Implant troubles

Options
Mamaseeta
Mamaseeta Member Posts: 13
edited September 2015 in Breast Reconstruction

Bilateral surgery on 8/26/14 with TE's placed, 3 of 4 chemos completed, then doc stopped the treatments due to side effects and infections. I've had pneumonia and a cellulitis infection in my left breast while I still had the TE's.  Long long story short, I finally had my exchange surgery on 3/17/15.  Three days later, I tripped and fell, landing on my right chest and opened the incision, which eventually developed a staph infection and had to be removed 3 weeks later. So as I'm waiting to re-schedule placement of a new TE on the right side and eventually a new implant, my left breast gets red and inflamed. Saw my PS last week and he put me on antibiotics, tells me I'm the hardest patient he's ever had cuz of all my setbacks.  Saw him again 2 days ago and the breast doesn't look as infected, but it doesn't look good either. This breast has developed what looks like a blister (which of course this is not what it is, but that's the best way I know to describe the way it looks) almost the size of a quarter about half way between the nipple and the bottom crease of the breast.  If you touch it, it feels like there is a hole there that pushes in (where the alloderm was placed.)  PS told me to finish antibiotics and to call him if this condition doesn't improve or gets worse.  He says it seems that fluid has gathered there, which is not normal. He said he might have to take it out, wash it out and replace it.  If it gets better, I see him in 3 weeks. Today it has changed color...kind of a bruise color, bluish purple. I talked to his nurse and she told me that if it opens up , to call them.  Opens up???  I don't want to wait for an open draining wound!!   Doc was in surgery, so I don't even know if he knows that I've called yet.  I'm almost ready to give up on reconstruction. Anyone else had these problems??

«1

Comments

  • Moderators
    Moderators Member Posts: 25,912
    edited May 2015

    Hi Mamaseeta,

    We don't have any advice, but we just want to say we are so sorry for all you're going through! What a ride... We're thinking of you and hope you have an easy, healthy solution soon!

    We're sure others will be by shortly to offer their experiences. Hang in there!

    --The Mods

  • Mamaseeta
    Mamaseeta Member Posts: 13
    edited June 2015


    The Mods...  Do I have my post in the wrong area?? Should I have it somewhere else??

  • sixtysweeper63
    sixtysweeper63 Member Posts: 22
    edited May 2015

    Sorry for all your setbacks mamaseeta...it seems like some of us tend to take the long way around whether we want to or not. I just had my second TE removed on my left side due to a pseudomonas infection...very troublesome as I am a lucky one in that my DCIS was taken care of with my BMX and required no chemo or radiation...so I was thinking the reconstruction will be a piece of cake...well the right side has been, but the left side where the cancer was has been riddled with problems...think I may be looking into a 6 mo. rest instead of 3 mo. the first time around...or possible tramp flap...love my PS and just hope u have a trusted crew to work with. I too had a blistering spot brought about from my thin skin due to my infection, which was purplish underneath and was very scarey...to be leaking thru your skin! My PS has been very perplexed with me also as I SHOULD be one of his easier cases...staph and pseudomonas are nasty infections that seem to have many drs perplexed as to how to treat them as they have become immune to many antibiotics...I have been on cipro for over a month this past episode...I wish u luck and I think if u keep looking thru the many different posts u will find many woman like yourself with many encouraging words...wishing u health and success on your reconstruction....keep me posted!   

  • Char66
    Char66 Member Posts: 65
    edited June 2015

    Mammaseeta-So sorry to hear of your complications! Have you spoken to PS yet? I would keep on until they "hear" and see you. There are a few possibilities for the blister-like area, but I think you probably should not wait the 3 wks if this continues or worsens. There would be some necrosis going on under there and would need attention. Keep calling until you talk w PS. If you are very unhappy with him or he doesn't address your concerns-maybe do a second opinion? Char

  • Mamaseeta
    Mamaseeta Member Posts: 13
    edited June 2015

    Yes, I saw my PS on Monday and he seemed to think that it was just a little spot where the alloderm and the muscle have separated.  He thought it looked better than the week before. Well, yes, the redness and infection are gone, but that blister/bubble is still there and I just noticed a little while ago that another one has formed about a half inch to the left of the first one.  And it looks bruised.  Surgery was on March 17, how could it look bruised??  Grrr.  Hubby wants me to call PS again tomorrow.  My PS has been great...always answers when I call, they get me in right away when I'm having an issue....so no problems there. But I'm feeling reluctant to call him after what he said on Monday. Any thoughts??

