April 2015 Chemo Crew... Starting in April? Please join us!
Comments
-
KBEEEEE! GREAT JOB! You are (and have been!) amazing and such an inspiration!!!
-
Kbeee - you do us proud! Amazing and inspiring.
Beachbum - thank you. I am going to look into the Livestrong program.
GingerChi - Sorry about that chemobrain; it really is something. I said something to my friends that I could not remember a couple of minutes later. Fog stuff.
I am looking forward to the AC folks being done; the TC and other folks getting further through the treatment. Progress... I say this with a comical look on my face as I have the endless menstrual period, which my MO told me might happen to people like me whose menstruation won't shut down with chemo. Silly body can't figure out what to do.
-
KB, I was thinking of you - off and on - all day. Just finally had a moment to check in. Congrats! That is an amazing achievment, and it must feel so good to set your goal and get there - living life, right? No C in the way, or even if, just shove it to the side and keep going. Buh Bye C!
Lynne
-
Anyone checked out www.thehijabstore.com? They have some amazing head covering options. I just ordered two head wraps from them that are like tight fitting hoods and cover your neck and shoulders a bit...I think they are going to be great for sun protection under a hat. Makes me wish I lived in a more diverse area so I could wear hijab style head coverings without getting harrassed.....
-
Kbeee, way to go!!! Congrats on your accomplishment! Love your shirt too!!!
-
KBee, you are such an inspiration! I'm so impressed with you and feel you ran for all of the us -thank you!!!
-
Yay, KBee!
My partner and I spent a relaxing weekend on the Pacific Coast. It was good for my allergies as well as my spirit. Bought several pairs of flashy earrings, a fun smaller purse, and a gift for a young man just diagnosed with lymphoma. Saw whales, sea lions, two types of scoter, three types of cormorant, brown pelicans, and oyster catchers, among other birds, and had delicious dinners.
-
A few pages ago, someone was asking about wigs and all things hair.
Can we talk about something else that I can't really explain to others?
BO....body odor.
I gave up my usual antiperspirant not long after my diagnosis in December when I began to research all about breast cancer. I had read about problems of aluminum in antiperspirants. Since then I've tried several products: tom's of maine, salt stick, even rubbing alcohol....and nothing stops the BO.
Anyone found something that really works?
NOLA in summertime ain't nothing nice!
-
my brother has made me a new shirt for each chemo treatment...this is the latest...my new best friend the taxol molecule...he's awesome!
-
love the shirt Littleblue! Your brother sounds amazing!
-
soapwalla deodorant cream!!!!!!! Changed my life!!!!!!! It's amazing. Kinda pricey but lasts a while. I order it online.
-
Thank you Alibeths!! I'll check it out! I see you're in Florida, so you know all about tropical heat! UGH..... So not ready for THIS summer and having radiation in July - August.
-
Sending good vibes to all going to the chemo bar today.........may you have a great week with little to no s/e.
Congratulations to all who have finished AC !!
KBeee you are such an inspiration to us all. Im lucky I can get off my couch for 5 - 6 days.......
-
littleblueflowers that shirt is awesome, I bet your oncologist love them!
-
today needs to hurry up and end already. Ha already it's only 8:14- tomorrow is my last ac so I'm ready to get it done and over with. I'm so excited that tomorrow will be my last ride in that evil red devil!!
-
Good for you Addie! I had my last ride this past Wednesday......not too sure Im looking forward to Taxol though.
-
I hear ya. Taxol has me VERY nervous. I've heard so many scary things about it and if I didn't have bad luck I wouldn't have any luck at all haha. My MO told me to relax and we will cross that bridge when we get to it but it really has me very scared. I'm so afraid to have a reaction. Maybe I should am my doc for a Prozac lol
-
Allicat, I use ' lavanilla the healthy deodorant' which you can get at sephora. I've used it for two years now and really like it, it is expensive but lasts about 8 months.
Everyone hitting " the bar", minimal SE!
For those starting taxol, when I did it 2 years ago, I was plagued with horrible bone pain mostly in my thighs. My Onc kept upping my pain meds until I was on some pill form morphine- didn't help. But I just wanted to let you know that it only lasts a few days and is doable. My last RX, I thought I'd try a heating pad and it did help a bit- wished I hadn't waited so long to try it! I really just found sleeping to be problematic - between the aching and restless leg feeling it was 3 sleepless nights- but left after three days! Try a heating pad if you get the pain. I think I was an extreme case. Good news is that nausea was non existent
-
Happy Monday!
Addie, I hope all goes well with your last AC. So glad that will be soon behind you. So far, Taxol has been much, much easier. Assume all will go well until proven otherwise.
Littleblue, That shirt is AWESOME! What a great brother you have!!!!!
Taxol #2 is tomorrow. Nothing significant about that other than after that treatment, I will be able to count down the remaining ones using both hands and no toes. My MO was on vacation and then there was the holiday, so I have seen the PA and a different MO. This is the first time I will have seen my MO in a month. Hoping blood work is good and all is a go. I feel good, so I assume all will be good.
