April 2015 Chemo Crew... Starting in April? Please join us!

Lovlilynne, I only feel queasy most the time for a few days. I am too, on neupogen, I start mineon day 3(today) until the 9th day post infusion. I don't like the shots either, with Tylenol at the hint of bone pain, I can seem to get past it easy. At least my WBC count has been excellent, so no mouth sores at all. I do notice some shortness of breath when climbing stairs.

so I will have to possibly be hospitalized for my last 3 treatments depending in how #4 goes they don't want to take me off this regimen because it has been proven to cure my type of cancer ugh annnnd I was exposed to cdiff at my mother in laws while she took care of her sister who recently had surgery so I have to watch for that it just keeps getting better

Stephmoen - I wish I had the right words. We'll get you through the treatments, one step at a time. Just one baby step forward each time...it's okay to slide back and then keep moving forward as chemo is tough on the body. Wishing the best care for you

I've wondered about kumbucha. I love it, but is has raw cultures and I'm not sure that ok. Has anyone asked a doctor/nutritionist

AC#4 done - felt ok I asked my MO to reduce my decadron which he did from 10mg to 6mg - I'm convinced that's what's been making me feel so weird on days 3 and 4 we will see if it helps- SO glad to be done with AC - my friend brought in martinellis apple cider to celebrate which was fun- I know I have at least a week probably more of feeling crappy ahead but yay- no more red devil !!! On to taxol starting 12th my MO wants me starting the glutamine powder starting now - does snyine have a recommendation on which is next one to get- he is insistent it's the powder not tablets .

KBeee you are truly an inspiration - enjoy your run - you go girl!!!!

littleblueflowers, I was told to avoid anthing  "raw" -  drinks and veggies, sushi, etc while my WBCs are down, as there is no way to control for the potentially "bad" bacteria.  But most commercial drinks are not truly raw - they are either heat pasteurized or pressure pasteurized.   Unless you're drinking it or anything else at a juice bar, it's probably fine.  But you may want to read up on it.

On a related note, I watched the grocery store "fish man" stop scrubbing a sink full of discarded fish parts with his bare hands to come over to help me.  He didn't wash his hands, just put on a pair of gloves and smoothed each on with his bare hands as he put them on.  When I said "you didn't wash your hands", he said he didn't need to because he put on gloves.  I pointed out he had just rubbed his contaminated hands on the outside of the gloves, and he just looked at me like I was crazy.  Since the WBC drop, maybe I am.  Since I planned to cook the fish, it wasn't that big a deal, but it made me take the "raw" food part  a little more seriously.   It's easy to assume food in the deli, etc is safe when you really don't know what happened you didn't see. 

Yes, Stephmoen: We are all thinking and praying for you! One day at a time...

And to our Kbee: I'm sure you're on the course already but YAY for your half marathon today!

Hope we can all enjoy the weekend with few SEs and lots of energy!

Good morning!

This group has so much to say...I missed one day and there were so many posts to get through. It is wonderful though, reading about people's experiences.

Hugs to you, stephmoen, I'm thinking of you and sending positive energy your way. You will get through this! We all will.

littleblue, I toast you with a mouth-soothing smoothie! You are funny.

Kbeee, how did the race go? You are amazing!

Momma, sweet picture of your daughter!

positive spirit, love your photos!

Re working during treatments...it is, of course, a personal decision...but for me I can't imagine working. My job right now is to look after myself and get better. Mind you, as a nurse my job involves 12 hour shifts and can be mentally as well as physically demanding. I have been told by my MO not to expect to return to work until at least Feb. of next year. I will have been off work a year.

I have been reading about people's experiences with PA's - I live in Canada and we don't have them (at least, not where I live). But I was in Phoenix earlier this year and had to take my mom to ER and she was seen by a PA there. Not once was she assessed by a doctor. The PA kept leaving the room to go ask the doctor questions or run things by him. The doctor wrote my mom a prescription without ever seeing her. And this hospital is supposed to be one of the top hospitals in the country. It seems like a really backwards system to me.

I am feeling pretty much 100% now, nine days after TC#2. It's a good thing too, because my husband has planned a big backyard BBQ today for my birthday! (My birthday is actually Tuesday). The weather is gorgeous and I am so glad to be alive! Can't wait to see the grandchildren today!

Andrea

Kbee thats awesome! Congrats on finishing

Kbee, that is truly unbeilievable!!! Congratulations. We need to put you and Theresa (Italychick from March board) in a match - she'll bike and you can run!

Kbee, you are amazing!  I can barely walk around the block right now, so I do not know how you do it.  I guess I should look forward to Taxol!

awesome kbee you go girl!! I have a question for the girls who had a mastectomy how long is it to complete the whole procedure from mastectomy to implants I'm guessing I will need tissue expanders so far I am not going to get radiation because they don't believe lymphs are involved unless the SNB proves other wise which they don't think will happen

Congrats Kbee!! Thats awesome!! I still think you're wonder woman!

AC#4 has hit me pretty hard. This is day 3, starting to feel better, but have mega chemo brain. I had a long post typed up but lost it. Arg! I'm thinking of all of you...wishing few SE and a nice weekend to everyone!

6 miles down..7 to go...😁