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  • Shutterbug73
    Shutterbug73 Member Posts: 791
    edited April 2015

    Sorry you find yourself here Sue, but welcome. It is a lot to take in at first, but give it time. This is a great group and if you have any questions feel free to start a new thread and ask. We've all been where you are now.

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  • Itsmejennifer
    Itsmejennifer Member Posts: 5
    edited April 2015

    I'm here!!! Jennifer, Roseville, California. Her2+ met to lung Jan. 2013. In remission for 2 years.....anticipating long-term remission with use of Herceptin and Perjeta and Taxotere.  Kadcyla if I need it in the future. Loving life....retired with 9 year-old grandson.

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  • cjanet
    cjanet Member Posts: 328
    edited April 2015

    Joining today...I've been having pain in my neck and back and got some MRIs. My oncologist called and said I definitely have cancer in my spine as there was more than one lesion, likely the breast cancer I thought I had fought off a few years ago. And I feel like I took that Tamoxifen for nothing now. I'm so overwhelmed. :(

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  • wndrwmn
    wndrwmn Member Posts: 16
    edited April 2015

    This is my first contribution to the board. I have learned a significant amount of information from postings the past twenty- one months. Thank you to those of you have shared your stories.

    I had my third Kadcyla infusion this week, after being on Herceptin for the prior fifteen months. Yesterday, I had a CT scan. The nurse called me to tell me today there hasn't been any progression of my cancer from the neck down. In October 2014, I had WBRT for mets in the brain. Two weeks ago I had a brain MRI. There were only 6 out of the original 13 tumors left. And 5 of the 6 have decreased (and have decreased every month) in size and definition. The 6th was originally the largest in size, in my occipital region. It caused light shows in my vision. I haven't had that side effect for over 30 days. My radiologist wasn't able to tell definitively what was tumor and what was healed tissue. So I am choosing optimisim, that tumor is disappearing also. I am feeling renewed hope concerning my length of life.

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  • smiley47
    smiley47 Member Posts: 215
    edited April 2015


    Welcome Wndrwmn:

    Thank you for sharing your experiences, and I am sorry you have to be here but it is as you have found a very informative and helpful site for people in our situation. I am going tomorrow for an MRI of my brain after having gamma knife five weeks ago and found your experiences to be very helpful to me tonight, thank you!

    I hope you continue to have good scans and keep the cancer at bay with chemo, please keep us posted

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  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited April 2015

    wndrwmn, I hope you find this forum is helpful in giving you support, information and insight.

    Smiley, hoping for good results for you.

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  • wndrwmn
    wndrwmn Member Posts: 16
    edited April 2015

    Thank you Smiley47 for your kind welcome. I hope the feedback from your MRI is good. I always get anxious waiting to hear the news from the doctor. I will be sending positive vibes your way.

    Thank you also The DivineMrsM for your greeting. I appreciate your response to my post.

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  • kaluha
    kaluha Member Posts: 26
    edited April 2015

    I guess I'm 30. Just diagnosed yesterday!


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  • smiley47
    smiley47 Member Posts: 215
    edited May 2015

    Hi: I've been posting and visiting this site for two years nearly but I dont think I have ever posted on here to register myself. Extensive mets to lungs, liver, bones, heart and brain. Still going through chemo, Navelbine right now after taxol failed. I gain great comfort and support from this site and its members

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  • leahtownsend245
    leahtownsend245 Member Posts: 1
    edited May 2015

    HI I just joined, it's always good to have support to try to stay positive. I was dx back in 2009... Stage 4 out of the gate with liver mets. It's been a long road, just have to take one day at a time and have faith!

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  • jcfree
    jcfree Member Posts: 105
    edited May 2015

    Was diagnosed as Stage IV Nov. 2014. Found this site at that time and have visited daily since then. Just added Stage IV to my signature today. Took me a long time to come to terms with it and reading daily here of all the other IV women has helped a lot to alleviate many of my fears and have learned so much from this site. Still have not told my extended family of my Stage IV status yet. Only my DH and our sons know of it. At this time I feel it's the right thing, as my parents are elderly and not in good health, my siblings would freak out so best not to now.