I was always a person who NEVER took medications. I rarely even took vitamins except when pregnant. So as I look in my S M T W T F S pill thing filled to the brim, I am wondering what everyone is taking as far as vitamins, etc. I take: Claritan (allergies), Zantac (heartburn), Probiotic (to hopefully help things), Magnesium (because it was low last time, Potassium (because it was low last time), B6 (to help prevent neuropathy), B12 (I don't remember why...last MO recommended it so I just have kept taking it), D (to help bones), calcium (to help bones). I just started taking L Glutamine to help prevent neuropathy. What's in your pill box???!!!
-
actually the ac now causes me extreme body pain. I've had back pain since I started the ac. I do use a heating pad for the first few days after chemo and neulasta and it does help. I also lather myself up in bengay lol I always smell like mint.
-
Morning, just checking in quickly before I have to leave for #4 - last AC, yay! I still have to make a sandwich and put on my emla cream. It always creeps up on me. I have been dreading this for days, but trying to push it away and enjoy the moment. I went out with mom, sister, and daughters for a belated mother's day lunch - feels like a "last meal" before all the stomach ills of chemo. Today I see MO for the first time since starting.
KB, aside for SE medications - Priolosec being the only OTC one, I am only taking Lysine for the mouth sores. I haven't been officially advised to take anything else.
My youngest DD and I made some O'Henry bars this weekend, and I'm bringing some for the nurses today. Gotta go pack :-)
-
Chemosabes who are riding today, GOOD LUCK! Crap I'm late for work! Oh and baking soda is a great deodarant...just pat it on...
-
I'm also interested in people's vitamins I only take a Multi and biotin daily I want to increase my vitamins but I didn't get a definite answer from my nurse praticioner need to talk to my oncologist I think.. I have read vitamin d uptake reduces recurrences and turkey tail mushroom helps attack cancer with immune system? What probiotics is everyone taking I read you need to be careful with that as well
-
So lots of us heading to #4 this week! GO US!! If I could go today I would! I'm anxious to get this train rolling as fast as possible!
Good luck ladies! And those that have moved on to Taxol (and Herceptin/Prejeta maybe) good luck as well!! -
Kbeee: the only vitamin I take is Vit. D. My philosophy is that you get enough vitamins and minerals from your diet. Unless there is proof that you are low, as in your case, it's unnecessary to take supplements. The Vit. D though is an exception...I live in Canada where, especially in the winter, we don't get enough sunlight...plus, on chemo we're not supposed to be exposed to too much sun anyway. Also, Vit. D has been proven to protect the heart and it's good for bone health (I don't take calcium because I eat a lot of dairy). *end of Vitamin D rant*
Happy Monday and Happy June! Another beautiful day here on Vancouver Island! Good luck to those headed to the chemo bar this week!
Andrea
-
ugh I just realized that my first fill with my expanders is only 2 days after my last ac. This is going to suck!
-
My MO took me off almost everything. I look forward to getting my B and aspirin back. My current dailies are fiber (on day when that's not a really bad idea), D, CoQ10, potassium, Metformin (diabetes), HZTZ (blood pressure), Intal (asthma inhaler), a Tums at night for calcium, and glutamine in my water at dinner.
-
At Phoenix airport heading for Illinois and AC treatment #3. Having weepy emotions today that I can't seem to keep at bay. Thinking I will take an Ativan once I board. Sooooo wishing this was #4 so I could at least celebrate half way point. Normally we fly Sunday and get chemo on Monday, but MO is off today and he doesn't like to use PA if he can avoid it.
I really wish I had been on the every other week schedule so that I would be further along. My son's piano and voice recital is October 24th and I think I may miss it due to timing of bmx. He's playing/singing Thriller. It's going to be fabulously epic and I might miss it. Chemo doesn't even end until mid September. Surgery might be mid October at the soonest. Anyone know how long it will take me to heal enough after bmx to get on a 1500 mile, 3h 45m flight? Delaying until after recital might be possible, but this Arizona girl is getting nervous about Northern Illinois in November. I know....get over it.
Supplements...A naturopath and nutritionist are part of my treatment team. They have me on Mitaki Mushroom extract, L-Carnitine, CO-Q10, Super B Complex, D3, Calcium, Fish Oil and Melatonin. I already took the d3, Super B, Calcium, and fish oil before DX, but they would have been added if not. I have been reading about the glutimine and plan to ask them about that this time. However, I agree that my SMTWTFS organizer is already quite full...especially once the nausea starts rolling and in addition to the nausea meds, constipation meds, Claritin for the neulasta, and Ativan to help me sleep...but wait there's more. I got medi-honey for throat and mouth sores that flair during days 1-10, and hydrocodon sitting at the ready for pain just in case. Avoiding that one for obvious reasons. I hope everyone getting their treatments this week gets the rest and comfort we all deserve. Thanks for being "here".
-
Dizparkmom - I am jumping into let you know that lymphodema is a real possibility after surgery if you fly, because of the cabin pressure changes. As a precaution, you might want to ask about arm sleeves - just for the flight. I am going to get them.....wear them on the plane. I do not want lymphodema!
-
Dizz - Are you glad you are getting treated at CTCA? Do you feel the care is better than you would have received in Arizona?
Best of luck to you on round 2!
Sue
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team