I've lost my joy.
Somewhere between the ooophorectomy and starting Femara my joy has been lost. It seems I just slog through each day. The only thing I look forward to is going to bed so I don't have to face the day. I am on alert for depression but even though awareness is helpful I just can't seem to climb out of it right now. I know time is going to help, but you know what ladies - I think I really need my estrogen. My joy left town with it and they are both long gone. Sucks. Just putting that out in the universe. I'll continue slogging. Record rainfall and gray days haven't helped. Come on sunshine! Thanks for listening!
Comments
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O farmerLucy! Big hug! I am right there with you! Estrogen is the happy hormone for me too! Bedtime is a desired state for me too. What I do now, is if there is ANYTHING that makes me a little happier, I do it with all my might. I am kind of doing some odd things. I am building a doll house, and playing with dolls... weird... I never really did when I was a kid. I am cleaning the hell out of my house, getting rid of all unecessary clogginesses. I think i mispelled something there. I am watching a LOT of movies, reading, walking. Kind of making myself a kinder gentler world.. it helps.. as do pharmaceuticals..
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Oh thanks Tomboy - your words mean so much to me. A kinder gentler world sounds like a great idea. Thank you again sister.
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hugs too Lucy! I am just now post menopausal and due to start rads soon and am on Effexor. I did a trial off of it last summer and my family politely informed me I might want to try it again. Back on and feel much better with hot flashes and mood etc. Now that I finally feel good, I am nervous about getting on the endocrine meds post rads. esp since just 25 % pos. We are all in this together sistah ;0)
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Thanks Pat - your post brought a smile to my face! Family can be so subtle - Not! Thanks again!
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farmerlucy,
I live in OK, too, and the endless rain is dreary.... over 18 inches in the last month -- apparently, it's some kind of state record. When I first started Zoladex and aromasin, I felt moody, moody, moody. I think I was missing my estrogen, too. Finally, I asked MO for an anti-depressant. She prescribed Celexa, which seems to be doing the trick. She also suggested exercise. I love swimming, but I'm just a few weeks out of rads and RO has to look at my burnt boob first. He wants to make sure that the skin is healed enough before he lets me go in chlorine water. So, my exercise has essentially involved walking around the block with my kids, who like to stomp in the puddles. Hope you feel better soon!
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Lucy, I second what ElaineTherese said about exercise!. I have been off for a week due to Lx recovery and am noticing what a difference it made for me! I am marking this thread as a favorite so please post again to let us know how you are doing or if you want to chat.
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Thanks so much ladies. It is just such a luxury to put this out there to someone who gets it. I increased my Effexor a couple weeks ago so maybe that hasn't kicked in yet. The sun did come out for a bit and we took the pack of beagles for a walk. I'm currently reading "What Alice Forgot" I think I shall strive to be like the old Alice and just go with the flow more. I appreciate you all so much. Hugs all around!
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ahhh, Lucy, I feel you.
What a harsh reality we awaken to, after all our tx. Those freakin pills are the icing on the cake. I am on Tamoxifen so it differs. Thank gawd I also on lexapro, or surely the hot flashes would be killer.
My former carefree life is well gone. Never will I not again think of my health. Now, it's not if, but when the recurrence will happen. Used to be NEVER enter my mind. I'm a realist, not a debbie downer, but so many of our sisters here started just like me. Why should I be special? Mostly though, I am aware of my aging which seems accelerated. Aches, pains, ugh.
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Farmer...My secret to feeling good? Exercise...that is, taking long walks each day, whether it be by myself or with friends. Reading. Treating myself, kindly and gently. Really! And that means not looking at myself too closely in the mirror. Comfortable shoes! If my feet hurt....I can't think straight. Music...definitely calms my spirit. Family....oh how I enjoy looking forward to being with family and then returning home and letting only the good memories warm my heart. Amnesia...choosing to forget my hurt feelings, wrinkles and whatever else SHOULD bother me...but I won't! And finally. ...You know what should really get you out of the dumps????? Volunteer. Tell me, Farmer....what is it that you really, truly would love to do that would fulfill your soul? Do you love to garden? Do you love to drive? Do something for others! Volunteer to drive cancer patients to treatments. Join a botanical society and cultivate the land and cultivate friends along the way. I love to read...so I became a literacy volunteer. Volunteering fulfills my heart and eases my pain.....make a difference and you will see how emotionally empowering it is.... And if that doesn't work....make an appointment with your team and tell them you need help. By no means are you alone....speak up!
I'm sending you very gentle hugs....
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Awww Jill I'm so sorry. You know I'm sending you many many cyber hugs. Wish I could make it better for you.
XOXO
Nancy
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@Nancy - you already have my friend, you already have.