    Got the go ahead for a masectomy last week from my Onc, he said the tumor board approved it after reviewing. He said my exceptional response to the chemo treatments, my PET and full body scan showed NED contributed to the change. Initially I was told because I was Stage IV that I would not get a masectomy, so was surprised they have given the green light to get it now. Have my apt. first of June with the BS to schedule it. Feel relieved to know I can get the surgery as I had two different cancers in one breast and a large tumor. Just want it gone.

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  • LindaE54
    LindaE54 Member Posts: 2,054
    edited May 2015


    jcfree - Sorry you have to join us but glad you decided to step in.  NED is awesome!   I wish you the very best with your surgery.  Keep us posted.

    Hugs - Linda

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  • katherinem
    katherinem Member Posts: 17
    edited May 2015

    I was diagnosed Stage IV a couple weeks ago. Lung mets. A particular blow because I had just finished my last Herceptin treatment, was scheduled to get my port out, and thought my life was finally getting back to normal. Am trying to decide on treatment from here. Saw a preeminent bc oncologist who recommended either Taxol and H&P (I'm HER2+++), or Kadcyla. I am asymptomatic at the moment and really don't want to go back on chemo until I absolutely have to. Am leaning to just doing H&P and seeing if that works for awhile. Was on TCHP originally. Any advice, o, wise women of the site?


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  • Lynn1234
    Lynn1234 Member Posts: 169
    edited May 2015

    Hi! I've been posting also-diagnosed in March 2013. I'd liketo add my name to the list.

    I appreciate your time and effort Mrs M!

    Thank you!

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  • Xavo
    Xavo Member Posts: 364
    edited June 2015

    Diagnosed stage IV 3 months ago, mets to the bones, femurs, pelvis, spine, and ribs.

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  • Freygea
    Freygea Member Posts: 300
    edited June 2015

    Hello all! Dx Stage IV June 4, 2015. Sio have been dx right from the get go (had initial dx of breast ca May 1st. Getting ready to start the Prejeta/Herceptin/Taxotere party.


    Mets to lung,liver and spleen. Awaiting brain and bone scans.

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  • chrimsonfyre
    chrimsonfyre Member Posts: 3
    edited June 2015


    Here for my mom to learn more information (she isn't good with computers).  Originally stage 3B - Inflammatory diagnosed July 2014.  Went through chemo, left breast and 12 lymph mastectomy January 27, 2015.  Started radiation but had to pause because of fractures in her spine.  Back is not healing well, went back to oncology, had new pet scan done June 2, 2015.  Test came back now as stage 4 because there are new tumors in the left armpit again and now one tumor showing positive on the test in her left lung. 

    She has checked into the hospital again today for pneumonia.  She asked me to seek out others who are fighting and feel they are not winning at this terrible disease.  She is scared, they want her to start chemo again, but a different type, since she cannot have the same type of chemo again.  They are also trying to get her on some drug trial to take with her chemo treatment.  My mom's name is Sue.  My name is Christina.

    Nice to meet all of you.  This is our first post.

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  • Moderators
    Moderators Member Posts: 25,912
    edited June 2015

    Christina and Sue-

    We want to welcome you both to our community here at BCO. We're sorry for the circumstances that bring you here, but we're glad you've found our community, and hope you find support when you need it most!

    We have a couple of stage IV forums that you may both find helpful/useful. Important Stage IV Threads for Stage IV Newbies and For Families and Caregivers of Members With Stage IV Diagnosis are both full of valuable information, as well as contributions from our amazing stage IV members.

    Please let us know if we can be of any assistance, and again, welcome! You're both in our thoughts!

    The Mods

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  • Kristydestiny
    Kristydestiny Member Posts: 2
    edited June 2015

    hi I'm 30 also!!! Stage 4 straight out the gate..triple positive

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  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited June 2015

    Welcome to the newest crop of members diagnosed stage iv. I am sorry that you received the news of stage iv, yet hope that here on this forum you find support, insight and answers concerning the disease and all it entails and all the areas of your life it affects, from treatment to relationships to emotions and everything In between

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  • JLWentz0807
    JLWentz0807 Member Posts: 1
    edited June 2015

    Also not sure of what number I should be ladies, but Stage IV. Currently on chemo regimen of Perjeta/Herceptin every three weeks.