  • Char66
    Char66 Member Posts: 65
    edited June 2015


    Please call him or go see him and have the new area looked at. I can't see how it could "bruise" that long after surgery but would be concerned about skin necrosis. When I had skin necrosis, the area was dark purplish color before the rest of the complications.  Take Hubbys advice it never hurts to be proactive. Keep us updated. Char

  • Mamaseeta
    Mamaseeta Member Posts: 13
    edited June 2015

    Update....implant is coming out tomorrow.  Not happy.

  • Dogsneverlie
    Dogsneverlie Member Posts: 278
    edited June 2015

    Mamaseeta - I'm so sorry your implant is coming out - what is the plan?  Do you need to wait for another one, is it being replaced?

  • Mamaseeta
    Mamaseeta Member Posts: 13
    edited June 2015

    Well, implant came out on Tuesday afternoon. There was no open wound before he started, but the fluid that had been collecting around it was of a "milky" consistency. Cultures were done to find out what kind of infection was going on in there and those take a few days to get back. I feel such a sense of relief to have the implant out because it was becoming quite painful as the fluid built up and things swelled. I feel better than I did before surgery. Of course, I've got an itchy incision, a drain and a huge dressing over the breast area, but not much pain to speak of. And I'm on a round of Cipro. Post op on Monday.

    Hubby and I have talked and decided to leave the reconstruction alone till after Christmas. We talked to PS before surgery and he thought that was an excellent plan. I have been in a continuous state of healing since my bilateral last August due to infections, chemo etc. I am leaning towards staying flat chested and not doing the recon. I just want to get well and get past the cancer. I have my regular appt with my onco next week and she will probably start me on the hormone blocker, which I'm not looking forward to. I hate taking pills.

  • AmyQ
    AmyQ Member Posts: 2,182
    edited June 2015

    I am sorry for all the difficulties you have suffered as a result of your implants. I'm convinced some of us, me included, just cannot tolerate foreign bodies in our bodies. After 2 1/2 years of constant pain, I finally had mine removed on April 9th, 2015 and I feel soooo much better. I still have tightness in my chest, like I'm being bound by a large rubber band, but the pain is virtually gone. I had doubts about reconstruction early on but went ahead anyway. How I wish I didn't.

    I'm not trying to dissuade you from pursuing implants, just letting you know, I think they're not for everyone. Good luck and happy healing.

    Amy

  • sixtysweeper63
    sixtysweeper63 Member Posts: 22
    edited June 2015

    so sorry that you had to have your implants out....sounds all too familiar...drainage was milky with mine too...just hope your cultures come back negative...it was your actual implants that needed to be removed, not TE's? You don't realize how crappy you feel until you have the object removed from your body...hope the cipro does the trick for you...I am also playing the waiting game for 6 mo. this time and will try again in nov.....back to square one when I had my BMX.....maybe we need a good amount of time to let our bodies heal...everyone is different, but I plan on pursuing this til I get a matching left breast for my right....at least your breasts match :)... wishes for health and healing...keep us posted!

  • Mamaseeta
    Mamaseeta Member Posts: 13
    edited June 2015


    Thank you for the input.  I'm seriously leaning towards leaving the implants out and going with the fancy bras and camis.  I am actually at my office today for few hours after having surgery just 3 days ago!!  I feel better today than I did on Monday.  The drain tube is a nuisance, tho, but that is coming out on Monday.  Yes, sixtysweeper63, they were my actual implants that came out.  I had the exchange surgery on March 17, the right came out in April cuz it had a staph infection due to my trip and fall, then the left one came out this week. Still waiting on culture results.  I saw my nurse navigator before the surgery on Tuesday, and she hooked me up with 2 new camis with breast form pockets and 4 soft pillow breast forms.  I'm going to get a script from doc for something a little more substantial to wear once this incision is healed up.

