Spring 2015 Radiation Sisters
Comments
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Had my last session today--all done! It is a good feeling. Congrats to all of you out there who just finished or will finish very soon. I am one of the lucky ones who had few side effects. Used only cornstarch and a bit of cortisone (last week only) and my skin did okay. Pretty red but not very sore or itchy. I'm sorry some of you had it so much worse! I have been sleepier than usual but feel SO much better than I did when I finished chemo. Was able to take a 5 mile hike on Sunday without feeling completely wiped out. That's progress! Hoping that once I start the aromasin I won't suffer too much from joint pain. Guess that will be another chapter...
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Congrats on finishing Farmdau56! It's a good feeling, isn't it? I'm glad you didn't suffer too many side effects. Have a great weekend.
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Marksgirl - I excerised the whole time except for the last week when I couldn't bring myself to have any friction on my side under my armpit. Perhaps I lasted longer than others as I had my radiation on the mastectomy side where I don't have reconstruction yet. The exercising regularly helped me not have any fatigue at all which I'm grateful for.
I'm now 11 days since I finished and it was a couple of days ago that my skin finally stopped being sore. It has peeled (still a bit more peeling to go) but the itchiness has subsided and the skin is not sore to the touch anymore. For a while I was exercising with just my old sports bra and going flat on one side because it was too tender to have anything on that part of my chest but the last few days I've had a bathing/shower puff in my Handful bra and now my swimming form and the pressure on the chest doesn't bother me at all. Progress! It just takes some time and I'm looking forward to going out and buying another sports bra that will get me through the summer and fall that I can wear a form in.
Have a great weekend, everyone!
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great to hear
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Congratulations to the finishers!
I have 2 left. Very ready to be done, as is everyone, I know. I have nasty red skin on my upper chest, but it does seem to be starting to heal now that I'm into the boosts.
My arm has had varying degrees of tenderness all throughout this. I noticed some more possible signs of lymphedema this morning, so I'm elevating the arm more and will be asking for a referral to a PT next week, I guess.
Have a great Memorial Day weekend, everyone!
Lisa
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CONGRATS on finishing, I have 9 more to go and getting the rash and etc.., are you still tired?
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Congrats on everyone just finishing! I'm a little over three weeks out and the fatigue has improved immensely. I still have some discoloration and mottled looking skin at the boost site. But everything else is looking back to normal.
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Hi Everyone, I finished on Wednesday, yay! Just 3 areas where the skin is peeling and itchy. Otherwise doing well. Hope all are enjoying the weekend
Cherice
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Thank you for the hope I can stay active Tapanga! All the way to the end! Congrats on finishing!!!!! I am so mad about the sudden weight gain with my last chemo. My liver enzymes tripled and I puffed up with hives so I hope it all comes back down. But I am so thankful that activity helped your fatigue and that you did it!!! Keep healing!Jenny
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Marks, I gained 15 lbs during chemo which I found out was the norm. My PA , who I LOVE kept saying give it 2 months after chemo: sure enough: all gone, thank goodness. It really is only temporary, but I know how you feel! It will drop off: give your body time to get rid of everything.
Anyone else still have a sensitive stomach since chemo?
Kath
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I finished my 15 rads a week ago. In New Zealand, I have never heard of anyone getting Boosts - mine were all the same.
After the first week, I noticed I was getting a good crop of freckles on areas which had never seen the sun! (My remaining boob remains pasty-white). Then the itchies hit after about half way through. I was given Hydrocortisone cream and moisturiser. Towards the end, my underarm scar was starting to widen/stretch, and is now about half an inch wide (but still intact). It started to sting and ache, so I was given some Flamazine silver cream for when it starts to open up. It is by far the darkest area, and definitely the one to watch.
I was told that for the 2 weeks after treatment finished I would continue to burn with skin breakdown etc, so it's going to get worse before it gets better. I'm not looking forward to the next few weeks.The cream is good for the itchies, but the ache under my arm is starting to ramp up, possibly partly from having that arm up at full stretch above my head for every session. I will probably start to hunt out some pain relief soon.
Unfortunately any bra would grip me there, so I am going bra-less at the moment. Does anyone have any advise on how to support the other boob, which is suffering from "hanging about" loose? No running for this girl! Thankfully, the Southern hemisphere is heading into winter, so lots of bulky jumpers to hide under - not too good for the Tamoxifen hot flashes though!
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suems,
Glad to hear you're done, but I have felt your pain. I, too, gave up the bra for awhile. Since I had a lumpectomy, my situation was somewhat different than yours (mastectomy of the right breast). I just wore loose T-shirts and put things over them like cardigans. Lots of layered looks and some soft camis. Hope you feel better soon!
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I know everyone is different but I'm going into my 3d week of rads. When has anyone started seeing and any side effects from it??