    Getting around to filling out profile and such, but wanted to know in the meantime....any ladies from NJ, or close by?

    Wondering about local support groups, etc.

    Look forward to getting to know everyone!



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  • Nandanwk
    Nandanwk Member Posts: 4
    edited June 2015

    I was diagnosed with Stage II Breast Cancer July 2012. I had a partial mastectomy on my left breast with 15 lymph nodes removed and 10 out of the 15 were positive. I had a PET scan done (short time after) and the cancer was then stage IV metastatic breast cancer in the bones. I have been on Hormonal therapy since the surgery and next week will be 2 years in remission :) I'm sorry I can't write more but I will start crying if I continue to write. I am from Newark, NJ

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  • mdmama
    mdmama Member Posts: 3
    edited June 2015

    Hi everyone,

    I'm new here, just diagnosed with stage 4 HER2+ breast cancer and liver mets. I'm 34 and just had a little baby boy 5 weeks ago. My cancer went undiagnosed through my pregnancy. I joined this site in hopes to find others that are going through the same thing. I'm so overwhelmed with everything and very scared. Reading your stories has given me hope, thank you for sharing them.

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  • capinva
    capinva Member Posts: 138
    edited June 2015

    Just diagnosed with Stage iv couple weeks ago. In 2011 I had stage IIIc and beat that. Got a second opinion on Tuesday and she gave me more hope. I plan on fighting this and want to see kids get married and see grandchildren. Good to hear that many of you are living normal lives in stage iv.

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  • Shutterbug73
    Shutterbug73 Member Posts: 791
    edited June 2015

    Welcome to all the newbies. The first few weeks and months are the hardest, but you will find lots of friendly advice and understanding here. I see quite a few are HER2+. There are several threads for Herceptin/Perjeta and Herceptin/Perjeta/Taxotere that you may wish to check out. Best wishes to you all

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  • Ellelou
    Ellelou Member Posts: 186
    edited June 2015

    My first post. I've been reading a lot of threads here recently and I've learned so much. Thank you moderators and all the ladies on here because I feel not so alone.

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  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited June 2015

    Yes, I, too, would like to say hello to all the new members of the stage iv forum who've posted here. I hope you find support, insight and information on these threads. It's always been a huge help to me to know others are dealing with the same/similar issues.

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  • hopeful34
    hopeful34 Member Posts: 1,569
    edited July 2015

    Just diagnosed last week with mets to pleura and some lymph nodes. I go for a bone scan, chest xray, and ultrasound this Thursday. I also start my Lupron injections. I already posted this question on another thread, but I am hoping for an answer. My oncologist said no chemo just arimidex and lupron injections. She said that should hold off any spread for about six months and then we can try an oral chemo pill. Then, today the breast cancer nurse at the hospital explained to me that I should have chemo because the hormonal tx will take a month or two work. I had a liter of fluid removed via thoracentesis 10 days ago and I am in so much pain and out of breath constantly, so I believe it is back again. That is why she ordered another chest xray. Any suggestions? Experiences? etc. Thanks.

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  • mdillard04
    mdillard04 Member Posts: 100
    edited July 2015

    Hello all! I find myself here after being misdiagosed for over a year and 4 months. Diagnosed Stage IV on June 8, 2015 with two small lesions in the liver. Utterly devastated to find out it was cancer to begin with, but to find out it was stage 4?? Still hard to comprehend. I am 36, not married, but am in a relationship that would lead to marriage and of course my significant other wants kids... Which now I can't give him. It has been such an emotional rollercoaster over this past month. I am trying to carry on as normal, but of course I have to embrace what my new normal is. I am optimistic and hopeful for a long life, but I won't lie that the statistical prognosis sits in the front of my brain. Started treatment two weeks ago, Ibrance and Femara along with a once a month Zoladex shot. So far so good!!

    Monika

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  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited July 2015
    Hopeful, I'm sorry to learn of your progression to stage iv, and I hope you are getting things worked out with your treatment plan.

    Mdillard, I'm glad you found this forum; it has been so helpful to me since being diagnosed with stage iv bc in early 2011. Best wishes to you as you make your way through this new territory.
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