Is it possible to lose weight while on Tamoxifen?

Options
2»

Comments

  • DianeNYS
    DianeNYS Member Posts: 34
    edited May 2015

    As of today, I've been taking the med for 6 weeks and 2 days, and have lost more weight: weighed in at 124.8 this morning, reaching my goal of 125!

    I'm lowering my goal to 120 lbs. (my Dr. says I can go to 115 lbs. and be healthy; 120 works for me, though); I've been lowering it by 5 lbs. each time I reach a goal, which has kept my morale intact and excites me each time I reach a goal and can lower it again. 

    I'm gaining the confidence that even on this med, by being diligent about what I eat and logging every morsel, and by exercising faithfully (1 hour or more on my rowing machine for 5 days/week if possible), I will be able to reach my next goal and then maintain. At least that's my story and I'm sticking to it Winkingimageimage

  • grammakathy
    grammakathy Member Posts: 407
    edited May 2015

    good for you Diane! I methodically lost weight while on Arimidex and then a switch to Tamoxifen. I cut back portions, cut out all desserts and sweets, drink tons of water and use a pedometer. Unlike you, I had a lot more weight to lose (50#) and still want to lose another ten pounds this summer. I've maintained my loss since last summer and will try again. We head to Washington in our motorhome and I walk more and eat less when we travel

  • DianeNYS
    DianeNYS Member Posts: 34
    edited May 2015

    Thanks, grammakathy Smile

    I do drink tons of water, too (add a half of a lemon each day to the first 32 oz., then leave the squeezed lemon in the water for a less pungent "lemonade" for the subsequent 32 oz.+), and sugar has been out of my diet since 1999, so no "real" desserts or sweets since then. I make them all myself, and they are less "dessert" or "sweets" but sugar-free delicious healthy treats that I measure, limit, and log so I don't go over my calories for the day (1329) or my preferred carb limit (25) for the day. I'm an obsessive type of personality, and I've been channeling all of my OCD into watching what I eat and drink, and logging every morsel. In some perverse way, this really has energized my mind and life. Go figure Winking

    I started at 150 lbs. on July 1st, 2014 (carb "creep" by using whole grains got me there, from my low at the time of 120 lbs., in 2005) when I freaked out at the scale and read "Grain Brain" and "Wheat Belly" and eliminated ALL grains, not just refined grains. The results were amazing to me (all of my sinus problems have disappeared; my GP thinks that my allergies were not hayfever but possibly grain/wheat-related instead). The day I started the Tamoxifen I was 129 lbs., so I've lost 4 lbs. since starting it 6 weeks ago--something I never would have predicted.

    I wish you lots of good luck with your own efforts this summer losing the last 10 lbs. You can do it, I'm sure, because of your lifestyle and dedication. I think it's good to document positive news on a thread about Tamoxifen (when it's true, of course) Heart

  • grammakathy
    grammakathy Member Posts: 407
    edited May 2015

    Diane - you are an inspiration!  I totally "get" that it feels good to have something we can control in our lives.  And Tamoxifex has been so much easier on me than Arimidex.  I can sleep!  Arimidex had me waking up at 2am and staying awake for hours.  Keep posting and we can encourage others and each other.

  • DianeNYS
    DianeNYS Member Posts: 34
    edited May 2015

    Thanks, grammakathy Heart And I'm so happy for you that your insomnia is now under control!

    Being in control of what I eat and how I exercise satisfies my OCD personality (logging my food and keeping track of my calories and net carbs fills that spot in me that needs to obsess about something in order to be happy)  and has the added benefit of keeping me healthy and feeling good, and getting into my "skinny clothes" as well...And it's amazing how many things I do or say now, don't aggravate my Husband anymore, now that he's mesmerized by my new persona (not just size and shape, but my new confident and happy attitude because I'm comfortable in myself and my skin again...)  Winking

