Having a scan? Waiting on results? The waiting room is open!

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  • Shutterbug73
    Shutterbug73 Member Posts: 791
    edited May 2015

    Thanks Boo! That's fantastic news Amy! Enjoy the rest of your weekend!

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  • annieoakley
    annieoakley Member Posts: 870
    edited May 2015

    nbnotes and Boo123, I am happy for your good results, lots to be grateful for.

    Leah, yay to the lower tumor markers!

    AmyJM,  wow so happy for you, enjoy the weekend with your good news.

    Shutterbug73,  enjoy your birthday and visit with your mom and aunt. Praying when you look at your results they're all good!

    Hugs to all, Annie



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  • GoldenGirls
    GoldenGirls Member Posts: 608
    edited May 2015

    Scanxiety time here again. My mom had her CT last month because of bad pain in her buttock, groin, and upper thigh that seems to come and go every few weeks and it showed she was stable. Since her pain has been a better indicator of bone mets progression in the past than her scans, the onc sent her for an MRI last week. We get the results Monday. Not sure what to expect. Her pain lasts for about 10 days, disappears completely for 3 weeks or so and then comes back. We keep telling her to take it easy to see if her activity is what's causing the pain and she's good for a couple of weeks and then gets cocky because she feels good and then goes and over does it again! This bout of pain started the day after some gardening and washing her car inside and out. Her bone mets are widespread but the most damage seems to be in the pelvis and lower back. Thinking the damage and her being too active since the weather's gotten better is responsible for her pain, but one never knows. Anyway, all prayers and good vibes welcome! Feel free to cross some fingers and toes too!

    Hugs from Canada :)

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  • kt1966
    kt1966 Member Posts: 1,326
    edited May 2015

    Just had my CT. Dr comes out & says I have another pleural effusion which needs to be drained, but it can wait till tomorrow when I see the onc. So here I go again.

    I hope a new regimen can stop effusions developing in the first place.

    Goldengirls, I hope your mum remains stable.

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  • Shutterbug73
    Shutterbug73 Member Posts: 791
    edited May 2015

    Thanks for the birthday wishes! We had a great day. I just now took a peek at my TMs...still low. Whew! As a bonus my platelets are back up and my hematocrit is just shy of normal. Both have been slow to rebound after chemo. I think my doctor will be pleased. I'm going to have to learn to ignore these little bone twinges in my spine, I guess. I probably shouldn't worry about any pain that doesn't last...but it's hard not to. I was blindsided once, I want to be ready next time. Anyway, I made it to 42, so onward to 43!

    Hoping your mom's results are good Goldengirls. I do think it is hard to learn your limits when dealing with this disease. I know for me it all came on so sudden. I went from being able to work in the yard non-stop all day to only being able to work an hour or two. It takes some getting used to.

    kt - sorry to hear about your PE. Fingers crossed that your new regimen does the trick!


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  • terri-c
    terri-c Member Posts: 180
    edited May 2015

    Marie - don't sweat the pneumonitis, I had it after rads and it cleared up in a couple of months.

    Congrats to all with good results, so happy for you all!!

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  • Leah_S
    Leah_S Member Posts: 8,458
    edited May 2015

    Amy, so glad to hear your good results!

    Shutterbug, the TMs were the best birthday present.

    Golden, hope your mother continues stable. I can understand her dilemma - who want to sit around and do nothing?

    Leah

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited May 2015

    Shutterbug & Amy - glad for your good news & happy birthday Shutterbug!

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  • kt1966
    kt1966 Member Posts: 1,326
    edited May 2015

    Back from onc. Looks like I'll be moving on to taxol weekly, but have to have a port put in first. I'm in the queue, so not sure when.

    They took an X-ray & decided the effusion didn't need draining today, but did talk about possibly doing pleurodesis (talc). Not keen, so we'll see... Had my aredia infusion so all done for now.

    Sad to be moving on from xeloda, it was convenient, but I guess it wasn't working as well as it should have.

