AC+T SEs

Has anyone had blood in their urine as a SE from cytoxan? Sunday night (Thursday was treatment) I started running a slight fever and saw a little blood in my urine. It started getting worse so i called the emergency line and the MO on call prescribed me antibiotics. Monday morning my normal MO's nurse saw that I called the day before and told me to come in for a urine sample. I went in, peed in a cup, went back to work. Never heard anything back so I kept on taking the antibiotics.

Luckily my hospital chain has a patient portal online and you can see all of your lab results, appointments, bills, etc and I got a notification that my test results were up. It clearly meant nothing to me but it did confirm that there was blood in my urine. So I called the MO the next day (Tuesday) and another nurse called me back to tell me that it's not an infection and to stop taking the antibiotics. Hmm..ok. So I asked why there's blood in my urine. I stumped her. She kept saying what I was seeing was from the adriamyacin which I KNEW wasn't right b/c the red stuff doesn't last 3 days! She then told me it's probably just my period. Um, no. I know it's not. So she put me on hold and then came back saying she talked to the nurse practitioner and it seems to be from the Cytoxan. It can cause sepsis like symptoms, including blood in the urine. And to just stay hydrated. I'm still not a fan of the answer but I'll bring it up again with my MO when I see her next week. The blood has gone away completely today it seems so at least that is over with.

Anyone else deal with this? Of course I googled sepsis and yeah..that doesn't sound fun either.

Yes, yes, yes!!!! I had it when I was on TC and I have it now. I finished AC 4 weeks ago. I developed blood after round 3 of AC. The Cytoxan is broken down into a substance which can mess with your bladder. My urinalysis also showed no infection, but moderate blood. Since then, about 4 or 5 days a week, my urine looks like it did day 2 after AC. My MO is aware of it and expects it to ease soon. If it continues, I will bring it back up, but I forgot yesterday when I saw him. I do not see him for 2 more weeks, so hopefully it has resolved by then. If not, I'll try to remember to ask about it.

rleepac, I had the numb tongue and lips too. My MO told me that was weird and not possible. Really? I take 600 mg of Gabapentin daily for my feet and it has all gone away. If it stays that way we are going to discontinue it next visit. Best to stop it fast, as you know

Ooooooooo...thank for posting that Bekah.  You totally give me hope that mine may head up instead of down!!!

ya. That's pretty similar to mine but no nose drip I had that on a/c. No diarrhea either. I noticed mostly on taxol the bone pain and the sore tongue. Felt like it was burning and swolen but never had mouth sores. That lasted for about 2-3 days. Bone pain lasted about 10 days. All easier than a/c.

yup. Dose Dense. I feel like it might be a little different, side-effect wise?

I'll find it! Thanks!