April 2015 Chemo Crew... Starting in April? Please join us!

they have me 20mg of decadron 20mg Benadryl before then have me the taxotere then my throat got itchy they stopped she called the PA and said they might have reevaluate my regimen I was very upset because this regimen has the best PcR rate but they gave me 50 more mg of Benadryl and running it slooooow over 3 hours ugh it's going to be a late day but I'm almost done with the taxotere now no more issues yay

So any ladies doing Taxol weekly with Hercepton/Prejeta every three weeks as their Phase 2?

As soon as I posted, the Onc finally emailedand said to use the remaining shot. Wish me luck that it does something.

Wow you guys look totally natural in your wigs! That's amazing!

So I was researching taxol at work today lol, and Wikipedia (which is always right lol) says Abraxane is both more effective and has fewer side effects than taxol. I'm wondering why they even give us taxol at all then? It also said most of the side effects are from the solvent used in paclitaxel, not from the taxol itself. I know they both come from yew trees...

then I got to thinking,apparently the way to cure cancer is to first turn us into sweaty bald fat boobless men, then to inject us with tree sap. Are they trying to turn us into TREES next? Well whatever works I guess...

then the cough ing sneezing nyquil rep in the next cubicle started to freak me out, so I came home. I'd like to dedicate the song Living Dead Girl by Rob Zombie to anyone having a tough go of it today....hugs!

Congrats to everyone who is finished chemo or heading in to the home stretch!

Sheshe: so sorry to hear of the rough time you have been having. Sending positive vibes your way!

I am a week post TC#2 - gradually feeling better, more energy now but I just developed mouth sores. I thought I had escaped them this time around.

So many of you have such complicated regimes. Mine is simple...BMX then 4 doses of TC, a month off, then radiation for 4-5 weeks and tamoxifen for 5 years after that. I had 2 tumours but both were HER2 negative. One of my tumours was triple negative - on the right side - but there was no lymph node involvement there. The left sided tumour was ER and PR positive and there is lymph node involvement there.

Stupid cancer. Getting tired of this...I had colon cancer less than 2 years ago too.

Sorry, I am having a pity party here today.

I'll share with y'all my favourite "serious" wig though...

AnewBeg. - I start June 16 (last AC is June 2) - good luck to us both! :-) Hopefully it's a BREEZE. ha!

Andrea you look so natural and beautiful in that wig! Mine makes me look like a mafia wife Mouth sores are the BEST! My favorite is when your throat swells closed to go along with it. I'm right there with you, sister. Can still breathe fine, it just feels like my throat is full if gravel. Shall we compare smoothie recepies?

  AndreaC, love your wig!  I wish mine was longer, but I figured my hair was going to be short for quite a while so might as well start short.

We do all seem to have variations of different regimes.  Right now, I'm the only one doing dose dense AC/T in my infusion room, although she said it's a common regime - just a really hard one.    The oncology nurse wonders about the dose dense taxol, so that's giving me pause.  But I have time to ask questions.   Right now A/C 3 is sitting pretty well other than the steroid headache. 

Love the cobi scarves but they are pretty expensive.  I have several circular neck scarves I got at Charming Charlie's that are less than $20.   - I loop one over my head, twist in the back, loop over again, pull back and secure with a matching scrunchy.  No tying and everyone compliments me on them.   Plus I'll use them when this is over.

Theprincess we are on the same schedule. I will have my last ac on the 2nd then onto taxol on the 16th. We will be enjoying our cocktails together:)

Addie! Your wig looks BEAUTIFUL and you are almost done. You will be riding cloud 9 vs. the red devil!

Congrats!!!

Hi ladies,

Like sheshe I've also been MIA for a few weeks. Had my 3rd TC last Friday and it kicked my butt....

low grade fever...not over the 100.5 threshold....but enough to make walking out to bring garbage can in exhausting. major eye twitching. mouth sores. fingernails tender. wah wah wah.

I'm separated from my husband and live alone with my dog. My 75 year old mom comes in Fri-Sun for the treatments. I really don't want her to stay any longer than she needs to.

But this third time around I've been pretty much wiped out....fatigue and extreme exhaustion. Had a little nausea so took zofran and the Miralax and senokot but had plumbing problems. Nothing happened for 3 days which I know contributed to my lethargy. Then hellooo..... I have Crohn's disease and felt like a mini flare. (sorry if TMI)

Also I think things have been a little rough this time around because my husband is putting pressure on me to go to marriage counseling, which I said I would do but AFTER chemo. He is an alcoholic, verbally abusive, abandoned me all the time, and has major anger and control issues. I left after diagnosis because I knew I couldn't heal in that environment. And while he says he wants to do all the right things, the very fact that he is pressuring me shows me that he hasn't really changed....

Anyway, I don't want to have a pity party but I just felt really alone this time around. I should be happy that I have a peaceful place to heal....and I am. I do have a strong faith and know that God is with me, but sometimes I just want to hear and or see another human!

Oh sometimes I feel like I'm going through this so that in the future I can help other women go through chemo who are alone.

Anyway, I've been reading all your posts. Y'all are doing great! I so admire those of you who are working full time and have small children. I feel so inadequate that I can't handle my poor pitiful issues.

So just one more TC for me in two weeks. Then a month off, then radiation x33.

Congrats to those who are finished and good luck to those of us who still have a way to go!

Neighbor (who's a nurse) to my partner: So I notice that ksusan doesn't have hair.

Partner: Yes, and she doesn't have breasts, either!

Good times in the 'hood.

Mad props to your partner for being quick on the draw, ksusan. That's awesome! 👍

If I may ask, how do you keep your head warm when outside? I'm gonna be noseyes just like your neighbor, but my fuzzy bald head gets so cold when commando!

I'm more hot than cold, an interesting change since my perimenopausal norm was cold flashes. I'm not sure when the neighbor saw me, since I've been wearing hats or caps outside, but she might have seen me go to the mailbox. Being a nurse, she might also have better radar for why someone would suddenly be wearing a head covering all the time.

I've been wearing this and this in the flames colors and a few similar items. Thinking about getting the stars and stripes for the 4th of July.

Hi All

On my Decadron High...can't sleep and some SEs starting to kick in. But it's Ok, because I am Done with TC!

I want to be a SURVIVOR.

Recon surgery July 7, I am wondering how to get "normal" back? It's been 5 rocky months since that lousy mammo, but all of you, please know You Can Do this! All of you have helped me so much, and I will continue to send HUGS and Love. I am too emotional tonight to keep my head clear. My MO agreed I have been pretty lucky with most SEs, besides my eyes and chemo brain. I try to get on here more and wish I could respond better. Just please know I am thinking of all of you and sending you hugs and strength to get through!

Love, arlene