Chemo in June 2015
Comments
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Hell again! I am looking at starting Perjeta ,Herceptin and Taxotere (or Taxol) maybe as early as next week. Doc wants to hit up the her-2 first and save up other chemos/treatments for down the road (ER and PR+)
Was told this week I am stage IV right off the bat so he wants to keep something in his arsenal.
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Just had my MUGA scan today. Got my arrival time from In/Out Surgery for my port placement on Tues also. All set for my chemo to start on Wed. I am so ready to get this started.
Thinking of all you ladies as we go through this together.
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Hi, im new here on this board and started my chemo june 3rd. Tchp. The day of chemo and day after wasnt so bad, I took the steroid doctor prescribed, took claritin once a day after the nulasta(boost wbc) shot.
This morning I felt nausea and cold sweat and I ate some crackers and had some water, made me feel better after that. I think I lost some sense of smell and taste, but I do have a big appetite, always feel hungry. (Is it normal?) I try to eat healthy during treatment So it wont cause too much trouble. My mo said I can take calciums, multivitamin and vitamin d supplement. Im looking to get some magnesium to help too. Im putting some cooked gingers in my diet to prevent getting diarrhea. Infusion nurse told me perjeta will cause diarrhea, I want to stay away from it.
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Hello everyone,
I also jumped the gun and posted on the May chemo board. I started my first AC (dose dense) on Wednesday, June 03. Everything went fine during the infusion. I was a little tired on the drive home but feeling good. I slept well the last 3 nights and was able to ride my bike and work a few hours as I had planned without any difficulty on Thursday and Friday. I'm giving myself injections of Neupogen since I'm doing dose dense AC and started those yesterday (Friday). I had a bit of constipation but that's under control now. I took my last prescription meds to deal with the nausea last night and have been dealing with a little bit of upset stomach and queasieness today, but it's not too bad. I'm just listening to my body and eating/drinking what sounds good. Soda crackers and ginger ale have been good. I also had a yogurt and some naan. I've been keeping really well hydrated; drinking 3 to 4 liters (100oz+) od non-caffeinated drinks er day. I'm taking minimal vitamins and minerals and adding some Vitamin D and probiotics. Also keeping up the electrolytes. I haven't taken any Claritin yet as I wanted to see how the first cycle went without it. So far, no issues from the Neupogen. I have 5 more injections to go this round.
Good luck to all of you starting this week and to those of you who are dealing with SEs from treatment you've already had.
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hi ladies...just found this discussion board .. Diagnosed May had BMX 11th R axillary clearance for positive node 22nd and port placement last Friday. I am due to start chemo on June16th hoping to do dose dense AC and T as my daughter is getting married in November and will be there what ever it takes !! I am in Queensland Australia and have found these boards to be great in helping me understand what each stage of this journey from hell might be like ..so g'day from Aus and healing gentle hugs to everyone !
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So, I am new to this site and this board. I had my first chemo (A and C) on June 3rd. I went home after the treatment and rested. I am calling the day I receive chemo day 1
I worked all day on the 4th (day 2), really just felt as if I was just recovering from the flu - tired but no changes to appetite.
From all the reading I'd done, I knew it could get worse, so I stayed home on Friday (day 3). I was so glad I did. I woke around 3:30 am feeling a bit nauseous and so I took my backup nausea med (prochlorperazine), then went back to sleep until 6 am- when it was time for my regularly scheduled Zofran (ondansetron)- which I am supposed to take every 8 hours for the first 4 days after chemo. I ate some dry rice chex, sipped water, then fell back asleep for a few hours. When I woke, nausea was mild, and I made myself nibble throughout the day and by evening I had some cream of chicken soup.
