Genetic testing back/double mastectomy next

PreK, nice to meet you and I am glad you found this website. Genetic testing has become so important, and can reveal so much about us and what could possiblybe ahead. I know you have some big decisions ahead. I hope you get good counsel, good advice from your medical team. My thoughts are with you.

I had a hysterectomy at 47 (would have had it much sooner if they would have done it), for fibroids. It cured my anemia, which was great. Kept the ovaries. My bad. :P

My breast cancer was dx'd 10/2014, and I had double mastectomy 11/20/14. In February 2015, I had a biopsy that showed thyroid cancer (papillary), and had thyroid removed on 3/9/15.

I'm going to the genetic counselor on 5/19/15. My breast surgeon told me about PTEN. Then the medical oncologist told me that they could test the tumors directly. She said she'd order it, but I'm unclear as to whether that order was actually placed.

I know I'm older, but I had always planned to have bilateral should I ever get diagnosed with cancer. When they actually told me though, I decided to investigate all the options. I'm really glad I investigated; and I'm completely happy with my decision to stick with my plan.

I am glad you have a plan and are at peace with it. Hugs to you

Hi! I just found out that I have the BRCA 2 gene. I was wondering why the docs said you can't get both surgeries this summer? I'm a teacher too, and I'm concerned about schedules as well. Also, are you getting the reconstruction done at the same time

Hi there, this is the first time I have posted anything about what I and so many of you are going through. I am recovering from my hysterectomy which was in April (last month) and I have now scheduled my double mastectomy and reconstructive surgery in June. I guess it really depends on the doctors in regards to scheduling of the surgeries, as I am having both surgeries 10 weeks apart. I like you just wanted to get them out of the way. I am doing all this because I was diagnosed with BRAC2 R2520X (7786C>T) Deleterious Mutation and have first degree and second degree relatives who have had breast cancer. I found someone else on this site with the same mutation. It's like finding a needle in a haystack.

Welcome CFAF, hugs to you!

Hi everyone, I tested positive for BRCA2 "suspected deleterious". I called Myriad and was told that due to not wanting to take any of it lightly they view suspected as the same as deleterious. My paternal aunt passed of breast and ovarian cancer at a young age. My paternal 2nd cousins both had mastectomies. I have been doing surveillance for about 3 years after I found a lump (benign) in my right breast but after another scare (this time ovaries and uterus) I have scheduled the ooph but not feeling so strongly that I will actually go through with it. I am not sure what is holding me back. I am 46 and am playing the gambling game in my head over maybe getting a few more years in with my ovaries. My Dr. is ok with me having 6 mos check ups to screen for BC by having mammo/MRI with the feeling that if detected early I can opt for mastectomy then however, she feels the ovarian cancer is too risky to "sit and watch". Does anyone else have a suspected BRCA result?

Thanks Meadow, great photo, love the hair!

I am still waiting on the results of my BRCA testing. It has been over three weeks now. There was a delay due to insurance paperwork.

PreK, what test did they run that found your mutations?

Peace and healing,

InStitches

hi Jane I'm 39 years old last year I T found out I was Positive for braca 2 gene I have a large history Of BC on my mothers side my mum was Diagnosed when she was 37 and was already stage 3; after speaking to my doctor and discussing with my family I choose to have a Double breast Macecotmy With Extended LD Reconstruction I had my operation on the 17th of june 2015 and hopefully have a hysterectomy in August .