    Blessings to all!!

  • Lily55
    Lily55 Member Posts: 3,534
    edited June 2015

    So TE´s and implants cause infections and problems and so do autologoous reconstructions, so precisely what so those of us who NEED reconstruction do to feel reasonably normal again?

  • patriciahurtado
    patriciahurtado Member Posts: 489
    edited June 2015

    hello ladies ... I not sure how to get help. I had infection which PS removed TE. Had radiation without TE. I been trying for a year and everything looked promising until I got my last fill. After 2 days my chest was red and hot . PS send me with antibiotics. Well I'm starting to think its the alloderm any feed back on this

  • sixtysweeper63
    sixtysweeper63 Member Posts: 22
    edited June 2015

    I don't know about the alloderm for me because I had no problems whatsoever with my right side...just the left...which again was the cancer side...I am sure some people have problems with it though...just as they do with any foreign body....so many different circumstances...unfortunately with so many woman diagnosed with breast cancer. mammaseeta...too funny you have started with nice soft light pillow forms...this second time around  that is what I am looking for for the summer....my "  real " looking and feeling prosthetic is hot and heavy....at least we can choose what we feel like for that day!   :)  keep up the positive attitude and take your time to do what is right for you...my nurse navigator thinks sometimes immediate reconstruction is too much for some of us and is encouraging delayed reconstruction for some...it would be a dull world I we were all the same....easier, but duller!  Health and healing going out to all of you! 

  • patriciahurtado
    patriciahurtado Member Posts: 489
    edited June 2015

    sixtysweeper63 thanks but at this point I don't know anymore plus I have this tight pressure on my right arm that's where my lymph nodes were removed. I read my file from the previous PS I have FlexHD. I was under the impression it was alloderm since That's what I have ask for. So with this new PS not sure if he removed it or went and used the same one from previous PS. I had to many problems with my p

  • FemaleAthlete
    FemaleAthlete Member Posts: 38
    edited June 2015

    Hi Patricia,

    My PS issuing what it's called fat grafting. The procedure it's basically he does liposuction to the areas of the body warrantythat are stubborn to weight loss - the abdominal the hips or the buttock. the fat is removed, sterilized than placed in the breast. this procedure takes some time though.

    Pros: it is your own body tissue so the body does not reject it. The pectoral muscle does not have to get cut. You get a tummy tuck

    Cons: The procedure takes a few months to complete because the fat grafting is not done all at once.

    This is the reconstruction route i am probably going to do.

    My PS is rehearsed in this procedure but it is nor a common procedure among PS.

    I hope this helps toy and if you have any questions I'll try and help you.

  • FemaleAthlete
    FemaleAthlete Member Posts: 38
    edited June 2015

    Hi Patricia,

    My PS issuing is doing what is called fat grafting. The procedure is basically he does liposuction to the areas of the body that are stubborn to weight loss - the abdominal the hips or the buttock. the fat is removed, sterilized than placed in the breast. this procedure takes some time though.

    Pros: it is your own body tissue so the body does not reject it. The pectoral muscle does not have to get cut. You get a tummy tuck

    Cons: The procedure takes a few months to complete because the fat grafting is not done all at once.

    This is the reconstruction route i am probably going to do.

    My PS is rehearsed in this procedure but it is not a common procedure among PS.

    I hope this helps toy and if you have any questions I'll try and help you.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited June 2015

    Just wanted to add, there are many of us who had no reconstruction and are doing well.  No recon is an option to think about.