By day 4 (Saturday), nausea was under control again, and I ate - carefully. I had oatmeal, yogurt, a banana, saltines, and whatever small amounts of things I could tolerate. By dinner I had a small grilled burger
Today (day 5) - I actually woke up hungry and ate 2 saltines with my 6 am Zofran, and went back to sleep until almost 8 am. I had my normal yogurt and banana breakfast, an actual grilled cheese for lunch, and for dinner- grilled chicken, green beans and potatoes. I ate much less than I normally do, but it was a fairly normal meal
I am very tired, and nap alot whether I intend to or not. I am easily fatigued, just short walks require some rest, but I feel it getting better each day. I am taking a walk with my husband each day- I have read that even if you are tired, try to keep moving. From past experience with bed rest during high risk pregnancies, I have found that it is a downward spiral, so keep moving as much as you can. The rest after exercise seems much more restorative than just laying around.
I decided to keep a blog to share with my family and friends who are not nearby, and have found it to be catharctic. I made it public to hopefully help others as well, if anyone is interested in reading it:
http://ginakarasek.wordpress.com
On the right hand side of the blog page, you can click to follow it and you will get notifications whenever I update it.
Good luck to all of you on your treatments!
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I'm jumping over here from the May thread because I actually start mine this coming Thursday, June 11th. Got my port placed last week, wasn't a big deal but was a pain in the neck literally!! The huge scar isn't really sore but that tiny one in my neck was quite difficult to deal with for a couple of days.
I had chemo Ed on Friday then an echocardiogram. Got all my scripts and I'm ready to get this thing going. Not sure how I'll handle this with work but I'll do my best.
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Hi Ladies! DX May 15th , started Chemo June 2nd.. port wont be placed until the morning of my second cycle because things moved to quick... so far besides extreme fatigue and a giant cold sore things are allright... glad for the information on this site for sure !
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Hi Ladies-
Thanks for starting this June thread... I started my first CMF chemo session last Wednesday. The session almost put me in a panic attack and it turns out it was from the steroid they gave me...so I had to float thru that panic attack during the drip and then drove home almost real giddy and hyperactive from the steroid. So after talking to the RN and pharmacist we wont do the steroid next time..I hit the bed at 7pm that nite and couldn't get up and felt like my brain was half working and felt like I was on qualudes or something..the next day was better. By Sunday I was extremely exhausted and now have a horrid cold with a mucus tsumami...lol.
I can barely move I am so wiped out..not sure its from the cold or the chemo or both...So is it true I heard your body starts doing a pattern of how the fatigue plays out..as I have a 2 year old I have to watch and we are also going out of town to a reunion in mid July and hope to get that July infusion around my vacation so Im at my best and best energy level..any thoughts on this..I am brand new to this...
My Dx is mastectomy April 22, 2015 - DCIS and dime size tumor (ICIS), stage 1, grade 3 tumor, 0/2 nodes with zero cancer. ER +/Prog - / HER-
thanks!
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hi all - starting AC + T Wednesday. Metaplastic carcinoma - took nearly 11 weeks to get a firm diagnosis, which is scary and frustrating in itself. Feeling better to have a plan in place. I'm 43; a mom to 11 & 13 year old boys. Doing the first one without a port, because I couldn't get scheduled for that before we began, but will get one before the next round. I'm apprehensive and anxious but pasting on the "happy mom" face for my boys. Like I told my doctors, lets get this show on the road.
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Dear Tikitorch,
Welcome to the BCO community. We are sorry about your diagnosis and the long wait to confirm it. We are so glad that you reached out to our community. There is a great deal of support, understanding and information that is shared here by those who have similar lived experiences. Keep us posted on your chemo and how you are. Again a warm welcome to you. The MOds
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Hey there, all -- I hope there's room for another chemo newbie in here!
I just started AC + T chemotherapy (4 AC treatments 2 weeks apart, then 4 Taxol treatments 2 weeks apart) last Friday, June 5th (with my port put in a week before that).
My original surgery (simple unilateral mastectomy, no reconstruction) was actually back in March 2012, shortly before I turned 40. At that point, they felt that there was a low chance of recurrence; no cancer in the sentinel node, clear margins, and ER+/PR+/HER2- which should respond well to Tamoxifen. Except, well, apparently it didn't! I found a lump under the same arm at around my 3rd "cancerversary."
Tests have shown that it seems to be a regional recurrence of the same cancer, with no remote metastases detected. So I had my second surgery (axillary node removal and dissection) on 4/30/2015. And this time we're being more aggressive with treatment: chemo, then radiation, then probably more hormonal therapy.