@VR - you are one of the wisest women I have never met. No really I value every word you write. Thank you now and always. My heart's desire is to spend time @ the farm w all my crazy animals. And this I will do this week. I def do need to ease up on myself. Volunteering is a good idea. Hmmm thank you.
@ Bibby yeah you really hit the nail on the head with the aging thing. My swollen knee and stiff joints make me feel ancient.
Tomorrow is another day and I'm gonna put one foot in front of the other. Thanks again everyone. You are all so dear you me.
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(((farmerlucy))) - I don't have any words of wisdom but wanted to say you are in my thoughts and prayers…you have been so much support to me and others on the boards, I hope we can be here for you now…it is tough, so many changes to deal with…I was looking in the magnified mirror to pluck a few stray eyebrows - ohhhhh, that was a mistake!! Where did all these new wrinkles come from - YIKES! Geesh, I miss my estrogen too:(And then there is the fear of the unknown - once blindsided by this beast it's tough not to look over my shoulder wondering when I'll get blindsided again. But I have decided not to let it steal any more of my life by taking over my happiness and occupying my thoughts, not one more minute and that helps make me feel more in control. It is a constant battle but it boosts my mood at least for a moment in time. Hang in there…(((Hugs))) Maureen
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Thanks Maureen! I so appreciate your words. I'm much better today thanks to all my caring, supportive sisters AND a great nights sleep
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Farmer...thanks for your kind words! Glad you got a good night's rest and are feeling refreshed!
Here's a link to the benefits of volunteering! And, by all means, if you decide to volunteer, keep me posted!
http://www.pointsoflight.org/blog/2012/08/27/seven...
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Ah sleep....really hard to have joy when you are struggling to keep your eyes open.
My list is similar to VRs. I exercise enough to feel great about the way I look. Exercise also lifts my mood and clears the brain. So it keeps me on my game.
I make a "to do" list of fun items and things I need to accomplish personally, and then do them. I have done this for the past 20 years. I do 3-4 adventures each summer. Just got back from a weekend consisting of a 5k canyon run, followed by vineyard camping, followed by a gorgeous cycling event in another canyon. Wine and great food in between all this. So fun, and the most glorious scenery imaginable. (Posted pix on the exercise thread.) Notice I am staying close to home this weekend as realized I needed to catch up.
I have been buying most of the coffee at work recently (very small office). This was in self-defense, and much better tasting than generic cheap that someone else was getting.
I am now three weeks past all AIs and all medication. Biggest change is having more endurance, and I think a need to sleep as my body adjusts the other way. I think my skin is looking better too.
On having a slightly altered appearance....I wholeheartedly recommend paying a good cosmetics counter a visit where the ladies have training, and then having a makeover done. We do look different post treatment, and need to update accordingly. So unless you never wear makeup, this is an absolute must. I recently completely changed the way I do my eyes, so much better/much more chic-looking now. And I almost always wear a fabulous lip color when I leave the house.
Feel better soon Farmer Lucy. I came through this experience not wanting to squander the extra time God granted me on this earth. So I am in high gear. So while I have a bit less money at this stage of my life than I planned, my life and career are infinitely richer.
Which reminds me....I need to plan my next adventure. - Claire
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Ugh, me too. It's noon and I am still in bed.
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Will do VR.
Claire - you are an inspiration! Planning some adventures sounds like a great idea - DH would fall over if I did, so maybe I'll just do that! Even though I am over three years out I read about the Look Good Feel Better seminars on another thread and a friend and I are going in June. I think it'll be the boost I need.
Deb - that's what a holiday is all about - more ZZZZZs!
Oh look more rain is coming in, huh. Our average year is 30 inches of rain. We've already had over 20 this month. Guess I'll paddle on out to the farm and feed the Clairabelle (donkey) and Hershel (goat) and all the barn kitties . . .
Repeating hugs all around!
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Lucy - I hope the Effexor is kicking in. I felt the same way this time last year - had been on Tamox for a number of months and could feel myself starting to sink - avoid people, stay in bed, etc. I added Effexor to the mix and genuinely feel better
Petting a donkey, goat and a bunch of kittens sounds like good therapy too. Are there some nearby friends that you can call on to get you out for a walk or a movie or something fun?
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Can I come and live in your barn with the kitties! We can make goat yogurt, yum! And a donkey?!? How fun is that?
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Thanks Ridley - yes they are GREAT therapy!
Tomboy - YES - come on over! They are so much fun, and they are also excellent listeners. We have four rescue dogs at our house in town and one of the mixes goes with me everywhere. I always tell folks my coworkers are a lazy dog and a dumb ass.
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I love that. A lazy dog and a dumb ass.
I found a light box in amazon. I think that made a huge difference this winter. I've gone back to Effexor. Sleep is crucial. Everything is worse when you're tired or hungry.
I joined a Zumba class. Love the loud music and just laugh at my lack of coordination.