  • macb04
    macb04 Member Posts: 1,433
    edited June 2015

    Hello, sorry to here that you all have had so much trouble with infections.I had nasty infections twice and have gotten very proactive with fighting them before each procedure. Had fat grafting 5 times which only worked a little because my doc wasn't very experienced with it and also due to those infections, only got to an A plus cup. April 9th 2015 had a Tissue expander put in over my pectoral muscle. Had TE after uni mx put under pectoral, was very uncomfortable /painful. Much prefer TE over my pectoral muscle under my grafted on fat. Can't even see the TE. I know that I am unfortunately developing antibiotic resistant infections because I have had a RDICULOUS amount of antibiotics over the past 3 years. I don't rely on the antibiotics anymore. Last surgery I was on Cipro for two weeks. Worried I had an infection that wasn't going away. Even had Vancomycin during the surgery. Decided to go back to my Naturopath and get INTRAVENOUS Vitamin C. I had them give it to me IV slow drip twice a week and the redness and warmth to my incision got better each time I did the Vitamin C. Even the World Health Organization has said that antibiotics are going to be a thing of the past sooner rather than later due to the amount of antibiotic resistence that has developed. It is very common for women to be low in Vit C after surgery. . If you can't get IV Vitamin C then really push the oral Vitamin C. It is supper safe as it is water soluble, excess is excreted through your kidneys.Good luck, I'll be thinking good thoughts for you all.

  • stingraysusan
    stingraysusan Member Posts: 9
    edited June 2015

    Dear macb04 and All,

    Had unilateral mastectomy July, 2013 for Stage 0 DCIS.  Did not reconstruct. MRI/mammograms have been negative since. Took no radiation, chemo or drug therapy. I recently decided to reconstruct, and the tissue expander surgery was Friday, June 29, 2015. Accomplished with iv sedation and outpatient (my decision), this is the most pain I have ever experienced - 10 times worse than my mastectomy which I recovered from fast and was driving 5 days later. Each day is getting somewhat better starting with debilitating excrutiating pain, now downgraded to just awful annoying pain. Plastic surgeon said only 1-2 fills needed for my breast size and small frame and exchange surgery/breast lift & augment on contralateral breast will be performed in 4-6 weeks. I have heard the tissue expander surgery is the worst part and that the implant transfer surgery will be way easier.  Taking pain pills and Cephalaxin (which upsets my stomach), but necessary. Any idea on how long this pain lasts and any tips to get through it? Thank you.

  • stingraysusan
    stingraysusan Member Posts: 9
    edited June 2015

    Breast Reconstruction with Tissue Expander

  • Mamaseeta
    Mamaseeta Member Posts: 13
    edited July 2015

    Hi everyone....just thought I'd check in and let you all know where I'm at since I had the left implant removed on June 9. Turned out to be a staph infection in there, but the Cipro took care of that. I cannot believe how much better I feel. No pain in my chest at all!! No infections and I'm all healed up. I got my "off the shelf" prosthetics last week and they are so comfortable! I have to say that the fake boobs are way more comfortable than the implants. If I had to decide today to reconstruct, I would not do it. But I'm gonna save that decision for after Christmas. Hubby and kids don't want me to reconstruct, they just want me well.

    I saw my onco about 2 weeks after the surgery and she gave me the summer off to heal. I see her again in Sept and she will start me on the hormone blockers then. Blessings to you all.

  • sixtysweeper63
    sixtysweeper63 Member Posts: 22
    edited July 2015

    So glad u r doing well mammseeta! I too am resting for 6 mo. and will try a third time to have my left TE back in around nov. a yr. later when my cancer journey started. although I am resting developed a small blister like wound where my last infection occurred, although superficial very scary as it is probably my pseudomonas lurking...can not seem to shake it...I was on cipro for over a month last infection..now just using gentimiacin twice a day to try and clear this small infection...hope we both enjoy the rest of r summer and will decide on what makes us happy when we are healed! will keep in touch in the fall to see where we r...much health and happiness!