I've been trying to take it one day at a time, but I have to say that I'm nervous about how it will all go. The first infusion went pretty well, and I'm really proud of myself for giving myself the Neulasta shot (I'm a real wimp about looking at needles)!
But I'm just so bone tired almost all the time, even today, 4 days afterwards! Does anyone else get hit this hard by the fatigue? I'm worried about how I'll manage to work enough -- they're moving me to Monday infusions, and I'm a freelancer, so I don't get any paid sick time.
Anyway, hope to chat more with everyone!
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I too was exhausted, day 7 and finally getting my energy up! I am lucky in that insurance has allowed me to be off work or I am not sure I could muster the energy... i will send whatever energy vibes I can your way
I went to buy a wig today as they told me by day 21 expect to be bald and of course my sons high school grad and prom will fall on days 25/26
I wondered if anyone had any sore spots on their scalp.. i felt itching and now had what feels like a couple sore bumps, hubby says he can't see anything but its bugging me. Hope everyone is doing OK tonight.
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Hello all ..glad to hear your news. we can do this. i felt really tired on the anti nausea drugs but once they wore off ive had good energy.
so for me ... day 9 --my mouth feels like ive eaten nothing but salt and vinegar chips for a week. not too bad, getting used to it.
and i keep tugging my hair to see if its started falling yet lol ..
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Tomorrow is the big day for me and I'm getting quite nervous. I haven't slept well the last couple of nights.
When I think about how much my body has changed in the last few months and how many more changes it has to come, I feel like I'm one of those gals in Death Becomes Her. You know, at the end of the movie where their bodies are completely and literally falling apart and they just keep pasting and painting it back together. I have to laugh but I do feel that way.
My oncologist had told me that I should be able to drive myself back and forth to chemo so that's what I had planned. However, yesterday my son's GF texted and told me that if it was okay she wanted to keep me company during my first infusion. At the time, I said yes simply because I didn't want to be rude but the closer it gets the more glad I am that she's gonna be there.
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justmaximom. I go tomorrow for my second AC treatment. I was nervous as well. Make sure you eat something before and after. I didn't and I feel that made my more sick. Drink plenty of fluids today. It week be nice to have company for your first treatment since you dint know what to expect. since I got nauseous during they gave me Ativan, which you can't drive after. So it's a good idea to see how you do. Good luck, I'll be thinking of you while I'm getting my treatment
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justmaximom, I'd agree -- definitely take your son's GF up on her offer, and see if she wouldn't mind driving you there and back as well! That gives you the option for Ativan or other relaxant if you need it. Trust me, you don't want to be driving under the influence of Ativan, having experienced it during my first infusion!
I know what you mean about "pasting ourselves back together." I'm continuously amazed at how we keep adapting to each new "normal" during treatment! Still, I can't wait to get back to a more normal normal, if that makes any sense at all.
You can do this -- we're all here for you!
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Natejordlee, so good to hear that there's a light at the end of the tunnel for our energy levels! I'm starting to feel a bit more more energy today too, though I was very tempted to take a nap around the middle of the afternoon.
My scalp is already sore, though my hair isn't falling out just yet. Sometimes I scratch it when it itches and I forget -- yowch!
I have a wig that I need to do another fitting on, once I buzz my hair short (well, shorter, anyway -- my hair is very short to begin with!). I tried it on and had really liked it right after I got my port in, but perhaps I wasn't quite in my right mind at the time, heh! We'll have to see if it looks good when I'm not recovering from anesthesia.
Cheers to all the June chemo ladies!
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DayLily15, I've been tugging my hair too, I can't help it! Actually today it looked like some of my hair had just lost its "oomph" and was flopped down on my face instead of standing up like it usually does. Pretty funny that my hair has about the same energy level as the rest of me!
