my odds for survival. But I will still ask my oncologist about this study when I see her on Wednesday

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  • floaton
    floaton Member Posts: 181
    edited June 2015

    first off, I hope your appointment went well today. I'd love to hear what your onc said about the studies if you'd be willing to share.

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  • Stephmoen
    Stephmoen Member Posts: 563
    edited June 2015

    thanks! It went very well! She said it can be true because hormones play a role in cancer and during pregnancy and post partum your hormones are crazy the key is catching cancer early. She said premenopausal women usually have worse breast cancer than post but these studies they have done are old cases and before we have came up with lots of new drugs such as her2 positive cancer which I have and the new treatments for ithas raised the survival rates a lot!! She said in the next 10 years when our survival rates are being the statistics she believes the rates will be much higher

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  • floaton
    floaton Member Posts: 181
    edited June 2015

    well that's a bit of a relief! I'm glad she's optomistic that our numbers will be better. And that's great you get to benefit from all of the her2+ treatment advances! Thanks so much for sharing, it's been nice chatting with you :), sometimes it seems a bit lonely when everyone you tell just says "but you're so young!"

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  • Stephmoen
    Stephmoen Member Posts: 563
    edited June 2015

    It was nice chatting with you as well floaton! I hope the very best for you it's hard being diagnosed with this disease more so when you have little ones at home and at such a young age we must stay positive!!

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  • agness
    agness Member Posts: 576
    edited September 2015

    I started a post to start collecting articles about PABC. Feel free to add on as you find useful information.


    https://community.breastcancer.org/forum/27/topic/834939

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  • WinterGal
    WinterGal Member Posts: 7
    edited November 2017

    hi I'm new to this need some support I guess

    I was diagnosed this past May ERPR+ HER2- 1.4 cm left breast 2 nodes out of 28 + I felt the lump about four months after I stopped breastfeeding my twins after insisting on an u/s I had a biopsy that confirmed bc. I had a bilateral mastectomy and just recently finished 6 rounds of chemo the plan is to start rads and tamoxifen. I am feeling ok most days but others I feel like my world is over and I'll never get to see my girls grow I have a three year old and one year old twins. I'm terrified of not being around for them, my husband is supportive I just feel so alone sometimes and then when I read that PABC diagnosis within two years has the worst prognosis it just pushes me to stress levels I never imagined. I'm not sure what to believe there are so many statistics it's scary.

    Not really sure what to think.

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  • Cpeachymom
    Cpeachymom Member Posts: 518
    edited November 2017

    Wintergal, this is an old thread, your post bumped it. I hadn't seen this info before either, and yes, it's very disheartening. But we can't stop living life just because our cancer might come back. Those little ones won't let us! Try not to focus on the stats, they don't help us. We all have 100 percent chance of dying, but that doesn't mean we give up today!

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