    Thanks for all your well wishes & thoughts. & happy re the good news some of you are getting :)

    kt

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  • susan_02143
    susan_02143 Member Posts: 7,209
    edited May 2015

    MRI today to get a better picture of the "shadows" seen on the PET last month on my liver. We know that the bone now has mets.... now I wait to see if it has also moved into my liver. Tech blew that one good vein today. My arm is so bruised. Results on Thursday. <drama> And this decides what my life looks like going forward.</drama>

    Pulling up a chair to wait the 48 hrs it takes to get the results.

    *susan*

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  • 208sandy
    208sandy Member Posts: 2,610
    edited May 2015

    Susan - waiting with you.....

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  • Tina2
    Tina2 Member Posts: 2,943
    edited May 2015

    Susan,

    I'm still by your side. Yes, it was a bit squinched with you and I together in the MRI tunnel, but there's a lot more room out here.

    Show tune du jour: "You'll Never Get Away From Me," from "Gypsy."

    Hanging in with you,

    Tina

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  • Kjones13
    Kjones13 Member Posts: 1,520
    edited May 2015

    my pre-scan anxiety is creeping in. I think a big reason is that I can't have any bad news or my mom is going to broughton (a state run mental institution). Her father passed away in oct and her mother passed away about 24 hrs ago. Very sudden. Shocking. I have to have good news for her!!! Please say a little prayer for her. Scan is Wednesday and meet with doc later in the day. I do love my same day results.

    Prayers for all of us!

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  • susan_02143
    susan_02143 Member Posts: 7,209
    edited May 2015

    I have posted this elsewhere, but I should probably finish my story here as well. Results show no liver mets. Whatever the PET scan saw is not there on the MRI, and in this case, the MRI wins. However, the MRI found two new mets, L3 and L5, on the spine which popped up during my great Window of Opportunity tour. [Absolutely no regrets on the trip.]

    Dr. Christina then gave me a choice of starting a different non-chemo line of treatment: femara with Ibrance, leaving Xeloda for another day. I absolutely chose this option. Have started the femara, and am waiting for the approval/arrival of the Ibrance. I have high hopes for this combination, assuming my blood counts can withstand the drug.

    Still need to figure out when/if it is the right time to stop working. As a sole proprietor there are no leaves, STD, etc, and my clients pay me to solve problems so I need to be sharp and available. Training/advising a replacement will take time and effort. I love what I do, so am really reluctant to give up the income and stimulation. But, that is for another day.

    *susan*

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  • annieoakley
    annieoakley Member Posts: 870
    edited May 2015

    Kt1966, praying taxol is a gentle treatment for you and works some magic! Sorry about the effusion, hope they can get that under control.

    Kjones13, praying for good news for you and praying for your mom too.

    susan, so happy to hear there are no liver mets but sorry about the new mets on L3 and L5. Praying your new combo brings regression to all of your mets.

    Hugs to all, Annie

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  • kt1966
    kt1966 Member Posts: 1,326
    edited May 2015

    Thanks, Annie. I'm off to hospital today for pleurodesis. Don't want to go but my onc says its best to. I hope it sorts my lung out. I start taxol on the 17th- unless I change my mind and go for taxotere (but I hear it's harder)

    I hope the new treatment does the trick Susan, so glad you got your trip in.

    Will be thinking of you for your scan Kjones & hoping for good results for you.

    Here's to good results for all of us, I hope NED is just around the corner...

    kt


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  • Momonana6
    Momonana6 Member Posts: 186
    edited June 2015

    Exbrnxgrl, Glad to hop on ...thanks for providing this waiting room. BAck to scans tomorrow AM.....down goes the Redirect-Cat gunk tonite and early in the AM. Some conversation re past CT two months ago re lung so hopefully no significant change there but the waiting is a BEAR! Thnx again for having a place for the scansiety. Hope that your results show a good response to Tx. Pegg

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  • annieoakley
    annieoakley Member Posts: 870
    edited June 2015

    Pegg, sending all my positive thoughts and energy your way for tomorrow's scan! Praying for the best results possible! Yes the waiting is brutal for sure. 