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HI Ladies,
I am here after finishing my first day of TC (Taxotere and cytoxin) chemotherapy yesterday. I will have 4 rounds, followed by radiation and hormonal therapy. My tumor was on one side, was 2.9 centimenters and grade 2. I had 5 lymph nodes removed with one with a small amount of cancer. I have IDC with lobular features. I noticed a lot her are using the AC or AC-T therapy. I am going through U of M in Michigan. I have some pretty bad acid reflux, but am still pretty ramped up from the steroids I took the day before, day of and 1 today. They made me sleep very little the day I took two. I am finding it hard to believe that the two small bags of medicine will wipe out my hair in a couple of weeks. That this stuff is staying in me and hopefully killing microscopic cancer, but the thought of it lingering is kind of bizarre to me.
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Hello my June sisters!!
Just had my first AC treatment yesterday. Overall feeling pretty good right now. I did get some I.V. drugs for nausea. They said it should last about three days and then just use the Zofran.
Good luck to all who are getting ready to begin their treatment.
To all who have already started, hope you are all feeling well.
Oh...quick question. I was thinking about getting a crazy short haircut and dyeing it a crazy color before all my hair started falling out. Anybody do that? Just wanted to make sure it was safe to use the dye. I will ask my MO before I do it.
Keep fighting the fight!!! You are all in my thoughts and prayers.
Julie
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Hi coolteach66, and welcome to Breastcancer.org. Sorry that you have to be here, but we're glad that you found us and this particular thread where you'll be welcome with open arms!
Good luck with your treatment. Please keep us posted on how you're doing.
The Mods
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lulu2533 I think I will probably hoding back on dyeing hair. No matter how good the product is, it still has chemicals in there and our body is very sensitive right now, you dont know how your body is going to respond to that chemical thing.
Hi ladies, today is my day 9 of first tchp.
Day3-6was tired but dorable.
Start day 7 had a bad lower back pain and hours later I got my period(my normal period just finished last week) same day I had couple mild D each day until today. It doesnt bother me that much but sometimes just feared of unknown SE and how to handle it better. For energy wise I feel better 1 week after chemo. Same mouth feelings like daylilys. Hope everyone feel better each day!
I will pick up my wig and hat tomorrow. feel wired about that but I know I need them.
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To my hair
We've had some ups and downs, my friend. The baby book picture with a haphazard red bow scotch taped onto a nearly bald head. The little blonde girl who caught that big fish. The 8th grade mullet and rat tail (in my defense, was 1984). The gelled back sideburns, those bangs. Oh, those bangs with enough aquanet to hold the pick straight upright in them. The college grunge years with the ensuing tension headache from the worlds heaviest ponytail, but Lord, I could headbang like a rock star. The college graduate mature chop. Bad cut after bad cut living in a rural ohio town, then the move back up to Cleveland and a stylist, not hairdressers. The wedding grow out. The ill advised pregnancy bob. Hair that my sons wrapped their tiny sticky fingers in as they nursed and snuggled. hair that bigger boys buried their faces in when they cried.
And now, at 43, a love story. A stylist who trims and shapes and lets it grow, who paints on highlights like the sun itself did all those years ago. The right balance of products and benign neglect that has strangers complimenting me in the library parking lot and in hospital waiting rooms, colleagues sighing wistfully as I walk past, and friends playing with after a cocktail or too (there's so much....).Hair that my African-American students excitedly tell me, "you got good hair, Mrs. J". (I believe there are few higher compliments than that). Hair my husband wraps his hands in in his sleep, hair he comes up to and lifts the tension off absentmindedly while he kisses the back of my neck. Hair they all complain about in the bathroom and the kitchen, but that's why you can't shake a stick around here without hitting a pony tail holder. It's long, soft, caramel and brown and blonde (with grey that sneaks out when I'm to cheap and busy to address that). To the middle of my back in a wavy V that finally looks like all the damned Pinterest pictures.
And now they tell me you're leaving. We've got 2 weeks left. It's not just hair. It's history. It's intimacy. It's pride. It's control. It's time. It's a goddammned fortune, to be sure, but it's who I am. And once it goes, I'm just another terrified cancer patient.
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ahhh tikitorch that is so bitter sweet. hugs. . my hair has never been my fortune but i did invest in aquanet
and Sun In remember that lol i went from brown to orange hair in one afternoon o.0
here's to hoping your hair is quick to return to you !
