Stage 2-recurrance percentage % risk?

thanks kayb. It weighed on me for a while, but after all my research, I'm comfortable with my decision.

little bit, so glad for you. My bs did the same exact thing, then onc ordered it, which of course we had to wait longer

Hi Everyone,

I wondering if anyone here is doing anything to boost their immune system. As the radiation and hormonal therapy can decrease it. I am wondering what I should be doing. I take turkey tail mushroom capsules that are supposed to stimulate production of helper T cells. But wondering what else I should be doing. In light of the Cambridge university you tube video about T cells attacking rogue cancer cells I'm thinking we all prob all need as much help with that as well keeping the hormones away if it was a hormone positive tumor. My oconotype was 18 so borderline of low and intermediate risk. MO said after she entered all the details into the data bank it said less than 4 % chance of reoccurrence. But we all know that we don't want to be in the 4% . So it's interesting to me to learn what others do as part of their changing health regime. I'm still really fearful and having trouble moving on with my life.

Thanks you guys for being here!

Thanks, Snowgirl! I will check it out on Amazon now.

My stats are similar to yours. I was told 9% recurrence with chemo, 12% without - my Oncotype is 19. I wonder about the disparity. My cancer was 2.5 cm.

Truly tail or turkey tail?

I think with grade 3 and a node chemo would be recommended so if the test came back low wouldn't that just make things more complicated. ?

Hi Jilly, I'm not sure why the difference, the MO said the chemo would work on my tumor so there must be more info about the tumor I don't know about and I forgot to ask for my report

And sorry for the typo but yea turkey tail mushroom!

Maybe she just said that's what my says are because she didn't want to dishearten me I think it's my nursing background that makes them not say too much to me. They say my tumor was caught just after cell division so probably half the size the day before I found it. When they explained how the cells multiply that totally made sense. The surgeon said he could tell by looking at it that is was very slow growing tumor as well. I don't know how they come up with the U.S. I think Rey all use the same scoring guidelines both in U.S. and in Canada but my Mo is from the U.S. originally and she came her to help build the treatment program. Apparently from everyone I talk to she is the best and most aggressive at treatment but kindest person I wish everyone had the opportunity to be in her care.

I'm trying to just think about my immune system now as being the thing in my toolbox that needs to be optimum along side the letrozole.oh also I was premenopausal and get the Lupron injections and had offer to get ovaries removed so that's happening too.

I think not letting our immune system get low is key with these meds because no matter what if your immune system shuts down then it open the door for any disease to enter. So my research for myself is heading in that direction these days.

Teresa

Hey thinking positive girl.

You can still have it done! I asked and my MO was impressed that on my first appointment I already new what to ask for cause they had decided chemo regime and she looked at my pathology report and said I qualified bases on node negative an hormone +. And her2- so they sent it away.. She called me at home at night as soon as the report came through to say no chemo for me. I think she was just as surprised as me. And then she said it totally changes the stats too so that gives you a boost. And who knows what the score will mean for your future it may just make the difference if you or I have a reoccurance and what out treatment looks like. Totally ask beg whatever to find ourselves.

Teresa

Hi Fe Princess,

Your mushroom immune booster is pricey...so I will stick with mine plus our regulations in Canada are a little different and I have more trust in the Canadian product. It grows naturally in my area so j could go pick it and dry it out if I wanted to but dosing would be a problem I think. The turkey tail is actually a fungi and called coriolus versicolour. And thus names turkey tail cause it looks like the fan of the tail of a turkey. They use billions of this in Japan and have good rebate offers when you buy so many get one free.

The bottle of 90 capsules comes Ina box with a booklet inside to give tons of info. It was recommended to me by a friend and I'm sticking to.i take two capsules twice a day

Thank you for putting your regime up mine is the same as yours except I have the turkey tail instead. That's so cool others doing same thing!

Also I eat hormone free antibiotic free chicken or occasional beef. No milk butter or cheese even though in Canada it isn't allowed in our milk products but I'm allergic to the protein in cows milk anyway and I drink organic soya milk. Studies say it good for the hormone +ca...so I'm not worried about it.

Any other diet ideas welcomed cause I need to lose weight now!

Teresa

Hi Snowgirl, they are pricey. It would be great to have them in my backyard! I am moving to Switzerland next month so I will be changing my regimen I am sure.

On another note, my MO called yesterday to tell me that my Oncotype was in the low risk range. She didn't leave the actual number but it's got to be under 18 so that is some good news.

Hello everyone, my MO called today and gave me my Oncotype score. I am at 15 which gives me a 9% recurrence rate, so for now No Chemo!

🎉Yeah Fe Princess, that's awesome news! 🎉

I can't believe your onc told you oncotype doesn't apply to stage two. That is crazy!! So glad your score is low. Mine was 15 too!!

If you don't need chemo, that is great. But if you do; it is not as bad as you might imagine AND it really, truly can save your life. I wasn't thrilled about it at the time; but looking back, having done chemo (as recommended by my oncologist) gives me great peace of mind.