    The hardest things to conquer were the plateaus and ups and downs of the weight loss; I lost the first 10 lbs. in the first 10 weeks of my new way of eating (and I'm sure that those were mostly water weight lbs.), then these last 15 lbs. took since last September to lose! I had to learn to not just give up and eat "bad things" out of frustration and anger at not losing, or even gaining, when I was doing everything "perfectly". Realizing that I didn't gain that 2 ounces or even 1 lb. or more overnight as fat, but that it was water weight having nothing to do with me being "bad", really helped me get a handle on all of this. And I just kept (keep) plowing through until the scale went down again. In fact, this 124.8 will probably become 125.6 or even 126.6 someday next week, and then will most likely go back down to 124.8 again (or even lower!) a few days later...The trick is not giving up and saying "Screw it! I'm eating anything I want today since I'm not losing weight exercising and eating the right way!!!!"  Happy

  • grammakathy
    grammakathy Member Posts: 407
    edited May 2015

    Diane - you are so cute and I love your spunky attitude! I don't have a scale with me all summer so it was a surprise that I had lost thirty pounds by when we arrived home last Sept ( a total of 50 pounds lost since my diagnosis in Sept 2013). I strive for consistency and eating healthy foods. What bugs me is when people push me to try something sweet. If my husband is there, I take a polite bite of his. The longer I don't eat sugar, the easier it is. It has no allure, but more of a cringe factor. How do you handle the pushy people?

    My husband has been really cute about my weight loss too. He calls me his sexy trophy wife - and I'm four years younger than him, and we have been married 46 years. Funny

  • DianeNYS
    DianeNYS Member Posts: 34
    edited May 2015

    Hahahahaha! My husband says that he's got a "hot babe" for a wife, and I'm only 3 years younger than him (I turn 62 this August), and we've been married 41 years just this month Happy

    I, also, don't eat anything with sugar in it, and when people try to tempt me with stuff like that (generally it's my Mother-In-Law, who takes it personally if you say "No" to any food she offers to you, no matter how bad it is for you!), I just say: "I'd love to eat that, but I've been off of sugar for so long, it will actually make me sick if I eat it; I'll get a stomach ache, headache, and most likely fall asleep and lose the rest of the day..."

    Not only does this work, but it also has the benefit of being the truth, so I can say that earnestly and confidently and matter-of-factly, and not feel guilty, even if it ticks her off Winking

  • grammakathy
    grammakathy Member Posts: 407
    edited May 2015

    Great comeback! It really bugs me when I feel obligated to eat something I don't want. That has been my focus during this weight loss. Something has to be "worth it" to me to eat it.

    I find myself craving tart, citrus flavors and crunchy textures like veggies. We live in SoCal and have orange, lemon and lime trees for the first time in our lives. I juice the fruit and freeze it in ice cube trays for salads and water throughout the year.

  • DianeNYS
    DianeNYS Member Posts: 34
    edited May 2015

    Oh, lucky you, grammakathy! I'd love to have access to local fresh fruits and vegetables on a regular basis. It would be so beneficial to my way of eating...Our "fresh" stuff during more than 6 months of the year are shipped pre-ripened and sometimes flavorless. I often think the vitamins and antioxidants and other healthy properties are undeveloped, as well. I'd really LOVE to have a lemon or lime tree in my backyard, or better yet, a peach tree that could survive our long and harsh winters...

    I, also, won't eat or drink something if it isn't beneficial to me and my health at this point. I won't "waste" calories or carbs on anything that isn't good for me in any way...Even if it would be beneficial to my state of mind, like a wonderful Belgian Waffle with fresh strawberries and loads of whipped cream, I'd end up deferring because of the calories, carbs and wheat gluten in the waffle (though I would scoop off the strawberries and cream and be happy in my mind with that Winking )

  • DianeNYS
    DianeNYS Member Posts: 34
    edited November 2015

    I thought I'd give another update, since it's been almost 6 months since my last post in this thread, and on this subject Happy

    I've continued to lose weight while still on Tamoxifen, and am now in the 117 - 118 lb. range, depending on the day of the week I weigh myself. I've changed my goal weight to 115 lbs. (a very healthy weight for me according to all of my many Doctors), and follow my calorie range with that in mind, but will be happy if I just maintain where I am.