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speace- I did not get any side effects until after my rads were over. I had 21, and 5 boosts. I never got more than pink during the last week of rads. I did get a few blisters in my armpit about 5 days after the rads ended. Then a small area between my breasts got red and sore. I had my rads laying on my stomach. Unfortunately, we are all different, treatments are specific to our diagnosis, so we all have different side effects. I did use calendula 3 times a day, and moisturizer twice a day. Good luck, and I hope you get through the rads with no side effects.
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I have been done with rads for 5 weeks, and I my breast is still a little warm. I did not get any warmth until about 10 days after the rads, but I did get a skin infection, which they are not sure if it was related to the rads, or just my immune system.( I have Crohns disease and have been on Imuran ( chemo drug) for 13 years,and I went right back on it right after chemo.) So, I am wondering if anyone still has warmth in their breast after being done with rads for 5 weeks? I didn't have any warmth during the rads, only had a little bit of pink skin. I did 21, and 5 boosts, laying on my stomach. Thanks, so glad to be done with all of the treatments.
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Thankyou for your info, I guess it will be a wait and see aproach.
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I am over 4 weeks out and sill a bit warm and occasionally tender. Skin is fine. Love, Jean
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a few days out and peeling. Did any one get some brown spots? I am hoping those peel off
Did anyone go to their dermatologist after things healed to determine if there was anything cancerous from rads?
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Florida, since I've had skin cancer in the past, I have a dermatologist appointment scheduled for a full body skin check. Love, Jean
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hi, Im new to this, on line support stuff, Im having my simulation this Friday ad will start as soon as Radiologist says "go". I finished chemo two weeks ago and am feeing anxious and sad, anyone identify? thanks -
Radiation goes by fast- the first few times are a little scary , it does not hurt but it's looking at the machines and etc.. once you do simulation and do one treatment, I promise you will be fine! It has become a daily routine for me and it is not scary anymore- you are not on the table for long, I am for 3 minutes- stay positive and think good thoughts while you are on the table and you will be fine!!! Good Luck and best wishes- before you blink it will be over!
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thanks for the advice. -
lmoore4, stay strong, and please let us know how you are doing! You've got a huge group here who knows how you feel!
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I am new to the discussion boards, but I am done with 18 of 33 treatments. The most troublesome part to me so far has been a pretty bad sore throat (painful to eat) and the crushing fatigue. It's almost (ALMOST) worse than chemo fatigue. I have young kids and inevitably end up getting my tender skin pinched when I am carrying the 1 year old, but so far my skin has held up well. Anyone find a way to make the sore throat/painful swallowing any better? And has anyone started having insomnia despite the fatigue? I might have to start using my leftover Ativan again at this rate.
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Dear MamaBearMO,
Welcome to the BCO community. We are sorry to hear about the symptoms/side effects you are having but glad that you reached out here. We hope you will keep us posted and stay connected. Here is some information on our website about Insomnia. We know that others will have support and information to share as well. The Mods
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Mamabear. Sorry you are having the sore throat / swallow issue. I started to experience the same thing after about my 6th or 7th treatment. They said it was because my rad field was high up on clavicle and close to throat area. They prescribed something called - First MouthwashBLM which contains some sort of numbing agent. Looks like pepto bismol. You have to gargle with it first and the swallow. Truthfully it only helped very minimally. I just had to chew food until it practically melted in mouth - otherwise it hurt a lot going down. I also switched to softer foods. My RO said I wouldn't have any permanent damage and it would get better once I finished. I finished my 19th treatment today and actually my throat isn't as bad as it was 2 weeks ago, so maybe yours will get better soon too. Sending hugs, Candy
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I am in the Summer Rads group and go in for my simulation tomorrow. I'm wondering if most of you ladies are experiencing serious fatigue. I'm seeing most of the complaints are about skin issues rather than the fatigue part, but my chemo nurse went on and on today about how terrible it can be.
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Hi Molly,
I got very tired towards the end of my 3 weeks, but had trouble getting to sleep - a combination of fatigue and insomnia is no fun, but my RadOnc gave me some sleeping pills to get me through. Did your chemo nurse tell you about the "tired but can't sleep" combo? Apparently quite common. Part of it may have been living 250Km away from home in a patient accommodation facility with a hard single bed, but I still needed the pills for a few days after I got home. I still wake up in the night (due to the burn), but I feel fine during the day now.
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Molly,
I had some fatigue from rads, but it wasn't "serious fatigue." I see you also had Taxol; I don't think the fatigue was any worse from rads than what I experienced while doing Taxol.
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I am one week out from rads and feel like fatigue is really setting in now. Even though baby sleeping better I still need to nap when he does during day and go to bed at 9pm!!
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