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I made it through AC #1 yesterday with flying colors. My hospital is awesome and their infusion center is completely designed for patient comfort. Great staff and one entire wall is just windows looking out onto their Arbor Courtyard, where you can actually choose to have treatment but it's too warm out there for me so I just got a chair with a view. I watched birds and butterfiles, it was very calming.
I'm feeling good today and back at work. I have all my meds with me though plus drinking lots of fluid and eating small meals throughout the day. So far so good.
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Joining you wonderful June ladies. I hate for any of us to be here, but glad to know I'm not alone. My port placement will be Tuesday June 16, cocktail of A/C starts June 18, Neulasta shot June 19. Then two weeks later rinse and repeat.. 4 treatments with A/C then 4 of Taxol. 8 total to end in October. Then radiation. Hopefully I will be able to see my stepson play high school football some this fall.
I have two wigs ready to go and a friend has provided me with many beautiful scarves and caps. Going to try and work as much as I can muster the energy to do so. Fighting a sinus/ear crud now so already started some steroids that have me amped up and certainly irritable, to my poor husband's dismay.
Good luck ladies, look forward to reading your posts.
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Hi ladies.
I just had my port put in on Thursday. I'm scheduled to begin chemo on Monday June 15th. Although I'm nervous to begin, I'm ready. It felt like it took so long to finally have answers and now I just want to start fighting.
Tammy
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I'm so glad to read everyone's posts and that all of you who have started treatment are doing reasonably well. I gave myself the last of 7 Neupogen shots yesterday morning. Other than a little bit of fatigue yesterday evening, I'm just about back to feeling normal. My side effects for round one were pretty mild overall. I was able to work my usual schedule and ride my bike a couple of times without any difficulty. I did rest more at home, but have been able to do all I needed to do.
justmaximom; I know what you mean about the port being a pain in the neck. I was surprised at how sore my neck was for the first few days when I tried to move my neck in the wrong direction and especially when I sat up to get out of bed. I was able to drive myself home (with my 15yo dd as co-pilot) after my first infusion but I was a bit tired. The view from your infusion room is beautiful! And they would actually let you do infusions outside? Wow! I would love that.
Tikitorch; my dx took just about as long as yours. I had a mammogram and ultrasound that showed nothing conclusive in mid-November, and then finally an MRI on January 30 and biopsy/lumectomy on February 2nd. Only the latter 2 showed IDC. You'll be glad you got the port once it's in. Thanks for posting the letter to your hair. Have you looked into any of the places that will make a hat with bangs from your hair? That might be a special thing to do with it before it falls out.
EnigmaticFox; you've got the same regimen I have, starting 2 days after me. I'm giving myself shots of Neupogen and during round one I did 7 shots; from day 3 to day 10. I'm ok with needles and gave my sister who was diabetic a few shots over the years starting when I was 9 years old. I work for myself doing residential housecleaning part-time and also have no sick leave. I begged for Wednesday infusions so I could work through as much of my chemo as possible. On round one, my worst stomach upset was on Saturday and my fatigue was the worst Monday and Tuesday evenings.
DayLily; I've had no issues yet with my mouth. I sucked on ice chips during the infusion and don't know if that had anything to do with it or if I've just been lucky.
lulu; I had my hair cut short about a month and a half ago and donated it to make wigs for kids with cancer. About next weekend when my hair starts falling out in clumps, I'm going to let my daughter do what she'd like with it. I'd like most of it buzzed to about 1/4", but I told her she could do a mohawk or colour it some bright shade or whatever she likes. I think the colour is probably ok if you're pretty careful to keep it off the scalp.
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Thanks eaglemom. I actually asked my MO and he said dyeing my hair would be unadvisable
Oh well, maybe just get a mohawk like you then buzz it when it starts to really fall out. I think I have about a week and 1/2 yet.
I wish I could give myself my Neulasta shots. Because of insurance I have to go to my heme/onc clinic. $35,000 for a shot...yipes! Just glad I have insurance!!
Well, hope you are well and everyone else too. Keep on keepin' on!!
Julie
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