    Kt1966,  thinking of you, how did the pleurodesis go? I'm praying for healing and that this never comes back for you. (((Hugs)))

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  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited June 2015
    Hi pegg,
    Welcome to our waiting room. We have the comfiest couches, the best snacks and anything else you might want to alleviate scanxiety (ah, if it were only that easy). Yes, waiting is the worst. I'm alright ahead of time but waiting for results raises the roof on my anxiety. I'm about to move to annual scans, which, of course,creates a whole different type of anxiety. It's always something, isn't it?
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  • Momonana6
    Momonana6 Member Posts: 186
    edited June 2015

    KT1966, Sorry that you have a pleural effusion. About two years ago, when I was dxd stage 4 with my pleural effusion..mets to the lung the chest surgeon did a VATS procedure with talc pleurodesis. A modified way to access the pleural space and drain and then stabilize the lung pleura back in position close to the rib wall. This diminishes the.recurrence of.pleural space filling with fluid. You may have had this done before. I had little pain with this procedure and so far ..so good. I wish you the best. Peggy

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  • Momonana6
    Momonana6 Member Posts: 186
    edited June 2015

    Thanks for the welcome Exbrnxgrl..finished my gallon of pink gunk for tonite....more for 6AM. This is a great help....thanks! Pegg

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  • Momonana6
    Momonana6 Member Posts: 186
    edited June 2015

    Thanks Annie, ..Feeling sorry for all who are doing the waiting game today but praying for that hopeful..."Stable". Hugs, Peggy


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  • annieoakley
    annieoakley Member Posts: 870
    edited June 2015

    Hey Pegg, best of luck today and praying for even better than stable for you and anyone else doing the waiting game. Hugs, Annie

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  • LindaE54
    LindaE54 Member Posts: 2,054
    edited June 2015

    Peg and all of you in the waiting room, best wishes to you all.

    I posted on the bone mets thread but I will here too. Had my results of bone scan and CT last week and all is stable and very grateful.

    Linda

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  • chris1959
    chris1959 Member Posts: 1,121
    edited June 2015

    my dear sisters I haven't been on hear in awhile and I apologies I have been so busy with Dr appointments etc . I had my scans and my cancer is actually doing good ight now .the spots in y over are gone , and some of my one tumors are hiking .but I did find out i have a broken clavicle which I have o idea how but that's why y arm has een in tremendous pain and still have not found out why y pelvic ea is hurting .so im seeing an orthopedic Dr this week and will get an mri of my pelvic area . I have. No idea what they will do about my broken clavicle .I will keep you informed .love chris
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  • kt1966
    kt1966 Member Posts: 1,326
    edited June 2015

    Thanks Peggy & Annie. I've had the pleurodesis, just as you described, Peggy.

    I'm feeling ok, have a pain pump as breathing is a bit painful. And a chest drain. Will be here for a few days- I hope it works. I'm very tired now.

    Hang in there those of you waiting for scan results. I hope they're good.

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  • LindaE54
    LindaE54 Member Posts: 2,054
    edited June 2015

    Chriss - It's nice to hear from you. Good to hear it's not cancer related although all the pain you're going through is crap. That clavicle must be painful. Good luck with the Ortho.

    kt1966 - Rest as much as you can and sending you healing vibes.

    Linda

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  • bama351
    bama351 Member Posts: 42
    edited June 2015

    I had a PET and MRI done Friday to check out how my 8 rounds of chemo worked. I'll see the doctor and get the results on Wednesday.

    I had a PET done after 5 treatments (was supposed to be done after 4 but the doctor forgot and when i reminded him it was after the 5th already) and it showed significant improvement everywhere. AC worked wonderfully for me so I'm hopeful that taxotere, taxol, and abraxane did as well. I did all three because I had reactions with the first two.


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  • Momonana6
    Momonana6 Member Posts: 186
    edited June 2015

    KT1966, Sending you very best thoughts on a smooth recovery. You will feel much better in a few days. Gentle hugs. Peggy

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  • Momonana6
    Momonana6 Member Posts: 186
    edited June 2015

    Well ladies The news is "stable" in the lung fields and all is quiet among the bones....good news! Fortunately heart is strong with a good maintaining ejection to allow Herceptin to continue..YESSS! Herceptin has been on board since my current dx 2yrs ago. Thank you God! I hope that you all have had scans that are also able to direct to a really good tx. Hugs all. Peggy


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