April 2015 Chemo Crew... Starting in April? Please join us!

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  • ThePrincess
    ThePrincess Member Posts: 424
    edited May 2015

    KBEEEEE! GREAT JOB! You are (and have been!) amazing and such an inspiration!!!

  • Positive_spirit
    Positive_spirit Member Posts: 218
    edited May 2015

    Kbeee - you do us proud! Amazing and inspiring.

    Beachbum - thank you. I am going to look into the Livestrong program.

    GingerChi - Sorry about that chemobrain; it really is something. I said something to my friends that I could not remember a couple of minutes later. Fog stuff.

    I am looking forward to the AC folks being done; the TC and other folks getting further through the treatment. Progress... I say this with a comical look on my face as I have the endless menstrual period, which my MO told me might happen to people like me whose menstruation won't shut down with chemo. Silly body can't figure out what to do.

  • lovlilynne
    lovlilynne Member Posts: 405
    edited May 2015

    KB, I was thinking of you - off and on - all day. Just finally had a moment to check in. Congrats! That is an amazing achievment, and it must feel so good to set your goal and get there - living life, right? No C in the way, or even if, just shove it to the side and keep going. Buh Bye C!

    Lynne

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited May 2015

    Anyone checked out www.thehijabstore.com? They have some amazing head covering options. I just ordered two head wraps from them that are like tight fitting hoods and cover your neck and shoulders a bit...I think they are going to be great for sun protection under a hat. Makes me wish I lived in a more diverse area so I could wear hijab style head coverings without getting harrassed.....

  • sheshe3
    sheshe3 Member Posts: 70
    edited May 2015

    Kbeee, way to go!!! Congrats on your accomplishment! Love your shirt too!!!

  • slv58
    slv58 Member Posts: 1,216
    edited May 2015

    KBee, you are such an inspiration! I'm so impressed with you and feel you ran for all of the us -thank you!!!


  • ksusan
    ksusan Member Posts: 4,505
    edited November 2019

    Yay, KBee!

    My partner and I spent a relaxing weekend on the Pacific Coast. It was good for my allergies as well as my spirit. Bought several pairs of flashy earrings, a fun smaller purse, and a gift for a young man just diagnosed with lymphoma. Saw whales, sea lions, two types of scoter, three types of cormorant, brown pelicans, and oyster catchers, among other birds, and had delicious dinners.

  • allicat1214
    allicat1214 Member Posts: 84
    edited May 2015

    A few pages ago, someone was asking about wigs and all things hair.

    Can we talk about something else that I can't really explain to others?

    BO....body odor.

    I gave up my usual antiperspirant not long after my diagnosis in December when I began to research all about breast cancer. I had read about problems of aluminum in antiperspirants. Since then I've tried several products: tom's of maine, salt stick, even rubbing alcohol....and nothing stops the BO.

    Anyone found something that really works?

    NOLA in summertime ain't nothing nice!

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited May 2015

    imagemy brother has made me a new shirt for each chemo treatment...this is the latest...my new best friend the taxol molecule...he's awesome!

  • AndreaC
    AndreaC Member Posts: 220
    edited June 2015

    love the shirt Littleblue! Your brother sounds amazing!

  • Alibeths
    Alibeths Member Posts: 656
    edited June 2015

    soapwalla deodorant cream!!!!!!! Changed my life!!!!!!! It's amazing. Kinda pricey but lasts a while. I order it online.

  • allicat1214
    allicat1214 Member Posts: 84
    edited June 2015

    Thank you Alibeths!! I'll check it out! I see you're in Florida, so you know all about tropical heat! UGH..... So not ready for THIS summer and having radiation in July - August.

  • AnewBeginning
    AnewBeginning Member Posts: 536
    edited June 2015

    Sending good vibes to all going to the chemo bar today.........may you have a great week with little to no s/e.

    Congratulations to all who have finished AC !!

    KBeee you are such an inspiration to us all. Im lucky I can get off my couch for 5 - 6 days.......

  • Addie29
    Addie29 Member Posts: 307
    edited June 2015

    littleblueflowers that shirt is awesome, I bet your oncologist love them!