  • macb04
    macb04 Member Posts: 1,433
    edited July 2015

    Hi Stingraysusan, and all here. My implant exchange is planned for August 6th. Will be getting my silicone implant placed over my pectoral muscle. Still worry about infections as I have had them twice in the past. My PS is a great guy, he has agreed to get me 5 grams Vitamin C in my IV during my surgery. I am starting antibiotics the day before surgery and doing Hibiclens everyday before the surgery . Am getting Hyperbaric Oxygen therapy started today, have 10 visits before surgery and 10 more afterwards to help with healing because I had such bad radiation fibrosis damage. Am also having them leave in the IV port for 1 day so I can get more Intravenous Vitamin C the day after my surgery at my Naturopath. Doing everything I can think of to have this be a safe, sucessful surgery. Wish me good luck.

  • BigSister-2015
    BigSister-2015 Member Posts: 342
    edited July 2015

    Hi, mamaseeta. I was wondering where you got your "off the shelf" prosthetics?

    I am on hold after having TEs removed twice due to infection (both times on the cancer side). The second infection made me septic, so I am going to have to take awhile to recover before moving forward, and I would sure like something to give me some shape in the meantime.

  • SoLinda
    SoLinda Member Posts: 120
    edited July 2015

    Hello! I am hoping someone can help me ... I had an expander placed at the same time as my mastectomy almost five years ago in September, 2010. I live in an extremely remote, very hot (average 90 F or 36 C daily temperature) area which has no cancer treatment available and have been traveling 3,500 kms. to see my oncologist every six months. I never had the gradual expansion performed, but had my large breasts replaced with one much smaller expander, and the other, non-cancerous side, reduced to more or less match. The silicone side hurt for over two years, but the specialist said this is normal. I have never comfortably been able to wear a bra for more than an hour ... About two months ago, I had a red area in my left armpit which I thought was due to a problem with my deoderant. But, since then, the area under my implant (the fatty part which goes to the armpit) is quite swollen. I have had this problem before, but it has always been only for a few days. Not this time ...

    Could this swelling be fat or a lymphedema problem because it is even hotter than usual or more cancer? Has anyone else ever had anything like this or has problems wearing a bra? I am very worried, but have to wait until September to see my dr. ... My right side (the reduced, non-cancerous side) is fine ... I am trying not to worry, but it is difficult ... And I am seriously considering having the implant removed ...

  • BigSister-2015
    BigSister-2015 Member Posts: 342
    edited August 2015

    It is likely a seroma (collection of fluid) and since it is not resolving and is red, it could be infected. If you develop a fever, chills, increases heart rate or respirations, you will need to get help. An infected implant can lead to sepsis, so that can't wait.

    If the implant is giving you such grief, you may want to get it removed. If you still want reconstruction, a flap might be a better option for you, or you can go with a prosthetic.

    I am recovering from my second infection, so Iam waiting for better healing to try again. In the meantime I am going to give a prosthesis a try.

  • SoLinda
    SoLinda Member Posts: 120
    edited August 2015

    teacherjp - thank you so much for your reply! The red actually went away after two days of the swelling. The swelling seems to have gone down a bit and doesn't hurt. It seems to go down a bit more after I swim a little. I think you are right about me having the implant removed ... after 5 years of being uncomfortable, perhaps it is time. I had no idea about the possibility of sepsis!!!!!!! Nothing is explained here and the surgery happened so quickly and without my opinion. I am scheduled to see the mastologist and oncologist on the 2nd of September and will have my annual scans and breast ultrasound on the 28th of this month. I wish that five years ago when I had the mastectomy and reduction of other breast that they would just have removed them both! It is way too hot here to have uncomfortable boobs of any kind! Thanks again and all the best!

  • Mamaseeta
    Mamaseeta Member Posts: 13
    edited August 2015

    teacherjp ...so sorry it's been so long since I've been on here, but this is where my doctor sent me. They faxed the prescription over there before I went in and got the ok from my insurance first..

    http://horizonprosthetics.com/

    I'm in Colorado, so I don't know if this place has other offices. By the way, I'm still feeling great and getting better every day. Still fighting the later afternoon fatigue left over from chemo, but that is getting better too. I just passed the one year anniversary of my diagnosis on Aug 4. The one year anniversary of my bilateral surgery is coming up on Aug 26. Thanking God for life and modern medicine.

    Still leaning towards NOT doing the reconstruction.


Categories