    I still eat "right", drink lots of water and exercise 4-5 days per week, for 1 hour + 10 minutes per day (that just works for me Winking

    I've been on the Tamoxifen since April 15th, 2015, so it's been almost 7 months, and weight-wise, the trend has been continuously downward...My terrible fears before starting the med haven't been realized, and I'm thankful that it's just one less thing for me to worry about in my crazy life!

  • grammakathy
    grammakathy Member Posts: 407
    edited November 2015

    That is great Diane! I lost ten pounds this summer while we were in our RV in Washington. I am convinced that I have figured out a new diet plan for everyone. Take off in an RV and stock it with only healthy things. Like you, I drink lots of water and usually reach my goal of 7500 steps a day.

  • DianeNYS
    DianeNYS Member Posts: 34
    edited November 2015

    WooHoo, grammakathy! You done good ThumbsUp

    Your "sneaky" plan for you and yours sounds very conducive to good health and a healthy weight Happy

    I hope our success with controlling our weights while on Tamoxifen can help others who are afraid to start taking it for fear of gaining or not losing. Sometimes, gaining the weight doesn't have to happen...

  • grammakathy
    grammakathy Member Posts: 407
    edited November 2015

    You are so right Diane. We can do this. It has to become a priority for us because of our history of breast cancer. I don't diet - just focus on eating healthy foods. And since this is a lifelong commitment now, it's OK to eat foods I like, just in moderation. I wish I had started this process sooner in my life, but at least I started it now.

  • DianeNYS
    DianeNYS Member Posts: 34
    edited March 2017

    I thought I'd give an update about this subject, since it's now been almost 2 years since I've been on Tamoxifen. My weight has been in control the whole time; I've been maintaining at a weight of between 118 lbs. and 120 lbs. for the last year. I'd hit a low of 116 lbs. more a year ago, but that didn't last more than a couple of months...I guess my body isn't happy there, though I sure was Winking

    Now I'm dealing with the side effect of my endometrial lining thickening due to the Tamoxifen; I had to have a D & C about a year and a half ago, and my last 6 month I.U. US a month ago showed my lining thickened again, and just yesterday I had to have a biopsy (after the hysterosonogram the day before--YUCK!!!). My follow-up with my GYN is on 3/20th when I get the results and hear her recommendations...My hope is for just another D & C, but who knows? This is my only negative side effect of the drug at this time; all the others have dissipated.

    One good thing? I've found that I don't have ANY problems with intercourse since I've been on the Tamoxifen. No pain, no dryness, no burning, etc., which were the problems I'd been dealing with since I was 55 and way past menopause (at 48). I'm now 63...For that reason (along with preventing BC) I'm not looking for my GYN and Oncologist taking me off the Tamoxifen. I'm hoping the biopsy results suggest something I can live with {{{{{sigh}}}}}.

  • lala1
    lala1 Member Posts: 1,147
    edited March 2017

    DianeNYS--Just to let you know, I had a total hysterectomy 2 years ago for continued thickening of my lining. I had it done laparoscopically with 3 tiny incisions and everything, including ovaries and cervix, removed vaginally. I spent one night in the hospital and was off pain meds by day 3. I was walking 30 minutes total a day by my 2nd day at home. I was driving in a few days and back at the gym, albeit just walking on the treadmill, at 2 weeks. My doc cleared me for normal life at 8 weeks. It was the easiest of all my surgeries and I feel fantastic! I don't have any more bloating much less cramping and bleeding. And while I do still get yearly paps (because you still have a small risk) I feel I don't have to worry so much about reproductive cancers which really takes a load off my mind. Of course, your mileage may vary but I have to say the hysterectomy was one of my best decisions in all this BC stuff.


  • DianeNYS
    DianeNYS Member Posts: 34
    edited March 2017

    Thank you for your post, lala1...I will really use this information. I've been reading the topics regarding this subject today (which is why I'm back onsite; yesterday's biopsy and Monday's hysterosonogram have brought me to reality), and wondering just what I'm going to do. On the 20th, I want to be able to ask the right questions to my GYN about this, and I'm already taking notes. Your experience will help me with that. Thanks!

Categories