PET scan

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Proverbs35678
Proverbs35678 Member Posts: 14
edited May 2015 in Diagnosed and Waiting for Test Results

My diagnosis is very new and so much has happened so fast. I had a CT scan and bone scan before my recent lumpectomy that both came back clear except for what they originally believed to be small cysts on my liver. However, once 4 nodes tested positive, they have ordered a PET scan to further evaluate what they still claim to believe are benign cysts on my liver. Has anyone else had this happen? Is this normal? Any involvement of the liver has me extremely anxious. :(

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  • Beachbum1023
    Beachbum1023 Member Posts: 1,417
    edited May 2015

    Proverbs35678, I have been through about the same. I had the CT, bone scan, then PET. But it all worked out well, and I am done with chemo, surgery, and rads. The more info the better I think. I always want to know what I am dealing with and what is coming next. Right now, I am stable and have the summer off until after Labor Day. And thankful for the break, best not to borrow trouble. Good Luck! Cheryl

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  • Proverbs35678
    Proverbs35678 Member Posts: 14
    edited May 2015

    Thank you, Cheryl. It just worried me a little that they weren't concerned at all about the spots on my liver when the CT initially came back. Then, after surgery and discovering positive nodes, they ordered the PET scan. You're right, though...no need in borrowing trouble! I have been to the doctor more in one month than in my previous 36 years...so it's taking some getting used to. Thank you for responding. So glad to hear you are stable and getting a break

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  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited May 2015

    Yes, I'd say it's normal. They want to see if you "light up" anywhere else. It could make a difference in the type of treatment.

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  • lauren32
    lauren32 Member Posts: 46
    edited May 2015

    Hi There

    I was 32 when diagnosed last year and had a similar experience I have two tiny lesions on my liver that they picked up on mri. The one they can see on ultra sound. My oncologist was pretty sure they were benign but it's resulted in two mri scans two ultra sounds and two pet scans oh my u start to really feel like a science project! Hoping for benign results for u too which I'm sure they will be!

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  • Moderators
    Moderators Member Posts: 25,912
    edited May 2015

    Hi Proverbs,

    No words of advice. We just wanted to say welcome and please keep us posted on what you find out! We're sending all our positive thoughts your way.

    --The Mods

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  • Proverbs35678
    Proverbs35678 Member Posts: 14
    edited May 2015

    Thank you so much. That makes me feel a lot better! They moved the PET scan up to tomorrow so I will be glad to get that over with! Thank you for your encouragement

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  • Kicks
    Kicks Member Posts: 4,131
    edited May 2015

    I know nothing about spots on liver but I do know that not everything that 'lights up' on a PET is not cancer. It can/will 'light up' on any inflammation. On my PET before TX, an area along my lower right jaw 'lit up'. The area was biopsied that afternoon, got the path. report the next morning - nothing there. That was almost 6 yes ago (Aug '09) and still no issue in the area.

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  • Proverbs35678
    Proverbs35678 Member Posts: 14
    edited May 2015

    Thanks for this information, Kicks! That is good to know. This is the last of my big "scans" pre-treatment...and I'm very anxious about it. Maybe your post will help me not to panic if something does look suspicious. Thank you

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  • Proverbs35678
    Proverbs35678 Member Posts: 14
    edited May 2015

    Pet scan looked ok! Praise the Lord! Thank you for all the advice and kind words

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  • lauren32
    lauren32 Member Posts: 46
    edited May 2015

    so glad to hear that!

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  • Moderators
    Moderators Member Posts: 25,912
    edited May 2015

    Wonderful news Proverb! Enjoy the peace of mind :)

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