  • Addie29
    Addie29 Member Posts: 307
    edited June 2015

    today needs to hurry up and end already. Ha already it's only 8:14- tomorrow is my last ac so I'm ready to get it done and over with. I'm so excited that tomorrow will be my last ride in that evil red devil!!

  • AnewBeginning
    AnewBeginning Member Posts: 536
    edited June 2015

    Good for you Addie! I had my last ride this past Wednesday......not too sure Im looking forward to Taxol though.

  • Addie29
    Addie29 Member Posts: 307
    edited June 2015

    I hear ya. Taxol has me VERY nervous. I've heard so many scary things about it and if I didn't have bad luck I wouldn't have any luck at all haha. My MO told me to relax and we will cross that bridge when we get to it but it really has me very scared. I'm so afraid to have a reaction. Maybe I should am my doc for a Prozac lol

  • slv58
    slv58 Member Posts: 1,216
    edited June 2015

    Allicat, I use ' lavanilla the healthy deodorant' which you can get at sephora. I've used it for two years now and really like it, it is expensive but lasts about 8 months.

    Everyone hitting " the bar", minimal SE!

    For those starting taxol, when I did it 2 years ago, I was plagued with horrible bone pain mostly in my thighs. My Onc kept upping my pain meds until I was on some pill form morphine- didn't help. But I just wanted to let you know that it only lasts a few days and is doable. My last RX, I thought I'd try a heating pad and it did help a bit- wished I hadn't waited so long to try it! I really just found sleeping to be problematic - between the aching and restless leg feeling it was 3 sleepless nights- but left after three days! Try a heating pad if you get the pain. I think I was an extreme case. Good news is that nausea was non existent

  • KBeee
    KBeee Member Posts: 5,109
    edited June 2015

    Happy Monday!

    Addie, I hope all goes well with your last AC. So glad that will be soon behind you. So far, Taxol has been much, much easier. Assume all will go well until proven otherwise.

    Littleblue, That shirt is AWESOME! What a great brother you have!!!!!

    Taxol #2 is tomorrow. Nothing significant about that other than after that treatment, I will be able to count down the remaining ones using both hands and no toes. My MO was on vacation and then there was the holiday, so I have seen the PA and a different MO. This is the first time I will have seen my MO in a month. Hoping blood work is good and all is a go. I feel good, so I assume all will be good.

    I was always a person who NEVER took medications. I rarely even took vitamins except when pregnant. So as I look in my S M T W T F S pill thing filled to the brim, I am wondering what everyone is taking as far as vitamins, etc. I take: Claritan (allergies), Zantac (heartburn), Probiotic (to hopefully help things), Magnesium (because it was low last time, Potassium (because it was low last time), B6 (to help prevent neuropathy), B12 (I don't remember why...last MO recommended it so I just have kept taking it), D (to help bones), calcium (to help bones). I just started taking L Glutamine to help prevent neuropathy. What's in your pill box???!!!

  • Addie29
    Addie29 Member Posts: 307
    edited June 2015

    actually the ac now causes me extreme body pain. I've had back pain since I started the ac. I do use a heating pad for the first few days after chemo and neulasta and it does help. I also lather myself up in bengay lol I always smell like mint.

  • lovlilynne
    lovlilynne Member Posts: 405
    edited June 2015

    Morning, just checking in quickly before I have to leave for #4 - last AC, yay! I still have to make a sandwich and put on my emla cream. It always creeps up on me. I have been dreading this for days, but trying to push it away and enjoy the moment. I went out with mom, sister, and daughters for a belated mother's day lunch - feels like a "last meal" before all the stomach ills of chemo. Today I see MO for the first time since starting.

    KB, aside for SE medications - Priolosec being the only OTC one, I am only taking Lysine for the mouth sores. I haven't been officially advised to take anything else.

    My youngest DD and I made some O'Henry bars this weekend, and I'm bringing some for the nurses today. Gotta go pack :-)

  • littleblueflowers
    littleblueflowers Member Posts: 2,000
    edited June 2015

    Chemosabes who are riding today, GOOD LUCK! Crap I'm late for work! Oh and baking soda is a great deodarant...just pat it on...

