headache

maria26
maria26 Member Posts: 44
edited February 2016 in Stage I Breast Cancer
headache
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  • maria26
    maria26 Member Posts: 44
    edited May 2015

    Hi, originally posted on the hormonals side but did  not get much response so thought I would try here.  I am stage 1 grade 2 node neg er pos her2 neg.  2 years out from dx.

    I have started with head pain.  Mainly right temple sometimes  left and pain at base of head and neck.  Being very anxious and a worrier I have now convinced myself I have brain mets.  My dr said no its your neck but is 24 7 now.  I am in such astate I cannot sleep, feel sick shaky etc.  Spoke to the radiologist who knows me and dx me and she said it would be extremely, extremely  unlikeley but I am so scared.

    I have had so many mris cts etc recently and dread one on my head.  All  my scans were clear and only done to stop  me worrying.  I dont want to be seen as a mad woman.  I just wondered if anyone on arimidex has had this.  I have struggling 2 years on it and it has made me feel so ill but I am scared to stop or change.  I have no neurological symptoms and my neck is painful but I have convinced myself of the worst.

    Anyone else have headpain on the als.  Have been referred for physio and yes I a  63 and have had problems with my neck in the past bone spur etc.

    Many thanks

    Maria


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  • doxie
    doxie Member Posts: 1,455
    edited May 2015

    maria26,

    Your doctors are correct in that patients with ER + HER2- tumors seldom have cancer go to the brain. HER2+ tumors are more likely to spread to the brain.

    It's much more likely you have something arthritis related. AIs such as arimidex seem to aggravate latent arthritis, or maybe even cause it after a while. Pain can easily radiate to other sites in your body from the site of swelling or degeneration in your neck. Since on AIs I now have lower back pain and hip joint pain. The pain radiates to my lower legs at time. Both are related to arthritis and age related degeneration issues. X-rays to both areas show no mets. I have no idea if the pain would have shown up regardless of BC treatment.

    It is so easy to let fear take over your life. I have done it myself. Maybe it would be helpful to ask one of your trusted doctors to help you find someone who could work with you on controlling fear. Regardless of whether or not cancer has spread, it seems that fear has taken over your life - a type of deadly cancer in and of itself. It is destroying your quality of life. Maybe this coupled with an X-Ray of your neck would help bring some peace.


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  • maria26
    maria26 Member Posts: 44
    edited May 2015

    Thank you so much Doxie for replying, nice to know someone cares enough to take the time on a weekend.  You are right I know and the fear has engulfed my life.  Everytime the pain spikes I think the worst possible things.  I read your post to dh and he said now will you try and believe.  

    I am having counselling right now but the first thing the young girl said to me was why am I afraid of cancer.  Not a good start.

    I am in the uk so therapists are not so common.  How did you cope on the arimidex I am sure it is  making me anxious.

    Many thanks

    Maria

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  • doxie
    doxie Member Posts: 1,455
    edited May 2015

    Your dh sounds like he wants to help you also.

    It sounds like your therapist is a little clueless. If the young girl you are going to cannot understand where you are coming from, then look for someone older with more life experience. I usually prefer doctors around my age or older. The younger ones feel like my students and I have a hard time working with many of them for a number of reasons.

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  • sandylo
    sandylo Member Posts: 16
    edited February 2016

    same here Maria we always fear the worse I started with headaches and a fuzzy head after starting on tamoxifen eleven days ago just hoping it abates sandy x

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