TRIPLE POSITIVE GROUP

Ashla-thank you!

And Tomboy--play with your toys, paint, and create.

I am feeling so much better due to decreasing stress. The pain and crappola remain--but the decreased stress helps so much. I am actually hoping to start sewing again. Maybe this weekend!

fluffqueen -- my Mom can drive me crazy, too. Yours sounds a little passive-aggressive; mine is the same! Ugh.

Since I've started on an AI, I will be having a dexa scan soon to determine a baseline re: bone density. Can anyone explain to me what that entails? Does it take very long? Now that the kids are getting out of school, I have to think about setting up childcare for my medical appointments.

I love my mom, but she sure can make it tough. On Mother's Day, the family was here and talking about my sons upcoming weddin. His fiancé, whom we love, was sitting there when mom asked what the colors were. Mandy says deep purple, and my mom proceeds to say she hates purple. Seriously. I did call her out on that one, told her it was rude and not her wedding. Fortunately Mandy has seen her in action before so nothing really new.

For the dexascan scan, I didn't even have to take off my clothes

has anyone found out what causes the hercepton receptor? Since this is a protein, if you consume more protein, does this affect the receptor? I have been wondering about this recently, or is it something your body produces regardless?

Jerseygirl, you should get yourself the most up to date "Dr. Susan Love's Breast Book", that you can find and read it. You will learn so much, and I really like that she doesn't talk as if she has an audience of third graders. It's that good. Your library should have it, but I really want to get my own hard copy, to mark up the pages!

Hi, New here. just had my second chemo a week ago. (TCHP). The SE are really kicking my butt and I feel like I have a pharmacy at home now. Having IBS also I am trying to quit the cramping that chemo has triggered. Not eating much, as it causes cramps. Just started Bentl last night. Also have been taking Norco for headaches, gas-x, culturelle, Zofran and lomotil. It's a beautiful weekend but don't have enough energy to enjoy it. So tired of being sick and tired.

Welcome Ohi. So sorry you need to join--but you are in the best place for information, advice, love, and friends. When I joined summer 2012 one of the best pieces of advice I received from someone on the BC site was to find the groups that pertained to my needs. I found the chemo group that started the month I did (July 2012), I found the rads group for my month, I found this group, then the oral meds group. I found interest groups also--but I am not active anymore on those--foods, children, books, etc. This group and my chemo group were my lifesavers. I have made life long friends-someday my UK sister in chemo and therapy and love and I will meet.

You can say and ask anything here. Really. We talk about poop and pee and 'rhhoids and vomit and significant (or semi-significant or ex husbands from the 8th circle of hell) others. We worry when someone doesn't post for a bit.

Side-effects suck big green weinies. What works for one person may not work for you--but ask and you will have many answers. I have IBS also--adds to the diarrea for sure. Then--the constipation from narcotics on top of IBS constipation--then the 'rhhoids. I tried Bentyl years ago and did not have success. I know it worked for others though.

Ask your questions. Share your fears. Some or many on the board will have experience. And we have a couple members that provide more medical education on treatments than anyone I have ever met. This is a group of wonderful supportive women.

susan

Ohiotripleplus-  Sorry that you are having such a rough time.  What part of Ohio are you from? I live in Solon Ohio. I had all my treatments at University Hospital Seidman Cancer . I am 3 1/2 years out with NED.. Hang in there it all worth it..Stay hydrated it helps..

Ohio,, welcome: I had pretty bad SE that first week, wanted to die, but I have hung in and learned to not OVERDO and to HYDRATE the day before, day of and keep drinking. Have had almost every SE you could get, and really want to quit, it sucks big time. Tonight I found blood in the urine which I have complained about now for several weeks, but they seem to ignore it, so Monday I may complain or wait till Tuesday because this is probably a kidney stone, no more pain in back so maybe it's gone or I have bigger issues? In the meantime, benedryl keeps me asleep thru the night except when emptying the kidneys. Eyes are weepy from herceptin, so try to figure which side effect comes after which drugs you get, that helps me. Ask when you can and look back thru some of the responses for feed back.... Feel better gals.

Hi Ladies ... Hope everyone is doing as well as possible ... I had a bone scan done last Thursday.... My oncologist said to wait until after taxol was finished, but my family doctor said to do it and her office made the appointment. I am 60 and have never had one. I was suppose to be getting one every 2 years after my last period. The last one was long ago after the lining of my uterus was lazored out due to heavy bleeding. At least now I have something to compare the next scan to. The oncologist ordered a MRI with and without contrast on my brain ( having it done Tuesday). He said what is going on is not chemo brain. I think I'm allergic to taxol or what it is mixed with. While I was having my last treatment ( I have 8 more) my brain went blank several times. It felt so strange and scary. I have been having neurothopy in my feet, legs , hands and face. He said he has never seen it in the face before. But I read it could happen in face too.... Everyday it seems like something different happens to this old body. My blood counts are still so low... Neutrophils count was 1.4 after 2 Neupogen shots. Now they say I have 3 again after the next treatment if there is one. The oncologist will decide after the MRI if the treatment plans will change. There is an end to this journey one day.

I had some neuropathy at the tip of my nose and around my mouth beginning round 5. It wasn't noticable all the time, it would come and go. I'm 7 months pfc and it is gone.

debiann - I do not have any testing for hormones - but I had a total hyst/ooph nine years before treatment.  Don't know if that makes any difference.  I think some of those who post here may have had tests done to determine if they were menopausal, but don't know if they have had continued testing done.

I have results the next day and my blood work results the same day it's a great thing and not so great at times when I received my pet scan results radiologist said it was all clear except my liver had a small spot with a slightly higher uptake I was so worried about it until I spoke with both my doctors who said it wasn't an issue.

Mine is called mychart I have an app on my phone it's awesome all my appointments test results medications are on it and I can even message my dr through it I actually called my drs after I received my results to discuss it with them

Mine is a major cancer center, (NCCN), and they have EHRS, but- all it shows is who my doctors are, what meds I am on, and when my next appts are. As part of the deal for "having access", well, then they are not considered part of your protected health information anymore, and I would have to sign saying I agreed with/knew that. So I refused, because it didnt have Any cloinic notes, path reports, nothing really 'interesting', just the basic stuff I knew by heart. So I just pick up results from the previous time when I am there the next time. If they could promise to safeguard and actually have more info on my patient portal, I might consider it. Luckily, it doesnt take long at med recs to get stuff. She knows me by sight there now! My friend who goes to VA has excellent EHRS there, I am kinda jealous.