Good luck with the volunteering.
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Oh Lucy...I know just what you mean.. I am just sick and tired of being sick and tired !!!!! My body misses the estrogen ALOT !!!!!. I compare it to driving a car with no oil..only goes for so long. I think the worst is, I used to be so upbeat and full of energy and now I just don't feel like doing much of anything. I get up , go to work, come home, read or watch TV and do it again the next day. I used to go to the Y and exercise every day, and have gotten out of that routine. I know I need to get back into it, I will feel much better. I think right now I am in a pity mood. I will get myself out, I just need to give myself permission to feel down and then get myself back on track. -
I also miss oestrogen, I feel worn out all the time and aged, some days I take an hour to get moving as I am so stiff everywhere.........the phrase no joy is one I have used........I miss me.........I am so much more irritable too..getting to the point where I am thinking of stopping it for a couple of months, going to argue it out at my next appointment
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I feel as though I've fallen into a 'cancer pit'. I finally gave in and started reading 'A Life Interrupted' which is more cancer. When I first came home from the hospital I read 'Breast Left Unsaid' and yesterday I found out the author died on May 18. I identified with her for some reason so it's like I'm mourning!
I have read everything I could find on Arimidex and told the Oncologist I wasn't taking it. There is an alternative I'm going with. I have arthritis and cannot walk at all sometimes, with bad knees. I had a heart attack in 1990 and the Cardiologist thought it was a sudden blood clot, so I think Arimidex is out for me, because those are the most often mentioned side effects. I am nervous about that decision, however.
Most of all, even though I have a stage 1 diagnosis, I'm just freaked out with cancer. On my Mother's side I have 36 first cousins and 6 aunts and there is not a single cancer case except me. So I find out that my father's genes could be passed to me and that all his sisters and all their daughters have died of breast cancer. Wow. My husband says that it seems I have the desire to leave the planet and I feel like I do. I have no place I can walk without driving, we only have one car, and I've lost interest in sewing. And I only want to read about cancer. -
nestle17: I read somewhere that 80% of women with bc have no family history of any kind of cancer. There was no cancer of any kind in either of my parents families so I was absolutely stunned to be dx'd with it.
Please find some type of exercise that you like to do...for me, it's jogging on a mini trampoline as my elliptical was too tiring. Am sending happy positive thoughts your way...
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I am with you there, Nestle. I have read so much about cancer, cancer bio's, info. Somehow it helps me to know thine enemy, I think. I am finally starting to get a little joy back almost three years later. But that may be because I took a three month break from femara. And now I have started up tamoxifen again, so I know that one will eventually depress the hell out of me, it did when i took it a year ago. My bod doesnt like any of em I have tried. Hang in there.
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I second the lightbox. I got mine for less than $100, and it has really helped. We are going through the same rainy period in the upper Midwest. It rains pretty much every day. I had stopped using the lightbox because spring was here, but then I realized we didn't have much sunshine, so I have resumed, and it helps.
I agree also the idea of finding little daily activities you love to do and do them for yourself. Mine are walking around a local lake, putting music on in the car and singing loudly, pulling weeds and planting flowers, going to lunch with my friends. I also found it helpful to notice activities that downgrade your mood and stop doing them. For each person, these things will be different, but no reason to put yourself in a bad mood.
I hope you feel better and I hope the rain stops!
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I'm definitely getting a light box.
Six weeks post ooph and I am back to living. Effexor is good stuff. Hard to imagine a life without PMS but I am looking forward to it.
You ladies rock! I encourage anyone else who has misplaced their "joy" to post here. The support found in the community is incredibly heart warming.
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Not to mention being able to wear white jeans without worry. Just the most glorious evening here. I had a busy day driving over 100 miles each way to a Brain Cancer Walk as a board member of the organization I do work for. I am so glad I went as we needed a presence there. I had someone join me on the road trip, so I showed her the coast line and Skagit Valley on the way back. She had never seen them.
I think I scared her to death when made a fast turn into a side road at a place selling eggs. Then stopped at the butter place.
We had lunch with two other people in a town called Fairhaven....very done up and great fun. I will definitely go back.
Dinner ahead and an early evening.
Speaking of joy, saw a guy rabbit chasing a lady rabbit during my run about an hour ago. Think there may be more than enough "joy" to go around here.
Glad you are feeling better, Lucy.
P.s. One of my less "joyous" occasions in my life was with my goat I had when I was 8. I took her out for exercise in the early spring and was rewarded by her dragging me through about 100' of rocks, dirt, and manure. But at least she didn't get loose. Still a memorable experience. - Claire
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Sounds like a dreamy day Claire. Thanks for sharing. I had to chuckle about the goat dragging. What funny creatures they are. My goat is the funniest guy. Talk about joy - we should all be as happy as Herschel the goat.
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