Any young ladies just diagnosed with a recurrence??

Christine, (((((HUGS))))). One of my Sept 13 chemo pals was on the clinical trial for Ibrance and had fabulous results. Wishing the same to you. I am so sorry to hear about the spread to your bones. That just plain sucks. No way to mince words. I hate cancer. Thinking of you.

I am not sure of side effects, but if she did have some, they were mild.

Christine & Coopdizzle- My heart is truly so saddened by your news. It takes me back to November following the "precautionary biopsy" (which my MO was sure would come back benign b/c all my markers had indicated that I was cancer-free). I know from experience that the "emotional rollercoaster" you just got on is just as difficult as the physical one you are facing. Despite the fact that you may be feeling so overwhelmed and powerless (b/c basically our bodies have betrayed us AGAIN!)- know that you do have an inner strength that only comes out in challenging times like these. Since my reoccurrence in November, I've been through 3 months of neo-adjuvant chemo, a BMX (with drains that remained in for 25 freakin days) and now 2 months of some hard core chemo (which I must say is the toughest part). While it definitely has been hard, I want you to know that if I can do this...so can you! (I'm one of those big babies that even hates the idea of having her teeth cleaned b/c of the discomfort). Try the best you can to not pay attention to "The Thoughts" which can become all-consuming (the "why me"; the "why now", the "what if", the "what's going to happen", the "will I..."?). Remember to take one day at a time and most importantly... breathe!! While I know the people around you want to help (and please let them!!), YOU can count on YOU to push on. Wow! I don't mean to sound all preachy but I remember when I 1st posted on this site and my head was spinning and I just felt like I couldn't catch my breath. I will be thinking of you both and sending out positive prayers. Wishing you strength as your journey continues.

Sending big hugs via the internet,

Fran

Hi, Alibeths. I am sorry, I didn't add this topic to my faves, so I missed your question. Actually, I'm not sure I am still young, at least thats what they tell me! But I also haven't been diagnosed with a recurrence either, although there are some spots they are watching closely. There is a node or two that I am very concerned about, but they say is benign. I thought they pulled them all out! They said it is just "reactive". There is also a spot of "fat necrosis" as far as they can tell, right under the lumpy scar, that I am not going to be surprised when someday they tell me it IS cancer. Because I just don't know if fat necrosis grows larger. And I have just had it with all the followup, I am tired of looking for trouble..

I am saddened by how many women who do recur in spite of all measures they took to avoid it, and just wonder how many were actually there during treatment, but just got big enough to be discovered.

Laura, Sorry to hear of your recurrence. It does suck to have to do this again, but alas it is doable. I found mine was back because I found a lump where my original tumor was. BS sent me to PS who thought it was from reconstruction, but thankfully I insisted they biopsy it. Yep...it was back. They later found a second spot too...18 months after BMX, 15 months after finishing chemo, and 14 months after starting Tamoxifen. I did not have radiation last time, but will this time after chemo is done. Is you pathology the same this time? Mine was different. Sorry you're back. I hope nodes are clear for you.

I would get a second opinion too; especially since she underestimated it the when the lump appeared and was wrong. You'd think she'd be a little more aggressive once she realized she was wrong. I would tell her point blank that she's already underestimated it and been proven wrong, so you're getting a second opinion because you feel you need to be more aggressive in assessing the whole situation.

I did the same thing. I went back to BS for surgery because he is a brilliant surgeon, but I told him I was getting a second opinion and he did respect that.

Thank you everyone for you support.

I'm from Costa Rica and we don't have PS machine here so I'm in process of going to Miami for a PS and get a plan. My Dr. Is traveling and said would be back with a plan for me. I will get a second opinion in Miami as well.

After they did a biopsy on my neck I have a pain on my shoulder. I hope it has nothing to do with cancer.

hi, I'm going to Sylvester hospital, university of Miami.

theziz- I will be saying lots of prayers and sending positive vibes your way! Hang in there-I know the waiting is the hardest.

Positive Thoughts and big hugs,

Fran

thank you

Findingbeautiful24. Thanks for your honesty, but its just awful that you are dealing with it again, so awful. I am so so sorry. Cancer is a sneaky bitch, I hate her even harder for you..