  • Stephmoen
    Stephmoen Member Posts: 563
    edited June 2015

    I'm also interested in people's vitamins I only take a Multi and biotin daily I want to increase my vitamins but I didn't get a definite answer from my nurse praticioner need to talk to my oncologist I think.. I have read vitamin d uptake reduces recurrences and turkey tail mushroom helps attack cancer with immune system? What probiotics is everyone taking I read you need to be careful with that as well

  • ThePrincess
    ThePrincess Member Posts: 424
    edited June 2015

    So lots of us heading to #4 this week! GO US!! If I could go today I would! I'm anxious to get this train rolling as fast as possible!


    Good luck ladies! And those that have moved on to Taxol (and Herceptin/Prejeta maybe) good luck as well!!

  • AndreaC
    AndreaC Member Posts: 220
    edited June 2015

    Kbeee: the only vitamin I take is Vit. D. My philosophy is that you get enough vitamins and minerals from your diet. Unless there is proof that you are low, as in your case, it's unnecessary to take supplements. The Vit. D though is an exception...I live in Canada where, especially in the winter, we don't get enough sunlight...plus, on chemo we're not supposed to be exposed to too much sun anyway. Also, Vit. D has been proven to protect the heart and it's good for bone health (I don't take calcium because I eat a lot of dairy). *end of Vitamin D rant*

    Happy Monday and Happy June! Another beautiful day here on Vancouver Island! Good luck to those headed to the chemo bar this week!

    Andrea

  • Addie29
    Addie29 Member Posts: 307
    edited June 2015

    ugh I just realized that my first fill with my expanders is only 2 days after my last ac. This is going to suck!

  • ksusan
    ksusan Member Posts: 4,505
    edited June 2015

    My MO took me off almost everything. I look forward to getting my B and aspirin back. My current dailies are fiber (on day when that's not a really bad idea), D, CoQ10, potassium, Metformin (diabetes), HZTZ (blood pressure), Intal (asthma inhaler), a Tums at night for calcium, and glutamine in my water at dinner.

  • DizzParkMom
    DizzParkMom Member Posts: 316
    edited June 2015

    At Phoenix airport heading for Illinois and AC treatment #3. Having weepy emotions today that I can't seem to keep at bay. Thinking I will take an Ativan once I board. Sooooo wishing this was #4 so I could at least celebrate half way point. Normally we fly Sunday and get chemo on Monday, but MO is off today and he doesn't like to use PA if he can avoid it.


    I really wish I had been on the every other week schedule so that I would be further along. My son's piano and voice recital is October 24th and I think I may miss it due to timing of bmx. He's playing/singing Thriller. It's going to be fabulously epic and I might miss it. Chemo doesn't even end until mid September. Surgery might be mid October at the soonest. Anyone know how long it will take me to heal enough after bmx to get on a 1500 mile, 3h 45m flight? Delaying until after recital might be possible, but this Arizona girl is getting nervous about Northern Illinois in November. I know....get over it.

    Supplements...A naturopath and nutritionist are part of my treatment team. They have me on Mitaki Mushroom extract, L-Carnitine, CO-Q10, Super B Complex, D3, Calcium, Fish Oil and Melatonin. I already took the d3, Super B, Calcium, and fish oil before DX, but they would have been added if not. I have been reading about the glutimine and plan to ask them about that this time. However, I agree that my SMTWTFS organizer is already quite full...especially once the nausea starts rolling and in addition to the nausea meds, constipation meds, Claritin for the neulasta, and Ativan to help me sleep...but wait there's more. I got medi-honey for throat and mouth sores that flair during days 1-10, and hydrocodon sitting at the ready for pain just in case. Avoiding that one for obvious reasons. I hope everyone getting their treatments this week gets the rest and comfort we all deserve. Thanks for being "here".



  • mysunshine48
    mysunshine48 Member Posts: 1,480
    edited June 2015

    Dizparkmom - I am jumping into let you know that lymphodema is a real possibility after surgery if you fly, because of the cabin pressure changes. As a precaution, you might want to ask about arm sleeves - just for the flight. I am going to get them.....wear them on the plane. I do not want lymphodema!

  • SueH58
    SueH58 Member Posts: 632
    edited June 2015

    Dizz - Are you glad you are getting treated at CTCA? Do you feel the care is better than you would have received in Arizona?

    Best of luck to you on round 2!

    Sue

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