A place to greet and meet newbies to stage III

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  • swissrn2002
    swissrn2002 Member Posts: 27
    edited May 2015

    Hi, I'm new to forums and cancer. It really helps reading about other people who are experiencing the same thing. My cancer is a rare form, micropapillary, however my treatment is similar to some. I was lucky to qualify for a clinical trial because I am HER2 +. Right now I completed 2/4 of the AC infusions. Most annoying SE is indigestion, acid reflux and nausea. My next treatment when AC is finishedwill be with Kadcyla and Perjeta. Thanks for letting me part of your experiences.

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  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited May 2015

    swiss: Sorry you have to join us, but welcome. There are some good HER2+ threads and always a group for people going through chemo at the same time - like Chemo April or May Chemo. Hope the rest of your infusions don't increase your SEs.

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  • swissrn2002
    swissrn2002 Member Posts: 27
    edited May 2015

    minusTwo, thank you for the insight I will certainly check out the other forums

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  • lulu2533
    lulu2533 Member Posts: 108
    edited June 2015

    Have room for one more? Just found out today, stage 3.

    Just wanted to say hi

    Julie

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  • TectonicShift
    TectonicShift Member Posts: 752
    edited July 2020

    .

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  • 2Tabbies
    2Tabbies Member Posts: 984
    edited June 2015

    Welcome, swissrn and lulu. I'm sorry you both have reason to be here, but glad you found us.

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  • lulu2533
    lulu2533 Member Posts: 108
    edited June 2015

    Thanks for the welcome, Tectonic and 2tabbies. Yeah this sucks, but I am glad I found this forum. Lots of great ladies here with loads of helpful info.

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  • beth1965
    beth1965 Member Posts: 455
    edited June 2015

    Big hugs to all the new people out there

    I remember being a newbie to cancer and being so scared I felt I could not breathe sometimes. I had no family members or close friends that had gone through this. I realized I needed to reach out for my sanity's sake and it was the best thing I ever did.

    I joined this online group and a local group and immediately felt better. Just to see people living normal lives after cancer DX and treatments was inspiring. And on this site I have met up with other ladies with almost the exact dx as me - same large tumor, same amount of nodes etc...same treatments. And that meant the world to me I was not alone and could talk to people that were or had experienced exactly the same things as me.

    For any of you newbies out there if you are feeling sad or scared or even just curious trust me there are so many people on this site that will help you day or night there is always someone kicken around.

    Hugs

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  • dancingdiva
    dancingdiva Member Posts: 475
    edited June 2015

    hello newbies....I started a year ago and the people on this site have thaught me so many things, and that we r not alone.

    DD

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  • December
    December Member Posts: 108
    edited June 2015

    You ara my hero

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  • December
    December Member Posts: 108
    edited June 2015

    and ladies, they don't care about spelling or grammer - so relax...and spill you guts out...it does HELP a lot....I haunt this place daily...I live alone, go through treatment pretty much alone...But - I'm not alone - I'm here, with "my family".....sigh


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  • cchix49
    cchix49 Member Posts: 43
    edited June 2015

    Thanks. So good to have others to talk to and know you are not alone. I have had 2 treatments and due for next June 15th. First treatment was enlightening since it was my first experience and went better than I expected. 2nd treatment really slammed me. So will I expect 3rd to be worse? My BP and pulse is running high. I have not vommited , but have been nauseous with no appetite. Bummer. I tried to clean bathroom today and it took me all day. This stuff really sucks. I am so blessed to have a supportive family and friends, but it is really nice to be able to get on here with people that really know how it is. Thanks and HELLO!


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  • Lolis197138
    Lolis197138 Member Posts: 512
    edited June 2015

    Welcome to the newbies and sorry you had to join us!!

    Cchix49 - I had same experience as you. First chemo was good, second was the most horrible and the third was better than the second. I even got other nausea meds but I didn't need any at all. I heard other ladies that found the second chemo to be very hard. Fingers crossed for an easy next treatment.

    Hugs!!

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  • cchix49
    cchix49 Member Posts: 43
    edited June 2015

    thanks Lois! That is encouraging YAY!

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  • lulu2533
    lulu2533 Member Posts: 108
    edited June 2015

    Hello ladies. Starting my AC/T chemo treatments this Wed, well the AC part anyway. Just curious when I can expect my hair to start coming out. Already ordered a few "coverings" for my head, trying to get prepared.

    Thanks

    Julie

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  • Lolis197138
    Lolis197138 Member Posts: 512
    edited June 2015

    Lulu mine started falling on day 16. My chemo was every 3 weeks. I cut it short before surgery and shaved it off once it started falling. When you feel the scalp hurt and itch you will know it is time. 

    Good luck with chemo and stay hydrated!  

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  • RobinLK
    RobinLK Member Posts: 840
    edited June 2015

    Day 17 here. It really does ache, like taking down a ponytail that has been in for awhile. I also cut it short prior to losing it. Then buzz cut it when the aching began.

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  • dancingdiva
    dancingdiva Member Posts: 475
    edited June 2015

    2 wks to the day I started AC, it just fell out in clumps. I cut it shorter and shorter, was never totally bald and I never shaved it so it didn't itch. The eyebrows always stayed on. While on taxol they started to get thinner. Afterl the 12th. Taxol, they fell all out. Grew back In a Month

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  • lulu2533
    lulu2533 Member Posts: 108
    edited June 2015

    Thank you everyone for the replys. It helps to know what to expect so I can better prepare myself.

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  • cchix49
    cchix49 Member Posts: 43
    edited June 2015

    I am so excited I actually feel human today! Like I finally crawled out of a deep dark hole. Yes, I am back! Thank you Lord! The 2nd treatment really slammed me. Thanks to all the posts of your experiences. It was a ray of sunshine while in the hole.

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  • 2Tabbies
    2Tabbies Member Posts: 984
    edited June 2015

    Glad you're feeling better, cchix49. You can get through this. It's a cliche, but one day at a time is the way to do it.

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  • cchix49
    cchix49 Member Posts: 43
    edited June 2015

    thanks 2Tabbies. I do feel head above the water today.


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  • dancingdiva
    dancingdiva Member Posts: 475
    edited June 2015

    Yay chix. I tackled every event like a challenge to surcome. 1 more down and x amount to go. I concentrated on that 1 event until it was over and then started thinking of the next one. If I saw the whole picture I would start to freak out. So breaking it down really helped me. You can do it. We can do whatever we r faced with.

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  • Jenga60
    Jenga60 Member Posts: 24
    edited June 2015

    about to head for 2nd chemo of 6 tomorrow... Nervous but trying to stay positive. The sooner I get round 2 the closer I am to round 6. Not looking forward to being sick again... And from what I'm hearing. Each round is a little worse.


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  • jenni__ca
    jenni__ca Member Posts: 461
    edited June 2015

    jenga ... i actually had an easier time with round 2 than with the first ... i think my nerves played a roll in that ... but if you had nausea talk to your onc or onc nurse as different meds help different people and maybe they can find one that works better for you ....

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  • 2Tabbies
    2Tabbies Member Posts: 984
    edited June 2015

    Jenga, good luck tomorrow. I agree with jenni that you should ask about different nausea medication of what you had didn't work.

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  • live_deliciously
    live_deliciously Member Posts: 346
    edited June 2015

    a/c round 1 was worst of any of the rounds for me . part is the fear of not knowing and part is your body being shocked by the chemicals the first time. It got easier. Even taxol was easier. My next phase is rads and it finally seems official that chemo is done. These Forums was my ability to deal mentally with everything. Glad I had them.

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  • 2Tabbies
    2Tabbies Member Posts: 984
    edited June 2015

    live, rads are definitely easier than chemo when you're going through them. The can have some long lasting side effects but hopefully nothing severe. I was kind of sorry when I was done with rads because the techs were so nice.

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  • Jenga60
    Jenga60 Member Posts: 24
    edited June 2015

    well I'm on day 6 since my 2nd round of chemo. I felt better the first couple of days but I'm very weak now. Last time by day 5 I was my old self and could do anything. No so this time,.... realizing how much this is going to impact my life and my daughters (22 months).

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  • gaia0132
    gaia0132 Member Posts: 316
    edited June 2015

    Hi Everyone

    I just received pathology from my post op report. Had Mastectomy of left breast with 4 lymph removed. 1 positive. Doctor characterized the tumor as very aggressive, but he was pleased with outcome and astounded over my overall health.

    This has been drastic for me on every level- I am slammed with my own lifestyle and eating practices basically 'failing me'- hatha yoga my whole life- have always sourced and prepared my own food from scratch ( garden/local farmers/organic)- could go on and on - but I think you get it.

    So here I am- the Dr, seemed to loosely suggest that I may just need hormonal therapy ( not that I want ANY chemicals- but I know I may be facing something) but now I'm faced with sifting through consultations with a range of people- from traditional MO to medical acupuncture

    I would appreciate any insights, any one commenting if they were able to go 'only hormonal therapy' at such and 'advanced stage'? Mine was classified as IDC- 5cm, IIIA , ER/PR +, HER2-)

    Also ANY recommendations for NYC practitioners ( NOT SMK).

    On a last note I had my surgery via laser, with Dr. Vincent Ansanelli- And it's a crime that this option is not more widely available. I was home that day. It's 7 day's post op today, i had NO drugs, No after effects of anesthesia, I'm showering and dressing myself. PLEASE if you unfortunately know of anyone who must face this tell them about him.... but more on that later


    Thank everyone in advance for any insights you might offer


    CA

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